THE ACCURACY! 😒
This Says It All
One of my goals for next year is to clear out people who are like this. Declutter your life, your home, your relationships with friends and family, etc. That’s what January is looking like for me. I will not remain tied to people who have no respect for me or my time/effort. Match the energy I give you, or fuck off.
The Importance of Doctor/Patient Trust
Today, I received multiple messages from my treating hospital with information I had never sought out because it was off-limits. However, they are now one of the first hospitals in the country to allow patients to view all of our medical records, respond to comments made by anyone who has treated us, and request corrections to the records themselves. This would not be a big deal, under normal circumstances. I’ve already had that level of access and would have to continually roll my eyes, be frustrated with the lies in the file, and ignore the ignorance and stupidity I was dealing with. Until today, when my psychiatric notes were revealed. I read one note from this week, scanned over it three times, and had to calm myself down because I contemplated breaking my doctor’s hands. Pissed is NOT what I felt at all. Worse, he is one of the people who knows me better than others, so I had a hard time swallowing the bullshit.
It took me leaving, and subsequently deleting, nearly ten messages before I was able to calm down enough to say, “I’m not sure if you have been made aware of the fact that I can now see your psych notes. We need to discuss this because I now feel I will have to edit 90% of what I say to you, and that is NOT how we’ve worked to establish trust as doctor and patient, not once from the first day I sat in your office. I’ve always trusted you, and you have always assured me your notes were clinical; yet THESE NOTES WERE PERSONAL. Without correction, they will follow me for the rest of my life. This needs to be addressed. You know precisely what I have been through with doctors writing their perceptions of me, as opposed to the facts I am spelling out, so we don’t need to talk about it next week, but it must be addressed at my next appointment.” I felt like I left the most honest, professional message I could, under the circumstances, and I changed my tone of voice so that he understood how this made me feel and how it would effect me moving forward.
For example, if I say, “I’m a mess.”, I don’t expect to see my doctor put that into clinical notes as the header of our discussion. Really?! Under typical conditions, I can only see we have discussed depression, trauma, PTSD, anxiety, suicidal ideation, etc. I’m using those topics as an example, not as facts. But to read my words twisted slightly to make me seem like a much different person. it retraumatized me from my previous medical trauma, and immediately made me want to say to him, “Are you OUT OF YOUR FUCKING MIND?! How stupid can you be?“
Here’s what many people don’t understand about psychiatric notes; they can be subpoenaed in ANY court case. They can be used against you. One improperly written note can be twisted legally into something it isn’t. This has happened to me before; TWICE. He knows this. He knows it has deeply affected my life to terrible degrees, which is why I reacted as I did. I will, one hundred percent, be going through every damn note he writes from now on, and requesting our private discussions be removed from the medical record. They don’t belong there, especially since he processed this as “psychotherapy notes and ten minutes discussing medication”. We actually discussed medication for under five minutes total, with him saying he’d give it some thought and call me in a few days. I missed his call, and he’s damn lucky I did, because I’m not sure I’d be able to have controlled the tone of my voice or the aggression in what I was saying.
I used to wonder how he kept all of his patients lives straight, because his recollections are as precise as my own, until one day, I saw a notebook on his desk at the start of my session, and it’s one of a few he has on me. It’s a nice, leather bound notebook. The kind I’d journal in, and it is filled with his private notes on me. Lord only knows what’s in there! Yet, the actual medical record had way too much private info on me for him to claim he, “keeps it strictly clinical”. I am going to force corrections from 2017 right up until this past week. If he thinks I won’t go over it all with a fine tooth comb, then he’s forgotten the woman who first walked into his office, and declared herself, “A pretty mess.” I have been assured I looked like I was going on a date, but that nothing about what I’ve been through or said could ever be covered up with concealer and properly blended eyeshadow. At my second appointment, I tore him a new asshole for referring to my pulled together appearance as, “a mask” (after he ended the appointment by saying he was leaving in five weeks.), and he admitted I was right and he was wrong. He earned my respect by being a down-to-earth human-being who saw me as a human-being, and didn’t treat me like another annoying mental health patient who doesn’t respond well to medication. But this? This is a deal breaker. It violates everything I hold dear, and now I feel like my entire medical record needs to be turned over to me for review. If I seem like I’m calm, trust me, I’ve got fangs and I’m not afraid to claw those records apart. And I will absolutely hire a lawyer to get the personal information, which is not necessary for such records, completely omitted. He does not want to test me on this.
When my appointments were cancelled due to quarantine last March, it took me three months to get on board with Telehealth. Initially, I felt like other people needed the appointments more than I did. I had weekly appointments for months before I was forced to go down to twice a month. Before agreeing to these appointments, I kept asking myself, “Am I just a pain in the ass patient, am I a challenge for this doctor, will I ever feel better, or am I going to have to look for someone else?” I strongly considered a new psychiatrist because I was confused about how laid back and comfortable our communication is. It has always felt comfortable, human, and safe. It doesn’t feel that way now. In fact, I feel betrayed beyond words, and I wonder how much will require correction.
