Musings Credited to Insomnia, Migraines, & Humidity

As I went over the feed for this month, I noticed the photo challenge is garnering a nice amount of attention. ๐Ÿ˜Š Possibly more than the inspirational things I normally share on a semi-regular basis. ๐Ÿค” I’ve also noticed that, each time I’m able to write, the statistics go up even further. Mind you, I’m doing all of this from my phone. Not too shabby. I am grateful to my readers and happy to report an increase in readership. All things taken into consideration, it’s pretty fantastic. ๐Ÿ˜˜

I’m going to expand the photo challenge for another month, perhaps two. After going through my photo albums, I realized I have so many beautiful photos I’ve neverย shared. I didn’t think anyone would care, really. They’re absolutely stunning in color, but there’s something about black and white that allows you to see a different layer of beauty.

Editing them and then saving them into black and white is a little time consuming, but it’s worth it. Can you believe this started as a seven day challenge presented to me about two years ago? Expanding it, if one is able to do so, and has the photos, is far more interesting. Especially since part of the challenge is in not disclosing the locations, yet many are obvious, like Yankee Stadium or the Empire State Building. There are iconic locations in many of the photos, and in others, you’d be hard pressed to pinpoint exactly where the photo was taken. Part of me was tempted to post the black and white AND color versions, because there’s so much beauty to be seen in the differences, but I think I’ll keep things as they are, for now. I might eventually disclose the locations of each photo. I haven’t decided yet.

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I’ve been having a difficult time sleeping. I have had a migraine for almost eleven days straight (after an extremely successful run of treatment, this feels like an enormous setback. Even better, the abortive I fought for isn’t helping. I am going to see if my doctor can get the brand approved since the generic is a little too different for me.), and it’s taking a toll on me. I’m researching a new medication (to me) and trying to decide if it’s an acceptable choice. I am hoping to enter the final phase of a clinical trial for PTSD medication, as well. I’ll know more at some point. I may or may not be permitted to mention the logistics if the drug isn’t already on the market. But hey, it’s worth a shot. I’m willing to try something if it can help me move forward, though I expect nothing.

My brother is scheduled for heart surgery next week. ๐Ÿ˜” They claim he’ll go home the same day (Healthcare in America. ๐Ÿ˜’๐Ÿ˜ ), but I have my concerns and suspicions. Obviously, I am praying for good results. ๐Ÿ™ย Otherwise, someone will be on the news next weekend. ๐Ÿ˜’ I’m probably voted “Most likely to kill a doctor” on a list somewhere. Most of them are smart enough to run in the opposite direction. ๐Ÿคท

I am trying to wrap my head around everything that’s been going on in my life and things that have directly affected my loved ones. There’s been sudden loss of life, which left my best friend & I in tears, comforting each other from thousands of miles away. In constant truth,ย G-d Bless her. I don’t know what I’d do without her or her supportive words. When you have a friendship which started out so long ago, it occasionally feels like “just yesterday”. The shared memories and history, the laughter, the tears, and so much more, are a bond of truth. You can wave goodbye to the flakes and fakes of the world when you have solid relationships with others; the kind that always grow and age like the finest of wines. The kind you’re constantly grateful for, because 2-3 times a day, you thank G-d for blessing you with a handful of solid friends. G-d didn’t see fit to give me biological sisters, but he placed some extraordinary people in my life, and it bears repeating; I’m constantly grateful. Keep in mind, friendship is 50/50. Sometimes it’s 70/30 when one of you is going through a crisis, and that’s okay because your bond ensures that the center will hold.ย 

Things are changing in positive ways. It helps distract one from the minor, negativity I’ve rid myself of. Eventually I WILL talk about it, but for now, I just want to focus on me. Not in a selfish or egotistical manner. Mostly in a head and heart kind of way, which I think is important.

And so, for the month of June, I’m done. I’m ready to move forward, keep growing, stay focused, and keep myself in a position to accept that I’m not a one trick pony. I do more than write; I create. I utilize that creativity and I’m SO glad I started filming and getting myself prepared for another phase. There’s a lot up the road. I am excited for it all.

Talk to you in July.

li

ยฉ 2019 by Lisa Marino and Blackbird Serenity, LLC. ALL RIGHTS RESERVED.

 

 

Tuesday Thoughts

Hello one and all. I hope you’re having a great start to the week.

My procedure yesterday afternoon went okay. I think I’ve just gotten used to it, though my anxiety was still pretty awful. Usually there’s an epic migraine and so much physical pain after this treatment that I come back, feed my cats, and drag myself straight to bed. Surprisingly, I didn’t feel as horrible as I normally do. Completely different side effects this time around. I wasn’t quite prepared to be slammed with nausea late last night into the early morning hours, but that’s what Promethazine is for. It helped quite a bit, and I did sleep, but today, I feel physically, mentally, and emotionally numb and exhausted as hell. I’m supposed to rest, not push myself too hard physically, etc. I felt overwhelmingly exhausted by 1:00 PM, and spiked a fever around two. ๐Ÿ˜” Hopefully it’ll be gone soon, otherwise I’ll call tomorrow since this has NEVER happened before. Is it a potential side effect? Yes. I’ve just never experienced it before. A few other rare side effects have popped up, too. I’m erring on the side of caution.

