Where Did This Month Go?

I blinked and it is January 31st. Another mindfuck.

I’ve had a lot to say, a lot to think about, and a lot I didn’t write this month. I’d start to say something and it would irk me, so I’d draft it and move on. In the meantime, I did manage to read over sixty books this month, so it’s not all bad. That’s a damn good achievement. Most of what I read was for research purposes and it will carry into February. The goal is to educate myself on specific topics, and get the information I am looking for while I read. I don’t do a lot of leisure reading these days. There’s a method to my madness.

I had an in-office medical procedure performed last Monday. I’m mostly used to it at this point, but man did it hit me hard. I was in so much pain after the fact, I actually fell asleep (In fairness, I nearly fell asleep multiple times in the waiting room before my doctor came out to see me. The medication I take should have had me wide awake and a little off-center, but instead, I was ready to nap.), whereas after this particular procedure, I often have trouble sleeping. I am still recovering from it (Recovery is approximately two full weeks, give or take. If I didn’t have an autoimmune disease, my body would respond differently.), and also dealing with some new (to me) aspects of Fibromyalgia pain. I get rib pain on my left side a few days before any type of storm hits (rain/snow). It feels like I’ve been stabbed in the back, but if cold air hits my lungs, it makes it so much worse. When I brought this up with my doctor, he blew it off completely and told me my lung x-ray was clear. That was many months ago, and I’m still in pain and still being ignored. I have also since had a really awful sinus infection which required two different antibiotics, so when I talk to him about coughing and associated pain, I hear him not taking my concerns seriously. As per usual.

One of the positive signs, once the state of emergency is lifted (And I have no idea when that will be, as Massachusetts cases are still quite high on the North Shore.), will be when I am able to safely make an appointment with someone new, and fire my current doctor. Believe me when I say my review of him will be honest, but fair, and it might come off a bit harsh, but since becoming my doctor a little over a year ago, he has been predominantly useless on every level. I don’t need any more useless physicians; and no one deserved to feel this way when they turn to a physician for help. More than once I’ve nearly suggested he go back to medical school. I have a Telehealth appointment scheduled with him for February. Since he’s gone back and forth with me, first saying, “We will find the source of your pain.” at my first appointment (and continuing to reassure me over time that this would be achieved.), to suddenly saying, “We may never find the source of your pain.”, I feel justified that he isn’t capable of handling my case. It isn’t my fault that I suffer from something he isn’t trained to handle; but it IS a failing of his medical education. The fact that he has other patients with almost the same medical history as mine is scary. I wonder if they’re content with his treatment or if they are being treated better, worse, or about the same. This is probably the first time I’ve questioned if we’re all getting the same treatment. I’ve noticed some people are being treated better based solely on their insurance. Mine covers damn near everything, so as a physician, if you’re changing up treatment methods based on insurance, you are failing your patients. I see so much lazy medicine, it drives me insane. I shouldn’t be doing work for a doctor. That isn’t right, or fair. I work hard enough without having to do extra work.

I will be making a small list of goals for the month of February. I will choose three, to keep it reasonable.

For starters, I will be supporting the American Heart Association for American Heart Month. You’ll notice the colors change monthly for whatever I am choosing to bring awareness to. Sometimes this will mean weekly color changes. Links are included in case the charity (or charities) I choose is something you would like to give a small donation to.

I chose AHA because genetic heart disease and heart attacks have affected more than 50% of my family members, starting with my paternal Grandfather, who died at age forty of a massive heart attack. My maternal Grandfather also passed away from a heart attack. 😦 I lost my mother the same way, and nearly lost my brother a few years ago to the same genetic disorder. I’ve been mildly assured I am not carrying the gene, but I am wary about it, and worry about passing it down. For all the good genes I have, heart issues are not at the top of the list. 😦 I am doing my level best to be healthier to avoid potential issues. I am determined to be my version of healthy, as opposed to an unhealthy mental version of what health should look like.

If there are any diseases you’d like to see me feature this month (or in general), please leave me a message here, or on any of my social media platforms. I will reply.

