Here’s What I’ve Learned

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2015 has been many things for me, but it’s hard, at the moment, to say it’s been kind. That would be a lie. Granted, there are pluses and minuses to every day, week, month, and year. It hasn’t all been bad, but it’s been hard times a million. We’ve all experienced this in some capacity or another, and if you haven’t, I assure you that you will, because that’s life.

This year my faith in people has been shattered. It wasn’t completely in tact to begin with, so you can only imagine what I’ve been through to say that and feel so strongly about it.

I’m done with people in the sense that they say one thing, do another, and lack the ability of being reliable and genuine. Not all people, but enough that I am disgusted on an incredibly large scale. I have a life to live. I have no time for ignorance, lack of empathy/compassion, and those who are intentionally uneducated in the sense of “Have you met my new friend, Google?” (Have Internet access? Good, then don’t be an asshole.) If you’re unsure of something and can research it, then I highly recommend doing so. If you’re simply being a vile person because you are ignorant of the world and the people around you, simply move out of my way. I have no time for crap, and I will roll over you. I might do it twice, to ensure my point has been made.

Sometimes bad things happen to extraordinarily wonderful people, and other times good things take the place of the bad. I have yet to see truly evil people get what they deserve, but I was always taught that I don’t need to focus on that because G-d has a plan for all of us that we simply do not see, or need to be witness to. If this is indeed the case, I’d like to get a move on because I no longer want to feel stuck, trapped, or tied to the wrong people in any aspect of my life.

This month alone I have experienced unparalleled tragedy, viciousness, & evil, of which I may never be able to speak of out loud, or in any capacity. These are things I would not wish on an enemy, and as far as I’m concerned, I don’t have any that I am aware of. People can think and say what they like; I don’t live my life perceiving others as “the enemy” or as competition. I stay in my lane.

I am exhausted (migraines & Fibro pain will do that to you), stressed, quietly introspective, and have been in so much pain that I’ve been at an absolute loss as to what to do about it. I can’t remember the last time I felt like a worthless rag, but it’s important to be honest when I do.

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Things are slow as I integrate Cat & Kitten. They’re doing so well together, back to being cuddle buddies, but OGK’s sugars are up, not good for a diabetic, be it a cat or a person, so I am trying to monitor him and his reactions without stressing all three of them out in the process. I want to see progress though, not setbacks. I want to see my brave, strong, smart girls thrive while we are here. Normally they are with me 24 hours a day, Kitten is often my writing companion, and that really helps me emotionally because they’re such good-hearted loves. For the past few weeks, I’ve maybe spent 15-45 minutes a day with them for a multitude of reasons. This weekend I am going to be organizing my clothes, so if nothing else, they will have more “Mommy time”. They’re always so happy to see me and I’m grateful that the diffuser worked for them because the move was a lot more traumatic than I thought it would be. I am very proud of them for traveling well and I’ve promised them that long trips are over for the near future. When I inevitably move again, I am not going more than an hour and a half away. My health simply isn’t that kind, and I physically cannot handle the stress or the emotion that comes with trekking around to that extent. I liked my life in the last state I called home. I loved the area and a lot of what kept me sane there are definitely things I miss, but I did not like these last few years, which took an immense toll on me in every imaginable way. I cannot allow that type of pain to re-enter my life ever again.

At the start of my move, Patient X went into arrhythmia three times and was rushed to the hospital. After 2 1/2 days, he was discharged with a lot more medication than he was given originally, medication I felt was crucial to his recovery, but man is that surgeon’s office fucked up! 😦 He’s healing. The surgical wounds are 90% healed, but all the other wounds he carries with him cannot be my responsibility any more. He visited for about ten days post-move, driving me absolutely insane. We fought more than anything else, enjoying maybe one or two good days the entire visit. The fact that he doesn’t seem to appreciate anything makes me feel as though I am dealing with an ungrateful, spoiled teenager. Neither of us was raised to behave in the manner in which he has been behaving, so as sad as it was, I was relieved when he left. Of course now, I’m worried. I said I wouldn’t be, but it just plain makes me sick to my stomach. Apparently he did not inherit the gene for common sense, so yeah, I’m going to worry. I wish he were 75% more like me and 95% less of an asshole. That is, indeed, a large request, I know, but one can still hope & pray that someone makes a drastic change in their lives and begins to see the error of nearly all of their ways.

I wish there was some kind of reassurance for me, but at the moment, I am doing my best to get through each day without focusing on anything too deep. Keeping my mind focused on the incredibly mundane is about all I can handle now.

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My goals for 2016 involve intense creativity & being selfish where certain things are concerned. I’ve never been selfish, but I’m making a list of “No’s”. Normally my “No’s” are: “No doing dishes, no washing windows, no dating actors, musicians, athletes, or anyone in the military.” (Yes, I have legitimate reasons for all that.), but I’ve expanded on the original list. Perhaps I’ll write about it up the road.

