‘There’s a lot of us out there that just can’t even get out of bed’: Living with crippling migraines

https://www.9news.com.au/national/migraine-pain-exclusive-symptoms-new-drugs-australia-mother-forced-to-give-up-job/2a86822d-4c9f-4970-8cc2-0fa505a169f4

Personally, the CGRP drugs I’ve taken have been a nightmare. One of my doctors said, “Your body isn’t a big fan of medication.” Not those that don’t fucking work!

For Your Consideration…

Working on half a dozen different things for the site. Unfortunately, I am plagued by a bout of migraines which aren’t responding to medication. I think this will be my last month taking Ubrelvy as a rescue med. 😦 Maybe my doctor will have another option when I see her in three weeks. I try not to use this stuff at all, but when a migraine hits and effects your neck, mouth, face, and the entirety of your skull, you’ve got to cut yourself some slack.

I feel bad that I’m not accomplishing anything today, but being coherent enough to write this is falling under the, “good enough” category I rarely, if ever, settle for.

Here’s an updated photo of Kitten to make up for my lack of words. She was being especially cute yesterday while I was working. I only came away from the altercation with two scratches (Her nails are currently longer than mine. Vet appointment in a week and a half for the terrors.) and a smack. She asks for belly rubs and then grabs my hand like she’s human. She doesn’t mean to hurt me. She’s quite gentle and sweet, really. Yet, like me, SHE BITES. 🙂

Have a good one. I’ll be back ASAP with something that is hopefully more interesting.

Migraines Are a Serious Problem. Employers Can Help

https://hbr.org/2021/02/migraines-are-a-serious-problem-employers-can-help

Even with a solid treatment plan that’s been in place for a few years, my migraines still plague me at times. I should be okay right now, but I’m coming off of nearly three straight weeks of intense pain and lack of sleep, so I’m in the state of waiting for the pain to return. Usually, my treatment nips long-term migraines in the bud, but this time, it didn’t. I am also on a new CGRP drug that I’m not especially happy with.

Brief Moments Of Joy

I’m having one of those days where I’m upset, angry, hurt, depressed, extremely sad, trapped inside myself, and trying to process each emotion individually. It’s easier said than done. Silent migraines have attacked a lot these past few days. They involve little or no head pain, but everything else makes you wish you could treat it without getting sicker. I’ve used everything from caffeine to try and break it, but now it’s anti-nausea medicine and hydration. I’ve never been so happy to have Lime Cucumber Gatorade in my life. Sounds like a bizarre flavor, I know. When you’re sick like this, it’s heavenly. If you’ve never found this flavor, look for it in a store that sells a lot of cultural foods.

Today, the lyrics from, “Soon You’ll Get Better” made me cry. As someone who doesn’t cry often, maybe I needed to? Maybe I connected too much. 🤷 And sadly, the reason why I connected are for two separate reasons.

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Thank you Target (who originally posted a delivery date of next week), FedEx, and Taylor Swift for the brief joy of #ReleaseDay. #Lover #DeluxeVersions 🎉

Tuesday Thoughts

Hello one and all. I hope you’re having a great start to the week.

My procedure yesterday afternoon went okay. I think I’ve just gotten used to it, though my anxiety was still pretty awful. Usually there’s an epic migraine and so much physical pain after this treatment that I come back, feed my cats, and drag myself straight to bed. Surprisingly, I didn’t feel as horrible as I normally do. Completely different side effects this time around. I wasn’t quite prepared to be slammed with nausea late last night into the early morning hours, but that’s what Promethazine is for. It helped quite a bit, and I did sleep, but today, I feel physically, mentally, and emotionally numb and exhausted as hell. I’m supposed to rest, not push myself too hard physically, etc. I felt overwhelmingly exhausted by 1:00 PM, and spiked a fever around two. 😔 Hopefully it’ll be gone soon, otherwise I’ll call tomorrow since this has NEVER happened before. Is it a potential side effect? Yes. I’ve just never experienced it before. A few other rare side effects have popped up, too. I’m erring on the side of caution.

Traffic was mostly avoided yesterday, which was awesome. 🎉 Boston’s tunnels make me feel like I’m in a James Bond movie and about to be shot at. Plus, they definitely mess with my head in the “sensory deprivation” sense. I was able to avoid returning with a migraine. My headache specialist is REALLY pleased with my progress. It’s helping my cervical spine tremendously, and since I was the first person to report remarkable results, she said, “Isn’t it amazing how, we don’t always know if something new will work, but we try it and we end up feeling so much better?” It nearly eliminated my daily neck pain and helped me reduce how many muscle relaxers I take. It has reduced my migraines by about 30-40%. I still get migraines, and there’s still pain to contend with, but they don’t attach themselves to my skull for 3+ weeks anymore. Going 21 days without a major migraine was shocking. Sadly, it takes a while to realize you’re not in agony every single day. Bear in mind, I still have Fibromyalgia to contend with, but help is help, and I feel relieved that this is something I might be able to stick with. 🤞

I chose, from day one, not to disclose the treatment method because I was already being judged by friends and a handful of family members, and because, from a public standpoint, I wanted to see how I’d do before talking about it. No one wants to discuss another failed effort. The fact that it’s successful doesn’t mean it will remain so. My doctor has a backup plan should this fail at any time, and I am confident in both options. Until I’m ready to discuss it, I think it’s perfectly okay to keep it private. Thus far, I highly doubt I’ve run into a subscriber in the building, but you never know. 🤷

I definitely feel blue today. I feel isolated, unsupported, stressed, and exhausted, but I’m trying to look forward towards better days. I KNOW they’re on their way.

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