For now, I say goodbye to January and hope February will be kinder to us all.

Bright Blessings,

copyright © 2021 by Lisa Marino & Poison In Lethal Doses, LLC. ALL RIGHTS RESERVED.

Chronic Pain Awareness Month: Part II

I had x-rays done of half my body over the weekend. My results show nothing new (The radiologist was able to compare two to previous x-rays from 2018 and 2019.), and they completely denounce a phone diagnosis from late May; a diagnosis I did not believe for a second.

Even with natural pain remedies at hand, I’m suffering. They wear off so suddenly, you have no time to regroup. Despite having a prescription on hand, I haven’t touched it other than to verify the count. 😦 The deeper reality is: I have no idea when or if I will be prescribed pain medication again. I’m not “stocking up”, but I am saving them for “the worst”. The worst can be at a moment’s notice, tomorrow, or a week from now. It can be so sudden, so I am trying to be prepared.

My doctor is inconsistent regarding treatment methods, and he is out of the office this week. I sent him a brief e-mail letting him know I’d discuss this with him when he is back in the office.

Reading the x-rays was upsetting. Slight changes in the cervical spine, where I’ve already been diagnosed with arthritis. Slight changes to lower lumbar spine, where I was hit in the lower back in January of 2019. The radiologist recommended additional imaging and tests to rule certain things out. My doctor e-mailed a reply and glossed over this completely. He tried to say I have a pinched nerve; which did NOT show up on the x-rays. I came away angry, because if you’re going to make a claim like that, I want imagine to show I have it. I don’t want to be told I should, “Have a nerve block performed.” Where would it go?!

I’m tired. Tired of suffering. Tired of being in pain. Tired of the isolation. Tired of not being able to talk to too many people. And tired of the media hyping up ADDICTION in order to punish patients who suffer from chronic pain. I’m a patient. I have never used heroin, cocaine, illegal Fentanyl, ecstasy, you get the drift. I’ve never been attached to drugs; regardless of their status. But I do believe the DEA needs to get the fuck away from doctors and mind their own damn business regarding how patients are treated in terms of access to medication.

Every single day, I worry if I will be a device victim. Someone who is told, “We can put a pain pump in and refill it each month.”, in order to restore me to 25-50% quality of life. There are other things one has to worry about when a device is installed into their body; like leakage. I know people who’ve nearly died and had to sue the device company over the medication overdosing them, or not dosing them properly at all. Devices aren’t an exact science, despite what they will all have you believe. Their safety comes into question, and I know a lot of people with spinal cord stimulators who are waiting to have them removed because the device completely failed them. They are marketed as the “answer”. They are not.

I keep hoping for the right doctors, but today, I feel dejected.

People Are Going To Come Into Your Life

“People are going to come into your life, and God is going to use them to help you. To them you’re insignificant and don’t matter. They are not going to understand you, or even see the point of why God had you hang in there with them for so long. Remember this: Sometimes meeting someone has nothing to do with what you can provide for him or her and everything to do with what God needs you to recognize in that person. If you didn’t understand the message, God will keep sending the same person or situation into your life.” ―Shannon L. Alder

Brain Injury Awareness Day

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Better doctors. I would hope for people who didn’t shrug their shoulders and pretend that what I’m experiencing is “no big deal” and doesn’t require testing simply because they’re too lazy to let my insurance company know that I need an MRI and some minor tests so that I can maintain a (mostly) healthy brain moving forward. 😦

Reaching Out… What A Fucking Joke

**POTENTIAL TRIGGER WARNING**

I’ve reached a point in my mental health journey where I’m DONE. I’m not saying this lightly. I’m also not saying anything to seek attention. I’m just speaking. Period. It’s extremely important to be honest when discussing matters, such as this. 

I’m sick of people, their snide, ignorant  comments, the stigma of the uneducated, and I’m tired of all the excuses and bad behavior. I’m a human-being and I don’t want or need, “shiny, happy people” talking down to me. Who the fuck do some people think they are? 😠 At any given moment, you can be stricken, same as me. No one is immune.