Another important goal is to completely regroup. I am unbelievably tired of being in so much pain. Here’s hoping & praying that quality health care and proper treatment is in my future so that I may avoid permanent damage. I want to be able to function at a higher level and I’d appreciate not feeling like a prisoner in my body. It’s bad enough that I do feel like a prisoner. My cell is roughly 5.4″, and I cannot seem to break free. 😦

If I am able to feel like a human-being on December 31st, 2016, then I will have achieved something great, though for now, my expectations are lower than dirt.

I want to explore this new town as soon as the ice melts. I would hate to slip and fall and have to call someone to meet me at the nearest emergency room because I don’t have a single pair of boots here. Sometimes a walk can do so much in terms of clearing your head and heart of negative thoughts, but since 20 degree temperatures and I don’t exactly mesh, I might have to wait for it to warm up a bit. I’m hoping people will be patient with me and understand that while I do have my priorities straight (Believe me, I wish I didn’t.), I’m not willing to sacrifice anything more that helps keep me sane. I don’t care how ridiculous it seems to you; let me live.

It is difficult not to feel damaged, bruised, and broken. I am reminded that I am strong, yes, but every woman reaches a point when she’d simply like to sit in a corner and cry. Not because she’s weak, but because she needs to get the rage out of her system. It’s healthy, cleansing, and allows you to move forward. I detest weakness in myself, so it’s either have a good cry or trial by fire. (I’m kidding…slightly.)

Whatever 2015 has or hasn’t given you, maybe you be blessed moving forward. If it was a painful year, much like mine, cleanse yourself now and don’t carry the bitterness with you any longer than is necessary. Set a goal, however little or much, and do your best. If anyone has anything snarky to say about your goal(s), by all means, tell them to bite you. That’s about as inoffensive as I get for now.

Whatever you plan to do in terms of celebration tonight, please be safe. If you’re going to be drinking, be certain you have a designated driver or plan to take a cab home. It is better to be safe than sorry. Also, put your phone away. Do NOT text and drive. (It’s one of my biggest pet peeves, but it is also incredibly dangerous.)

Wishing you all a fantastic, happy, and safe New Year! 🙂 Let the blessings commence. So mote it be!

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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The Greatest Success…

“The greatest success is to have a lightness in your heart, and to be completely at ease and comfortable by being exactly what you were created to be; your own unique and beautiful expression of the divine. The respect of intelligent people does not matter at all, neither does the appreciation of honest critics. Betrayal of false friends, criticisms, and all societal markers of so-called success are meaningless. When laying on your deathbed you will care very little what critics had to say, how much money you had in the bank, what type of car you drove, or, whether so-called smart and intelligent people respected you.” -Bryant McGill

An Amazing Thing…

”An amazing thing happens when you get honest with yourself and start doing what you love, what makes you happy. Your life literally slows down. You stop wishing for the weekend. You stop merely looking forward to special events. You begin to live in each moment and you start feeling like a human being. You just ride the wave that is life, with this feeling of contentment and joy. You move fluidly, steadily, calm and grateful. A veil is lifted, and a whole new perspective is born.” -Unknown

Insomnia & Painsomnia: A Wicked Combination

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Whenever there’s something stressful going on in my life, it often affects my sleep, thus turning me into a shadow of my former self. Insomniac Lisa and Painsomnia Lisa are two very different beasts from the person I am when I’m able to prioritize sleep, and actually get into bed each night at a decent hour. I’m never 100% pain-free, but sleep is a crucial part of how my body recovers from what I do to it each day. I have worked my ass off this past month and lost roughly 20 pounds, somehow managing to strengthen my upper back muscles in the process.

Unfortunately for the past month, my sleep has been insanely erratic. First it was major moving stress, liable to affect even the calmest person in the world, of which I openly admit is not me. Then it was my brother’s pre-hospitalization health, closely followed by getting the phone call that he would need open-heart surgery or a transplant. It’s normal to have things like that affect you on many levels health-wise. Let’s face facts: No one expects someone young to be told that their heart is at 11% capacity. An entire team of doctors and surgeons and two different hospitals told him he was 10-15 years too early for such a severe issue. All of this crap has been screwing with me day and night and thus far, nothing I’ve done is helping. To add insult to injury, I have had a migraine since the day before Thanksgiving. I currently feel as if my head is in its very own torture chamber, taking my body along for the ride. 😦

When my brother was first released from the hospital, my sleep schedule had already shifted due to late-night texting and phone calls when he was still hospitalized and feeling lonely late at night, before his final dose of pain meds took over. There were many times I had to suggest he watch something on TV (“It’s almost 10 PM, here are three shows you can watch tonight. I have GOT to get some sleep!”), and then mute the ringer on my phone as opposed to allowing it to vibrate, so I could go to bed without the phone buzzing for hours. Now he’s here 24/7, and he’s driving me insane.

