Darkness, Light, & Slowing Down

SAM_0832
My precious…

Hi everyone! I apologize for being too tired and too sick to write this earlier in the week. I’m trying to get used to being back online. I legitimately hadn’t turned my computer on since my post on the 13th. I saw no point in tormenting myself. My phone allows me to check what’s going on here, but it does not allow me to login and/or post anything. I haven’t figured decided if it’s something I’m doing wrong or if I’m simply too stupid to figure it out. Anything, even a combination thereof, is a strong possibility.

I’ve battled a lot of Fibromyalgia pain and migraines since arriving up North. Every single time the weather was supposed to be a certain way, my body was the indicator that things were about to change. The pain index is slightly higher here, so adjusting to that is going to take some serious getting used to. Factor in some super cold days/nights that have occurred since my arrival, and I’m lucky I’m not in the emergency room.

I’ve truly spent more time in pain than anything else. At the moment, walking is the single most excruciating thing I can do. I don’t have out-of-network benefits, so I have to get my insurance squared away here ASAP, lest I end up with an epic emergency room bill due to my traitorous feet. 😦 I will be shocked if I don’t have fractured or slightly more damaged bones in both feet. Well and truly shocked. To add insult to injury, I’ve had some pretty brutal migraines. I am torn between desperately wanting to eat everything in sight and not wanting so much as a bowl of soup because I’m constantly worried something will trigger a headache that I cannot cope with. I’ve been slowly nursing coconut water to rehydrate, but I keep asking myself how many rounds of medicine I need to take to be rid of this insidious creature. 😦

I feel much like I imagine a caged lion feels; pacing back and forth in an enclosure at the zoo. I suspect I feel this way partly because Cat & Kitten are currently in a separate room to give OGK (Original Gangster Kitty, which is clearly not his real name) time to adjust to having “roommates”. They need time to adjustment too.

The first run-in had Kitten jumping up onto a windowsill to gain higher ground from him chasing her, but she was so brave and I was very proud of how she handled herself. She did not try to hurt or attack him. During the process of that moment though, he scared Cat so badly that she slipped under a spot in a closet that led to the insulation in the roof. I had no idea if it led to other places within the house, so I was deeply concerned, but trying not to panic because cats can pick up on your anxiety and I did not want to make Kitten panicked as well. After less than 48 hours (which is a LONG time because she doesn’t meow), a handyman had to be called to remove panels so that she could be safely located. I was SO relieved after she came out of that hiding spot. I needed to hold her close to me and let her know that she is loved, safe, and that I have not abandoned her. Unfortunately she spent a few days hissing and spitting, so I had to move her to a safer location with a blanket, after getting her out from beneath a dresser and blocking all other access points to dangerous hiding spots. I lured her out with a few treats (I figured after not eating for several days, she had to be starving.) and a small bowl of food. I gave her some space and now she’s not hiding nearly as much. In fact, she’s coming down the stairs and checking the place out. Mostly, she is marking her territory and making sure everything I own still smells like the person she knows belongs to her. No one is cute enough for me to cheat on Cat and Kitten. 😉

The second run-in was the other morning when Cat went flying down the stairs while I was trying to go into the room to feed them and spend some time giving them love and attention. I decided the worst that could happen was her running back to me, which she’s done many times, only because I had things in my arms and couldn’t scoop her up as I normally would. Of course, my “worst case scenario” is not what happened. They met in the kitchen, which I only managed to witness by dropping everything I was holding and going after her. Initially he was calm and laid back, but in the blink of an eye, everything changed. He chased her from the kitchen up the stairs into the room and there was a major growling, hissing, spitting period between both of them. He wouldn’t let up, even once she was quiet. I tried breaking them up so that she wouldn’t freak out (she was hiding under a different dresser where he’d cornered her) and he turned around and whacked me. Normally, he’s pretty laid back, sweet, and loving, but as an older cat who hasn’t had to share his domain at all since being rescued, he’s über territorial, which is understandable.

Once I separated them into different rooms, I did go back and calm Cat & Kitten down because, quite frankly, they’re still babies and have never dealt with such aggression. I barely even raise my voice around them (I once yelled during a sporting event and somehow managed to scare the crap out of Cat. Neither of them responds well to loud noises or voices, and I don’t blame them.) and once they both reached the proper size, they had free reign of their home. Separation, while for everyone’s best interest, is clearly upsetting all of us. Despite the Feliway diffuser (Thank you PetSmart for giving me 20% off because it was on sale and you only had one left. I was really impressed by the gesture, and I appreciated it.), things are not okay in “cat land” and it’s making me sick on a daily basis. While I do not expect perfection, I do need to reach a point where my girls are no longer being bullied and kept in one room where they spend 90% of their time without me. He doesn’t have to love the girls, they simply have to co-exist. Trust me, the little one can take him (She’s an Alpha.), but if you’re still growing into yourself and a big, black cat that isn’t your sister chases after you, your little butt is going to run for safety. I don’t like it though, not one bit. Plus, it upsets him and makes him sick, and as a diabetic cat, I have to watch out for his health too. At first he simply wanted to smell them, which is natural cat curiosity, so I gave him their blankets and some other things to help him acclimate to that, but now he’s feeling froggy and wants to intimidate. Not acceptable. They have another week or so before I will start to allow the girls out more and more so that he learns to share and adapt. They’re doing their best, despite setbacks. Me? Just this aspect of disruption to my daily life is making me ill. I have raised Cat and Kitten since they were tiny, so my love for them is borderline obsessive. I am happiest with them and they are happiest with me.