In the past year, I have reached my maximum number of failed medications at around forty. Yes, you read that correctly. Forty drugs from the start of my original diagnosis, which was incorrect, until a month ago, when the final drug failed and made me wish I would just stop trying altogether. It was pointless. Perhaps I am, too.

I felt completely dead inside before starting this medication. I went into it 1000% unsure because I was preparing myself for the 50/50 possibility. This medication was an enormous risk. The failure of it made me sink. I looked around for quick sand, hoping it would swallow me up. I was, and still am, SO angry that this was other people’s “miracle medication” that gave them back some semblance of normalcy, if not restoring their lives entirely, but for me, it was yet another epic fail. If you heard me say this, you’d know I’m saying it flatly, with no inflection whatsoever. Speaking about it does not make me a “victim”; it just makes me extremely honest.

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I’m SO unbelievably sick of people saying, “I’m here for you.”, or, “If I can help, just ask.” 🙄 I’m sorry, did I just roll my eyes out loud? Yeah, probably.

If you’re, “here for me”, then I would actually be seeing you or talking to you semi-regularly. If you want to help, find something within your means and do it. I am not in the correct headspace to give you an itemized list of “things that will help”.

When someone has the flu, you might bring them soup, juice, magazines, etc. Things to help them feel better or things to distract them from how awful they feel. Or maybe that’s just me. Why do people need a guide for everything they can research? For all the advanced technological access at our disposal, people never cease to amaze me with their utter laziness.

I feel ZERO comfort in reaching out, and I’m so sick of the word, “No.” when I do ask for help. I’m constantly being told I don’t know how to ask for help. I do, and asking is one dead-end at a time. I have stopped asking because I don’t have the trust to offer up anymore. I am not going around begging for people to care about me or what I’m going through. Because here’s the truth; “reaching out” is a fucking joke. If a person cares, they will reach out to you. And if they don’t, you have to understand that the majority of people have their heads shoved so far up their own ass, they can’t see a damn thing. Their world and yours do not mesh, and that’s okay. Rid yourself of those who do not come into your life on your frequency. You’re trying to grow and better yourself, and sometimes, that means growing apart.

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In a world completely obsessed with social media, I decided to scale back quite a bit. By doing so, people did reach out to me, but ONLY so they could complain about things they’re going through. 🤦 It was very much a, “Are you okay?” and quickly became, “Because I have a lot to tell you.”, which made my head spin. It also made me angrier than a hornets nest after it has been kicked.

Why? Because the messages came from acquaintances, not my hardcore group of friends. I was put off by it, which might be slightly irrational, but I’m not going to sugarcoat how it made me feel.

If someone is expecting to see, “ALL of my posts” via social media, I’m mostly on Instagram these days. Some of those posts make it to Facebook, and some do not. It’s not the end of the damn world!

Whatever happened to asking a person directly, like a normal human-being? A phone call? A text? WhatsApp? Facebook Messenger? There’s more than one way to get in touch and stay in touch. Of course, you’d first have to prove you care and earn my trust to have access to my phone number for some of those methods of communication, but others are rather simple. 

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In the past year, I had a now former friend medication shame me. I was beyond suicidal at the time. I’m not sure if anyone knew, aside from my doctor. I wasn’t exactly shy about it, though. I was SO hurt by her comments about how I, “should stop taking that poison.” Yes, those were her exact words. If she tries to deny it, I have proof of her stupidity. I have her blocked on social media now because a REAL friend stands by you; they don’t judge.

This comment threw me for a loop. I read the initial message rule out in public, and I was incredibly insulted and hurt by it. Here I was, trusting her, and divulging something extremely painful, and she’s criticizing me. The ugliness of the comment is similar to telling a cancer patient to, “You should stop chemo. It’s poison.” 😠 No one does that though, do they? No, because they want their loved one to LIVE, to “beat cancer”. Apparently, people judge harshly when it’s medication they themselves have NEVER experienced.