He’s not doing anything in particular to make me crazy (though I wish he’d remember that his legs are fine and he can get up and pour his own damn drinks!), he just happens to be in my personal space, and I crave privacy and silence. He’s mortified that I disinfected the remote, but since I don’t want him getting sick and he’s using it and I’m using it as well, I figured it was a wise decision. It is cold & flu season and while he is currently not in contact with other people several days a week, I am, and that can pose a problem for him if I bring something into the house that I did not leave with.

The other night he fell asleep while I was talking to him (I wasn’t boring him, he was simply in a lot of pain.). It was super early, but I felt that was the perfect time to cover him with a few extra blankets (It’s cold here most nights, and even when it’s not, he’s complaining that he’s cold.), and sneak off into the silence that is my normal routine. Alas, he got about three hours of sleep and I was wide awake. The second I thought about going to sleep, he was moaning in pain and when I checked on him, he was messaging someone on his tablet, with the TV on lighting up three rooms.

After a highly stressful week, I was finally in bed at a decent hour last night. As soon as I’d dispensed the last pain pill of the day, my head was on the pillow. Unfortunately, the previously aforementioned migraine decided to kick things up a notch and a little after 2:00 a.m., I woke up in unimaginable pain. I have no idea how I am attempting to type this, much less see.

My first line of defense is to attempt to get some caffeine into my system. It’s the only thing I haven’t sought out or used to treat this particular pain level, when it would normally be something I thought about a bit more closely. No, last night I was too far gone, so I took something less targeted that, as a last resort, often helps. Clearly it only helped part of me. 😦 So, I am nursing caffeinated tea and I took two Excedrin Tension Headache capsules. Not because I have a tension headache as opposed to a migraine, I know the difference, but because sometimes that combination works for me and nips the migraine in the bud. It’s not a permanent solution, but nothing really is. If it doesn’t start working in an hour or so, I will take a third.

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It astounds people that I have managed to learn how to work through some of my worst migraines, or that I put myself into the head space to focus on healing one. I look at it this way: I am not going out and triggering the headache to be any worse than it already is. I am home, I’m safe, I can control the environment (noise level, light, temperature), and I know not to move around too much, but can I sit at a darkened laptop screen and talk about it? Sometimes, yes. That doesn’t diminish the intensity of the migraine, it does not mean I don’t suffer from migraines (three neurologists and two other doctors are all in agreement that I suffer from migraines. They have gotten worse since my first diagnosis, so there’s nothing else it could be. Everything else has been ruled out.), and it also doesn’t mean it’s “just a headache”. On occasion, like most sufferers, I will get a dull headache. Unfortunately, dull can go to extremes pretty quickly, so I take all headache forms seriously. I don’t walk around denouncing other people’s pain either. If a person says they have a headache, but quickly says “I don’t get migraines like you do.”, I still wouldn’t tell them it was “no big deal”. Pain is pain. No one likes it and for those of us that endure it 24/7, I have seen people empathize with others openly, and I have also seen people blow off the pain of others because they somehow feel it is their right in life to be the one person on the planet who has it far worse than the rest of us. Sorry, but that couldn’t possibly be true, or you’d be dead. What may be indeed true is that everyone’s threshold for pain is different. In fact, I know this to be true.

In studies, it has been determined that women tolerate pain differently from their male counterparts. Not better, not worse, just different. Taking into consideration that the female body can push out a human-being during the process of giving birth, that’s not an immense surprise to me.

All of my heavily tattooed male friends had their jaws on the floor when I sat through my first four tattoos and described the pain as “No worse than a cat scratch.” You see, I chose a spot that most of them found to be extremely painful. They all told me to put my ink somewhere else, that the pain would be too much for me to endure, especially considering I suffer from Fibromyalgia, but I’d consulted with several artists who, like me, believed that my first tattoo should be someplace easily covered up with clothing. However, never to do things the simple way, I got my first four all at the same time. I wouldn’t even rate that a one on my personal pain scale. I’ve had more painful piercings.

As many of you also suffer from migraines, has anyone gotten a Daith piercing to try to combat them? Compared to all the medication, a myriad of supplements that may or may not be useful to the individual, various treatment methods, Botox, acupuncture, etc., the piercing itself, depending on where one goes, is between $50-$100. I am being told that it works for 50% of the people who get it, but I am also being told the relief is temporary, though some people are reporting themselves migraine-free 3-7 years post-piercing. I have decided to try acupuncture for a year to see if that spot along either of my ears responds to treatment. My insurance covers it, which is rare, so I am going to take the opportunity to use it first. I’m not sure I need another hole in my head, but I’d be interested in hearing whether or not the piercing has helped anyone. If you’re considering getting this particular piercing, please go somewhere highly reputable and have someone experienced do the piercing itself. The report of infection with this spot is very high, and I’d hate for anyone to go through that. I’ve only had three piercings in my life that gave me problems. Luckily they never got infected, but two of them bled for years if someone hugged me too hard, and the third still gives me problems on occasion (The fact that I share the piercing with a highly toxic person is probably why… I’m a big believer in energy. Sometimes we are healthier overall without certain people in our lives.). While most piercings are mainly decorative, there is no medical or scientific evidence that a Daith piercing is a cure for migraines, so don’t read into all of the Pinterest and Instagram “science”. Those are exclusively individual experiences, most of which are brand new. There’s no way of knowing what the long-term effects may be. For many, it is worth it for temporary relief. I’d rather explore a few additional options first.

