Welcome to all the new readers, and those who’ve been with me for years or months. 🙂 I’m happy to greet you all.
I’ve been working on a piece about racism and my personal experiences with different forms of it, but mostly, I have started to notice just how worn out I am, which lends to me feeling completely useless. I am not sleeping well; and I am trying not to rely on prescription sleep medication because it either doesn’t work or it leaves me with sleep paralysis. I am burnt out, stressed about life and the future, thinking about all of my relationships, etc. I’ve been trying to allow myself the honesty of all of my feelings privately, which hasn’t been helpful, though perhaps I am too close to say if it’s helping or not. I do know there are abysmal highs and lows these days.
I will be taking some brief breaks for the next month or so. I don’t know if they will be obvious or not, but I think it’s necessary and needed. I think it’s time to get my head into some sense of normalcy and keep pushing for betterment. I hope you will all understand the reasoning. I will still be present, but there will be days when I’m not. I hope it’ll be fine, no matter what.
For the month of March, I will be focusing on a few charities in support of Colorectal Cancer and Women’s History Month. I also have my Goddaughter’s tenth birthday approaching. People always say, “You’re way too young to be a Godmother.” I don’t think they understand what an honor it is to be asked to be a part of a child’s life in such a deeply personal way. There is no age requirement or limit involved. It’s an honor and a privilege, and yes, it is also a responsibility. It says something about me, as a person, that people fully trust me with their child.
I will do my best not to be too “out of it” here, but will also do my best to rally. For now, though, this picture near a local trail says it all. I’m walking towards the color, because everything else feels too harming and bleak.
Wishing you all a peaceful week. Bright Blessings.
It has always been important to me to be transparent about my shortcomings and the strengths. I don’t try to pretty anything up. Too often, people pretend their lives are so perfect online, with perfectly posed, edited photos, but you never see the truth of what goes on behind closed doors because all they care about is the imagery. That’s not what attracts me to people or to their work. Honesty and humor attract me. Real humor; the kind that isn’t forced, that isn’t passive aggressive, the kind that is wholly natural. It takes a lot to make me laugh. In the past week or so, I’ve maybe laughed four times. Each time, my cats came to see what was going on. “Is she having a stroke? Should we get help?”, they probably wondered. Of late, laughter hasn’t exactly flowed.
As an extremely private person, I still know that being forthcoming about my suffering (From A to Z) has helped others get help, come out of their shells, talk, trust again… I know this because they have e-mailed, messaged, and shared these facts with me, even if it took them a few years to say anything. I didn’t know my voice would help people, but it has and it will continue to do so, because I know the power of using your voice for change.
Wishing you all a safe, warm, stress-free weekend.
P.S. I will be listing charities ASAP who are helping out with the crisis in Texas. Every penny helps. It took our government way too long to respond to the need for help, and our own people were forced to endure this without an immediate helping hand. It’s disgusting beyond words. It’s Puerto Rico and Hurricane Katrina all over again, and it is NOT acceptable.
I know people who are 6-7 days without power and who have no clean water. Power is being restored slowly, and many are afraid of what will happen when they return to their homes. Will the pipes have burst (A much more common occurrence in colder climates.)? Will they be able to return home safely? They have no idea what they’re walking into. They are NOT prepared for the kind of weather they got. Never again should states be lacking a strong electrical grid, not have adequate salt, sand, and plows for snow removal, etc. This is not being discussed enough! I’ll do my part and hopefully there can be some unity in this country to help where needed.
People assume you aren’t sick unless they see the sickness on your skin, like scars forming a map of all the ways you’re hurting.
My heart is a prison of, Have you trieds. ‘Have you tried exercising? Have you tried eating better? Have you tried not being sad, not being sick? Have you tried being more like me?’ Have you tried shutting up?!
Yes, I have tried. Yes, I am still trying, and yes, I am still sick.
Sometimes monsters are invisible, and sometimes demons attack you from the inside. Just because you cannot see the claws and the teeth, does not mean they aren’t ripping through me. Pain does not need to be seen to be felt. Telling me there is no problem, won’t solve the problem.
This is not how miracles are born. This is not how sickness works.” ― Emm Roy
I had x-rays done of half my body over the weekend. My results show nothing new (The radiologist was able to compare two to previous x-rays from 2018 and 2019.), and they completely denounce a phone diagnosis from late May; a diagnosis I did not believe for a second.
Even with natural pain remedies at hand, I’m suffering. They wear off so suddenly, you have no time to regroup. Despite having a prescription on hand, I haven’t touched it other than to verify the count. 😦 The deeper reality is: I have no idea when or if I will be prescribed pain medication again. I’m not “stocking up”, but I am saving them for “the worst”. The worst can be at a moment’s notice, tomorrow, or a week from now. It can be so sudden, so I am trying to be prepared.
My doctor is inconsistent regarding treatment methods, and he is out of the office this week. I sent him a brief e-mail letting him know I’d discuss this with him when he is back in the office.
Reading the x-rays was upsetting. Slight changes in the cervical spine, where I’ve already been diagnosed with arthritis. Slight changes to lower lumbar spine, where I was hit in the lower back in January of 2019. The radiologist recommended additional imaging and tests to rule certain things out. My doctor e-mailed a reply and glossed over this completely. He tried to say I have a pinched nerve; which did NOT show up on the x-rays. I came away angry, because if you’re going to make a claim like that, I want imagine to show I have it. I don’t want to be told I should, “Have a nerve block performed.” Where would it go?!
I’m tired. Tired of suffering. Tired of being in pain. Tired of the isolation. Tired of not being able to talk to too many people. And tired of the media hyping up ADDICTION in order to punish patients who suffer from chronic pain. I’m a patient. I have never used heroin, cocaine, illegal Fentanyl, ecstasy, you get the drift. I’ve never been attached to drugs; regardless of their status. But I do believe the DEA needs to get the fuck away from doctors and mind their own damn business regarding how patients are treated in terms of access to medication.
Every single day, I worry if I will be a device victim. Someone who is told, “We can put a pain pump in and refill it each month.”, in order to restore me to 25-50% quality of life. There are other things one has to worry about when a device is installed into their body; like leakage. I know people who’ve nearly died and had to sue the device company over the medication overdosing them, or not dosing them properly at all. Devices aren’t an exact science, despite what they will all have you believe. Their safety comes into question, and I know a lot of people with spinal cord stimulators who are waiting to have them removed because the device completely failed them. They are marketed as the “answer”. They are not.
I keep hoping for the right doctors, but today, I feel dejected.