Does anyone understand or realize that medication is often the difference between life and death for millions of people? I would NEVER tell someone to “Stop taking that poison.”, unless they were talking about street drugs, in which case I think we can ALL safely agree that it’s wise to get clean.

Instead of compassion, she showed me she’s an extremely ugly person, inside and out, which should have been the final nail in her coffin. Alas, when I schooled her, she didn’t apologize. Instead, she dug herself even deeper with her complete ignorance regarding depression and how it affects people. She went so far as to brag. “I’m ALWAYS HAPPY.”, she declared. Having written a character reference to a judge on her behalf, as she fought for sole custody of her youngest child, I beg to fucking differ, but I guess she’s not going to ever speak the truth because she refuses to see herself clearly. Denial is not just a river in Egypt. 😒

I don’t care what a friend comes to me with, they will NEVER hear me say, “I don’t know anything about it.” Let’s say I didn’t. On occasion it happens, but it takes less than ten minutes to educate yourself. That’s WHY we utilize search engines. Part of growth means constantly educating yourself. At least it does where I come from.

How is ANYONE over the age of twenty-five going through daily life without ANY knowledge about mental health? Please, elaborate. It’s 2019, and there are ZERO excuses for that level of ignorance. It’s inexcusable.

“Stop taking that poison.” Um, you admitted repeatedly that you guzzle down bottles of wine because you’re stressed, sad, not to mention, in compete denial of your true self, but medication is poison? Okay, wise one. 🙄 And by all means, FUCK OFF with your low level thought process. You’re not, “enlightened”; you’re fake and a complete fraud. I’m so glad to be rid of your drama, self-absorbed attitude, and your negativity.

Having me as a friend is something you should respect and appreciate because I don’t play games. You screw with me and my loyalty will become loyalty to myself, NOT to you.

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Another now former friend was self-harming and as a result, extremely horrible things happened. I will not disclose the deeply private pain shared with me because I’m better than that. Yes, I’m angry as hell and would cheerfully share her name, address, and phone number, but again; I AM BETTER THAN THAT.

I proactively encouraged her to seek help. I was constantly consulted for advice regarding doctors, therapists, and medication. I could go back into my phone log app and count EVERY single phone call I took when I should have been sleeping, because apparently MY well-being was never more important than her incessant dialing.

I called various mental health clinics (from across the country) to see if they took her insurance. That, my dear readers, is a TRUE friend. I’ve gotta say, no one has EVER tried to help me like that, and truthfully, I’m smart enough not to allow myself to get to that point of no return.

Everything changed after all my guidance, though.  I probably saved her life, but she thinks her part-time boyfriend is, and I quote, “Superman”. 🙄 You can think like that when you’re in single digits, but if you’re over twenty-five and have divulged an extremely abusive, manipulative, narcissistic relationship, one I witnessed in person, but you stay, then maybe, just maybe, you’re getting what you deserve because you aren’t smart enough to see things clearly, and you wrongly assume that a smart friend saying something about it automatically means that woman is jealous. Unless you live next door to a flagship Ulta, believe me when I say I’d NEVER be jealous of anything, and lately, even Ulta has lost its shine for me.

If you’re suffering, but have time to complain about how, “I gained fifteen pounds in a month.” because of depression medication, then maybe you need to sort out your priorities. I offered a list of medications where weight gain wasn’t a side effect. How did it turn out? I don’t fucking know. When a friend begs for your time and then blows you off, it’s perfectly acceptable to be silent until they apologize. It was her responsibility to make sure she didn’t permanently damage or destroy a long-term friendship. She didn’t make an effort whatsoever, though. That was her choice. Instead, she took the time one random Monday morning to “unfriend me” over a year later. Precisely who is the immature one here? I actually laughed. No one has to follow me on social media, and a real friend doesn’t announce it after years of calling you at all hours and pretending to love you like a sister. I decided this person was SO far gone that I wasn’t going to engage in the attention-seeking behavior they crave because she desperately needs this attention in order to feel “whole”. Except, the feeling is fleeting, and she will keep doing whatever it takes to get more. I should feel bad for her, but once I’m done, I’m DONE. I don’t give people the opportunity to come back, either. Friendship is a gift and a choice. If you throw it away, that’s on you.