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Are there any alternative treatment methods that work best for your migraines? If so, what are they?

The day insomnia can be cured in any way, shape, or form, I will be on a line for that! Right next to the line for the great Fibro/Chronic Pain cure. Here’s hoping we see it in this lifetime.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Struggling

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It is the early morning hours of Thanksgiving Day here in the States. After spending hours preparing stuffing yesterday (which I highly suspect might suck today), I ended up with a highly stressful day which resulted in a migraine. That then turned into insomnia, which is the only reason I am awake at such an hour. Turns out, Patient X is not the only one in pain. 😦 Poor kid.

Lucky for him, he has a sister/maid who will go back to the hospital tomorrow to pick up a prescription and take it to the pharmacy on Black Friday, a day I avoid like the fucking plague because of the insanity that ensues, all because his doctor did not see fit to prescribe the appropriate amount of pain medication upon discharge. I thought it was an incredibly odd number seeing as how he’s supposed to take twelve pills a day until he’s healed enough to not be in such severe pain. He is healing, the swelling and bruising are almost fully gone, but he’s still in an incredible amount of pain. I couldn’t stand by as if it weren’t happened as the pills diminished.

I realize there are always pre-holiday emergencies, but it shouldn’t take a doctor’s office nearly twelve hours to return two phone calls where the words “pain management” are used. I find that unacceptable.

Moreover, not being able to call a prescription in to the pharmacy in an emergency simply because it is a controlled substance, even if it means faxing a hard copy from your office or sending the hard copy via FedEx, is a major time and energy drain on caregivers. I realize doctors and PAs are busy covering their own asses on this shit, that patients do NOT come first, but it makes me angry that my brother is in severe pain and that I, in my agony, have no choice but to schlep somewhere I don’t want to be in order to get the appropriate medication for him. It should have been done correctly the first time, except now, I am going to be fully present and since his voice still isn’t better, they’re going to have to put up with mine, and oh, how loud can I go?!

The physician’s assistant was the epitome of rude, dismissive, and unprofessional (I’d like to think she’s just stupid and/or had a stressful day that she would have preferred to be spending somewhere else with family, but I was then informed that she’s always like that, so I knew it wasn’t simply my perception.) and proceeded to lecture me on post-op appointment scheduling. Excuse me; I’m NOT his secretary. I was not handed the discharge papers, so outside of dispensing medication and doing a plethora of other things that contribute to my misery, I am also supposed to be a mind-reader. News flash: There’s no such thing as mind-readers. Also, the job of physician’s assistant to a surgeon is basically glorified prescription pad, especially when you don’t know how to communicate with people as if they’re human-beings. Instead of wasting time acquiring healthcare experience before entering the three year program, I strongly suggest going to medical school and then try giving me attitude. I get to say this because it’s the truth. If you happen to be a PA and you’re reading this, I can only hope you treat people the way you’d want to be treated and don’t hang up on people mid-sentence. When you work with the public in any form, it is crucial to be courteous and respectful. For the record, I said nothing to warrant the ‘tude. If anything, I was overly polite and respectful. I won’t make that mistake again.

Is it convenient that they only see patients on Tuesdays? No. Instead of being able to enjoy some semblance of a holiday weekend this snit tells me to “call on Friday to get him into the office on the 1st”. Because apparently, Lisa has no life of her own and can drop everything on Tuesday so as to miss her own doctor’s appointment. I would like to know precisely when I entered a life of servitude. I wonder if there’s a uniform…

At this point I can only assume I am over-tired, hungry, feeling the effects of the Full Moon (If anyone else saw it rise last night, was it uncharacteristically enormous?), and/or in desperate need of hitting something. It might very well be a combination of all of the above. I can deal with that because it’s honest.

However, to add insult to injury, Patient X is running a fever and might very well need to return to the hospital tomorrow to be certain he does not have another post-op infection. If he does have another infection (which would be lucky number three), I will be on the 10 o’clock news in the Philadelphia area demanding that this hospital be investigated.

I wish I were able to set aside real life and focus solely on fiction (it’s a far better world on paper, as is often the case), but sometimes a writer has to be supremely real and not gloss the serious shit over. I may not currently be writing about NaNoWriMo, WIP’s, my experience editing this or that, or spewing nonsense, but at the beginning and end, I’m going to be real. I’d rather be respected for that side of me than have someone fuss over something completely unimportant.

There’s no rest for the wicked. Only the good die young, so I’m going to be here forever!