I have been horrible on a work-level over the past ten days or so. I’m stressed and sleeping horribly, so my creativity ebbs and flows in weird ways. Here’s one thing I have noticed, over time, about being a writer: I use my laptop damn near every single day. Last week I decided to pick up a pen and take some notes for ideas for things I wanted to discuss. I have no clue when my handwriting became damn near illegible, so I wonder if anyone else has this problem? Do you find writing a few pages by hand to no longer feel “right” and/or cause you physical pain? I only had one person to consult on this matter and he agreed that due to constant computer use, his handwriting has become worse and it actually hurts to hold a pen for longer than it takes to make a grocery list. I imagine this is more common than one might think. I do hope I am able to get more work done next week. I’m going to take an hour or so this weekend and map some things out for myself. When in doubt, PLAN.

11231040_10152803567961637_2083167306931835151_n

So, that has been my life for a while. I know things will improve. Without darkness there cannot be light, but it’s also okay to slow the fuck down and focus. That’s what I intend to do. I’ve been dragged down by a lot of horrible shit for far too long and I want things to improve. Part of improving means fully disengaging from that which has caused me agony.

On occasion, a person does not believe me when I say I’m done, but this time my words, my text messages; they’re the end. You cannot help everyone and you cannot save the world. Not everyone wants to be saved. Some people want to drown in a terrible abyss and you have to let them so that they learn their life’s lesson, whatever it may be. Good luck and G-d Bless. I’m done, you’re on your own. For the record, none of us are horrible people for expecting someone to have their shit together and not fuck up in horrible, irrevocable ways. But when they do, it is okay to set a limit and walk away. You do not deserve to be dragged down with someone who refuses to realize that everything they do is wrong. Slightly cryptic, I know, but this is something I needed to say for me.

I hope everyone has a fantastic Friday.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Fantastic Journey

I leave this afternoon for a new city. Well, part of me leaves. I suspect that in an hour or so, part of me will break. 😦

I will be back full-time as soon as my Internet service is up & running. The specifics are a little too vague for my liking, so tomorrow I shall crack the whip.

Herein begins “the dark days”, which I hope & pray will become a bright beacon of light real soon.

Wishing you all a wonderful week, just in case…

L

Sleepless Nights, Stressed, & Making Lists

ican

I’m having so many difficulties sleeping, and it’s pissing me off. I wish I could blame that on the incessantly mouthy little dogs next door and above me (They must know I’m trying to sleep, because the second my head hits the pillow, they start barking.), but the truth of the matter is, I am simply stressed beyond words. There is much to do between now (Friday evening) and Sunday morning. I know this because I’ve been making lists.

Like many writers, I get things done by laying things out on paper. Moving is no different. It is stressful, physically & emotionally difficult, not to mention expensive. I have slight envy (not in a serious sense) for anyone who can simply pack their stuff up in a truck and move on to a new town, city, or state without a lot of effort, and without assistance from another human-being on the physical end of things.

It doesn’t matter where you move, if you’ve inherited 2-4 generations worth of “stuff” it costs money to keep that “stuff” safe until you are able to successfully sort through everything, keeping only what is most precious to you (and oftentimes you do not have the time to do that, so you just move it all.). I hope that in the future, my children don’t ever have to say “Wow! Mom had a lot of stuff. What should we do with it all?” I’d prefer they have tangible memories, photos, and a million special moments of family to reflect upon. I’m not saying one shouldn’t keep things, but outside of jewelry, books, DVD’s, music, and a few precious items that I will always hold dear, I’m pretty minimalist, and I try to achieve that “less is more” part of myself with every passing day. I am perfectly content to sell “stuff” I don’t want or need, and I am just as content to donate things when the need arises.

And yet, I am oddly attached to what I do own. I remember working hard for these things, struggling, and being excited when I was finally able to call something mine. But now? My health has to be my biggest priority.

iwish

Earlier this week, when I thought I was about two seconds away from an epic meltdown, my brother pulled me aside and said “You think you’re breaking, but you’re SO strong. You don’t even know how strong you are. I see it.” And yet, I continue to lose my temper on a damn near daily basis. Sometime between 4:00 PM and 8:00 PM each day, I become a psychotic lunatic that you cannot speak to. It’s scary, because I have no control over it.