Traffic was mostly avoided yesterday, which was awesome. ๐ŸŽ‰ Boston’s tunnels make me feel like I’m in a James Bond movie and about to be shot at. Plus, they definitely mess with my head in the “sensory deprivation” sense. I was able to avoid returning with a migraine. My headache specialist is REALLY pleased with my progress. It’s helping my cervical spine tremendously, and since I was the first person to report remarkable results, she said, “Isn’t it amazing how, we don’t always know if something new will work, but we try it and we end up feeling so much better?” It nearly eliminated my daily neck pain and helped me reduce how many muscle relaxers I take. It has reduced my migraines by about 30-40%. I still get migraines, and there’s still pain to contend with, but they don’t attach themselves to my skull for 3+ weeks anymore. Going 21 days without a major migraine was shocking. Sadly, it takes a while to realize you’re not in agony every single day. Bear in mind, I still have Fibromyalgia to contend with, but help is help, and I feel relieved that this is something I might be able to stick with. ๐Ÿคž

I chose, from day one, not to disclose the treatment method because I was already being judged by friends and a handful of family members, and because, from a public standpoint, I wanted to see how I’d do before talking about it. No one wants to discuss another failed effort. The fact that it’s successful doesn’t mean it will remain so. My doctor has a backup plan should this fail at any time, and I am confident in both options. Until I’m ready to discuss it, I think it’s perfectly okay to keep it private. Thus far, I highly doubt I’ve run into a subscriber in the building, but you never know. ๐Ÿคท

I definitely feel blue today. I feel isolated, unsupported, stressed, and exhausted, but I’m trying to look forward towards better days. I KNOW they’re on their way.

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From Scratch

img_20190315_195918_668Two days. That’s all it took to completely erase me. My entire past and much of the present; things I’ve held onto tightly because I believed I had something in life worth fighting for. I still had hope. I believed in the responsibility. I believed in keeping specific things, and people, alive, and sacred. Now, I have to start over, with nothing but memories that take over my mind and torture me. How much trauma can someone with Complex-PTSD can handle? Step into my pain; it’s not a pretty or fun place to be. ๐Ÿ˜ฆ I’ve got zero hope left.ย 

Some people might relish the opportunity of a clean slate, a new beginning, or whatever one would call this hell I am trying to live through. Me? I feel completely dead inside, and no one directly around me allows me to talk about what I think or feel. They change the subject and talk about nonsense, or they only want to talk about themselves. It’s unbelievable how selfish others are. They “don’t want to hear it” if I have something to say, no matter what the subject may be. They ignore the suffering, they ignore the pain I am dealing with, and they show me how much they care…about themselves. Writing is the only place where my thoughts, views, and feelings are respected and/or accepted. You don’t have to understand it or even be able to empathize. You simply read, or not. I cannot hold it against you. There’s a lot to be said for pouring your heart into something and clicking PUBLISH. More often than not, I forget what I’ve said after that. Not because my short-term memory is that bad, but because writing is pure, honest freedom for me. Until I start receiving messages about how much my voice has helped others, I forget about a lot of the subjects I’ve covered over the years. I don’t know that this will help anyone other than me, but purging a tiny amount of the pain I am dealing with is not a selfish thing to do. Last time I checked, my name was on this platform. No one else gets to speak for me.ย 

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When you lose everything you’ve ever owned; including your family’s entire history, every photo dating back to pretty much the beginning of photography within your family, all of your clothes, computers and other assorted electronics, carefully chosen furniture, jewelry from every major life event, the one piece I had of my father’s mother, and everything that belonged to my mother and Grandmother. A myriad of pieces given to me to commemorate important life events. 99% of it from people who are no longer alive. Books I treasured, absolutely everything I held dear, because the majority of it was a part of who I am, and I’m left wondering how to pick up the pieces. It’s more than jolting. It’s traumatic beyond words. Only one person told me they would feel precisely as I do; hurt, erased, traumatized, in deep emotional anguish. If one more person says, “It’s just stuff.”, I will personally rip their eyeballs out and force them down their throat. Or worse. I have no clue why people think I’m a nice person and incapable of physical harm. Don’t test this Scorpion.ย 

As a direct result of this loss, I have to change all of my legal documentation. Someone immediately tried opening accounts in my name. Thankfully, it was red-flagged and I was contacted via e-mail and phone, but I don’t know if any damage was done before it was flagged. Someone stupidly said to me, “Who would want to steal YOUR identity?” Are you serious?! I don’t know how these particular criminals think because I’m not a criminal, but I don’t believe they give a damn about who they steal from. It can happen to anyone, and it does. Identity theft is something we all need to be protected from, and made highly aware of. This was something I was concerned would happen. Always, ALWAYS listen to your intuition.

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Every single day of this “new life” is a reminder of all the problems one faces as the direct result of others actions, and inaction. It’s a reminder of exactly where you stand in this world, as well as with the people in your life.

I catch myself thinking all the time, “What’s the point of all this? What the hell did I do to deserve such torture?” I’m the one in tears, living with doubts. I”m the only one deeply upset and troubled by this. And each time, I wish I simply wouldn’t wake up the following day, that a car would hit me, that something or someone will finally realize there’s only so much even a strong person can cope with before they are done. That’s where I am; Done. My life could not be more meaningless.ย 