Wishing everyone stateside & all members of our Armed Forces a Happy Thanksgiving. To everyone else in this world; have an amazing Thursday where your priorities in life supersede all the bullshit.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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My Apologies

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Hi everyone! I know this isn’t a typical visiting experience at the moment, but I assure you I am doing my best.

When you’re caring for a post-op heart patient, every single day blends into the one before. I likely wouldn’t know it was Monday if I hadn’t intentionally bypassed Friday and Saturday’s normal routine of running errands, only to overdo it yesterday. I have spent a lot of time putting off every aspect of my life to dispense medication at regular intervals, to pour drinks (apparently I close everything very tightly, who knew?), and coax Patient X to eat a few times a day. These may seem like simple tasks, and they are, but if I leave the room for 45 minutes, sometimes less, I hear a tiny voice asking “Are you hiding from me? Am I making you sick?” That’s if I listen for it.

The fact of the matter is: I like silence and privacy. In fact, I crave these things. I don’t like being up ’til 3:00 a.m. unless it is my choice to do so. I don’t like sitting on the couch for 4-8 hours a day in order to keep someone entertained, because while the TV is clearly on in order to “entertain”, I can’t watch anything I truly want to see (I spent an hour in my room late Saturday night watching an episode of a show that ends in a few weeks because I can’t do so downstairs; some asshole didn’t want to see it and despite the fact that it’s my remote, it’s not worth it.). I find myself looking down at my phone a LOT, and no matter what I do to try to be in bed by 10:30 each night, I cannot sleep.

If you have any experience with a cardiac life-saving device called “Life Vest”, you know that this device can go off for any reason, even while changing the battery. Thursday morning the piercing sound threw me out of bed in its utter alarm, and I went flying down the stairs to make sure he was alive and conscious. He later told me I shouldn’t have panicked; the device has a 100% success rate at reviving someone if anything should go wrong. It’s intended purpose is to shock you back to life if need be, and it can probably be heard down the street. Mind you, from the second they put it on him, he has complained that it’s the equivalent of a “male bra”. It does sort of look like a sports bra and it looks uncomfortable because there’s so much to it, so I’ve had to listen to it go off several times over the last week. I tried sleeping through it Friday morning, as it was still dark. Saturday it went off in the early evening hours, but it was still annoying as all hell to hear the sound out of nowhere. Not as annoying as someone dying in my presence (No thanks, I’ll pass.), but it’s simply that noise itself does not agree with this chronic sufferer of migraines.

Certain types of noise are triggers and unfortunately, I never know what will cause a migraine. I only recently switched up my medication, but I did have a very long stretch over the last few weeks where one migraine lasted over a week. I had no choice but to ride it out. 😦

Today, I hurt from my neck to my toes. There’s not a part of my body that doesn’t feel bruised and battered. Okay, there are a few parts that are okay, but that’s about it.

Thanksgiving in the U.S. is this Thursday. In my last-minute prep attempt, I decided what to make and bought everything yesterday. I am grateful that no one in their right mind thinks it’s acceptable for me to make an entire turkey for two people. I cannot fathom tackling that at the moment. Every turkey I so much as glanced at was over 20 pounds, but since they were frozen solid on top of that, who knows how much they actually weighed. I found something small that will fit the bill. I don’t expect it to last more than two days, which is perfect. Wednesday I will make the stuffing in advance (Let’s face it, I will be eating stuffing Wednesday night. I am addicted.) so that I don’t have to cook for hours on Thursday. Patient X is on a little-to-no salt, low-fat diet. I’ve already broken multiple health rules in order to get him to eat. I’m making a small amount for him with as little sodium as possible. He has told me for nearly a week now that everything I’ve made is “full of flavor”. Apparently that is the component missing in all hospital food. :/ I can safely make sure that the rest of the stuffing actually tastes like something though (Yay!). I’m contemplating a citrus base for the main course. If only I had known in advance that I’d have a sudden craving for mashed potatoes, I would have also put that into consideration because apparently this is a carb kind of week. I still might make them, at the last-minute, providing I have a medication run to use as an “excuse” to do it. As things stand now, I might very well need to get another pie too. While completely unnecessary, it does make Patient X happy. Personally I don’t want vegetables made into pie, but perhaps that’s the American in me. Pie should be something enjoyable if you’re going to have it at all.

I am exhausted, in a lot of pain, caring for someone I normally can’t tolerate for more than short periods of time, and I still have my real life going on amidst all that. I’ve shelved as much as I can for the remainder of the year, but there is still much to do. The last thing I can even bother to think about at the moment are the truly stupid things in life. Wow, that statement covers so much…perhaps one day I will write about it. Hell, I’m lucky I remembered to pay my bills this month with all that’s going on! 😦

I hate the holiday season. It is a constant reminder that I am alone in this world, that my family is gone, and that those who are still alive (minus a few people) are horrible human-beings.