In this particular moment, I probably need to hear him out first, and then decide if I still want to break his hands. Of all the people I have met as psychiatrists and therapists throughout my mental health care journey, he is the first I have trusted the most. He’s also the first who isn’t completely afraid of me, but probably should be right now.
He won’t hear my message until Monday, and that’s fine. It gives me a few days to cook, read, maybe get in some yoga, do some psychic work, and remind myself that even though he’s taller than I am, I can still knock him out, and by that, I have to say that my message should be enough to make him see reason. As honest as I’ve been here, I will be ten times more honest with him because he needs to know what those notes did and can do.
Anytime there has been an issue between us, he has been good about hearing me out and fixing the problem. On that level, I should consider this before getting upset, but I couldn’t help reading through it and thinking, “Is this how you perceive me?” Because if it is, then there’s a bigger problem underneath it all and that won’t fly with me one bit.
In my message, I made it abundantly clear I might be undermining and/or underestimating my coping mechanisms going into the month of May (If you know, you know. If you don’t, you’ll see what I write next month or you can go through the previous years’ of work. It’s a rough time for me. Period.). I had said, “I don’t think I’ll make it through the month unmedicated.”, and he wants to revisit this discussion because he’s concerned about side effects, even though I suggested a medication I am extremely familiar with. I said this mostly because he will be away next month, during the worst of what I’ll be dealing with and that’s never a good feeling when I have to relive one of the worst months of my life, despite the fact that I have his permission to have him paged no matter what, and also have his personal cell phone number in case of emergencies.
The level of my trauma is a terrible loop and if I block things out, they can (and will) come up out of nowhere and throw me down a metaphorical flight of stairs. It cycles the trauma over and over again, and as he and I discussed this week, “We can’t medicate trauma.” Maybe one day, in the future, this will be possible, but for now, it isn’t. Not being about to help trauma victims and survivors is something the mental health community fails at deeply; in my personal experience.
I wanted him to know I wasn’t demanding the medication, and that I will defer to his guidance, but he also knows I agree to disagree with him a lot. And I do so respectfully. I might be upset, but that’s because this is a relationship I highly value. I’ve felt blessed that someone cared enough to have my back, and today, I felt stabbed in it by the one person who should know better because this is someone who, long before Covid, is the person I spent the most time talking to about the heaviest shit in my life. I will wait to see how this is handled on Monday, and next month when we speak at length. But I’m not going to lie; I am now contemplating dialing my appointments back to once a month and not being anywhere near as forthcoming as usual. As a direct result, I will be searching for a full-time therapist because clearly, if personal things are going to end up in the record, then he is not following proper procedure under the psychotherapy terms and conditions, where every note truly IS clinical and boring as hell.
***On the plus side, the notes state I’m ten years younger than I am, so that’s something he can keep on record. 😉 I’m maintaining the whole reverse aging thing. The fact that a specialist told me this week, “You’re young. You don’t need ANY cosmetic enhancements. There’s not a single wrinkle or mark on your face, and this has not changed since the day I met you.” These are the small things that make me smile while I am going through internal and mental HELL. Last weekend, I stopped into a liquor store to pick up wine and a few other items (I am craving Pina Coladas like nobody’s business! It’s odd. I’m not much of a drinker. I feel like quarantine turned me into a maniac I don’t always recognize.). The second I asked for two small bottles of Jack Daniels (for a recipe I love, but one that is very time consuming and doesn’t require more than a few ounces of JD. I think it calls for a few tablespoons, but I usually eyeball it.), was the moment when, not even realizing I’m behind a mask and sunglasses, the cashier asked to see identification. I could have been anyone. She couldn’t tell my height, eye color, NOTHING. Legally, they have to ask and I always offer, but it amused me. Like I said, these are the small things that make me smile.***
I hope everyone looks into their own medical records for this very reason. Don’t hesitate. Once I calm down, I’ll be tearing through mine like a starving vampire. It’s a good thing I’ve already fired most of the doctors who are in my chart, because they can’t fight me when I ask for something to be removed. It is my legal right. I’d hate to have to do the same with this doctor, so here’s hoping everything gets straightened out. I’d like to think that maybe this situation was a slip on his part, but I won’t ever make excuses for him, and he knows that.
It would be a shame for him to be on vacation with no hands. 😉 I have zero shame in being mean. After all, this involves my life. I should be fully involved in what is written about me, and so should you.
copyright © 2021 by Lisa Marino & Poison In Lethal Doses, LLC. ALL RIGHTS RESERVED.