Tonight I am trying to do laundry so that I can pack all that is necessary (basically, everything I’ve worn in the past week. All the goodies I found in my bags are, mostly, worth taking with me.), swap things out at the storage unit tomorrow when I grab my suitcases and TV (I figure by putting my clothes into my suitcases, I am eliminating the need for excess boxes.), and then run a few small errands so that I can get some rest before the big journey with what will surely be two crying cats, at least for a little while. Thus far they have proven to be good little travelers. I pray that is true on Sunday, which is precisely why I will wait until next week to wash their blankets. Even though it won’t be cold on Sunday, the familiar smell of “home” will help them transition a little more smoothly, especially since they will be meeting another cat upon arrival. These are two tough little girls, so Mama’s going to be clipping their nails to ensure they’re not physically aggressive. I’m sporting some scratches myself from “play”, so I can’t imagine what they might do if they think they’re protecting themselves. Two against one is only acceptable in hockey. We do, however, suspect that their new roommate was a drunk hockey player in a past life. You never truly know. 😉

I’m desperately trying not to take anything with me if it’s not 100% necessary, but there are some things I cannot negotiate on. I’ve already gotten rid of two boxes full of crap that didn’t seem like crap at the time, but felt good to toss. I consolidated four boxes into one, etc. If you don’t know when you will use something, you probably don’t need it “right this minute”. Breathe, and let it go.

Thankfully, I am pretty sure I only have two more loads of laundry before I can call it a night. I will throw dinner together between now and then, and maybe nail a beauty routine down so that I don’t have to waste time tomorrow. If I over-think it, nothing will get done properly, so I need to dial it back and calm the fuck down. Sleep is NOT a crime, especially when you’re terribly sleep-deprived, but I need to allow myself a good 6-8 hours so I don’t become a psycho tomorrow, or Sunday for that matter. Note to self: Eat regularly, stay hydrated, and pack some snacks.

I’ve got this.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

therearewomen

Never Underestimate The Pain

thepainofaperson

My physical, mental, & emotional agony trump a lot of other things at the moment. I’m, quite possibly, not clear-headed enough to write this properly, so please, bear with me. I’ll correct anything that I post that needs to be fixed later on.

I sit here terribly sleep-deprived, covered in varying degrees of bruises (some are healing, some are fresh), and my physical pain is worse than I ever imagined possible. And yet, none of it compares to what’s going on inside my head. 😦 For the past week, I have been pushed way beyond my limits and comfort zone. On the plus side; I’ve walked away from some very negative things that were causing me severe physical, mental, and emotional illness that I wasn’t even aware was happening until that final step away, when I took my first clean, stress-free breath and realized I hadn’t felt free in years. On the downside; the move I was trying to put off in order to take care of Patient X  until he is fully healed is coming up sooner than I thought possible.

As of this past Monday, 95% of my stuff is in storage. My temporary “safe place” is a hotel; the only pet-friendly one I could find. The room is fantastic, but the walls are closing in on me. Again, I’m stressed and sleep-deprived. This morning I felt so weak, I went back to sleep, something I’m trying in earnest NOT to do because it exacerbates my insomnia.

17766_970840139616575_5329463854999952890_n

Patient X’s first post-op appointment went surprisingly well. He is healing properly, mostly due to the fact that I’m OCD and constantly repeating myself so that he’ll listen at least one time out of ten. Unfortunately, his “young pain receptors” are having trouble with the really painful aspects of such a complicated and delicate surgery, so his pain medication was changed at yesterday’s appointment. I’m not thrilled with the choice, but so far, it is working.

I went to three different pharmacies for this drug and when I finally found one willing to fill it, they damn near told me to go back to Philly and fill it there. It is the store’s policy that certain drugs be filled “closer to the prescribing hospital”, as if people have a choice as to where they’re operated on or not! They were willing to do it this time because I’d called in advance, which apparently made them nervous (I think they called security several times, an absolute FIRST, and I’m a pain patient, so I was floored.). I’m not about to apologize for calling with a legitimate question. Lord knows I showed up less than ten minutes after calling with the script, the patient, and his driver’s license to prove it wasn’t being sold on the street. They weren’t going to fill it until they realized he’s A) wearing a Life Vest and B) talked with him about why it was prescribed. Not cool Walgreens, not cool AT ALL, especially in light of the medication you filled without batting an eye for several patients who showed up after me, one of which is something I feel should be outlawed, but I’m not judging the fact that people need it.

Walmart & Target: you should both carry this drug that I desperately needed to acquire immediately, even if only in small quantities. Post-op patients need access to pain medicine that their surgeons prescribe. It’s completely unacceptable to tell them you can order it “in a week”. What are they supposed to do in that week? Hang around with a thumb up their ass?! NO ONE should be forced to suffer because you’ve decided not to carry medication legally prescribed by a physician. By doing shit like that, you’re trying to override a doctor’s right to prescribe and you don’t have the authority to do so. I was so annoyed by the time the medication was paid for that I damn near flipped my lid, and I can only partially blame that on low blood sugar.

fineline

Sunday is “moving day”. Some of my clothes & electronics, Cat, Kitten, and I are moving nearly five hours up north. Life as I know it is changing drastically, and I am not happy about the “rug pulled out from beneath my feet” feeling. Yes, I will adapt and yes, I will adjust. I will pull myself together and dust myself off over these next few weeks/months, mainly because stress can do horrible things to the body, mind, and soul. Someone told me on Monday that if I don’t take care of myself, I could do irreparable damage. She herself was so stressed around this time last year that she had to re-learn how to walk. I don’t want to reach that level of stress, so I need to get on the self-care diet of putting myself first for a few hours every single day.

