Wordless

Of late, the few pieces I began working on for all of you have seemingly gone off the rails. I find myself triggered, upset, angry, introspective, and a myriad of other emotions. These are not emotions conducive to writing the truth. It requires me to take a step back, work on healing, and then move forward slowly, and with grace. I hope you can remain patient with me, and when I do share what I’ve written, that you will be able to really hear me in the words.

Last week ended badly, the weekend was so traumatizing, and I ended up heavily triggered Monday into Tuesday, without realizing it until I was ass deep in alligators. This resulted in me returning home from a medical procedure yesterday afternoon, and actually having a bad reaction for maybe the third time ever. I found myself huddled under a blanket, writing, shivering, and physically shaking. I had eaten, but hadn’t hit the right amount of calories because I was so nauseous. It carried over into this morning with more shaking. Hell, I am shaking as I type this, and I’ve eaten a balanced, nutritious meal over an hour ago. It’s as if all my muscles are trying to detach themselves from my bones. That’s the only way I can describe it.

I made a decision a few years ago, when it all started, not to share what I am going through medically. Mostly because I don’t want to hear people’s judgmental comments, or ever feel like I have to justify my personal health choices/decisions to anyone. Let me be clear: I will not validate anything to anyone. They were not in the room with me when I received the information and they were not there to balance the positives versus potential negatives.

I have already heard how people perceive this without ever realizing that millions of people benefit medically from some questionable options presented to them. It is life or death. It is quality of life over torturous agony. They are making such rude assessments, all while not knowing I am doing something smart in order to help myself. The very thing they are sitting in judgment over. Judge away; I know my truth, and I know the person I am.

The percentage of personal information shared here is so minute, yet often seems like a lot. It’s made me question how much should be shared publicly. In fairness, I know what I am doing and saying, and I only try to share what absolutely matters. There are boundaries, though. Sometimes more than I ever imagined I’d need.

I am going to take a bit of time to step back and breathe. I need mental healing time. I need to get some restorative sleep. I need to talk to my tribe and truly heal the physical and mental aspect of all this, because before long, I have to turn around and do this all over again. I have very little support, but thankfully a friend is moving a few hours away soon, and this will bring forth some happier times ahead. It’s time to explore and find a balance because stress is breaking me down from head to toe. I feel it in my body and it’s not good. The amount of joint pain I experience every day of my life is beyond excruciating, and there is no end in sight.

And so it goes… A small dose of Kratom. A lot of ice water. Arnica for the obscene bruising. Bed. Maybe I’ll feel human tomorrow. That’s an enormous maybe.

copyright © 2022 by Lisa Marino & Poison In Lethal Doses, LLC. ALL RIGHTS RESERVED.

Genetic overlap between metabolites and migraines

I share this as someone who was supposed go in for treatment this week. Fifteen minutes before I was to leave, I got a phone call letting me know my insurance had denied the coverage (after initially approving it). After three stressful hours on the phone, treatment was approved, but not for the correct day. I’ve had a migraine for over the course of several weeks, and I still have to wait until next week to see my doctor. That’s why I’ve been writing less here. I haven’t been well, or myself. It’s not just my migraines, but you get the gist.

The Thirteenth Year

May. The month of darkness. The month of flashbacks, nightmares, anger at being robbed of loved ones… It’s hell. I suffer silently; no one is particularly interested in what I have to say. I remind myself it isn’t personal, some people simply aren’t full-fledged human beings. C’est la vie.

Thirteen years ago tonight, my mother’s heart gave out. I got the phone call, “We’re trying to revive her, but…” The BUT was my mother’s DNR; a point of contention between us for years. I had power of attorney and I remember saying, “Screw the DNR. If she can be revived, you save her life.” An hour later and I knew. I remember looking at the clock, in pure silence, and knowing the exact moment when she left. When I received her death certificate, the time was not a shock, but it jolted me. My life was permanently altered. I feel like I’ve lived a nightmare almost every day since.

One of the most important messages my mother instilled in me was to ALWAYS be honest and speak up for my beliefs. I am not a passive, gullible, peace-keeper; I was built for war and educated argument. My mother knew, before I was born, that I was strong and a force to be reckoned with. That’s the kind of daughter she wanted; one who would always speak her mind, one who would not pretend, and one who wouldn’t take shit from anyone, because she’d know her worth and would not be afraid of walking into rooms and being a strong, powerful, determined individual. I suspect she got what she ordered. 😉

My parents taught my brother and I to focus on facts, and to know when we were being lied to. Not everyone is blessed with intuitive education. I was not taught to hate. I am an intuitive person with a mind which pays attention to details others might miss. Micro-aggressions, body language, any shift in behavior or verbal tone is something I will notice. I am grateful for these things, because I know other parents weren’t teaching such things, and because much of this knowledge has saved my life in many situations.

