Pain
Insomnia & Painsomnia: A Wicked Combination
Whenever there’s something stressful going on in my life, it often affects my sleep, thus turning me into a shadow of my former self. Insomniac Lisa and Painsomnia Lisa are two very different beasts from the person I am when I’m able to prioritize sleep, and actually get into bed each night at a decent hour. I’m never 100% pain-free, but sleep is a crucial part of how my body recovers from what I do to it each day. I have worked my ass off this past month and lost roughly 20 pounds, somehow managing to strengthen my upper back muscles in the process.
Unfortunately for the past month, my sleep has been insanely erratic. First it was major moving stress, liable to affect even the calmest person in the world, of which I openly admit is not me. Then it was my brother’s pre-hospitalization health, closely followed by getting the phone call that he would need open-heart surgery or a transplant. It’s normal to have things like that affect you on many levels health-wise. Let’s face facts: No one expects someone young to be told that their heart is at 11% capacity. An entire team of doctors and surgeons and two different hospitals told him he was 10-15 years too early for such a severe issue. All of this crap has been screwing with me day and night and thus far, nothing I’ve done is helping. To add insult to injury, I have had a migraine since the day before Thanksgiving. I currently feel as if my head is in its very own torture chamber, taking my body along for the ride. 😦
When my brother was first released from the hospital, my sleep schedule had already shifted due to late-night texting and phone calls when he was still hospitalized and feeling lonely late at night, before his final dose of pain meds took over. There were many times I had to suggest he watch something on TV (“It’s almost 10 PM, here are three shows you can watch tonight. I have GOT to get some sleep!”), and then mute the ringer on my phone as opposed to allowing it to vibrate, so I could go to bed without the phone buzzing for hours. Now he’s here 24/7, and he’s driving me insane.
He’s not doing anything in particular to make me crazy (though I wish he’d remember that his legs are fine and he can get up and pour his own damn drinks!), he just happens to be in my personal space, and I crave privacy and silence. He’s mortified that I disinfected the remote, but since I don’t want him getting sick and he’s using it and I’m using it as well, I figured it was a wise decision. It is cold & flu season and while he is currently not in contact with other people several days a week, I am, and that can pose a problem for him if I bring something into the house that I did not leave with.
The other night he fell asleep while I was talking to him (I wasn’t boring him, he was simply in a lot of pain.). It was super early, but I felt that was the perfect time to cover him with a few extra blankets (It’s cold here most nights, and even when it’s not, he’s complaining that he’s cold.), and sneak off into the silence that is my normal routine. Alas, he got about three hours of sleep and I was wide awake. The second I thought about going to sleep, he was moaning in pain and when I checked on him, he was messaging someone on his tablet, with the TV on lighting up three rooms.
After a highly stressful week, I was finally in bed at a decent hour last night. As soon as I’d dispensed the last pain pill of the day, my head was on the pillow. Unfortunately, the previously aforementioned migraine decided to kick things up a notch and a little after 2:00 a.m., I woke up in unimaginable pain. I have no idea how I am attempting to type this, much less see.
My first line of defense is to attempt to get some caffeine into my system. It’s the only thing I haven’t sought out or used to treat this particular pain level, when it would normally be something I thought about a bit more closely. No, last night I was too far gone, so I took something less targeted that, as a last resort, often helps. Clearly it only helped part of me. 😦 So, I am nursing caffeinated tea and I took two Excedrin Tension Headache capsules. Not because I have a tension headache as opposed to a migraine, I know the difference, but because sometimes that combination works for me and nips the migraine in the bud. It’s not a permanent solution, but nothing really is. If it doesn’t start working in an hour or so, I will take a third.