Once I move, there will be a period of time where I will have to back-date things I write for this platform because I am not 100% sure when I’ll have Internet access, however, things will be written & posted as soon as humanly possible. Let’s hope the wait isn’t too long, lest I lose my marbles. There is such a thing as “too much silence” after a big move. The only books I have are on my Kindle Fire (every book I own is sadly, in storage. My poor babies!), and all of my music is packed, so I will be living off of what’s saved on my laptop and phone until I’m back for good. You simply never know when I will need to listen to Taylor Swift on a loop and cry.

I will miss all of you during “the dark period”, but know that I’ll be back the second the technician plugs everything in. I’ll be in touch before I leave. Be sure to check my Twitter feed and for those that need to know, my cell # and e-mail address will not be changing.

Laters, peeps!

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Insomnia & Painsomnia: A Wicked Combination

bednow

Whenever there’s something stressful going on in my life, it often affects my sleep, thus turning me into a shadow of my former self. Insomniac Lisa and Painsomnia Lisa are two very different beasts from the person I am when I’m able to prioritize sleep, and actually get into bed each night at a decent hour. I’m never 100% pain-free, but sleep is a crucial part of how my body recovers from what I do to it each day. I have worked my ass off this past month and lost roughly 20 pounds, somehow managing to strengthen my upper back muscles in the process.

Unfortunately for the past month, my sleep has been insanely erratic. First it was major moving stress, liable to affect even the calmest person in the world, of which I openly admit is not me. Then it was my brother’s pre-hospitalization health, closely followed by getting the phone call that he would need open-heart surgery or a transplant. It’s normal to have things like that affect you on many levels health-wise. Let’s face facts: No one expects someone young to be told that their heart is at 11% capacity. An entire team of doctors and surgeons and two different hospitals told him he was 10-15 years too early for such a severe issue. All of this crap has been screwing with me day and night and thus far, nothing I’ve done is helping. To add insult to injury, I have had a migraine since the day before Thanksgiving. I currently feel as if my head is in its very own torture chamber, taking my body along for the ride. 😦

When my brother was first released from the hospital, my sleep schedule had already shifted due to late-night texting and phone calls when he was still hospitalized and feeling lonely late at night, before his final dose of pain meds took over. There were many times I had to suggest he watch something on TV (“It’s almost 10 PM, here are three shows you can watch tonight. I have GOT to get some sleep!”), and then mute the ringer on my phone as opposed to allowing it to vibrate, so I could go to bed without the phone buzzing for hours. Now he’s here 24/7, and he’s driving me insane.

He’s not doing anything in particular to make me crazy (though I wish he’d remember that his legs are fine and he can get up and pour his own damn drinks!), he just happens to be in my personal space, and I crave privacy and silence. He’s mortified that I disinfected the remote, but since I don’t want him getting sick and he’s using it and I’m using it as well, I figured it was a wise decision. It is cold & flu season and while he is currently not in contact with other people several days a week, I am, and that can pose a problem for him if I bring something into the house that I did not leave with.

The other night he fell asleep while I was talking to him (I wasn’t boring him, he was simply in a lot of pain.). It was super early, but I felt that was the perfect time to cover him with a few extra blankets (It’s cold here most nights, and even when it’s not, he’s complaining that he’s cold.), and sneak off into the silence that is my normal routine. Alas, he got about three hours of sleep and I was wide awake. The second I thought about going to sleep, he was moaning in pain and when I checked on him, he was messaging someone on his tablet, with the TV on lighting up three rooms.

After a highly stressful week, I was finally in bed at a decent hour last night. As soon as I’d dispensed the last pain pill of the day, my head was on the pillow. Unfortunately, the previously aforementioned migraine decided to kick things up a notch and a little after 2:00 a.m., I woke up in unimaginable pain. I have no idea how I am attempting to type this, much less see.

My first line of defense is to attempt to get some caffeine into my system. It’s the only thing I haven’t sought out or used to treat this particular pain level, when it would normally be something I thought about a bit more closely. No, last night I was too far gone, so I took something less targeted that, as a last resort, often helps. Clearly it only helped part of me. 😦 So, I am nursing caffeinated tea and I took two Excedrin Tension Headache capsules. Not because I have a tension headache as opposed to a migraine, I know the difference, but because sometimes that combination works for me and nips the migraine in the bud. It’s not a permanent solution, but nothing really is. If it doesn’t start working in an hour or so, I will take a third.