Between this, and the injury sustained in January, who wouldn’t be done? I’ve got an idiot doctor who refuses to manage my pain (and clearly cannot be bothered to return a phone call. He is about to receive a strongly worded, unpleasant e-mail. By ordering a necessary test, he’s not doing me a favor, he’s looking for additional damage. He makes it sound like a negotiation. It isn’t; it’s my health, and my life!), so I am constantly throwing up because there’s only so much pain the body can handle, or so much stress. I can’t keep food down most days, and someone recently implied that I’m doing it on purpose; not eating. If you actually care about me, don’t EVER fucking insinuate that I have an eating disorder. 1) That’s not concern, that’s being cruel because you don’t understand what this level of physical, mental, and emotional pain is like. Ignorance is bliss. Be glad you don’t know, but don’t toss your ugly negativity in my direction. 2) Comments like that are hurtful, thoughtless, unnecessary, and do not meet the realm of “love” or “concern”. 3) Comments such as they are, are accusatory and full of hatred. Do those comments make you feel better about yourself? Are they necessary? Ask yourself these questions before you open your mouth. 4) A truly caring, loving person would be on my side. They would be so concerned that pain is doing this to me, and they’d be physically and emotionally present. They would show me their support. I’m pretty sure the FedEx delivery guy has more compassion for me right now. Yes, that’s sarcasm. 5) If you’ve said any or all of these things, you should be ashamed of yourself, because I am/was ashamed for you each time these barbs were thrown my way. You’re lucky I have the grace to walk away. That is a testament to the existence of a Higher Power. It’s a testament to a lot where my character is concerned.ย 

No one seems to understand how bad all of this is, nor has anyone been able to understand where my head is at. There’s no victim mentality in my mind, heart, or soul, this is simply me conveying enormous difficulty, as many writers do. I can’t even be “fake polite”, so what you get is exactly who I am. I don’t have the time or the patience to pretend. My life is not, nor will it ever be, “Instagram perfect”. There is beauty that comes from being authentic, from suffering and growing through the pain, and from being a person who would prefer to build people up, instead of constantly tearing them to shreds. Imperfect and honest is beautiful; don’t EVER let anyone tell you otherwise. ย  ย 

My anxiety is through the fucking roof. Almost to the point where I considered asking my doctor to put me on a higher dose of anti-anxiety medication or switch the medication up entirely. I am depressed beyond measure (Please don’t worry about this; I am under the care of a physician. He hasn’t called me an idiot to my face, and actually said he never would, but when he rolls his eyes at me, I KNOW I’m being an idiot and that he’s being incredibly diplomatic. I trust that this doctor has my best interest at heart.). I have no emotions; just anger, hatred, and a truckload of sarcasm. No one has really noticed. Everyone is pretending, or living on their own planet. and that’s insulting as fuck. One of my best friends pointed out that I’ve never not been highly communicative, even when my father was dying, During the worst shit in my life, I still took the time to listen to other people, no matter what is was they were going through. During some of the worst times in my life, I have helped others and they had no idea what I was going through. Again, this lends to character.ย 

When you’re going through awful things with damn near zero support, it makes things even worse. When a person has very little to wear, buying a t-shirt or a sweatshirt does not fix the profound loss of their clothing, sneakers, shoes, boots, etc. It’s a nice gesture, but it does not fix the long-term issue. It’s appreciated, but it doesn’t solve the problem at hand. Knowing precisely what is missing and how much I relied on my wardrobe hurts like hell. Granted, most of my clothes might not have been valued by anyone other than me, but I deemed each item critical. I take really good care of my clothes and have had many sweaters and sweatshirts since junior high. Now? Now, I have little to nothing. I would have to do laundry every few days if I was constantly out of the house because I don’t have enough of any one item to go more than a week or so without washing mostly all I own. In the past, I could have gone months without doing laundry and still had something clean to wear each day. Sometimes, I think that is an American luxury. ย 

Initially, a few people (friends, mostly, and one family member) offered to help. They said, “Put a list together and we will try to help however much we can.” I was genuinely touched by that offer, but then I did the math on the “list of replacement items” and deemed it unfair to ask other people to fix MY problems. I’m not selfish. I’m desperately trying to figure my shit out. I know I will be able to replace certain things slowly, but the big stuff weighs heavily on my mind and breaks my heart. It’s like someone walked up, stabbed me in the stomach, and took my soul along with the knife. I mean hell, I cried over everything that was once in my kitchen. Priceless items that were passed down to me. I’ll never be able to get these items back. They were NOT “things”, they were history. No one deserves to have their history erased.ย 

For the evil people who have my belongings; I hope you understand karma. You took away the last shred of my hope and faith. I hope you rot to death, because people like you are walking cancer and your level of evil does not deserve to exist. Evil does not deserve to be saved, to be rescued, or to be loved. It’s wholly deserving of punishment. And yet, we rarely get to see truly evil people receive their punishments in life, do we? A friend recently mentioned seeing someone’s downfall and laughing about it. I’m not cruel enough to laugh, as she did, but I would, on occasion, like to see justice. Mostly, I just see repeated injustice and I don’t want to live in a world where this is everywhere. I’m waiting for the phone call I am sure to receive when my previous engagement ring is pawned. It is laser inscribed and would be very hard to cut down. The second anyone sees it, they’re not going to want to touch it. They can, and will, end up in jail. It is insured by my ex-fiance’s family and they are aware it is missing. They wanted me to keep it because they were never going to approve of another woman. The stone has been in their family since it was first cut over a century ago. I was once very proud to be wearing it. Life changed, but I am hopeful the ring will be returned to them. It was never truly mine, but I valued it and took exceptional care of it. ย  ย 

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When I left Pennsylvania, I did so with just two framed photos: One of my mother, Aunt, and Grandmother, and another of my Grandfather and I as a baby. My baby book is gone, along with all of my baby photos. Pictures of me holding my brother and photos of us through the years. Thousands of photos which marked half of my life, my entire career, and it’s all gone. Same for my brother. Unlike me, he doesn’t seem to care. He’s got clothes and other things to keep him going. I do not. I’m barely making ends meet at the moment (I had to turn down a lot of work that came my way these past few months. I cannot sit for sixteen hours editing any more. My lower back is a disaster and my neck flares up from stress in five minutes.) and there’s a lot of financial pressure on me. If prostitution was legal, I’d be on a street corner tomorrow. I’m not joking.