It astounds people that I have managed to learn how to work through some of my worst migraines, or that I put myself into the head space to focus on healing one. I look at it this way: I am not going out and triggering the headache to be any worse than it already is. I am home, I’m safe, I can control the environment (noise level, light, temperature), and I know not to move around too much, but can I sit at a darkened laptop screen and talk about it? Sometimes, yes. That doesn’t diminish the intensity of the migraine, it does not mean I don’t suffer from migraines (three neurologists and two other doctors are all in agreement that I suffer from migraines. They have gotten worse since my first diagnosis, so there’s nothing else it could be. Everything else has been ruled out.), and it also doesn’t mean it’s “just a headache”. On occasion, like most sufferers, I will get a dull headache. Unfortunately, dull can go to extremes pretty quickly, so I take all headache forms seriously. I don’t walk around denouncing other people’s pain either. If a person says they have a headache, but quickly says “I don’t get migraines like you do.”, I still wouldn’t tell them it was “no big deal”. Pain is pain. No one likes it and for those of us that endure it 24/7, I have seen people empathize with others openly, and I have also seen people blow off the pain of others because they somehow feel it is their right in life to be the one person on the planet who has it far worse than the rest of us. Sorry, but that couldn’t possibly be true, or you’d be dead. What may be indeed true is that everyone’s threshold for pain is different. In fact, I know this to be true.
In studies, it has been determined that women tolerate pain differently from their male counterparts. Not better, not worse, just different. Taking into consideration that the female body can push out a human-being during the process of giving birth, that’s not an immense surprise to me.
All of my heavily tattooed male friends had their jaws on the floor when I sat through my first four tattoos and described the pain as “No worse than a cat scratch.” You see, I chose a spot that most of them found to be extremely painful. They all told me to put my ink somewhere else, that the pain would be too much for me to endure, especially considering I suffer from Fibromyalgia, but I’d consulted with several artists who, like me, believed that my first tattoo should be someplace easily covered up with clothing. However, never to do things the simple way, I got my first four all at the same time. I wouldn’t even rate that a one on my personal pain scale. I’ve had more painful piercings.
As many of you also suffer from migraines, has anyone gotten a Daith piercing to try to combat them? Compared to all the medication, a myriad of supplements that may or may not be useful to the individual, various treatment methods, Botox, acupuncture, etc., the piercing itself, depending on where one goes, is between $50-$100. I am being told that it works for 50% of the people who get it, but I am also being told the relief is temporary, though some people are reporting themselves migraine-free 3-7 years post-piercing. I have decided to try acupuncture for a year to see if that spot along either of my ears responds to treatment. My insurance covers it, which is rare, so I am going to take the opportunity to use it first. I’m not sure I need another hole in my head, but I’d be interested in hearing whether or not the piercing has helped anyone. If you’re considering getting this particular piercing, please go somewhere highly reputable and have someone experienced do the piercing itself. The report of infection with this spot is very high, and I’d hate for anyone to go through that. I’ve only had three piercings in my life that gave me problems. Luckily they never got infected, but two of them bled for years if someone hugged me too hard, and the third still gives me problems on occasion (The fact that I share the piercing with a highly toxic person is probably why… I’m a big believer in energy. Sometimes we are healthier overall without certain people in our lives.). While most piercings are mainly decorative, there is no medical or scientific evidence that a Daith piercing is a cure for migraines, so don’t read into all of the Pinterest and Instagram “science”. Those are exclusively individual experiences, most of which are brand new. There’s no way of knowing what the long-term effects may be. For many, it is worth it for temporary relief. I’d rather explore a few additional options first.
Are there any alternative treatment methods that work best for your migraines? If so, what are they?
The day insomnia can be cured in any way, shape, or form, I will be on a line for that! Right next to the line for the great Fibro/Chronic Pain cure. Here’s hoping we see it in this lifetime.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Morning “Rituals” & Fibromyalgia
I’m sure most people have their morning “rituals”. For most people, it means waking up in search of coffee or tea. It involves the most basic of things until we know with certainty where we’re going (Work, school, the grocery store, etc.). I had a solid idea of how today would go, but instead of being asleep for a few additional hours, I am sitting here, nursing a vanilla yogurt, listening to The Script. (I do listen to them a lot, but it’s also the song that just came on.)