Despite amazing friends and loved ones, despite the adorable sweetness of Cat and Kitten, the holidays suck for me. I did get some nice gifts in advance of Chanukah (Shout out to my awesome Aunt.) and two belated birthday gifts (Again, my Aunt, but also a fabulous necklace from Sweet Blossom Gifts that I adore. If you’re going to be shopping on-line this year and you want something personalized and unique, I highly recommend them. They have everything from coffee mugs and pillows to jewelry. I can say for a fact that the jewelry is stunning in person and their prices are very reasonable.) that were such a lovely surprise (If you know the name of one of my favorite stores, you know I will be hitting up the post-holiday sale.), but I won’t be gift-giving this year. Things are simply too stressful and I have absolutely no time to do it. I barely know my name, the last place I need to be is a store. I also lack the desire to do anything for anyone over the age of five. Everyone knows they’re in my heart and that I am there for them 24/7. They don’t need expensive gifts to remind them of that fact. Sometimes, people truly just want to be thought of in a positive way. I’d rather someone send me a card and tell me something of value as opposed to forcing themselves into stores and not taking the time to enjoy the season itself. Those are precious moments. Actions are just as important as words.

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I am trying, with all of my might, to get through the remainder of the year with my head firmly on my shoulders. Patient X has a long road to recovery (If one more person tells me he will be chopping tress down in six months, I will hit them. For starters, he’s never chopped a tree in his life, so I highly doubt he’s going to take that up once he’s healed.) and while he is indeed healing (there’s been remarkable improvement this week), he is also weak and will definitely require physical therapy. His vocal cords are still pretty bad, but hopefully I will know more after his first post-op appointment after Thanksgiving. The fact that I’ll be able to force him off of my couch and into the fresh air, albeit cold, for several hours almost makes me giddy. The not so giddy part is that I do have to go with him, otherwise I won’t know precisely what the doctor says. Let’s just say that the anesthesia that was used has some side effects and there are parts of his memory that simply aren’t there at the moment, which is quite scary for me to hear, but scarier for him because he knows he should know these things and keeps wondering why his brain is foggy and he can’t form coherent thoughts or access his memories. If ever I find that anesthesiologist, I might have to sit him down and explain certain things to him in thinly veiled threats. It wouldn’t be the first time I’ve had to do it and I’m certain it won’t be the last.

If you’re celebrating this week, I wish you a wonderful, happy, and safe holiday. If you’re not, I wish you were coming to my house so I could cook for you. 😉

Be safe on Black Friday. It’s a fucking jungle of psychosis fueled by insane amounts of caffeine. I will be as far away from the madness as possible. Of course, I will still have someone hogging my TV and eating my food. If you see a good-looking man being auctioned off on eBay, I assure you I’m the seller. LOL.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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This has been me, for nearly a month. I’m not 100% sure what I’m even buying any more.

Patient X

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Patient X is being released into my care this evening after major surgery at the beginning of the month. Discharge was repeatedly delayed by post-op illness and absolute idiocy on the part of doctors arguing over proper procedure. It took them nearly a week to discover that he had not one, but two separate infections. Thank G-d for Infectious Disease Specialists who put their foot down. #Respect Of course, the fact that I called the head of the hospital and informed them that discharging a cardiac patient with an infection is grounds for a lawsuit might very well have secured his bed for an additional three days. For the record, I try never to use the word “lawsuit”, except when it pertains to protecting my family’s health, their rights, or rights in general that may be in a violation type of situation. I know people who throw the word around way too often for no reason. It shouldn’t be used lightly.

I’m nervous about taking care of him for eight weeks (twelve if there are any setbacks) while he isn’t allowed to drive or do much, except the most basic things. For the next two months, the heaviest thing he can lift is a gallon of milk. In 4-6 weeks, longer if insurance delays it, he is supposed to have a second procedure done to ensure that his heart returns to 100% in terms of function. It’s a procedure that should only take a few days. The surgeon informed me that one or more procedures may need to be re-done in 25 years. However, this surgery has given my brother a new lease on life. Never before this absolute wake-up call would he have agreed to quit smoking or make healthier choices in regard to his health. It is sad that it had to come to something so severe, but I am determined to do what I can to make sure he heals properly and adheres to this new “heart healthy” lifestyle. It’s a serious change, but if he wants to live longer than either of our parents did (the situations were, obviously, quite different), then he is going to have to do his level best to commit.

Open heart surgery is rough. I would not wish this on my worst enemy. Hearing him struggle to breathe, cough, and move makes me ill. Knowing that his vocal cords need additional time to heal, along with his heart and wounds, just plain saddens me. That a single soul would tell me to leave for my move and let him recover alone pisses me off. I thank G-d this happened when I was physically in a position to do something to help and was not hundreds or thousands of miles away. In a situation like this, you do not want to get the dreaded phone call. Every time the phone rings and it’s the hospital, I get ill. Once he is released to me as a “patient”, he probably won’t be too thrilled, but he has already said he’s just so happy to be alive that he doesn’t care what I say or do. We’ll see how long that lasts.