1601324_1131332816884091_3989658827332551365_n

It astounds people that I have managed to learn how to work through some of my worst migraines, or that I put myself into the head space to focus on healing one. I look at it this way: I am not going out and triggering the headache to be any worse than it already is. I am home, I’m safe, I can control the environment (noise level, light, temperature), and I know not to move around too much, but can I sit at a darkened laptop screen and talk about it? Sometimes, yes. That doesn’t diminish the intensity of the migraine, it does not mean I don’t suffer from migraines (three neurologists and two other doctors are all in agreement that I suffer from migraines. They have gotten worse since my first diagnosis, so there’s nothing else it could be. Everything else has been ruled out.), and it also doesn’t mean it’s “just a headache”. On occasion, like most sufferers, I will get a dull headache. Unfortunately, dull can go to extremes pretty quickly, so I take all headache forms seriously. I don’t walk around denouncing other people’s pain either. If a person says they have a headache, but quickly says “I don’t get migraines like you do.”, I still wouldn’t tell them it was “no big deal”. Pain is pain. No one likes it and for those of us that endure it 24/7, I have seen people empathize with others openly, and I have also seen people blow off the pain of others because they somehow feel it is their right in life to be the one person on the planet who has it far worse than the rest of us. Sorry, but that couldn’t possibly be true, or you’d be dead. What may be indeed true is that everyone’s threshold for pain is different. In fact, I know this to be true.

In studies, it has been determined that women tolerate pain differently from their male counterparts. Not better, not worse, just different. Taking into consideration that the female body can push out a human-being during the process of giving birth, that’s not an immense surprise to me.

All of my heavily tattooed male friends had their jaws on the floor when I sat through my first four tattoos and described the pain as “No worse than a cat scratch.” You see, I chose a spot that most of them found to be extremely painful. They all told me to put my ink somewhere else, that the pain would be too much for me to endure, especially considering I suffer from Fibromyalgia, but I’d consulted with several artists who, like me, believed that my first tattoo should be someplace easily covered up with clothing. However, never to do things the simple way, I got my first four all at the same time. I wouldn’t even rate that a one on my personal pain scale. I’ve had more painful piercings.

As many of you also suffer from migraines, has anyone gotten a Daith piercing to try to combat them? Compared to all the medication, a myriad of supplements that may or may not be useful to the individual, various treatment methods, Botox, acupuncture, etc., the piercing itself, depending on where one goes, is between $50-$100. I am being told that it works for 50% of the people who get it, but I am also being told the relief is temporary, though some people are reporting themselves migraine-free 3-7 years post-piercing. I have decided to try acupuncture for a year to see if that spot along either of my ears responds to treatment. My insurance covers it, which is rare, so I am going to take the opportunity to use it first. I’m not sure I need another hole in my head, but I’d be interested in hearing whether or not the piercing has helped anyone. If you’re considering getting this particular piercing, please go somewhere highly reputable and have someone experienced do the piercing itself. The report of infection with this spot is very high, and I’d hate for anyone to go through that. I’ve only had three piercings in my life that gave me problems. Luckily they never got infected, but two of them bled for years if someone hugged me too hard, and the third still gives me problems on occasion (The fact that I share the piercing with a highly toxic person is probably why… I’m a big believer in energy. Sometimes we are healthier overall without certain people in our lives.). While most piercings are mainly decorative, there is no medical or scientific evidence that a Daith piercing is a cure for migraines, so don’t read into all of the Pinterest and Instagram “science”. Those are exclusively individual experiences, most of which are brand new. There’s no way of knowing what the long-term effects may be. For many, it is worth it for temporary relief. I’d rather explore a few additional options first.

imverypicky

Are there any alternative treatment methods that work best for your migraines? If so, what are they?

The day insomnia can be cured in any way, shape, or form, I will be on a line for that! Right next to the line for the great Fibro/Chronic Pain cure. Here’s hoping we see it in this lifetime.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Struggling

1463750_634556556583724_597648960_n

It is the early morning hours of Thanksgiving Day here in the States. After spending hours preparing stuffing yesterday (which I highly suspect might suck today), I ended up with a highly stressful day which resulted in a migraine. That then turned into insomnia, which is the only reason I am awake at such an hour. Turns out, Patient X is not the only one in pain. 😦 Poor kid.

Lucky for him, he has a sister/maid who will go back to the hospital tomorrow to pick up a prescription and take it to the pharmacy on Black Friday, a day I avoid like the fucking plague because of the insanity that ensues, all because his doctor did not see fit to prescribe the appropriate amount of pain medication upon discharge. I thought it was an incredibly odd number seeing as how he’s supposed to take twelve pills a day until he’s healed enough to not be in such severe pain. He is healing, the swelling and bruising are almost fully gone, but he’s still in an incredible amount of pain. I couldn’t stand by as if it weren’t happened as the pills diminished.

I realize there are always pre-holiday emergencies, but it shouldn’t take a doctor’s office nearly twelve hours to return two phone calls where the words “pain management” are used. I find that unacceptable.