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When I started taking medication for depression, I gained over 250 pounds in two years. It wasn’t from food, it was a side effect of drugs forced upon me, because hospitalization was always a threat if you didn’t take the medication prescribed to you. I underwent a lot of blood tests to show where my medication levels were and they NEVER reached “therapeutic levels”, mostly because they weren’t the correct medications for what I truly suffer from. I’m under 5.4″ and I’m a former gymnast. Doctors didn’t care about the weight gain, they just kept pushing drugs at me. Some of these drugs will threaten everything you hold dear before you finally put a stop to it. But now, EVERYTHING is blamed on your weight. Sore throat? You should lose weight. Ear infection? Well, you need to lose weight. Migraines? Lose weight. Unexplainable chronic pain from head to toe? I was told I should get down to “sixty pounds” to be pain free. Yeah, I’d also be dead, but the doctor repeated it three times because I gave him the opportunity to self correct his words. He just kept repeating it, like he was the smartest person in the world. I should have punched him in the throat.

Over the past eleven years, I’ve gotten closer to my goal weight. I KNOW I can achieve the final goals and have lifelong results/benefits, but I’m sick of women being negative over five, ten, fifteen, or twenty-five pounds. I understand it being frustrating, but calling yourself, “fat” is ugly and unhealthy for the mind. When people constantly do it in front of me, I automatically wonder what they say about me behind my back. Unlike many people, I don’t judge my friends based on looks, age, skin color, country of origin, education level, or weight. I’m selective; not petty. I treat my friends the same way I’d want them to treat me, and rarely am I treated as I deserve.

When I hear your self-talk and criticism, I question what you say to and about me.  I have about sixty pounds to go. It seems like a lot more on a smaller frame, but whenever I hear, “You REALLY have SUCH a beautiful face.”, it’s actually a backhanded comment about how I’d be so much prettier if I was a size zero. Zero isn’t a fucking size, not unless you’re a supermodel and play into that bullshit. Even newborns aren’t born a size zero! My NYC hair stylist disagrees with this, and once explained that my face shape (Which is oval.) is the perfect shape for a woman to have because it means every haircut will look good with her facial features. I don’t know that I agree with him, but he’s never tried to bullshit me. He’s also the only person I can trust to take me from my natural hair color to blonde in less than six hours. 

However, my main point is that you aren’t going to physically be 13, 14, 15, or 16 years old for the rest of your life. Jeez, I thought I was “fat” then, and I wasn’t. At all. Our bodies change. Our hormones change. We all age differently. But I’m not okay with hideous negativity and societal pressures. And I’m REALLY not okay with “friends” who have, “first world problems”.

Your health is your wealth. Weight should NOT be what you’re focused on when you REALLY need the medication keeping you alive. It can be a goal when you’re feeling stable, not before.

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I called my doctor late last month, wondering if he’d noticed that I’d cancelled on him. I legitimately do NOT cancel or miss appointments, even when I would much prefer to remove my eyeballs first. When he called me back, he said he trusts me to know when I need to come in and when I don’t. So, he clearly didn’t hear what I was saying, either. I won’t lie; I didn’t call him back because I was annoyed. I could easily slip back into not seeing someone for a year, or three. I told him that at my most recent appointment. Not only did he give me extra time, which he didn’t have to do, but he was in agreement with me about severing ties with a therapist who wasted a year of my life by being useless, and that’s me being civil. I’ve grown and I’ve changed, but she was not a part of any of that growth. I’m disgusted beyond words by her treatment of me.

