Migraine & Fibromyalgia

http://www.thedailymigraine.com/blog/2014/4/4/migraine-and-fibromyalgia?rq=fibromyalgia

Technically, migraines were the second major symptom to indicate that I might have Fibromyalgia. Of course, the connections weren’t put together until later on, but now I know with certainty that everything I experienced was not “all in my head”. Thankfully, doctors know more now (some, not all) and they know that a lot of what we go through goes hand-in-hand. Those that don’t really need to take some CE classes and brush up on their knowledge.

Here’s What I’ve Learned

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2015 has been many things for me, but it’s hard, at the moment, to say it’s been kind. That would be a lie. Granted, there are pluses and minuses to every day, week, month, and year. It hasn’t all been bad, but it’s been hard times a million. We’ve all experienced this in some capacity or another, and if you haven’t, I assure you that you will, because that’s life.

This year my faith in people has been shattered. It wasn’t completely in tact to begin with, so you can only imagine what I’ve been through to say that and feel so strongly about it.

I’m done with people in the sense that they say one thing, do another, and lack the ability of being reliable and genuine. Not all people, but enough that I am disgusted on an incredibly large scale. I have a life to live. I have no time for ignorance, lack of empathy/compassion, and those who are intentionally uneducated in the sense of “Have you met my new friend, Google?” (Have Internet access? Good, then don’t be an asshole.) If you’re unsure of something and can research it, then I highly recommend doing so. If you’re simply being a vile person because you are ignorant of the world and the people around you, simply move out of my way. I have no time for crap, and I will roll over you. I might do it twice, to ensure my point has been made.

Sometimes bad things happen to extraordinarily wonderful people, and other times good things take the place of the bad. I have yet to see truly evil people get what they deserve, but I was always taught that I don’t need to focus on that because G-d has a plan for all of us that we simply do not see, or need to be witness to. If this is indeed the case, I’d like to get a move on because I no longer want to feel stuck, trapped, or tied to the wrong people in any aspect of my life.

This month alone I have experienced unparalleled tragedy, viciousness, & evil, of which I may never be able to speak of out loud, or in any capacity. These are things I would not wish on an enemy, and as far as I’m concerned, I don’t have any that I am aware of. People can think and say what they like; I don’t live my life perceiving others as “the enemy” or as competition. I stay in my lane.

I am exhausted (migraines & Fibro pain will do that to you), stressed, quietly introspective, and have been in so much pain that I’ve been at an absolute loss as to what to do about it. I can’t remember the last time I felt like a worthless rag, but it’s important to be honest when I do.

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Things are slow as I integrate Cat & Kitten. They’re doing so well together, back to being cuddle buddies, but OGK’s sugars are up, not good for a diabetic, be it a cat or a person, so I am trying to monitor him and his reactions without stressing all three of them out in the process. I want to see progress though, not setbacks. I want to see my brave, strong, smart girls thrive while we are here. Normally they are with me 24 hours a day, Kitten is often my writing companion, and that really helps me emotionally because they’re such good-hearted loves. For the past few weeks, I’ve maybe spent 15-45 minutes a day with them for a multitude of reasons. This weekend I am going to be organizing my clothes, so if nothing else, they will have more “Mommy time”. They’re always so happy to see me and I’m grateful that the diffuser worked for them because the move was a lot more traumatic than I thought it would be. I am very proud of them for traveling well and I’ve promised them that long trips are over for the near future. When I inevitably move again, I am not going more than an hour and a half away. My health simply isn’t that kind, and I physically cannot handle the stress or the emotion that comes with trekking around to that extent. I liked my life in the last state I called home. I loved the area and a lot of what kept me sane there are definitely things I miss, but I did not like these last few years, which took an immense toll on me in every imaginable way. I cannot allow that type of pain to re-enter my life ever again.