I have nothing to go back to, and nothing to go back for. I have been erased. There’s nothing left of me or for me.ย 

I have to say that in all this personal horror and pain, the kindest thing someone did for me, a perfect stranger, was find an autographed first edition book from one of my favorite authors (I had an extensive collection of first edition books from authors I admire, respect, and whose work I absolutely love. I loved those books like some people love their children, and I took exceptionally good care of them. They were on shelves in my living room, in alphabetical order. All of my music and DVDs were also in alphabetical order. Yeah, I’m a bit of a freak. Live and let live.) and have it shipped to me. I was so stunned by this gesture of kindness. When I opened it, I immediately shed tears of shock, and felt such overwhelming gratitude because, again, this person doesn’t know me, and yet, they treated me with such sweetness and generosity of spirit. I will NEVER forget the gesture and I will absolutely pay it forward.

I was raised to always lend a hand, always help friends and family when you are able, and NEVER keep score. I’ve helped people even when I wasn’t able, because sometimes all a person needs is to be heard and understood. Sometimes, a person needs to know they’re valued. I have no such knowledge at the moment.ย 

I feel utterly abandoned by the vast majority of people who claim to love and care about me. Everyone claims to be “so busy”, but if you have time to post selfies non-stop and be obnoxious in general online, then you have five minutes to check in with someone and make sure they’re okay. A text message is a quick means of communication when you don’t have hours to spend on the phone. My days of spending hours talking to anyone via phone are dead and buried; I don’t even think I like enough people to want to spend that much time talking. I don’t have anything of value to discuss. At least not at the moment. ย 

If I don’t answer someone, it ISN’T because I am busy. Sometimes I am, and I’ll reply to let you know that I am indeed busy and not ignoring you. Time gets away from me very quickly these days, but it doesn’t mean people aren’t on my mind or in my heart. Other times, my silence is the only thing keeping the other person from having to breathe through tubes. Thoughts don’t hurt, but my hands around someone’s throat is a whole other ballgame.ย 

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A little over a month and a half ago, an incident occurred and as a result, I asked several close friends if they perceived me in a negative light. I used very specific words when I asked the question. Most people openly said, “Absolutely not.” and one encouraged me to “Always be myself.” One friend, who I thought so highly of, gave me a reply that was hurtful, insulting, rude, and disrespectful. I would like to think she didn’t mean to come off like that, but I refuse to make excuses for people. Once you say it, you can’t take it back unless it’s within thirty seconds and comes with an epic apology.ย Think before you fucking speak. After reading what she said multiple times, I decided that it was best to keep my mouth shut. To discover that a close friend is secretly judging you behind your back is extremely hurtful. If she wanted to play games and/or pick on someone, she chose the wrong person because I can hit you and I will always hit harder. I’m exactly as advertised; not that nice.ย 

When a person has stressed positivity to you and comes at you with immense negativity, not only are they a hypocrite of the highest order, but they have clearly forgotten all the times you have blindly supported them. They have also shown you their true colors. They’ve been unmasked and there’s your ultimate sign. Her comment made me think of all the times where I had momentary judgments I pushed into the far corners of my mind because I don’t like being the girl who is judging her friends. In moments like that, I keep my mouth shut. I work really hard not to be that kind of person, because not only is it unattractive, but no one would want to be friends with someone like that; someone secretly and cruelly judging them. Especially me. Suddenly, I wanted to remind her of every single lapse in her judgement in her life on this earth, as opposed to my rare lapses. I’m not tooting my own horn, I’m just sharing my honest thoughts. You can be honest without being cruel or hurting someone intentionally.ย 

There is always a way to answer someone and NOT be hurtful. It’s called TACT. I know, because I specifically ask people if they want the truth or if they want my opinion. I give them a brief way out because I know at times, I can be quite harsh. Most times, people don’t want the truth at all, they just want to be told they’re right when they’re wrong. Still, there’s always a way to talk to someone without deeply hurting them or permanently damaging a relationship. Always.

What I found most interesting about this particular situation is that I’m not a big sharer regarding my personal or professional life. I could have twenty kids and no one would know, including my family. People have often said I’m the best person to share things with because I will take something they’ve told me to the grave, and that is true. If I don’t trust you completely, I will keep you at a distance where it pertains to my life. I am not an over-sharer. My best friend once thought I was mad at her because I replied with two words instead of a paragraph to a text. I wasn’t mad, but she’s right; I’m wordy. However, in that moment, two words seemed like the appropriate response and we easily cleared things up once I told her that I’ve never been mad at her. Not ever. She is a rarity because usually people screw up with me at least once. In the 20+ years of our friendship, I have never been mad at her, angry, etc. We don’t fight. When you have healthy friendships, there’s no need for nonsense. So for someone to say I am “surrounded by drama” was extremely hurtful. There’s a level of blame in that comment, and I don’t take kindly to it.

