There Is A Tonic Strength…

“There is a tonic strength, in the hour of sorrow and affliction, in escaping from the world and society and getting back to the simple duties and interests we have slighted and forgotten. Our world grows smaller, but it grows dearer and greater. Simple things have a new charm for us, and we suddenly realize that we have been renouncing all that is greatest and best, in our pursuit of some phantom.” ―William George Jordan

The Ledge

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I’m on the verge of letting go today. There’s no way to pretty it up or sugar-coat the amount of pain I am in, both physically and emotionally. I’ve had enough. Reached the boiling point. Feel as though I am trapped in a maze of never-ending bullshit, and I cannot take another second of this.

Over the past two days I’ve accessed my life and come to this conclusion: apart from my responsibilities and loyalties; my life is meaningless. Well, and truly, meaningless. If I were bleeding on the rug, someone would attend to the stain, but they wouldn’t even notice that a body was present. That’s the truth, whether some people are willing to believe it or not, or admit to it. I’ve witnessed too much to feel or believe otherwise.

I have been in a bad place for so many months now and not a single person has so much as noticed. The selfishness in my presence knows no bounds. There’s zero warmth, care, concern, or love present. And quite frankly, I’m sick of it.

I’ve been in tears on and off for almost three days. No one has noticed, said a word to me, asked me if they could help, NOTHING. This is what it feels like to be “the invisible girl”.

While preparing a salad Saturday afternoon, I banged my right hip into the handle for the drawer next to me. It wasn’t anyone’s fault, but it hurt as if I’d just had the bone yanked out of its socket. I actually bit back 95% of what I truly felt physically in that moment, but I was admonished for being “dramatic”. Please, feel this pain for a week and then tell me how “dramatic” I’m being. Clearly, you don’t know true pain.

I am genuinely experiencing the whole “Princess & The Pea” phenomenon, which is not uncommon when you suffer from an autoimmune disorder that revolves around pain. This particular issue is killing me. I can feel every spring in a mattress in such a painful fashion that I want to hurl it out a window. I “wake up” each morning in stiff, agony. Nine out of ten nights, I haven’t truly slept, I’ve simply given up and taken to lying still, in tears, praying for the pain to stop.

I’ve taken over a hundred Aleve in the past month in the hopes that it will provide some small measure of relief, but it never does. I’ve also taken nearly an entire bottle of Ibuprofen because every flare-up makes me feel like an anti-inflammatory MIGHT help “this time”. The pain is maddening, and constant. I hurt so badly each day that I contemplate walking into the middle of traffic, not caring if I get hit or not. My only issue there is that I’d likely survive and remain in worse pain, if that’s even possible. I don’t want to know, I just want this to stop.

I struggle each day to cope with the pain, with my emotions, with stress, but most of all, the pure isolation and loneliness I am forced to carry with me, because I truly am “the invisible girl”.

When I can’t do laundry, take a shower, and do five other things in the same day, I sit here in tears over the loss of life I am experiencing. I have to set alarm clocks and timers to remind me to do things, or they will never get done. I fall at least once a week. No matter how careful I am, the pain brings me to my knees.

Occasionally, I feel okay. But here, in this moment, I’d gladly take death over this agony. Just make sure Cat and Kitten are adopted into loving homes. Cat is aggressive and a bully, so I think she’d do better in a single-cat home at this stage of her life. Kitten is a sweet little angel who loves her Mommy, but doesn’t understand why I have no energy to play and run around with her. Alas, I can’t explain these things to them. All I can do is pray for better days; just not today. Today is Hell and I am burning alive.

copyright © 2017 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Personal Year In Review

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I wish I had fabulous things to share here as I look back on 2016, the year itself as a complete “body of work”, as opposed to how I genuinely feel about it.

Here’s the unadulterated truth; I’m filled with mixed emotions, anger, pain, and the more I think about it, additional anger on top of the original anger, which is never a good sign. I make no apologies for my honesty. I’m many things in my imperfect human way, but dishonest isn’t on the list.

I take no issue with the company in my life, or lack thereof. I am a firm believer that we all go through hard times and that hard work, love, and prayer will get us through it. I take no issue with surviving (Life should be more than that though, right?) and having a few good days here and there (Though I am determined to not allow people to ruin my days when I’m feeling good and their moods aren’t meant for me. However, this is a process. It will not happen instantaneously.), but I do take issue with things outside my control.