Deep, Dark Hole
All too often, people are made to feel ashamed for suffering from anything people can’t visibly see. How sad it is that we live in a world where you’d receive more help and kindness for breaking a leg, as opposed to suffering for the rest of your life? A sick, depraved world; that’s what you face in the world when you suffer from any form of mental illness.
Today was a bad day for me. A bad day on top of G-d only knows how many others which have come before it. I refuse to allow anyone to judge me or make me feel lesser because I suffer in ways they don’t understand. Educate yourself, and maybe you’ll judge a whole lot less.
For me, a bad day could mean any number of things, but it can also mean it’s been a month of despair, or an entire year. I tend to remain silent because support is hard to come by, and quite frankly, I’m tired of the usual rhetoric. The, “I’m sorry to hear that.” crap gets really old, really fast, especially since it is said with not an ounce of genuine care or concern. It is one of the rudest things you can say to me, and I will react and respond to those words in ways you cannot possibly imagine. On a good day I don’t suffer fools. On a bad day, I won’t roll my eyes and pretend one might secretly mean well. No. Those who mean well have better words. If you don’t, I strongly suggest you get better words, quickly. So many people are suffering privately because of ignorance. They are afraid they will lose their friends, family, job, and everything else they value or need to survive.
I see a lot of patently false “woke” people these days pretending to care about things they didn’t care about two years ago, or two months ago. Things many have been silent about their entire lives. It sickens me. It’s so disingenuous. Especially when words exchanged in private are still of the ignorant, hateful sort. There are too many people trying to pretty up their views on others; their judgments.
Too many people are constantly judging a person who is mentally ill, as opposed to trying to help them. I see it and I hear it, and I am not quiet about my views. To do so would be hypocrisy.
I’m going to take care of myself for the next few weeks. Maybe during that time, some people will pick up a book and enlighten themselves. Depression, and mental illness on a whole, doesn’t discriminate. It is the ultimate predator. It doesn’t take out the weak, it tries to take out the strong. Keep that in mind the next time you judge without looking in a mirror first.
We Only Have Ourselves
No, this won’t be a cheerful post. If you ever expect that level of dishonesty from me, please unsubscribe/unfollow now. I’m many things, but direct and honest are the top too words used to describe me as a person. Obviously, I share the good things, too, but I temper most of my enthusiasm. I am not about ego.
Today took its toll on me because I was remembering this precise Saturday, many years ago. I had weird dreams last night into the morning, and then the realization jolted me harshly. Despite taking medication for Complex PTSD, I can see that this time, on the lowest possible dose, it’s failing. Instead of keeping pain and nightmares away, it worked against me. 😦 As the day progressed, I ended up doubled over with what I believe are kidney cramps. I have to give it few days to see if that’s actually what it is. If it passes, or not. Having had kidney stones, I can tell you the pain is excruciating. Right now, I can’t do a whole lot. I can barely go up and down a flight of stairs, but I digress.
I talk about life and loss because it’s part of who I am. I am formed out of loss and built up by life, love, and loss. It’s a vicious, yet honest circle of life.
On the back of my neck, beginning just underneath my hairline, is a tattoo. I call it “The backbone of my life.” because there are others that stretch down the length of my spine (and more to be added), but the first symbol means Life, Death, and Rebirth. It also means Maiden, Mother, and Crone; the three phases of woman. The third definition means Past, Present, and Future. Love, Loyalty, and Friendship is another meaning of this particular symbol. It looks like stained glass. It is done entirely in shades of blue. I get constant compliments on it, but the truth is, I forget it’s there. I forget, until I take a deeper look at my life and how it always cycles back to Life, Death, and Rebirth.
Essentially, it cycles back to all of the key meanings I have shared here. When a friend mentioned how much she likes this symbol and wanted to get it done in the exact same spot, I cringed. She didn’t fully grasp what it means; it was just a symbol she liked, as if looking at flash art in a tattoo studio. She ended up with a massive cross instead, and I breathed a sigh of relief because of how I hold the values of my chosen symbol deeply. It’s not something I did without thought. I actually waited a long time before I decided on something so permanent. I sort of regret the second symbol, but that’s a story for another day.
We all have private pain which is hard to discuss. Some more than others. For me, the memories are so fresh, as if this happened yesterday, but it’s been a long time, and it still impacts my life deeply. As a result, it conjured up dreams about multiple family members. Generally, I don’t dream much about the living, so that was the weirdest part. The dead always visit me. It’s never a question of will they, but when will they.
The past few years have really reminded me how solo I am as a person. This has nothing to do with my relationships, but with how I face life each day. I face it with the knowledge that no matter what, I am an independent individual. I face it without asking for help because people throw what they do in my face. I face it stressed because I am constantly criticized after being praised, It goes back and forth. Nothing I do is ever good enough, so I’ve reached a point where I focus solely on my needs. I’m not a moron and I don’t need to be reminded of anything, especially when I am in pain.