At the start of my move, Patient X went into arrhythmia three times and was rushed to the hospital. After 2 1/2 days, he was discharged with a lot more medication than he was given originally, medication I felt was crucial to his recovery, but man is that surgeon’s office fucked up! 😦 He’s healing. The surgical wounds are 90% healed, but all the other wounds he carries with him cannot be my responsibility any more. He visited for about ten days post-move, driving me absolutely insane. We fought more than anything else, enjoying maybe one or two good days the entire visit. The fact that he doesn’t seem to appreciate anything makes me feel as though I am dealing with an ungrateful, spoiled teenager. Neither of us was raised to behave in the manner in which he has been behaving, so as sad as it was, I was relieved when he left. Of course now, I’m worried. I said I wouldn’t be, but it just plain makes me sick to my stomach. Apparently he did not inherit the gene for common sense, so yeah, I’m going to worry. I wish he were 75% more like me and 95% less of an asshole. That is, indeed, a large request, I know, but one can still hope & pray that someone makes a drastic change in their lives and begins to see the error of nearly all of their ways.

I wish there was some kind of reassurance for me, but at the moment, I am doing my best to get through each day without focusing on anything too deep. Keeping my mind focused on the incredibly mundane is about all I can handle now.

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My goals for 2016 involve intense creativity & being selfish where certain things are concerned. I’ve never been selfish, but I’m making a list of “No’s”. Normally my “No’s” are: “No doing dishes, no washing windows, no dating actors, musicians, athletes, or anyone in the military.” (Yes, I have legitimate reasons for all that.), but I’ve expanded on the original list. Perhaps I’ll write about it up the road.

Another important goal is to completely regroup. I am unbelievably tired of being in so much pain. Here’s hoping & praying that quality health care and proper treatment is in my future so that I may avoid permanent damage. I want to be able to function at a higher level and I’d appreciate not feeling like a prisoner in my body. It’s bad enough that I do feel like a prisoner. My cell is roughly 5.4″, and I cannot seem to break free. 😦

If I am able to feel like a human-being on December 31st, 2016, then I will have achieved something great, though for now, my expectations are lower than dirt.

I want to explore this new town as soon as the ice melts. I would hate to slip and fall and have to call someone to meet me at the nearest emergency room because I don’t have a single pair of boots here. Sometimes a walk can do so much in terms of clearing your head and heart of negative thoughts, but since 20 degree temperatures and I don’t exactly mesh, I might have to wait for it to warm up a bit. I’m hoping people will be patient with me and understand that while I do have my priorities straight (Believe me, I wish I didn’t.), I’m not willing to sacrifice anything more that helps keep me sane. I don’t care how ridiculous it seems to you; let me live.

It is difficult not to feel damaged, bruised, and broken. I am reminded that I am strong, yes, but every woman reaches a point when she’d simply like to sit in a corner and cry. Not because she’s weak, but because she needs to get the rage out of her system. It’s healthy, cleansing, and allows you to move forward. I detest weakness in myself, so it’s either have a good cry or trial by fire. (I’m kidding…slightly.)

Whatever 2015 has or hasn’t given you, maybe you be blessed moving forward. If it was a painful year, much like mine, cleanse yourself now and don’t carry the bitterness with you any longer than is necessary. Set a goal, however little or much, and do your best. If anyone has anything snarky to say about your goal(s), by all means, tell them to bite you. That’s about as inoffensive as I get for now.

Whatever you plan to do in terms of celebration tonight, please be safe. If you’re going to be drinking, be certain you have a designated driver or plan to take a cab home. It is better to be safe than sorry. Also, put your phone away. Do NOT text and drive. (It’s one of my biggest pet peeves, but it is also incredibly dangerous.)

Wishing you all a fantastic, happy, and safe New Year! 🙂 Let the blessings commence. So mote it be!