I am a self-admitted control freak when it pertains to a lot of things in my life, and with other things, not so much. Overall, I’m tired of my best not being good enough, and having people remind me of my failures. Never look down upon someone unless you’re helping them up. Asking for help through tough times is not a grave sin. It’s honest, it’s real, and it’s admitting something vulnerable and scary is occurring that you cannot figure out how to face on your own. Why do we diminish that?!

I was raised to believe that as long as I do my best, it is always “good enough”, because it shows effort. And then I moved to another state where I know very few people, where “my best” is NEVER “good enough” because some unattainable level of perfection is expected at all times. It makes me feel like a bad Stepford Wife. 😦 I would not know what happiness was if a radioactive spider bit my ass. I haven’t known happiness in so long, it scares me. I feel emotions, yes, but happiness is almost never among them. How’s that for honest?

My brother has been through a torturous, evil kind of hell this year. I highly suspect that whatever was done to his heart set off a myriad of other health issues because I cannot recall a time when he wasn’t under the age of ten and on antibiotics as often as he’s been this year. He has been in and out of the hospital so many times that I’ve damn near had a multitude of nervous breakdowns every single time. I am currently waiting to hear back from a surgeon as he embarks on surgery number five in just slightly over a year; which is more surgery than he’s ever had in his entire life. It worries me on such a deep level, it’s difficult to convey.

I am immensely disheartened by how uncaring and unkind people are being towards him. At the beginning and end of each day, we only have so many family members in life, and as we’ve established, life is as short as it is long. My brother & I don’t have a lot of family, so we’ve had to rally around each other and be each other’s biggest support system through what has been, in essence, the gates of Hell. I may yell at him and get frustrated, I may say nasty things to him in the heat of the moment because he pushes my buttons, but ultimately, I’m not ignoring him or pretending he doesn’t exist in the hopes he’ll simply go away. I might not respond to a phone call or a text message when I’m sleeping, and sometimes I am guilty of ignoring him for a full twenty-four hours because I can’t handle the stress, but I do speak to my brother. I might not admit this to him, but he’s one of my best friends.

I say a painful goodbye to 2016, a year that has made me suffer in ways I can’t discuss; physically, mentally, and emotionally. I hope and pray that 2017 offers me more opportunities, better work, better pay, the same high-quality friendships I’ve maintained since day one (I’ve gotta say it; my friends are the BEST friends. They’re the first people to ask if I’m okay, to see through answers when I’m 100% NOT okay, and be as supportive as they can through crises. I would not have made it through parts of this year if it weren’t for the relationships in my life, both old and new, that have helped reinforce who I am as a person.), a real directional shift that leads me exactly where I need to be lead, and a year that allows me to achieve goals I have set for myself. The big goals, because at the moment, small goals aren’t cutting it.

I’d like to see some medical breakthroughs to help me better manage my pain and overall health. I was hit in the back with a shopping cart today at a local grocery store. This woman was on her cell phone and obviously thought she had enough room and/or didn’t even see me. I swear I am invisible to 99% of the “human race”. Initially my response was “Excuse YOU!”, but the lunatic just kept on walking, loudly debating stupidity on her phone. I did not feel it was worth pursuing in the moment, but now I am sorry I didn’t. I’m not sure if she did any real damage that wasn’t already there, but the level of pain I’m in is not something I want to take with me into the coming year, or any other year. I truly think CBD oil is in my future, as the “war on opiates” in this state is far too ridiculous to pursue with a doctor. I will, but I, like so many others, need a backup plan to help manage the pain in my life. No one should ever have to live like this.

Blessings to you all, as we say goodbye to 2016 and welcome in what will hopefully a bright New Year! 

copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Triggers

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I don’t fully agree with all of this. It’s a very complex thing and I’d never gloss over it.

December. My new month, chock full of triggers.

I woke up Thursday morning and didn’t know where I was. From the colors around me, to the sounds; I was completely and utterly disoriented. And then, it came crashing down on me in one fell swoop; it’s December 1st.