Moreover, not being able to call a prescription in to the pharmacy in an emergency simply because it is a controlled substance, even if it means faxing a hard copy from your office or sending the hard copy via FedEx, is a major time and energy drain on caregivers. I realize doctors and PAs are busy covering their own asses on this shit, that patients do NOT come first, but it makes me angry that my brother is in severe pain and that I, in my agony, have no choice but to schlep somewhere I don’t want to be in order to get the appropriate medication for him. It should have been done correctly the first time, except now, I am going to be fully present and since his voice still isn’t better, they’re going to have to put up with mine, and oh, how loud can I go?!

The physician’s assistant was the epitome of rude, dismissive, and unprofessional (I’d like to think she’s just stupid and/or had a stressful day that she would have preferred to be spending somewhere else with family, but I was then informed that she’s always like that, so I knew it wasn’t simply my perception.) and proceeded to lecture me on post-op appointment scheduling. Excuse me; I’m NOT his secretary. I was not handed the discharge papers, so outside of dispensing medication and doing a plethora of other things that contribute to my misery, I am also supposed to be a mind-reader. News flash: There’s no such thing as mind-readers. Also, the job of physician’s assistant to a surgeon is basically glorified prescription pad, especially when you don’t know how to communicate with people as if they’re human-beings. Instead of wasting time acquiring healthcare experience before entering the three year program, I strongly suggest going to medical school and then try giving me attitude. I get to say this because it’s the truth. If you happen to be a PA and you’re reading this, I can only hope you treat people the way you’d want to be treated and don’t hang up on people mid-sentence. When you work with the public in any form, it is crucial to be courteous and respectful. For the record, I said nothing to warrant the ‘tude. If anything, I was overly polite and respectful. I won’t make that mistake again.

Is it convenient that they only see patients on Tuesdays? No. Instead of being able to enjoy some semblance of a holiday weekend this snit tells me to “call on Friday to get him into the office on the 1st”. Because apparently, Lisa has no life of her own and can drop everything on Tuesday so as to miss her own doctor’s appointment. I would like to know precisely when I entered a life of servitude. I wonder if there’s a uniform…

At this point I can only assume I am over-tired, hungry, feeling the effects of the Full Moon (If anyone else saw it rise last night, was it uncharacteristically enormous?), and/or in desperate need of hitting something. It might very well be a combination of all of the above. I can deal with that because it’s honest.

However, to add insult to injury, Patient X is running a fever and might very well need to return to the hospital tomorrow to be certain he does not have another post-op infection. If he does have another infection (which would be lucky number three), I will be on the 10 o’clock news in the Philadelphia area demanding that this hospital be investigated.

I wish I were able to set aside real life and focus solely on fiction (it’s a far better world on paper, as is often the case), but sometimes a writer has to be supremely real and not gloss the serious shit over. I may not currently be writing about NaNoWriMo, WIP’s, my experience editing this or that, or spewing nonsense, but at the beginning and end, I’m going to be real. I’d rather be respected for that side of me than have someone fuss over something completely unimportant.

There’s no rest for the wicked. Only the good die young, so I’m going to be here forever!

Wishing everyone stateside & all members of our Armed Forces a Happy Thanksgiving. To everyone else in this world; have an amazing Thursday where your priorities in life supersede all the bullshit.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

weliveintheera

My Apologies

dontyouhaveahobby

Hi everyone! I know this isn’t a typical visiting experience at the moment, but I assure you I am doing my best.

When you’re caring for a post-op heart patient, every single day blends into the one before. I likely wouldn’t know it was Monday if I hadn’t intentionally bypassed Friday and Saturday’s normal routine of running errands, only to overdo it yesterday. I have spent a lot of time putting off every aspect of my life to dispense medication at regular intervals, to pour drinks (apparently I close everything very tightly, who knew?), and coax Patient X to eat a few times a day. These may seem like simple tasks, and they are, but if I leave the room for 45 minutes, sometimes less, I hear a tiny voice asking “Are you hiding from me? Am I making you sick?” That’s if I listen for it.

The fact of the matter is: I like silence and privacy. In fact, I crave these things. I don’t like being up ’til 3:00 a.m. unless it is my choice to do so. I don’t like sitting on the couch for 4-8 hours a day in order to keep someone entertained, because while the TV is clearly on in order to “entertain”, I can’t watch anything I truly want to see (I spent an hour in my room late Saturday night watching an episode of a show that ends in a few weeks because I can’t do so downstairs; some asshole didn’t want to see it and despite the fact that it’s my remote, it’s not worth it.). I find myself looking down at my phone a LOT, and no matter what I do to try to be in bed by 10:30 each night, I cannot sleep.