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Darkness, Light, & Slowing Down

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My precious…

Hi everyone! I apologize for being too tired and too sick to write this earlier in the week. I’m trying to get used to being back online. I legitimately hadn’t turned my computer on since my post on the 13th. I saw no point in tormenting myself. My phone allows me to check what’s going on here, but it does not allow me to login and/or post anything. I haven’t figured decided if it’s something I’m doing wrong or if I’m simply too stupid to figure it out. Anything, even a combination thereof, is a strong possibility.

I’ve battled a lot of Fibromyalgia pain and migraines since arriving up North. Every single time the weather was supposed to be a certain way, my body was the indicator that things were about to change. The pain index is slightly higher here, so adjusting to that is going to take some serious getting used to. Factor in some super cold days/nights that have occurred since my arrival, and I’m lucky I’m not in the emergency room.

I’ve truly spent more time in pain than anything else. At the moment, walking is the single most excruciating thing I can do. I don’t have out-of-network benefits, so I have to get my insurance squared away here ASAP, lest I end up with an epic emergency room bill due to my traitorous feet. 😦 I will be shocked if I don’t have fractured or slightly more damaged bones in both feet. Well and truly shocked. To add insult to injury, I’ve had some pretty brutal migraines. I am torn between desperately wanting to eat everything in sight and not wanting so much as a bowl of soup because I’m constantly worried something will trigger a headache that I cannot cope with. I’ve been slowly nursing coconut water to rehydrate, but I keep asking myself how many rounds of medicine I need to take to be rid of this insidious creature. 😦

I feel much like I imagine a caged lion feels; pacing back and forth in an enclosure at the zoo. I suspect I feel this way partly because Cat & Kitten are currently in a separate room to give OGK (Original Gangster Kitty, which is clearly not his real name) time to adjust to having “roommates”. They need time to adjustment too.

The first run-in had Kitten jumping up onto a windowsill to gain higher ground from him chasing her, but she was so brave and I was very proud of how she handled herself. She did not try to hurt or attack him. During the process of that moment though, he scared Cat so badly that she slipped under a spot in a closet that led to the insulation in the roof. I had no idea if it led to other places within the house, so I was deeply concerned, but trying not to panic because cats can pick up on your anxiety and I did not want to make Kitten panicked as well. After less than 48 hours (which is a LONG time because she doesn’t meow), a handyman had to be called to remove panels so that she could be safely located. I was SO relieved after she came out of that hiding spot. I needed to hold her close to me and let her know that she is loved, safe, and that I have not abandoned her. Unfortunately she spent a few days hissing and spitting, so I had to move her to a safer location with a blanket, after getting her out from beneath a dresser and blocking all other access points to dangerous hiding spots. I lured her out with a few treats (I figured after not eating for several days, she had to be starving.) and a small bowl of food. I gave her some space and now she’s not hiding nearly as much. In fact, she’s coming down the stairs and checking the place out. Mostly, she is marking her territory and making sure everything I own still smells like the person she knows belongs to her. No one is cute enough for me to cheat on Cat and Kitten. 😉

The second run-in was the other morning when Cat went flying down the stairs while I was trying to go into the room to feed them and spend some time giving them love and attention. I decided the worst that could happen was her running back to me, which she’s done many times, only because I had things in my arms and couldn’t scoop her up as I normally would. Of course, my “worst case scenario” is not what happened. They met in the kitchen, which I only managed to witness by dropping everything I was holding and going after her. Initially he was calm and laid back, but in the blink of an eye, everything changed. He chased her from the kitchen up the stairs into the room and there was a major growling, hissing, spitting period between both of them. He wouldn’t let up, even once she was quiet. I tried breaking them up so that she wouldn’t freak out (she was hiding under a different dresser where he’d cornered her) and he turned around and whacked me. Normally, he’s pretty laid back, sweet, and loving, but as an older cat who hasn’t had to share his domain at all since being rescued, he’s über territorial, which is understandable.