Last year, my life changed drastically on that very same Thursday morning. I worked hard to make sure the change wouldn’t come, but there are things outside our own power structure and oftentimes, we have to learn to adapt and try not to take painful tragedy personally. However, it was indeed tragic, it will forever remain personal, and it breaks pieces of my soul every day.

At the time I said I’d probably never discuss it, and I’m still not discussing it, not in its entirety. Perhaps, one day, in therapy, I will feel comfortable and safe enough to let chunks of pain out, but for now? No. There are some things that are personal; things you’ll carry with you, because they cut too fucking deep and, a year later, the memories continue to haunt you

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I cannot tell anyone the last time I was truly happy, if ever there was a time, or even a moment of happiness. My life is very ordinary, and extremely unhappy. Write, edit, cook, clean, wash dishes, do laundry, shop for groceries. Lather, rinse, repeat. I sing when I cook, if I don’t have a migraine and happen to be in the mood for music. I even danced the other night while cooking, because the song was perfect. I couldn’t remember the last time I had danced around a kitchen and dining room. I take care of Cat and Kitten, because they love me unconditionally and would never intentionally harm me in any way. I have been constantly reminded that I’m “not someone’s mother”. In fact, this year I’ve constantly been reminded how little I matter to those in my life, and especially to those around me. Many people have stepped back (some permanently, others I let go of), but others have stepped up and in to my life in larger roles. I am immensely grateful to those who truly stand by me, even when I’m suffering, and don’t push. I am grateful to those who take the time to get to know you, because they genuinely want to know YOU, because they CARE. They show you your value by their words and actions. As I told a friend recently “Friendship is free.”, because it is. However, it is also an immense gift in times of good and bad. And if you’re dealing with horrible shit, you quickly learn who will stand by you and who will not.

I’m happy to say I’ve made some new friends this year, and managed to strengthen my long-term bonds into something richer and deeper than ever before. That makes me proud because I highly value my friendships. It’s nice to receive text messages that make you smile, or items in the mail that mean SO MUCH because it’s truly the thought behind the gesture. It’s nice when friends say “I wish you lived closer.”, because they mean it. I’m almost certain I’d be in jail if all of my friends lived within 1-4 miles of me. Perhaps that’s not such a bad thing, either. I might benefit from being on a first-name basis with more police officers. LOL.

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Emotional garbage. Littering is unacceptable.

I am trying hard to turn my triggers into positives by changing my reactions to days of the week, to numbers on the calendar, etc. It’s not easy, it will take time, but I am trying, and I give myself credit for the effort that takes.

So, while this will be a difficult month for me, I look forward to coming out the other side a stronger, smarter person who can look for the silver lining amongst the clouds.

copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Unlike Simple Stress

“Unlike simple stress, trauma changes your view of your life and yourself. It shatters your most basic assumptions about yourself and your world — “Life is good,” “I’m safe,” “People are kind,” “I can trust others,” “The future is likely to be good” — and replaces them with feelings like “The world is dangerous,” “I can’t win,” “I can’t trust other people,” or “There’s no hope.” ―Mark Goulston

Strength Through Adversity

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Week two of this 10 level Fibro flare. Each day I have said “Tomorrow.” Yesterday I said “Self-care and work.”, because walking was out of the question in terms of pain, and even when the edge was taken off, I was concerned about further damage.

Waking up at 1:00 a.m. two days in a row with a migraine and excruciating hip pain is NOT doing much for my mood. I did about 10% of the proofreading job yesterday, and called it an early day. I am grateful it’s under 62,000 words, or I’d be furious with myself based on how hard I am working. I have a deadline to meet and I need to get this done. The sooner, the better. Brain cells died off yesterday. 😦

I’m struggling right now with the pain, with what my brother is going through. Another life-threatening infection, another stay in the hospital. More surgery scheduled for tomorrow morning. I am devastated and heartbroken, worried that my brother won’t make it through the year, and I am withdrawing from negative people who don’t want good things for me. If you treat me like a real person, I will be there for you through thick & thin, but when you treat me like an animal and/or a personal maid, it won’t take long before I get sick and tired of it.