I HURT. I don’t know if I’m capable of lifting my arms over my head today. 😦 I’m weighing my options. Do I spend the weekend packing, doing laundry, and catching up on my DVR queue, thus leaving all my other plans aside for Monday (which means going to bed early tomorrow and getting my ass out the door at 10:00 a.m.), or do I suck it up?
When excruciating pain makes your decisions for you, it SUCKS. You simply do not know until the last-minute if you’ll make it out of the house. I really want to see a movie next weekend, but I am almost certain I won’t get to see it until Christmas Day, weather permitting. It’s the fourth time I would be missing opening weekend for this particular film, and it pisses me off. DVD’s are awesome for a movie lover such as myself, but watching something you really want to see in the movie theater is a nice 2-3 hour escape. You also save money in the long haul if the movie sucks and you choose not to purchase it on DVD or Blu-Ray. If I wake up feeling like crap on Christmas Day, there’s no way in hell I’m dragging ass to see it. Therein lies a multitude of problems because every single day of my life is like that. Full of pain, slow, sluggish, no one in their right mind would sign up for this.
If you woke up this morning and nothing hurt, be grateful. I’ve had migraines so bad that my hair hurt, and it’s only grown about an inch since I cut it over the summer. I might not have noticed if I hadn’t seen the drastic tonal difference between the blue-black color I’ve had these past few months and my roots during my Fall Color Change. It was almost the equivalent of a not-so-natural-blonde with black or brown roots, though not nearly as severe. I don’t know if I like the new color, but if I don’t, I can change it in 30 days. There are cancer patients shaving their heads, so I should be grateful to have what I do.
If you wake up and not a single joint or muscle protests, you are blessed. My body is often in a perpetual state of “Go back to bed, dumbass!” I’ve had naps more restful than most nights where I slept for 6-10 hours. I track my sleep to better help my new neurologist, so I see the dips in my sleep as a failure on my part. I tell myself I stayed up too late or that I got distracted by something/someone, etc.
When a woman says she’s “getting ready for bed”, you might see her three hours later. That is 100% me most of the time. I go through every room making sure things were done, garbage thrown away, everything in its place, etc. Last night it was a last-minute trip to the laundry room to make sure I’d put my towels in the dryer. I hadn’t, but I only remembered when I was in the bathroom washing my face. I paused mid-wash and thought “Did you ever go back into the laundry room?” This resulted in me drying my face, quickly moisturizing, and going downstairs to see that not only was the washer still full of my clean stuff, but I’d also left clean clothes in the dryer. Clearly I got distracted when I was packing clothes and books. 😦 It’s times like these when I feel like a moron.
Sleep came easy once I got out of my head, but I woke up way too early this morning because my thermostat (I don’t know where you live, but it’s fucking cold here.) decided to play games with me not once, but twice. Before going to bed, I set it on 66, knowing it would be in the 40’s overnight. Sometime around 4:00 or so, I woke up to see what the hell was going on. “Why the hell is it so hot in here??” I yelled. (Yes, I talk to myself a lot. I get the best answers.) It was hot because my thermostat reset itself to 70 degrees. I can’t breathe when it’s that hot inside and doesn’t need to be. Unless it’s in the red, my heat does not go over 68 degrees. It’s a rule. I can put on an oversized sweatshirt or hoodie, but I don’t need to be wasteful. On a semi-regular basis, my thermostat screws with me. I woke up one summer morning unable to move. I’d set the thermostat for 64 degrees, which is typically my summer temperature these days, but when I woke up it was mysteriously 52 degrees. I’d love to jokingly say “It’s ghosts!”, but there’s no spiritual presence in this house, or I’d feel it.
So here I sit, in pain, unhappy, grouchy, and probably not in the right frame of mind to deal with people in public.
Monday is another day.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Friday, How I’ve Missed You

I have come to cherish my weekends like a newborn baby. The arrival of Friday makes me feel less guilty about self-care. This week in particular, I need it.