I am solely responsible for how I behave. I can not be held responsible for the actions, words, or behavior of others, be they friends, family, or a random idiot who wants to hurt/harm you because they have unresolved personal issues. They are not my problem or responsibility. I don’t have to take the abuse of anyone, regardless of who they think they are in my life. Chances are, if you’re being or have been abusive towards me, you mean less than nothing in my mind/heart/soul. If that was your goal, bravo.ย 

I’m not perfect, nor have I ever claimed to be, but I’m not a horrible person, either. I don’t wake up each morning with a list of people to hurt and/or insult. That’s not who I am and that is not the message I want to spread. If I’ve said something publicly about someone, like a doctor who treated me in a horrendous fashion, for example, then please know my comments are wholly warranted. There are a myriad of situations in which I will speak up and speak out, but I only speak when I know I’m right. If I feel I might be wrong, I keep my mouth shut. I’ve always felt like that was the safe, smart option; keeping your mouth shut when you’re uncertain cannot harm you, nor can it harm anyone else.

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So here I am, suffering, struggling to remain alive, asking for nothing because I know better, and there are only a handful of people who are not attacking me almost daily. When a person suffers from any form of illness and has said to you, “There is too much pressure on me. Please stop. It will be handled.”, but you keep pushing and pushing, to the point where the other person is about to explode, then you are part of the problem and you won’t get your way by continuing to push. It’s important to back off when a person has given you a boundary warning. It’s even more important when I’m the person warning you to give me space in which to breathe. Piling more on top of someone, especially when you have zero idea what they’re fully going through, is wrong. If you want an extraordinary amount of respect, then you have to be willing to give it, in kind. If you want to be hated, keep piling on the pressure. It will almost certainly involve a trip to the emergency room…for you. Once I lose the ability to care, and this has happened a few times in my life, I shut down and I feel absolutely nothing for the other person. They could suddenly be on fire and I would have no reaction whatsoever.ย 

I feel like much of this comes back to not being a big sharer. I don’t have the trust to give anyone. Some people earn it. Some people you automatically click with, and others you work hard to try with, but you shouldn’t have to work so hard where trust is concerned. If it isn’t there, don’t force it. If you’ve spoken to someone for over six months and you don’t even want to see them, leave alone talk to them, then there’s definitely no trust established. It’s okay to admit that and move on. And sometimes, it might be someone you’ve known your entire life, and all it took was the wrong sentence or behavior, perhaps both, for you to shutdown and realize that you cannot dwell in their toxicity any longer. The person you owe the most respect to is yourself. I don’t ever want to lose sight of the fact that I am a priority, and that my thoughts and feelings are valid. Especially when I am so often told that I’m wrong. Statistically speaking, I cannot always be wrong. Again, there’s a reason I only speak when I know I’m right, so if you’re someone who wants to discredit my feelings and views, just plain fuck off. That is the nicest possible thing I can say to people right now. Be supportive and kind or fuck off. ย ย 

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I find it sad that so many people feel the need to show off every single aspect of their life, but will never share the darkness. They will never be honest about how hard things can be. Nothing in life is perfect. There’s no such thing as the perfect relationship, or the perfect marriage, or the perfect anything.

I have my battles and my struggles. I am open and honest about them. There are things I will probably never write or talk about because they’re so painful, I can’t even let my mind go there. I keep pieces of myself for myself, and there’s nothing wrong with that. It does not detract from my authenticity or how I explain things. It does not diminish me as a person, take away from my talent, or make me lesser. I work really hard not to dwell in the dark and the places of pain, but it is not easy to throw yourself into the light. Some days, as always, will be better than others.

Today I stand here as someone who reached out to her doctor when her medication seemingly failed overnight, and made me sink into suicidal thoughts and feelings. I know he will get back to me. It is important to have a doctor who is on your side and who is objective enough to hear what you’re saying. As someone who spends more time with me than most people, I would like to get to a place where I don’t have to constantly be in his office. Especially since my OCD slipped one day and told him I desperately wanted to paint it (his office). Interestingly enough, he agreed with me and has since asked me about which colors would look best. Yes, I find that funny, but I actually appreciated that he didn’t take offense.ย 

A few months ago, when I first used the word “erased”, someone asked if I felt that way “in this room”, and they meant in the room with them. I said no, but their behavior has dramatically changed and I feel like it’s time for them to either get with the program or it’s time for me to move on. I am good with either option. I guess I’ll know more about that next week, and in the many weeks to come.

I am sad, depressed, hurt, and trying to rebuild myself and my life. People look at me and have no idea how much of a mess I am. And many have made it clear that they do not care. It’s important to know who does. I’m not looking, but I AM paying close attention.

I’m doing my best. My mother always told me that my best is always good enough because it means I am trying. So for the person who doesn’t think anything I do is right, are you good enough? Not so much. Not from where I’m sitting.

I’m starting from scratch, like a newborn. This time, it’s all going to go quite differently.ย 

P.S. Before I forget, thank you to anyone who was involved in my being named an “Inspiring Writer of 2018” and an “Inspiring Writer to Read”. It means so much to me and my heart just bursts from the messages and feedback on Twitter and Instagram. Let’s go for a three-peat, shall we? ๐Ÿ˜‰ ย 

copyright ยฉ 2019 by Lisa Marino & Blackbird Serenity, LLC. ALL RIGHTS RESERVED. Written work by author may not be shared or posted anywhere without express written consent from the author. Excerpts and quotes from the material also require consent. This authorsโ€™ work and personal photos are protected under U.S. and International copyright laws. Further protection is under the Digital Millennium Copyright Act. ALL RIGHTS RESERVED.