If you have any experience with a cardiac life-saving device called “Life Vest”, you know that this device can go off for any reason, even while changing the battery. Thursday morning the piercing sound threw me out of bed in its utter alarm, and I went flying down the stairs to make sure he was alive and conscious. He later told me I shouldn’t have panicked; the device has a 100% success rate at reviving someone if anything should go wrong. It’s intended purpose is to shock you back to life if need be, and it can probably be heard down the street. Mind you, from the second they put it on him, he has complained that it’s the equivalent of a “male bra”. It does sort of look like a sports bra and it looks uncomfortable because there’s so much to it, so I’ve had to listen to it go off several times over the last week. I tried sleeping through it Friday morning, as it was still dark. Saturday it went off in the early evening hours, but it was still annoying as all hell to hear the sound out of nowhere. Not as annoying as someone dying in my presence (No thanks, I’ll pass.), but it’s simply that noise itself does not agree with this chronic sufferer of migraines.

Certain types of noise are triggers and unfortunately, I never know what will cause a migraine. I only recently switched up my medication, but I did have a very long stretch over the last few weeks where one migraine lasted over a week. I had no choice but to ride it out. 😦

Today, I hurt from my neck to my toes. There’s not a part of my body that doesn’t feel bruised and battered. Okay, there are a few parts that are okay, but that’s about it.

Thanksgiving in the U.S. is this Thursday. In my last-minute prep attempt, I decided what to make and bought everything yesterday. I am grateful that no one in their right mind thinks it’s acceptable for me to make an entire turkey for two people. I cannot fathom tackling that at the moment. Every turkey I so much as glanced at was over 20 pounds, but since they were frozen solid on top of that, who knows how much they actually weighed. I found something small that will fit the bill. I don’t expect it to last more than two days, which is perfect. Wednesday I will make the stuffing in advance (Let’s face it, I will be eating stuffing Wednesday night. I am addicted.) so that I don’t have to cook for hours on Thursday. Patient X is on a little-to-no salt, low-fat diet. I’ve already broken multiple health rules in order to get him to eat. I’m making a small amount for him with as little sodium as possible. He has told me for nearly a week now that everything I’ve made is “full of flavor”. Apparently that is the component missing in all hospital food. :/ I can safely make sure that the rest of the stuffing actually tastes like something though (Yay!). I’m contemplating a citrus base for the main course. If only I had known in advance that I’d have a sudden craving for mashed potatoes, I would have also put that into consideration because apparently this is a carb kind of week. I still might make them, at the last-minute, providing I have a medication run to use as an “excuse” to do it. As things stand now, I might very well need to get another pie too. While completely unnecessary, it does make Patient X happy. Personally I don’t want vegetables made into pie, but perhaps that’s the American in me. Pie should be something enjoyable if you’re going to have it at all.

I am exhausted, in a lot of pain, caring for someone I normally can’t tolerate for more than short periods of time, and I still have my real life going on amidst all that. I’ve shelved as much as I can for the remainder of the year, but there is still much to do. The last thing I can even bother to think about at the moment are the truly stupid things in life. Wow, that statement covers so much…perhaps one day I will write about it. Hell, I’m lucky I remembered to pay my bills this month with all that’s going on! 😦

I hate the holiday season. It is a constant reminder that I am alone in this world, that my family is gone, and that those who are still alive (minus a few people) are horrible human-beings.

Despite amazing friends and loved ones, despite the adorable sweetness of Cat and Kitten, the holidays suck for me. I did get some nice gifts in advance of Chanukah (Shout out to my awesome Aunt.) and two belated birthday gifts (Again, my Aunt, but also a fabulous necklace from Sweet Blossom Gifts that I adore. If you’re going to be shopping on-line this year and you want something personalized and unique, I highly recommend them. They have everything from coffee mugs and pillows to jewelry. I can say for a fact that the jewelry is stunning in person and their prices are very reasonable.) that were such a lovely surprise (If you know the name of one of my favorite stores, you know I will be hitting up the post-holiday sale.), but I won’t be gift-giving this year. Things are simply too stressful and I have absolutely no time to do it. I barely know my name, the last place I need to be is a store. I also lack the desire to do anything for anyone over the age of five. Everyone knows they’re in my heart and that I am there for them 24/7. They don’t need expensive gifts to remind them of that fact. Sometimes, people truly just want to be thought of in a positive way. I’d rather someone send me a card and tell me something of value as opposed to forcing themselves into stores and not taking the time to enjoy the season itself. Those are precious moments. Actions are just as important as words.

throughastorm

I am trying, with all of my might, to get through the remainder of the year with my head firmly on my shoulders. Patient X has a long road to recovery (If one more person tells me he will be chopping tress down in six months, I will hit them. For starters, he’s never chopped a tree in his life, so I highly doubt he’s going to take that up once he’s healed.) and while he is indeed healing (there’s been remarkable improvement this week), he is also weak and will definitely require physical therapy. His vocal cords are still pretty bad, but hopefully I will know more after his first post-op appointment after Thanksgiving. The fact that I’ll be able to force him off of my couch and into the fresh air, albeit cold, for several hours almost makes me giddy. The not so giddy part is that I do have to go with him, otherwise I won’t know precisely what the doctor says. Let’s just say that the anesthesia that was used has some side effects and there are parts of his memory that simply aren’t there at the moment, which is quite scary for me to hear, but scarier for him because he knows he should know these things and keeps wondering why his brain is foggy and he can’t form coherent thoughts or access his memories. If ever I find that anesthesiologist, I might have to sit him down and explain certain things to him in thinly veiled threats. It wouldn’t be the first time I’ve had to do it and I’m certain it won’t be the last.