Early yesterday evening, I had a coughing fit come out of nowhere. In the midst of said coughing fit, I felt something in my upper spine pop. The sound resounded through the room. My immediate thought was “This is NOT good.” Already in a pretty harsh Fibro flare, I did NOT want or need to add to the pain I was already in. My brain kept saying “I can’t believe you hurt yourself coughing! Why can’t you have a more interesting way of causing your body excruciating pain?!” 😦 Don’t worry, I shut that fucker up.
Less than an hour or so later, I was in bed. On top of being exhausted, I could already feel that this sudden pop was going to make things worse for me for a few days. As I sit here writing this, the pain has escalated immensely between 6:45 last night and now. Moving my neck too much is completely out of the question. I’m contemplating Icy Hot. I already took over-the-counter pain medication, whatever good that will do, but I’d rather attempt to treat it as opposed to doing nothing at all. I know it’s going to be achy and sore for a few days. I just need to allow myself proper rest so that it doesn’t get worse.
I had planned on getting some editing done today. I have decided to limit it to a chapter once my neck loosens up and isn’t screaming in agony. Hell, I’ll do two chapters if I feel okay, but no more than that because I don’t want all that sitting and neck movement to aggravate this and make it worse than it already is, and it’s pretty fucking bad. If I feel better tomorrow, I can do another 2-3 chapters and so on. Hopefully that means I will finally rid myself of this nightmare manuscript, for good. It’s a first edit of a fourth draft. I suspect it will need 2-3 additional rounds of editing, but if I am asked to do additional work on it, I absolutely MUST price it better because it’s tormented me from day one and explaining that to my client in a nice way is -cough- difficult because this client isn’t a very good listener.
If you’ve never been edited before and you’re worried about how long it takes, not understanding the editing process and how thorough I am, then think about how long it took you to write it. If you tell me “I wrote this in three months.”, I already know it’s going to be full of issues. This manuscript is full of issues, and it is also one of the reasons that I want to focus on my work, which probably does have some issues in it, but if nothing else, it is predominantly clean and flows beautifully. I know this because I’ve been writing it for five years. I also know it flows beautifully because the last time I read it, I was so caught up in the story, I forgot that I was the writer. Color me impressed. 🙂
I didn’t get a lot of sleep last night, but I did sleep. I was unable to take the 9:00 a.m. nap I thought about yesterday morning, mostly because I was in a lot of pain, have a lot on my mind, and couldn’t get comfortable. On the plus side, I did fall asleep pretty quickly last night and I slept soundly for nearly three hours before I heard my phone buzzing. If I don’t leave it on vibrate, any ringtone will make me come right out of my skin or it will make me yell at whomever is calling. After listening to the other person for damn near 30 minutes, I practically growled and hung up. It’s not wise to talk to me after a certain time when I’m A) Still in sleep mode and B) Hungry. It’s like trying to negotiate a ceasefire with a dragon. I’m not exaggerating, I’m aware when I am unpleasant.
Do you have anything special planned this weekend? Do you feel guilty when you have to prioritize your health over the demands of others? Let me know in the comments.
Have a safe, pain-free, pleasant weekend. If it can’t be all three, aim for one positive thing.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Pain Levels
I’m sitting here, minding my own business, and my pain levels shot from a 4 to a solid 15 in just a few minutes. Has this happened to anyone else out of nowhere?
Not being in complete control of your own body is HELL. I cannot see past the blinding pain that starts in my neck and spreads down the body, right into my toes. It’s terrifying and nauseating. The strongest thing I have to “fight” this is two Aleve. Yeah, I know. I might as well just call in dead.
No one should have to live like this, except maybe Hitler, members of the Taliban, religious extremists, and terrorists. Give me a few hours, I can probably think of other people to add to the list.