I Heard…

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This quote is basically my new norm. I had to make a serious decision this year regarding my health, and ultimately I had to choose to make my health my first priority. There was no one to consult with on that. No one was going to prioritize it if I didn’t do it myself; a basic fact.ย 

Here I am at the end of November, still focused solely on my health, and a list of goals I’d like to achieve sooner rather than later. I am determined, but I’m also exhausted, sleep-deprived, in serious pain, and trying to be strong through all of it. I am currently on a steroid taper for a skull-flaming migraine. I barely know my own name after the past 48 hours, so bear with me.ย 

I see my stats and I know I am writing less here. Well, I’m posting less, but please know I am still writing. I’ve got multiple posts in the pipeline (one needs fine-tuning before it goes live). My time has predominantly been spent going to and from the hospital, to testing, to doctor’s appointments, and I’ve had two in-office procedures done this year where my migraines are concerned. The next one is in ten days, except now I know some of what to expect from it. No, I am not taking a CGRP drug and for the foreseeable future, it’s not on the table as something I would personally consider, nor has my doctor mentioned it as something she’d be willing to prescribe.

I’m grateful for the handful or so of good people and their AMAZING office staff, who have been incredible to me this year. From May to present, I have been deeply blessed with the people who’ve been taking care of me, who’ve listened to me, those who are my treating physicians and are proactive about it. We live in a current medical climate where doctors often behave in such a superior manner that you contemplate kicking them, just to see if they’re human. I REALLY lucked out with two of my physicians. I have a lot of respect for down-to-earth doctors who treat me like a peer and/or treat me with the respect I deserve as the sufferer. Not everyone can master this, but two of them have, and it makes me feel like there’s a real team behind me for certain things. When your doctors actually encourage communication and they always make sure their staff is being good to you as well, it’s a nice feeling.

For all of the medical issues I endure, writing has been a constant in my life at all times. I don’t stop thinking, speaking, believing, or writing the truth; not ever. I can step into fictitious worlds I’ve developed when I want to, but for the most part, I’m going to live in the truth and keep that steady.

I will be featuring more medical pieces going forward, but I will still share other views, as well. I’m not changing as a person (I’m growing. There’s a difference.), but I am thinking more about the overall message I want my readers to receive.

In short, I am wishing you all a fabulous, healthy, happy, safe holiday season. I’ll be back with some good talking points ASAP.

liย  ย  ย ย 

This Changes Everything

Authors’ Note: POTENTIAL TRIGGER WARNING

If you cannot handle an honest take on life and discussions of depression and mental health, please do not read below this image. Thank you.ย 

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It didnโ€™t set in until this month.

The majority of my days are Groundhog Day-esque. Lather, rinse, repeat. Dull. Uninteresting. Zero challenge involved. Over time, this method of โ€œlivingโ€ has worn me down. Iโ€™ve kept silent, but today I feel the need to say โ€œI HATE IT. I hate everything about it.โ€

A little over a year ago I sat in full blown tears when I realized there was never going to be something in this world to cure me. With multiple diagnoses which are highly comorbid, I remember trying to hold back the tears by saying, โ€œI canโ€™t cry. Iโ€™m wearing $30 mascara.โ€ I tried blowing it off. I tried using humor. I failed miserably, and no one noticed.

As someone who unintentionally fell into advocacy, fueled by my rage post the ER visit from hell that I still canโ€™t fully talk about without going into the โ€œred rage zoneโ€, I spend a lot of time fielding questions and phone calls, dumbing down information for people so they sort of understand what Iโ€™m saying, and doing my best to help others. All while Iโ€™m dying inside more and more each day.

This past Spring, a nurse got in my face and asked if I was suicidal. I replied multiple times with, โ€œI have a therapist. Iโ€™m fine. Thank you.โ€ and ignored the question because, quite frankly, it didnโ€™t pertain to why I was there. If I come into an office with pneumonia or go to Urgent Care or the emergency room with a broken bone, do NOT ask me if Iโ€™m suicidal. It doesnโ€™t pertain to the injury or illness at hand, and medical professionals should NEVER scream and/or get into the face of someone who has a trauma history and a clear-cut diagnosis of any form of PTSD. If I had reacted by physically harming her (I romanced the idea for a good twenty minutes or so.), I would be in the wrong. I would have looked like โ€œthe mental patientโ€, or worse. By pulling myself together and reminding myself of who I am, that bitch still has a face. For now.

โ€œMental illnessโ€ is a phrase I loathe using. Itโ€™s a phrase that is incredibly hurtful to me, and always has been. Perhaps because it is so often said in fear, in blame, with malice, or with false empathy, Iโ€™m not entirely sure. I prefer to say โ€œEveryoneโ€™s brain chemistry is different.โ€, which is accurate. I could probably get at least one doctor to agree with me on this.

I have openly and honestly discussed my battle with a difficult form of depression. For me, it is virtually un-treatable, so they refer to it as โ€œTreatment Resistantโ€. Iโ€™ve failed more than twenty-five medications, and this year, I failed another. I just started taking something new (to me), but itโ€™ll be a while before I know if it helps or hinders. My first dose definitely affected me and the side effects after the medicine left my system were not high on my list of โ€œLetโ€™s do this everydayโ€. On one hand, I am lucky because my doctor is trying new things and he has challenged us both with his commitment.

I also suffer terribly from anxiety, Complex-PTSD, and chronic migraines. Two of these diagnoses are hereditary. My headache specialist happily informed me that since my father got occasional headaches (I inherited my pain threshold from him. My father wouldnโ€™t take so much as an aspirin unless something was bordering on emergency.) and my mother had a few migraines in her life, that I most assuredly inherited my migraines from one side of my family or perhaps both. This was nothing I didnโ€™t already know.