The best was the phone call I received yesterday morning from a friend, asking if I could “pop down to New York real quick for the next week because her babysitter backed out and she has to work New York Fashion Week”. She hasn’t spoken to me in months (six, to be exact), but calls out of the blue for a favor. It’s not even a small favor, it’s the favor of entertaining a five year old for a week in New York City, as if I’m five minutes away. I very nearly responded by saying “She should be in school.” (which I firmly believe) and hanging up. What’s the point of enrolling your child in a nearly $40,000 a year private school if she is going to be missing a month traveling with you from New York to London, and then on to Milan and Paris? She could have stayed home and remained on schedule. I sat here, shaking my head no, and finally said “This time, I can’t do it.” I did NOT elaborate as to why or explain my feelings. It was as if I’d said NOTHING though, because then she asked if I’d be attending her 20th wedding anniversary party next year. One) I have not received an invitation; this is the first I’m hearing about it. Two) I wasn’t invited to the wedding, despite the fact that we’ve been friends since we were kids. Three) Maybe not. If I’m only good enough to be present for certain things and I’m not important enough for you to return my calls or text messages in a timely fashion (I don’t care who you are, no one is THAT busy, unless they’re off saving lives or have been deployed overseas.), please don’t expect me to jump when you DO deign to call. What little of a life I have, despite the fact that it makes me fucking miserable, is mine and I’m not a servant to be called in at the last-minute.

I am dead tired and would really like to sit and cry. However, I have to be strong for my brother and do what I can to help him get through another hurdle. Despite all the horrible shit I am going through, no one is cutting me open in an operating room (They’re simply doing it verbally.) and giving me bad news on that level. I pray he comes through this healthier, and I pray no family ever has to go through what he & I have been through over the past year.

I will be back as soon as I am able. For now, it’s back to the grindstone. G-d Help Me!

copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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I’m legitimately tired of pausing and not reacting the way people deserve.

Insomniac City & Other Feelings

There is something about summer that causes terrible insomnia for me. It’s not just the blistering heat & humidity of the days (and many nights). Even on cooler nights, I find myself completely and utterly unable to sleep. It’s awful, especially when I’m yawning at 7:30 PM thinking “I can’t wait to be in bed before 9:30.” I typically have to be in the midst of an excruciating migraine, Fibro flare, on allergy meds, or take a hefty dose of Melatonin to be in bed early these days. And let me tell you something; I’m not the least bit entertained by it.

Normally when I cannot sleep, I read or watch something I’ve seen a million times. Eventually I get bored/sleepy and it’s lights out. Sometimes I listen to music and that will help, but other times it makes my brain even more responsive, and that’s not helpful at all. I have tried re-reading some of my favorite books and every time I do, the next thing I know it’s 5:30 a.m. and I’ve got at least one cat crying to be fed or both of them wreaking some kind of havoc that annoys me and lulls me into the belief that if I feed them, they will calm down. Generally, they just walk away from the food and go back for it later on, but much meowing or pawing of the Mommy occurs before the “calming down” process. It irritates the hell out of me. I am NOT a morning person. Hell, I’m not even a day person!

Thursday morning I sat here unable to sleep. Kitten was 100% OUT next to me. She’d been sleeping soundly for about four hours or so while I’d done everything I could think of to put myself to bed. I eventually got about 2 1/2 hours of sleep, but after that, I was a prisoner to the day. I was so sleep-deprived that when I went outside around 3:30 to water the plants and herbs, I kept visualizing myself being found there at some point, ravaged by the neighbor’s dogs. It wasn’t just the heat and the sun’s intensity, it was that delirious state you often reach when you’re so sleep-deprived, you’d kill for 12 hours of solid, uninterrupted rest. Lack of proper rest screws with your body over time. I can’t remember the last time I truly slept well.

Last night, severely determined, I took a dose of Melatonin and was in bed by 9:15. The downside? I was up by 3:30. Not what I had in mind, AT ALL. 😦 Despite suffering pain-wise, I’d prefer not to need a nap by 10;30 in the morning. I’d also prefer to avoid additional encounters where I cannot account for 2-4 hours of my day.

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For the next week, the forecast is 80’s and 90’s. Only one day is slated for rain and thunderstorms. Heat and humidity make me viciously cranky and unpleasant. It makes me feel even more like a prisoner than I already do. 😦 I cannot enjoy “the great outdoors” when the heat index dictates that I need to drink a gallon or two of water, especially when I feel like it’s so hot I cannot breathe, or when the heat affects my eyes and makes my contact lenses cloudy and/or gooey. My allergies are awful. Even just typing these words makes me feel like a kvetchy bitch, but I’d rather be honest than pretend. Extreme temperatures are NOT my friend. Insect bites and sunburns are not a badge of honor that you’ve enjoyed the summer. I NEVER enjoy the summer, and I’d like to avoid all things involving damage to the skin.