Once I separated them into different rooms, I did go back and calm Cat & Kitten down because, quite frankly, they’re still babies and have never dealt with such aggression. I barely even raise my voice around them (I once yelled during a sporting event and somehow managed to scare the crap out of Cat. Neither of them responds well to loud noises or voices, and I don’t blame them.) and once they both reached the proper size, they had free reign of their home. Separation, while for everyone’s best interest, is clearly upsetting all of us. Despite the Feliway diffuser (Thank you PetSmart for giving me 20% off because it was on sale and you only had one left. I was really impressed by the gesture, and I appreciated it.), things are not okay in “cat land” and it’s making me sick on a daily basis. While I do not expect perfection, I do need to reach a point where my girls are no longer being bullied and kept in one room where they spend 90% of their time without me. He doesn’t have to love the girls, they simply have to co-exist. Trust me, the little one can take him (She’s an Alpha.), but if you’re still growing into yourself and a big, black cat that isn’t your sister chases after you, your little butt is going to run for safety. I don’t like it though, not one bit. Plus, it upsets him and makes him sick, and as a diabetic cat, I have to watch out for his health too. At first he simply wanted to smell them, which is natural cat curiosity, so I gave him their blankets and some other things to help him acclimate to that, but now he’s feeling froggy and wants to intimidate. Not acceptable. They have another week or so before I will start to allow the girls out more and more so that he learns to share and adapt. They’re doing their best, despite setbacks. Me? Just this aspect of disruption to my daily life is making me ill. I have raised Cat and Kitten since they were tiny, so my love for them is borderline obsessive. I am happiest with them and they are happiest with me.

I have been horrible on a work-level over the past ten days or so. I’m stressed and sleeping horribly, so my creativity ebbs and flows in weird ways. Here’s one thing I have noticed, over time, about being a writer: I use my laptop damn near every single day. Last week I decided to pick up a pen and take some notes for ideas for things I wanted to discuss. I have no clue when my handwriting became damn near illegible, so I wonder if anyone else has this problem? Do you find writing a few pages by hand to no longer feel “right” and/or cause you physical pain? I only had one person to consult on this matter and he agreed that due to constant computer use, his handwriting has become worse and it actually hurts to hold a pen for longer than it takes to make a grocery list. I imagine this is more common than one might think. I do hope I am able to get more work done next week. I’m going to take an hour or so this weekend and map some things out for myself. When in doubt, PLAN.

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So, that has been my life for a while. I know things will improve. Without darkness there cannot be light, but it’s also okay to slow the fuck down and focus. That’s what I intend to do. I’ve been dragged down by a lot of horrible shit for far too long and I want things to improve. Part of improving means fully disengaging from that which has caused me agony.

On occasion, a person does not believe me when I say I’m done, but this time my words, my text messages; they’re the end. You cannot help everyone and you cannot save the world. Not everyone wants to be saved. Some people want to drown in a terrible abyss and you have to let them so that they learn their life’s lesson, whatever it may be. Good luck and G-d Bless. I’m done, you’re on your own. For the record, none of us are horrible people for expecting someone to have their shit together and not fuck up in horrible, irrevocable ways. But when they do, it is okay to set a limit and walk away. You do not deserve to be dragged down with someone who refuses to realize that everything they do is wrong. Slightly cryptic, I know, but this is something I needed to say for me.

I hope everyone has a fantastic Friday.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Never Underestimate The Pain

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My physical, mental, & emotional agony trump a lot of other things at the moment. I’m, quite possibly, not clear-headed enough to write this properly, so please, bear with me. I’ll correct anything that I post that needs to be fixed later on.

I sit here terribly sleep-deprived, covered in varying degrees of bruises (some are healing, some are fresh), and my physical pain is worse than I ever imagined possible. And yet, none of it compares to what’s going on inside my head. 😦 For the past week, I have been pushed way beyond my limits and comfort zone. On the plus side; I’ve walked away from some very negative things that were causing me severe physical, mental, and emotional illness that I wasn’t even aware was happening until that final step away, when I took my first clean, stress-free breath and realized I hadn’t felt free in years. On the downside; the move I was trying to put off in order to take care of Patient X  until he is fully healed is coming up sooner than I thought possible.