My mother was the best. I was blessed with someone truly devoted to her children, imperfections aside, because NO ONE is perfect. We’re all human.

I miss you. There are no words for the amount of pain I am still trying to work through. Time does not heal a damn thing. Not in this situation.

Not Quite

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I’m still not doing too great post-treatment. I’m either sleeping too little or too much, and the amount of pain I am in may last another 7-10 days. The plus side of this is that I was approved to start taking Nurtec. I’ll figure this out as I go, but thus far, I haven’t heard a single negative thing about it. Considering all the migraine sufferers in the world and the suddenness of the CGRP drugs being pushed through slightly over two years ago, only hearing positive things is a lot like finding a unicorn. I will know more when the hospital pharmacy delivers it to me in a few days.

Beyond this, I am trying to ease up on myself. As someone who is harder on herself than anyone else could possibly be, I’m trying to take it easy. I am trying to tell myself it’s okay if I can’t do something immediately. I have to tell myself that if I needed to sleep, then that’s what I should be doing. I’m about 20% less stressed since I started this mantra of putting less pressure on myself to get things done, but that doesn’t mean anxiety and stress don’t rear their ugly heads, because THEY DO.

Today was an epic fail. Initially, I couldn’t fall sleep, so I took medication my doctor prescribed, at a higher dose that we’ve talked about over the past month or so. It doesn’t always hit me hard (or at all), but this time, it put me down for the count. I was awake just long enough to drink a lot of water and ended up back in bed for seven hours. This was after getting roughly eight hours of sleep, so clearly, this dose is too high for me right now. I will cut the dose down and see where that takes me, but I’ve already discussed the fact that I detest relying on it every single night. In most cases, it’s a temporary prescription, but I’ve been on and off of it for the better part of eight months. I haven’t taken it consistently because I don’t want to be dependent on any medication. It is frustrating because there doesn’t seem to be an exact science to the dosing (for me). The goal was for me to be sleeping at night and have better days, but I can’t have better days if the medicine is still in my system and putting me back to sleep. In hindsight, I do think I needed that extra rest. The downside? I am worried about when I will, inevitably, fall asleep and wake up. I don’t have to be anywhere, but I do have a considerable amount of work to get done. I know it WILL get done, but for this week, at least, I have to ease up on stressing myself out and making my anxiety worse. It’s so much easier said, than done.

There’s no crystal ball to tell me how the next few weeks will pan out, but I am hoping, and praying, for better days. I’m not quite there, yet.

 

A Splash of Humor, A Heap of Honesty

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Started a post early this morning that isn’t done yet. When a migraine threatens to birth enormous puppies of agonizing torture through your skull, you need to sleep and hope it’ll help. Unfortunately, I woke up and it was worse, so I left a message for my doctor’s office to get back to me. My abortive drug is failing me, so maybe my doctor can recommend a newer one. I’m pretty fed up with her inability to return a phone call in a timely fashion. Over six weeks isn’t even remotely close to acceptable.

I will try to finish what I’m writing ASAP. I’ve probably made my decision already in terms of what to do and how to handle the issue, but occasionally I appreciate mild input.

Tonight, my major plan is to make dinner, hydrate as much as humanly possible, and go to bed before 10:30. I think that’s fair because I have so much to do and lost today because I’m sick.

It’s important for people who don’t suffer from chronic pain to understand that sick days are NOT an, “excuse”. I’ve NEVER used my illnesses as an excuse for anything. An explanation? YES.

If you’re an obsessive compulsive, Type A personality, you probably need to learn that you’ll catch more flies with honey than you will with vinegar. I don’t respond to outbursts, tantrums, and unacceptable rage behavior. I don’t respond to name-calling and accusations. Until I do, and then you’ll wish you hadn’t pushed this particular dragon. So when I say I’m sick and I’m trying to sleep, LET ME BE. My pain and suffering isn’t trying to inconvenience anyone. And if that’s how you think and you’re unable to comprehend true suffering, I strongly suggest you find yourself a good psychiatrist and therapist to help you work on your issues so you don’t dole out your tyranny over someone who is already doing the best they can. No one is implying you be a pushover, but pushing someone who is already sick enough means you’re adding to their pain. Is that REALLY who you want to be?

I hope you’re all well and doing the best you can given the circumstances. Today is day ten of my second round of quarantine. I pray this is resolved soon because this is a terribly unhealthy situation for so many of us. I’m glad to see companies stepping up to help with sanitizing and cleaning products, with producing ventilators, and all the people I know right now who are home sewing masks for their local or regional hospital staff. There are some damn good people out there doing their best.

Talk to you all soon.

Always,

lisa