If you’re celebrating this week, I wish you a wonderful, happy, and safe holiday. If you’re not, I wish you were coming to my house so I could cook for you. 😉

Be safe on Black Friday. It’s a fucking jungle of psychosis fueled by insane amounts of caffeine. I will be as far away from the madness as possible. Of course, I will still have someone hogging my TV and eating my food. If you see a good-looking man being auctioned off on eBay, I assure you I’m the seller. LOL.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

shoppingwith
This has been me, for nearly a month. I’m not 100% sure what I’m even buying any more.

Patient X

13285_898185756915269_7683738492061225885_n

Patient X is being released into my care this evening after major surgery at the beginning of the month. Discharge was repeatedly delayed by post-op illness and absolute idiocy on the part of doctors arguing over proper procedure. It took them nearly a week to discover that he had not one, but two separate infections. Thank G-d for Infectious Disease Specialists who put their foot down. #Respect Of course, the fact that I called the head of the hospital and informed them that discharging a cardiac patient with an infection is grounds for a lawsuit might very well have secured his bed for an additional three days. For the record, I try never to use the word “lawsuit”, except when it pertains to protecting my family’s health, their rights, or rights in general that may be in a violation type of situation. I know people who throw the word around way too often for no reason. It shouldn’t be used lightly.

I’m nervous about taking care of him for eight weeks (twelve if there are any setbacks) while he isn’t allowed to drive or do much, except the most basic things. For the next two months, the heaviest thing he can lift is a gallon of milk. In 4-6 weeks, longer if insurance delays it, he is supposed to have a second procedure done to ensure that his heart returns to 100% in terms of function. It’s a procedure that should only take a few days. The surgeon informed me that one or more procedures may need to be re-done in 25 years. However, this surgery has given my brother a new lease on life. Never before this absolute wake-up call would he have agreed to quit smoking or make healthier choices in regard to his health. It is sad that it had to come to something so severe, but I am determined to do what I can to make sure he heals properly and adheres to this new “heart healthy” lifestyle. It’s a serious change, but if he wants to live longer than either of our parents did (the situations were, obviously, quite different), then he is going to have to do his level best to commit.

Open heart surgery is rough. I would not wish this on my worst enemy. Hearing him struggle to breathe, cough, and move makes me ill. Knowing that his vocal cords need additional time to heal, along with his heart and wounds, just plain saddens me. That a single soul would tell me to leave for my move and let him recover alone pisses me off. I thank G-d this happened when I was physically in a position to do something to help and was not hundreds or thousands of miles away. In a situation like this, you do not want to get the dreaded phone call. Every time the phone rings and it’s the hospital, I get ill. Once he is released to me as a “patient”, he probably won’t be too thrilled, but he has already said he’s just so happy to be alive that he doesn’t care what I say or do. We’ll see how long that lasts.

I am sure I will utterly lose my head when I find out the total of the roughly fifteen prescriptions he’s going to have to take, only some of which are for the next six months. His surgeon assured him that nearly everything was cheap because they’re generics, but someone ought to clue the doctor in that even Walmart has a list of medications that are on their list of drugs they’ll cover for $4-$10, based on the number of pills and how long it’s prescribed for, but that the others are nowhere near the word “cheap”. The cost of medication in this country is utterly insane, but it’s right up there with the cost of healthcare, one of the biggest rackets on the planet. There is no possible way not to get a headache dealing with the drama.

Over the weekend I received the first bill for two separate tests they ran when he was admitted last month. The physicians who billed will have to whistle Dixie while dead before they see a penny from me. Process that shit to the insurance company, don’t send it to a third-party who isn’t a legal guardian. I am not allowed to stress out Patient X, lest he tear something inside his chest, so I haven’t told him about the bill. I won’t be telling him about any that come. I’m just going to get on the phone quietly and handle what needs to be handled. If you hear about me on the news, don’t be surprised.

As of this evening I will start accepting all gifts of alcohol (or dark chocolate) because I am almost certain my new “water bottle” is going to have vodka in it the second he whines or complains about anything I do. He texted me this morning to make sure his ginger ale would be “ice cold” for his arrival. Tomorrow I get to make Jello and pudding, like a proper little Real Housewife from Hell. 😛 If I get hit by a vehicle this week, it may or may not have been of my own volition. On a good day, there’s only so much bullshit I can take. On a bad day, well, you don’t want to know what I’m like on a bad day. :/

In preparation for all the fun I’m about to have tonight, and in the weeks to follow, I may or may not attempt to drown myself in the shower. But first, I need to find Cat and Kitten and get some unconditional love. I open their cans; they know where their bread is buttered. LOL. Is it too late for a straitjacket?

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

toomanypeople