Modern Medicine Fails People With Chronic Pain

https://www.wired.com/story/modern-medicine-fails-chronic-pain/

This is not dissimilar to stories I have heard and things I have personally experienced from age eight into adulthood.

This story is adapted from The Song of Our Scars: The Untold Story of Pain, by Haider Warraich.

Chronic Insomnia & Trying To Combat Terrorism

I only have a few days to recalibrate before I have to force myself to function like a “normal” human-being. I can’t exactly walk into multiple doctor’s appointments and fall asleep, though that might help the message sink in for some of them. I’ve been trying so hard and today I failed. Epically. I hardly even know what day it is. All I know is that I was in bed last night by 8:45 PM. I was up after 2:00 a.m. due to pain and my cats waking me up, all upset. I couldn’t get the pain to calm down, so I waited for lidocaine and a muscle relaxer to kick in. Once they did, I was out like a light, and I stayed that way. That’s the most disturbing part; I remained asleep and would not have woken up without having a twelve pound cat jumping up onto my head, then to the floor, then back up. She finally made an alarming sound which jolted me awake, and I found myself feeding my cats and trying to figure out who/what/when/where/why and how. I still feel shaky and out of it. Then I saw the news, and I was sick to my stomach.

I’m sick and tired of being sick and tired. But I’m also sick of the violence directed towards Israeli citizens. Yes, it’s the only Jewish state in the world, but it is also home to Christians, Druze, Muslims, and people of other faiths. Every year, during Ramadan, Arabs attack in completely unprovoked ways and they kill people. Whether they themselves live or die, their families are then paid for the rest of their lives as long as a Jew was killed. That’s YOUR tax dollars, no matter where you live, paying a terrorist and their family. How does that make you feel? Are you sitting in comfort over your vote(s)?

For me, I don’t judge based on party affiliations. It isn’t my business and I don’t feel that politics should decide who my friends are, or aren’t, but the murdering of truly innocent people? Yes, that’s my business because those are my people. I would love to see the reaction of people all over the world if Jews suddenly took to the streets with guns, knives, swords, and other illegal weapons and just started taking people out. Here’s the truth; THIS WILL NOT HAPPEN. We’re civilized. We value life. We don’t have “Pay For Slay” programs, because we aren’t sick bastards. We are not evil. Let’s face it; terrorists are evil and they have no religion.

My prayers are with the city of Tel Aviv and those who lost loved ones and have injured loved ones. My prayers are with every single person who had to check in with family to make sure they were safe. Thirteen Israelis have been murdered in less than two weeks, and all I am seeing from the people I know is silence. It makes me question so much about people who claim to be activists or to care about humanity at large. You’ve chosen to leave certain groups out of your activism. That’s selective racism. I am paying attention.

While news comes in from those I know who ARE speaking up, I will experience another night as a chronic insomniac. Worrying about family and friends in so many different countries, all at once, is shattering. I’ll be close to my phone, hoping and praying for news that doesn’t kill more of my soul. Perhaps I’ll even get some work done, and yes, it might be the “too personal” kind, but certain things need to be said and I’ll be damned if I don’t speak up.

Setting my personal health issues aside, of which I’ll have to face some of them next week; I am a writer. I will always be a writer. It just so happens that this time around, the writer is pissed off. Never piss off a writer. We’ve got a way with words. Well, some of us, any way.

copyright © 2022 by Lisa Marino & Poison In Lethal Doses, LLC. ALL RIGHTS RESERVED. Poison In Lethal Doses®™ is a registered trademark.

Slow, Agonizing Death

This tweet could not be more accurate.

For the past few weeks, I’ve been dealing with daily, intense migraines. The app I use actually reminded me that I’ve had a migraine for over sixteen days straight. I don’t normally get them for weeks at a time any more, so my head, face, jaw, spine, and neck HURT. These types of migraines normally stem from rapid barometric pressure changes, and they can really screw with me from a functioning standpoint. Add in proximity to the ocean, and I am in trouble.

In two weeks, I go in for nerve blocks to try and get some relief from all of this. Each block goes into the current pain locations from my face right into my cervical spine. This will only be my second time getting them, but the high chance that the lidocaine will be out of my system in twenty minutes or less is disturbing. Using topical lidocaine patches has proven utterly useless. 😦

To add insult to injury, I MUST find a new primary care physician and hope that my pain can finally be properly diagnosed and addressed. There’s a strong likelihood the rheumatologist I saw misdiagnosed me. His misdiagnosis rate is about 90%, or higher, and my pain has since switched from full body pain (which is still present), to excruciating pain in my joints, especially my jaw, elbows, right hip flexor, ankles, hands, and every damn bone in my feet. I am legitimately too young for this much torture. Every day of my life is a negotiation in survival. I know I am not alone in this, but it certainly feels like I am. The more pain I’m in, the more my mental health declines. It is a depressing, vicious cycle.

Chronic Pain Awareness Month: Part II

I had x-rays done of half my body over the weekend. My results show nothing new (The radiologist was able to compare two to previous x-rays from 2018 and 2019.), and they completely denounce a phone diagnosis from late May; a diagnosis I did not believe for a second.

Even with natural pain remedies at hand, I’m suffering. They wear off so suddenly, you have no time to regroup. Despite having a prescription on hand, I haven’t touched it other than to verify the count. 😦 The deeper reality is: I have no idea when or if I will be prescribed pain medication again. I’m not “stocking up”, but I am saving them for “the worst”. The worst can be at a moment’s notice, tomorrow, or a week from now. It can be so sudden, so I am trying to be prepared.

My doctor is inconsistent regarding treatment methods, and he is out of the office this week. I sent him a brief e-mail letting him know I’d discuss this with him when he is back in the office.

Reading the x-rays was upsetting. Slight changes in the cervical spine, where I’ve already been diagnosed with arthritis. Slight changes to lower lumbar spine, where I was hit in the lower back in January of 2019. The radiologist recommended additional imaging and tests to rule certain things out. My doctor e-mailed a reply and glossed over this completely. He tried to say I have a pinched nerve; which did NOT show up on the x-rays. I came away angry, because if you’re going to make a claim like that, I want imagine to show I have it. I don’t want to be told I should, “Have a nerve block performed.” Where would it go?!

I’m tired. Tired of suffering. Tired of being in pain. Tired of the isolation. Tired of not being able to talk to too many people. And tired of the media hyping up ADDICTION in order to punish patients who suffer from chronic pain. I’m a patient. I have never used heroin, cocaine, illegal Fentanyl, ecstasy, you get the drift. I’ve never been attached to drugs; regardless of their status. But I do believe the DEA needs to get the fuck away from doctors and mind their own damn business regarding how patients are treated in terms of access to medication.

Every single day, I worry if I will be a device victim. Someone who is told, “We can put a pain pump in and refill it each month.”, in order to restore me to 25-50% quality of life. There are other things one has to worry about when a device is installed into their body; like leakage. I know people who’ve nearly died and had to sue the device company over the medication overdosing them, or not dosing them properly at all. Devices aren’t an exact science, despite what they will all have you believe. Their safety comes into question, and I know a lot of people with spinal cord stimulators who are waiting to have them removed because the device completely failed them. They are marketed as the “answer”. They are not.

I keep hoping for the right doctors, but today, I feel dejected.