I cancelled my final appointment with her because I knew I’d walk in, “hot”, and that means I knew my temper would flare into flames. I knew she could not accept the truth, so I decided that I don’t require closure in this particular matter. I decided that my sanity was more important than telling her what a useless sack of skin she is. I decided that insulting her and telling her how much her, “help” did NOT help, wasn’t worth me losing my temper. However, her one star rating on Healthgrades makes me feel better.

Will I go back to therapy? I don’t know. My doctor is going to do a deep search of all hospital employees and see who knows who. He knows if he screws up a third time, I’ll paint his office hot pink while he’s on vacation.

Have I reached out to anyone about what I’m going through? No. After recounting my father’s fifteen year battle with cancer to my best friend, who was unaware of all I’d gone through, I found myself in tears. I’m not generally an emotional person, meaning I don’t cry, unless it’s something serious, and even then, I might not. My reactions to things that bother and upset most people are not the reaction anyone is looking for, so I keep my mouth shut. And yet, I’ve written over three thousand words here, explaining myself when I don’t owe anyone an explanation.

Those of you who reach out with messages and comments, and thank me for writing things like this mean a LOT to me. If my words help you confront your pain, then that’s a positive takeaway.

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Ultimately, mental health is a personal, painful journey. It’s a road often taken solo, for obvious reasons. Support may come easy for many of you, but for me? Well, I’m lucky to be a force to be reckoned with. It was my mother’s wish for me, and my strength is deeply engrained in who I am. Sometimes, I just need to remind myself who the fuck I am and where I come from. Hopefully, someone reading this will understand EVERY word.

Also, we don’t lose friends. We simply learn who our TRUE friends really are.

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Copyright © 2019 by Lisa Marino & Blackbird Serenity, LLC. ALL RIGHTS RESERVED. Written work by author may not be shared or posted anywhere without express written consent from the author. Excerpts and quotes from the material also require consent. This authors’ work and personal photos are protected under U.S. and International copyright laws. Further protection is under the Digital Millennium Copyright Act. ALL RIGHTS RESERVED.

You Are The Energy You Attract

“You are the energy you attract. Whether you are aware of that or not, everything you come up against is teaching you about that part within yourself. Listen carefully, it’s a hint to a better you.”Nikki Rowe

There Is A Madness In The False World

“There is a madness in the false world we have created; that world’s only lessons are tension and fear — relax into yourself. Take your lessons from nature. Let quietness instruct you. If you pay attention and listen to quietness, you will notice a nearly imperceptible thread of consciousness, like a quiet hum or a perception of time. We have all noticed this feeling when we have been alone in nature, or in a quiet room. This space of consciousness peacefully advances — undisturbed by the surface tensions in your responsive mind. You can move into this space of mind at will; you are a dimension of this awareness. You are this calm thread of awareness witnessing the gentle unfolding of your perfect self. When you commune with your ever-present inner calm, you are released from the madness and pain of all outer turmoil. Your unstoppable nature is becoming and blooming — you simply, are. Go easy. Don’t search for your purpose. You are not defining your purpose — your purpose is defining you. You are unfolding with profound purpose; your purpose is revealing you, to yourself. Run to yourself. Life is so big. Do not try to fill it. Instead, expand within. You are enough for you. —Bryant McGill

Protecting Yourself From Fibromylagia Cure Scams

Protecting Yourself From Fibromyalgia Cure Scams

I had a woman blatantly attack me about “not wanting to be cured” and “enjoying my pain” because I knew she was trying to scam people, and called her out on it. Her claims of curing herself with things I’ve already done was enough to enrage me after a few hours. Thankfully, others asked her for scientific evidence and medical evidence that she was indeed cured. Her answer? “None of you want to be cured. Enjoy your pain! I have a GREAT life now.”

If you truly want to help people; you don’t spew nonsense, attack, or say vile things to them.

Fibromyalgia is progressive. I wish I had focused more on that when I was initially diagnosed as opposed to thinking “It’s not Lupus. Thank you, G-d.” Today, in the darkness of mourning someone, I wish I knew 100% that it’s ONLY Fibromyalgia. I don’t believe it is; not any more. Here’s hoping I find out soon. 😦