As of this past Monday, 95% of my stuff is in storage. My temporary “safe place” is a hotel; the only pet-friendly one I could find. The room is fantastic, but the walls are closing in on me. Again, I’m stressed and sleep-deprived. This morning I felt so weak, I went back to sleep, something I’m trying in earnest NOT to do because it exacerbates my insomnia.

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Patient X’s first post-op appointment went surprisingly well. He is healing properly, mostly due to the fact that I’m OCD and constantly repeating myself so that he’ll listen at least one time out of ten. Unfortunately, his “young pain receptors” are having trouble with the really painful aspects of such a complicated and delicate surgery, so his pain medication was changed at yesterday’s appointment. I’m not thrilled with the choice, but so far, it is working.

I went to three different pharmacies for this drug and when I finally found one willing to fill it, they damn near told me to go back to Philly and fill it there. It is the store’s policy that certain drugs be filled “closer to the prescribing hospital”, as if people have a choice as to where they’re operated on or not! They were willing to do it this time because I’d called in advance, which apparently made them nervous (I think they called security several times, an absolute FIRST, and I’m a pain patient, so I was floored.). I’m not about to apologize for calling with a legitimate question. Lord knows I showed up less than ten minutes after calling with the script, the patient, and his driver’s license to prove it wasn’t being sold on the street. They weren’t going to fill it until they realized he’s A) wearing a Life Vest and B) talked with him about why it was prescribed. Not cool Walgreens, not cool AT ALL, especially in light of the medication you filled without batting an eye for several patients who showed up after me, one of which is something I feel should be outlawed, but I’m not judging the fact that people need it.

Walmart & Target: you should both carry this drug that I desperately needed to acquire immediately, even if only in small quantities. Post-op patients need access to pain medicine that their surgeons prescribe. It’s completely unacceptable to tell them you can order it “in a week”. What are they supposed to do in that week? Hang around with a thumb up their ass?! NO ONE should be forced to suffer because you’ve decided not to carry medication legally prescribed by a physician. By doing shit like that, you’re trying to override a doctor’s right to prescribe and you don’t have the authority to do so. I was so annoyed by the time the medication was paid for that I damn near flipped my lid, and I can only partially blame that on low blood sugar.

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Sunday is “moving day”. Some of my clothes & electronics, Cat, Kitten, and I are moving nearly five hours up north. Life as I know it is changing drastically, and I am not happy about the “rug pulled out from beneath my feet” feeling. Yes, I will adapt and yes, I will adjust. I will pull myself together and dust myself off over these next few weeks/months, mainly because stress can do horrible things to the body, mind, and soul. Someone told me on Monday that if I don’t take care of myself, I could do irreparable damage. She herself was so stressed around this time last year that she had to re-learn how to walk. I don’t want to reach that level of stress, so I need to get on the self-care diet of putting myself first for a few hours every single day.

Once I move, there will be a period of time where I will have to back-date things I write for this platform because I am not 100% sure when I’ll have Internet access, however, things will be written & posted as soon as humanly possible. Let’s hope the wait isn’t too long, lest I lose my marbles. There is such a thing as “too much silence” after a big move. The only books I have are on my Kindle Fire (every book I own is sadly, in storage. My poor babies!), and all of my music is packed, so I will be living off of what’s saved on my laptop and phone until I’m back for good. You simply never know when I will need to listen to Taylor Swift on a loop and cry.

I will miss all of you during “the dark period”, but know that I’ll be back the second the technician plugs everything in. I’ll be in touch before I leave. Be sure to check my Twitter feed and for those that need to know, my cell # and e-mail address will not be changing.

Laters, peeps!

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.