Everything that makes me unique, smart, sharp, tough, witty, snarky, and a bad ass stems from at least one or two of my collective diagnoses. It does not make me better or worse; though people would love for you to believe anyone with different brain chemistry is going to either cause you harm or harm themselves. We are treated as lesser. We are labeled and ostracized. Within my own family, Iโ€™ve constantly been told I have nothing to be depressed about. Iโ€™ve experienced both exclusion, ridicule, and have seen everyoneโ€™s true selves. And yet, I see signs of various mental illness in a great many of the very same people who sit in judgment of me, feeling superior because they would never cop to their diagnoses, if asked. They are in denial, and I used the words โ€œmental illnessโ€ for them because I have never seen anything special or unique about any of these individuals. I have never thought, โ€œWow. This person is something special.โ€ When people describe me, it is usually in a positive light and the word โ€œincredibleโ€ is often used. It is interesting phraseology, but Iโ€™ve also been told I โ€œjust want attentionโ€. What crazy, delusional person would say such a thing? Fifty percent of my genetic make-up. ๐Ÿ˜ฆ I canโ€™t take this person too seriously. If I did, theyโ€™d never walk, talk, or breathe again.

People often underestimate me, and they absolutely underestimate my ability to come back when challenged. If I counted how often a person has said Iโ€™m โ€œso niceโ€, โ€œso sweetโ€, โ€œthe kindest soulโ€, and/or โ€œso caringโ€, I would be richer than Bill Gates. These are not words Iโ€™d ever use to describe myself. The inability to read non-verbal cues is apparently something many people either choose to suffer from or simply donโ€™t realize theyโ€™re doing. If you spend two minutes looking me in the eye, you might catch a glimpse of the real me. โ€œShe may be small, but she is mighty.โ€

My mother once told me Iโ€™ve had the most interesting facial expressions since the day I was born; that she knew I was not only looking at someone, but I was also looking through them. She told me, โ€œYou see people exactly as they are. Not as they pretend to be. Sometimes, that scares people away, but itโ€™s only scaring the wrong people away. The right people will always stick by you because youโ€™re incredibly loyal.โ€ When I think about those words, I can almost hear her voice again.

I have my moments. I can certainly be nice, sweet, kind, and caring, just not all on the same day, lest I ruin my reputation. ๐Ÿ˜‰ I have limitations on how much niceness I spread around.

My physical and emotional pain is completely invisible. Unless I mention it, no one would ever know, and thus far, only one person seems interested in understanding the complexities of it all. I donโ€™t have a lot of facial expressions. Iโ€™m predominantly quiet, unless I have something to say. And youโ€™ll often hear the word โ€œformidableโ€ used in the same sentence as my name, providing the person is smart enough to grasp the fact that Iโ€™m not passive.

When other people talk about various forms of mental illness; OCD, anxiety and/or panic attacks, bipolar disorder, trauma, or personality disorders, they tend to be shocked by my openness and honesty. I suffer silently and I suffer alone. I have ceased to discuss it with family because I question their concern for me. Itโ€™s been a long time since Iโ€™ve felt someoneโ€™s concern was genuine. No one has EVER taken a call from me when I was in a crisis situation. People donโ€™t call to check in on me, either, but theyโ€™re very quick to dial my number over the slightest thing bothering them, and I find myself exceedingly annoyed by the ridiculous questions I get via text almost daily. Loyalty, compassion, and the ability to be emotionally present are the things I provide, but theyโ€™re also the things I am not provided with.

So, it took me all this time to realize I am passively suicidal. And despite knowing this; people have consistently said or done something this year to hurt and upset me. My thoughts, feelings, and overall health has never been taken into consideration. No one has ever said, โ€œMan, sheโ€™s going through so much right now. Sheโ€™s fighting for her life. Iโ€™ll wait to talk to her about this until I see sheโ€™s feeling stronger.โ€ My suffering is almost completely ignored. I wish people could see how horrible this all is for me and not attack me. I wish they could take my suffering into deep consideration; not as an excuse to avoid a discussion, no, but as a solid reason to know how close I am to the edge.

I canโ€™t remember the last time someone asked how I was doing and it wasnโ€™t someone in customer service. I canโ€™t remember the last time someone genuinely cheered me up. I wish someone would understand how much pain I keep contained. Iโ€™ve never used my health as an excuse and Iโ€™ve never hidden behind it, but I often think people forget Iโ€™m human. The fact that I openly declared being passively suicidal should be enough to get friends and family to sit at attention. I canโ€™t tell you how many times this year I truly believed my life was just moments from ending.

Because it was something I felt I needed to do, I went back into therapy last year. I was seeing someone once a month, and that particular situation worked well, until the therapist left the hospital she was affiliated with. She let me know well in advance, and even when she told me, it wasnโ€™t a shock or a surprise, but it then took me time to find someone new. I saw two people, initially. One I automatically deemed โ€œtoo youngโ€, and I donโ€™t mean chronologically. I mean in the sense that I didnโ€™t feel she was prepared to genuinely assist me. She immediately got under my skin in a way that let me know she was not a good fit, and I also felt incredibly uncomfortable in the building her office was in, and the surrounding neighborhood felt unsafe and emotionally charged. I shouldnโ€™t be going anywhere if I have to second-guess my personal safety. The second person was okay, but when she pissed me off in two separate sessions, completely twisting my words and practically stabbing me in the hand with a few of her questions, I was hesitant to go back. I mentioned it to my doctor, sort of in passing, and I appreciate the fact that he looked at me and said โ€œWhy are you trying to force it?โ€ Beforehand, I felt bad. I never want to waste someoneโ€™s time, but he said the perfect thing to me in the moment, and there was nothing about his tone that bothered me. If anything, I was relieved that he knew me well enough to say something. He helped me get set up with someone in the same office, and thus far, things are going well. I feel like sheโ€™s got a good head on her shoulders and, because I laid all the dos and donโ€™ts down in the first appointment, she has been good about letting me take point on how I want to proceed. She feels sheโ€™ll be able to help me, but she has no idea how hopeless I truly feel.