There are no good suggestions for “things to do” when it’s this hot. Sure, you can walk the mall for no reason whatsoever, you can go to the movies, you can mindlessly walk around the book store, you can hit up a museum, but all of those things require energy I don’t always have. My patience is nil and my ability to make small talk is nonexistent. I don’t want to talk about anything serious either, because I am up to my ears in serious and do not care for or want any additional drama. I’m doing my best, my best is never good enough, and that’s the way the cookie crumbles, apparently. At this point, I’d rather discuss absolute nonsense, and that’s sad, because I am NOT a nonsensical conversationalist.

On one level, I could take the opportunity to hibernate and watch the Olympics, but let’s face it; that’s not going to happen. I will watch what I can of the opening ceremony (I already have it set to record on my DVR. I do not plan on watching it live.), some gymnastics, and the closing ceremony. The problem with watching gymnastics is that, as a former gymnast, I do gymnastics in my sleep. I remember every routine I’ve ever done and my brain works in mysterious ways. I’ve been lucky to retain nearly my flexibility, but NO, stretching does not minimize the pain of Fibromyalgia and things like yoga annoy the shit out of me. I am a physical kind of person, so if I’m going to workout, I need to be punching things or doing something that brings about results. I do pay an immense price for punching things; it kills my arms, back, and muscles I didn’t even know I have or utilize, but it makes me feel better mentally. I have many creative outlets, but so few mental outlets. Clearly, it’s time to search for something new.

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The whole library debacle is ongoing. After sending a formal complaint to the Director, the only results I’ve seen was the removal of $50+ in late fees they slapped on to my account because no one ever picked up the 14 items that were sitting here, half of which had been delivered five days after being checked out. I was so annoyed that I didn’t have time to read any of the books (I started one and got about 100 or so pages in, but I really wanted to be able to finish it.) and I still haven’t listened to any of the music I burned. I do hope the issue is resolved soon. On the plus side, I am caught up on The Good Wife after discovering six seasons of it are available on Streampix as part of my cable package. I was able to watch season four, which is apparently when I started watching in the first place. That was precisely what I thought originally, so now I’m over it. I can barely watch an hour of TV most days. I am so focused on getting work done and acquiring more work that it’s easy for my DVR to fill up and for me to miss things for months on end. At one point, I hadn’t turned it the TV on in a few months. It’s new, so it had calculated the energy/electricity saved and how many hours it had been since I’d last had it on. I had one of those moments where I thought “Wow! You have NO life whatsoever.” Of course, I tend to think that daily, but realizing that my new flat screen is basically collecting dust pissed me off. It was a gift, a “sense of normalcy to help me transition” after my move, but nothing is normal, I am not “transitioned”, and I have little time to enjoy the things I normally love. 😦 My life feels like it is dictated to me, as opposed to my choice. That doesn’t make me feel good about myself and I suspect it’s not supposed to.

And so, another day begins. Sun, heat, prepping for an interview for next week, being ignored by Cat (Kitten has already had breakfast and is sleeping peacefully beside me. She talks in her sleep. LOL.), and a zillion thoughts facing through my head. I’d like to go through the next few days without an interrogation, stress, deepening depression, or thoughts of walking in front of moving vehicles. I can’t afford to deal with broken bones (physically) and I really cannot handle dealing with anyone giving me the third, fourth, or tenth degree. I’ve bitten my tongue for far too long. One more push will likely send me over the edge and it won’t be pretty. However, it’ll feel damn good not to hold back the force of my personality any longer. I am only an opponent when someone forces me to be one. I make no promises if you continually push my buttons. In this, I think many of us are the same. We don’t actively go looking for the craziness that comes our way, but we won’t back down if you get in our face, either.

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Wishing you all an easy Friday and a wonderful weekend to come! 🙂

copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Can Stress Cause Your Fibromyalgia To Flare Up?

Can Stress cause your Fibromyalgia to flare up?

My answer? A resounding YES.