I am sure I will utterly lose my head when I find out the total of the roughly fifteen prescriptions he’s going to have to take, only some of which are for the next six months. His surgeon assured him that nearly everything was cheap because they’re generics, but someone ought to clue the doctor in that even Walmart has a list of medications that are on their list of drugs they’ll cover for $4-$10, based on the number of pills and how long it’s prescribed for, but that the others are nowhere near the word “cheap”. The cost of medication in this country is utterly insane, but it’s right up there with the cost of healthcare, one of the biggest rackets on the planet. There is no possible way not to get a headache dealing with the drama.

Over the weekend I received the first bill for two separate tests they ran when he was admitted last month. The physicians who billed will have to whistle Dixie while dead before they see a penny from me. Process that shit to the insurance company, don’t send it to a third-party who isn’t a legal guardian. I am not allowed to stress out Patient X, lest he tear something inside his chest, so I haven’t told him about the bill. I won’t be telling him about any that come. I’m just going to get on the phone quietly and handle what needs to be handled. If you hear about me on the news, don’t be surprised.

As of this evening I will start accepting all gifts of alcohol (or dark chocolate) because I am almost certain my new “water bottle” is going to have vodka in it the second he whines or complains about anything I do. He texted me this morning to make sure his ginger ale would be “ice cold” for his arrival. Tomorrow I get to make Jello and pudding, like a proper little Real Housewife from Hell. 😛 If I get hit by a vehicle this week, it may or may not have been of my own volition. On a good day, there’s only so much bullshit I can take. On a bad day, well, you don’t want to know what I’m like on a bad day. :/

In preparation for all the fun I’m about to have tonight, and in the weeks to follow, I may or may not attempt to drown myself in the shower. But first, I need to find Cat and Kitten and get some unconditional love. I open their cans; they know where their bread is buttered. LOL. Is it too late for a straitjacket?

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Situation Or Depression? There’s A Difference

I had a major meltdown Monday. I can’t recall the last time I felt that alone, that isolated from my friends & family, or that upset. I’m certain it’s happened before, but Monday was simply too much, too soon, and way too intensely upsetting. I vividly remember scrolling through my contacts list at one point, and realizing that I could not call a single soul in it. I reasoned that I didn’t want to bother anyone at work. It was quite sobering.

When a strong woman says “I’m tired of being strong.”, it’s honest. When a strong woman says “I feel broken.”, that too is honest. But when a strong woman seeks help so that she does not harm herself, knowing the potential is there, and gets told “There’s a nine month waiting list to be seen.” or “We’re booked solid until January, so you should go to your nearest emergency room.”, it is astounding.

When you go to the emergency room with a mental health crisis of any kind, it is my experience that you will not be taken seriously unless you’re bleeding or have overdosed and were brought in on a stretcher. Does it really have to come down to that? I think it is a horrible approach and I wonder how many other people have experienced this.

If a mother can go to a police station, fire house, rescue squad, or hospital, and legally surrender an infant (Known as the Safe Haven Law) without fear of being deemed a criminal for child abandonment, then I should be able to go into any medical establishment and say “I am worried for myself, I need help.” without fear of judgment or criticism, or being mistreated. Instead, I spent several days talking to my insurance company, who are utterly useless, trying to find a way to get immediate care. But no such place exists without an extensive waiting list. They just keep telling me to go to the emergency room. I didn’t break my leg, this is not an emergency room situation unless I have hurt myself or someone else. G-d forbid!

I don’t need to be hospitalized. I know that, and so do the few people who support me, but do I need additional support and someone to talk to? Yes. I reached out to my psychiatrist for a prescription, asking whether or not I should go back on medicine I already have or medicine I used to take, the latter of which would require him to call a prescription into the pharmacy for me. Unfortunately, medication is always very tricky, and side effects are generally the reason I stop taking them. That, or the fact that they don’t make me feel better. I can’t function when I’m deathly ill from side effects or I can’t physically get out of bed from the drowsiness certain medications provide at even a low dose. I have yet to meet one that truly works without making things worse.

It’s almost 2016, and there are still so many people ashamed to talk about their use of antidepressants or anti-anxiety medication during difficult times in their life, or daily to manage very real issues that aren’t their fault to begin with. I would be far more embarrassed pretending I was okay when I am not. Suffering in silence makes the suffering one hundred times worse than it is if you simply reach out to someone and ask for help. But here I am, and there’s no one willing to help. It’s like being outside in -50 degree temperatures and having someone throw ice water at you. It is also incredibly hurtful and insulting.