In the past when Iโ€™d read about how people were pushed by friends and family, or maybe one more than the other, into suicide attempts, it appalled me. I would think to myself, โ€œNo, not my family. They love me.โ€ But the truth is, people like the idea of me, especially in passing, but love is rarely found in my life. I have friends who likely have more combined love for me than twenty family members, but my family would all deny this. It took me a long time to understand that love means different things to different people. Anyone who ever loved me unconditionally is long gone, and the pain of that sits deep within me.

I often hear people say โ€œI love you.โ€ in passing. Itโ€™s the end of many phone calls, but it means more to me than it does to other people. To me, it is a truth, or I wonโ€™t say it. There are many ways to say you love someone. It can be by helping them through difficult shit, or telling them to drive safely. It can be so many small and large things, and yet, I feel so devoid of it from people. My cats display more love when they look at me than most people ever could, yet I know many people are quite fond of me. Itโ€™s a short list, but I donโ€™t doubt any of the people on it.

Inevitably, once this is published, I will get texts, e-mails, and a few phone calls. This will happen either all within a few hours or over the course of a week. People will ask me questions, pretend to be interested in whatโ€™s going on in my life, etc. I will also be accused of writing about each person in my life specifically, be accused of placing targets on their backs, as if Iโ€™ve got the time to psychoanalyze all of them and as if my readers are going to attack them physically in the streets! It is ridiculous behavior, but at least theyโ€™re all consistent. ๐Ÿ˜ฆ Iโ€™m supremely honest, so I MUST be targeting them. I mean really, the world seemingly revolves around a LOT of fucking people whenever I speak the truth. Itโ€™s baffling, to say the least.

All I want are some good days. Good moments. No pain. Iโ€™m desperately trying to survive this life. Iโ€™m tired of crying, something I almost never do. Iโ€™m tired of the emotional abuse. It is a horrendous burden to bear, especially when someone tells you youโ€™re not being abused, or that you deserve every last ounce of hatred and vitriol a person can spit in your direction. I understand being upset or angry, but Iโ€™m tired of it being taken out on me as personal blame. Every time it happens, I reassess my life. No one should have to fight this hard just to stay alive.

Itโ€™s important to talk about feelings. Itโ€™s important to work things out of your system. Unfortunately, writing this was not a purge of emotion. This is an explanation of my daily life. It is slowly killing me, and those who know me refuse to see it.

I didnโ€™t know until this month. I didnโ€™t know how completely unimportant I am to people who should always have my back. Iโ€™ll stop here, though, because the emotional wounds are deep. Iโ€™m not sure there are enough sutures on the planet big enough to fix all the emotional harm that has come my way. But Iโ€™ll be damned if people donโ€™t start backing off.

When you canโ€™t see past the tears, and canโ€™t breathe without feeling spikes in your chest, passive turns to aggressive, and absolutely no one is more determined than I am once Iโ€™ve made a decision. I need love and support right now, and if the people in my life canโ€™t provide safety and a calm, quiet place for me to exist, then I need to stop being the dutiful family member and friend and prioritize nothing else except my own desires.

I know now, and this changes everything.

copyright ยฉ 2018 by Lisa Marino & Blackbird Serenity, LLC. Further protected underย the Digital Millennium copyright act. ALL RIGHTS RESERVED.

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The Value of a Headache Specialist

https://americanmigrainefoundation.org/understanding-migraine/value-headache-specialist/

I waited nearly six months to see my new neurologist, who is one of the top headache specialists on the East Coast. People drive from other states just to come and see her, and they do so out-of-pocket. For someone to say “I drive to Boston from Northern Maine four times a year to see her and she is worth every minute of those trips.” is an immense commitment. Not the first person to say they travel a long distance to remain under her care, either. Some people fly in just to see her! She shrugs it off, because to her, she’s just doing her job.

I liked her right away, which does not happen often for me. She’s tough, no-nonsense, and instead of playing the “Let’s try this.” game with me (which last year’s neurologist did, all while telling me my insurance wouldn’t pay for the treatment method he wanted to go with, when I said “They absolutely do. You just have to put in for prior authorization.” he behaved as though he didn’t understand English. I’m glad he was a flake because his douche-baggery led me to a really gifted physician, and ultimately, the day I returned, I was put back on a path to health, so ultimately, he did me a favor.), she got straight to the point, declared the best possible treatment option for me, and assured me it should work. Why? Because she, too, suffers from migraines and undergoes the same treatment. Her assistant is an angel who took care of all of the legwork with my insurance company. The day I met her, she said it might be a few months because she knows she’s “very backed up”. For once in my life, the stars aligned; I got into my treatment plan in three weeks, all because someone cancelled and I called at the best possible moment to find out if my insurance company had come through. They did.

I actually saw the bill for this treatment today and was really surprised at how inexpensive it was, overall. When I consider all of the doctors I’ve seen for migraines, all the different medications I’ve been on (one of which costs $400 a month.), the MRIs and CT scans, and supplements I’ve taken from day one as a migraine patient, I am certain the total cost amounted to one year attending an Ivy League school while living on campus. I wish this particular treatment option had been covered all along. I am grateful for the chance to A) Have a solid doctor on my side overseeing my care, and B) Have insurance that covered the full cost.

If anyone needs a headache specialist in Massachusetts, I am happy to refer you.