Certain types of people want things they do not give. Respect. Courtesy. Decency. RESPECT. They demand it instead of earning it. Clearly, they don’t know what will work with me, but disrespect and demands will never get you anywhere. I’ll do what needs to be done when I can, but if you place pressure on me, I will snap. Now, more than ever, I am aware that snapping is the next step because I’ve disengaged so many times, and people assume I’m ignoring them. Please don’t mistake my silence for anything beyond silence. I’ve yet to plan a murder out loud. 😉 But man, do some people PUSH until you feel like maybe an orange jumpsuit wouldn’t be so bad. 😦 And please, don’t ever deign to tell me how to speak. I will say what I need to say when I’m ready, not less than half a second after you tell me what you wanted to hear. Genuine thanks comes from the heart and will come once I’ve collected my thoughts; they will not come at all if you try to coach the words. That leads you to, “Go fuck yourself.”, instead of “Thank you.” Obviously, this is a case-by-case basis, but I’m damn fucking tired of being spoken down to.
Tonight, I go to sleep without words. Wash my face, brush my teeth, say my prayers, and that’s the end of the day. Tomorrow, I will relive more of the pain and suffering, and hopefully get a few things off of my list. After all, in the grand scheme of things, we only have ourselves. Obviously, you can believe as you wish. That’s your prerogative.
copyright © 2021 by Lisa Marino & Poison In Lethal Doses, LLC. ALL RIGHTS RESERVED. Written work by author may not be shared or posted anywhere without express written consent from the author. Excerpts and quotes from the material also require consent. This authors’ work and personal photos are protected under U.S. and International copyright laws. Further protection is under the Digital Millennium Copyright Act. ALL RIGHTS RESERVED.
It has always been important to me to be transparent about my shortcomings and the strengths. I don’t try to pretty anything up. Too often, people pretend their lives are so perfect online, with perfectly posed, edited photos, but you never see the truth of what goes on behind closed doors because all they care about is the imagery. That’s not what attracts me to people or to their work. Honesty and humor attract me. Real humor; the kind that isn’t forced, that isn’t passive aggressive, the kind that is wholly natural. It takes a lot to make me laugh. In the past week or so, I’ve maybe laughed four times. Each time, my cats came to see what was going on. “Is she having a stroke? Should we get help?”, they probably wondered. Of late, laughter hasn’t exactly flowed.
As an extremely private person, I still know that being forthcoming about my suffering (From A to Z) has helped others get help, come out of their shells, talk, trust again… I know this because they have e-mailed, messaged, and shared these facts with me, even if it took them a few years to say anything. I didn’t know my voice would help people, but it has and it will continue to do so, because I know the power of using your voice for change.
Wishing you all a safe, warm, stress-free weekend.
P.S. I will be listing charities ASAP who are helping out with the crisis in Texas. Every penny helps. It took our government way too long to respond to the need for help, and our own people were forced to endure this without an immediate helping hand. It’s disgusting beyond words. It’s Puerto Rico and Hurricane Katrina all over again, and it is NOT acceptable.
I know people who are 6-7 days without power and who have no clean water. Power is being restored slowly, and many are afraid of what will happen when they return to their homes. Will the pipes have burst (A much more common occurrence in colder climates.)? Will they be able to return home safely? They have no idea what they’re walking into. They are NOT prepared for the kind of weather they got. Never again should states be lacking a strong electrical grid, not have adequate salt, sand, and plows for snow removal, etc. This is not being discussed enough! I’ll do my part and hopefully there can be some unity in this country to help where needed.
This Is Important
People, too often, consider America the promised land. The ultimate goal. I’ve noticed, over the past ten years, people who’ve always believed this moving to Canada or the United Kingdom, instead. I can’t say I blame them.
There’s a lot of fucked up shit that happens here. Far more than most insulated citizens are aware of. This country isn’t perfect, nor is its leadership. That was proven this week while the rest of the world laughed at us.
For an incoming President, I’d like to see lower income families be taken care of first, even while you’re tackling Covid-19. Larger stimulus checks for lower and middle class families. They are the backbone of this nation. These communities are the ones that have lost the most in the past eleven months. We need to provide safe childcare if we’re going to demand they work harder, longer hours.
All across the board, the United States needs to do better. The world is watching. It’s time to do better, get better, and move forward in a healthier fashion. Because when I think of greed, I look at this country and I see it everywhere. It makes me sick and it adds shame on top of that. I’m still reeling from the events of this week, and I’m hoping we will move forward with less hate and more dignity. Alas, I know it will probably take the rest of my life to see that level of change, if not longer.