The past few years have taken an immense toll on me, I’d never deny that, but the last two and a half weeks have been like bleeding to death slowly. And yet, as I sit here with a cold that came out of nowhere, I find myself unable to handle answering the phone or responding to a text message (I wish I could say they were simple, but they’re not. I currently have the Do Not Disturb feature on because listening to my phone vibrate all day is getting to me.). I’ve reached a point where too many people want immensely large pieces of me, but none of them are willing to grant me so much as an inch of kindness, compassion, or understanding. I take a few days to take care of myself and get told I’m horribly selfish, which is the exact opposite of who I am. I’m considering the asinine source before buying into such nonsense. Sometimes employing a “I’ll pretend I didn’t hear that” filter is a good idea.

I am the first person to say that it’s important to advocate for your own mental health, and your overall health in general. It’s important to question everything, especially when you aren’t receiving legitimate answers. I also feel it is important to take ownership of your own crap. That being said, I feel like this particular situation is what’s affecting me and making me physically ill. It’s not depression in a traditional way, it is the situation causing how I feel, but it is still difficult and I’d prefer to be prepared for anything more that comes at me, as opposed to pretending nothing affects me. I’m human, and it’s not a crime.

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I might not have been in a good mood to begin with, but come on, this has merit.

I got home late from the hospital Monday night. They keep the rooms outrageously hot in that particular part of the hospital. I kept putting eye drops in to counteract the heat drying my eyes out, and I kept disinfecting things because every other person was coughing or sneezing. I already knew I had something in my system, but now it’s affecting my head and chest. For a period of time yesterday, my voice was but a whisper. All I was capable of doing was sitting and today hasn’t been much better, except that I have my voice back and have been able to do a few things in and out of the house. My head feels like there are multiple hot pokers stuck in different directions, my sinuses are killing me, and my eyes and throat hurt like hell. The weather, all dark and grey, complete with rain, is only adding to the pressure in my skull. I find it insulting to get sick when I am already dealing with enough insanity.

My brother is still in the hospital. They wanted to discharge him on Monday, but his blood oxygen levels weren’t good and they were talking about doing another procedure before discharging him. By Tuesday, his levels were almost 100% improved, the second procedure was determined to be okay a month post-op, but not now. There was also a major snafu when one of his surgeons discovered a potential infection on an x-ray. He wasn’t sure what it was, but wanted to run some tests to figure it out. They have since discovered that he indeed has infection, but they aren’t 100% sure where or what it is. He’s been saying he “feels hot” since last week. They kept telling him his vitals were good and it was merely a side effect of the anesthesia and medication. Last night, the nurses argued once they discovered he had a high fever, because apparently the two nurses prior to the shift change failed to report that he had one at all. His primary surgeon was called at home around midnight and was, quite obviously, very concerned. He ordered a laundry list of tests, some of which were performed immediately after the phone call, and others were done earlier on, with a few more ordered for later today. My brother, in perfectly dramatic fashion, blamed me for this. It is, naturally, all my fault. How could it not be?! Lord knows I walk around with a veritable petri dish just waiting to unleash it on my own flesh & blood. <rolls eyes>

I’d like to blame that psychotic comment on his medication, but I have no idea where he gets the idea that I’m some kind of monster trying to keep him in the hospital (If I was, he’d be chained to a bed in a mental hospital.). Because I’m honest? Because I’m direct? Because I don’t coddle him? No matter what I say or do, I am wrong. It’s like being married, except this isn’t Arkansas (That was a snarky comment, not a statement of fact, lest someone become offended and lack the ability to decipher my sense of humor.).

Quite frankly, I’d like him to recover in someone else’s home, tormenting them. If I hear about his dietary restrictions one more time, he’ll be lucky to get a loaf of bread and a gallon of water each week upon being released into my “care”. I offered to bring him something when I go back to the hospital and was told I “can’t be obvious about it” because I brought him a request Monday and apparently someone asked how he got it or something along those lines. I didn’t know I was committing some evil act by trying to do something nice. He’s a grown man, what am I supposed to do, bring him a teddy bear?! His vocal cords are healing (If you watch Chicago P.D., I can tell you that, at the moment, he sounds a lot like Jason Beghe.) at a slow rate, so I’ve made an effort, but all he does is piss me off with the unappreciativeness. I don’t have a lot of patience to begin with, so insulting me is not the way to get what you want or need.

People don’t rely on me for compassion, they rely on me to get the difficult shit done. I realize he feels he deserves some kind of “compassion pass” at the moment, but I don’t have it in me to change the core of who I am. I handle and face situations, but I’m not going to be someone I’m not, regardless of what a situation may be. In life, there’s no room for sugar-coating, and I certainly don’t expect people to do it for me either. Deliver the facts, I will deliver solutions, but don’t play games with me. It can seem cold and dispassionate to people, but I am actually quite passionate. If I wasn’t passionate, I wouldn’t do a damn thing for anyone. I would absolutely be selfish and self-centered, but I’m not. Sometimes when people are going through something difficult, they imprint their issues onto you, because their coping mechanisms aren’t strong enough to hold them together emotionally.

Ultimately, medication or not, I know who I am. This week has been a bad situation and it upset me to an ugly point, but my survival and success rate are 100%. I’m not going anywhere.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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