I am off to procure Benadryl cream for the “itch that refuses to stop”. It’s only my eye… It’s not like I need it or anything. <rolls eyes>
Is a 9:00 a.m. nap completely pathetic? I am sending someone an e-mail to wake me at a reasonable hour. This shit has GOT to stop!
Pissed Off, Pained, & Frustrated,
Breaking Point
I think it’s admirable when people say “Keep Fighting”, but in actuality, they do not know what you are battling, they do not know your mind, they do not know your heart, and they do not know your breaking point.
We all have lines that, once crossed, send us into different modes of survival. It is perfectly normal to freak out, panic, cry, scream, be incredibly angry, etc. It’s also okay to want to curl up into a ball and not emerge from that position for a while. It is okay to think your feelings through, in your own time and in your own way. When you’re going through something rough, something most people will never have to face, no one wants or needs to be yelled at like a dog that just shit on a persian rug.
I am going through something tremendous at the moment. It is terrifying, heartbreaking, cruel, evil, wrong, and a plethora of other things that I will refrain from saying. Maybe in a year from now, I will feel comfortable sharing the story without feeling as though I am being judged.
There may reach a time when I am not able to be present here on a daily basis. I might be able to check in once a week for a few months, if that. I hope that you can all be patient and stick by me through this, but I will also understand if you don’t. I’m not going to take it personally, but I do feel it is better to be honest in advance, as opposed to simply disappearing for a while without any explanation. I do not intend to abandon what I have.
I LOVE what I do here. It brings me an immense sense of peace and contentment. It is a daily reminder that I’m not just “some person who writes” or “likes to write”, but an actual writer. There’s a difference between the three, but I don’t have to explain it. A great many of you “get it”.
For now, I will remain as present as possible. I will let you know through my work when the insanity is going to start and hopefully have a “I’m going to be back full-time” date as well. Please know I am doing the best I can, trying to remain sane, and trying very hard not to cash in my “life chips”. I am reminding myself this morning that I have survived all of the worst days of my life up until this point. That’s a 100% success rate, and now I just have to keep moving forward, despite wanting to shut down and lose my temper.
In the meantime, I really want and need several solid weeks of uninterrupted sleep each night. My allergies have decided to become a full-on pain in the ass out of nowhere, so I took half a Benadryl last night before going to bed (Because that’s all I had left, or I would have taken two.). My eyes and parts of my face are still itching and burning with no logical reason whatsoever, except that I am stressed and already have eye allergies. Even my eye drops are utterly useless, providing absolutely no relief. Stress, it turns out, manifests in a myriad of ways.
Stay healthy and safe everyone. I’ll be around until I say otherwise.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Stem Cells Provide Lasting Pain Relief In Mice
And people think there’s something wrong with stem cell research?!
Plagued
I’ve been plagued by pain in so many ways over the last week and a half, that I really haven’t been able to finish anything I’ve started to write. Work, at the moment, is that thing I should be doing, but can’t because sitting here for 5-12 hours editing is excruciatingly painful. I won’t lie; I feel a tremendous amount of guilt over it. I shouldn’t, but I do.
I have been extraordinarily exhausted. If I’m up longer than 12 hours, I will start to fall asleep wherever I am. By 6:20 last night, I seriously thought about getting into my bed without my favorite blanket. I went downstairs to pull it out of the dryer, basking in its warmth. There’s something incredibly cozy about a blanket fresh from the dryer, especially when you have chills and need to go to bed. Once again, I was in bed before the sun went into set mode. Sometimes it’s just a 3-5 hour nap, and other times, like last night, it was a total “lights out” moment. I rarely sleep straight through the night. I woke up once sometime after one to yell about something (it might have been my wicked next door neighbor’s new dog, which must have come home with them from their vacation because they’ve never had a dog since moving in. The dog, naturally, is as annoying as they are. It barks at its own shadow, and everything else it can see. I don’t want to hear your dog at 1:00 a.m. or 5:00 a.m. Train the beast! I’d be able to tune it out if their backyard wasn’t right on top of my bedroom window.) and after that I didn’t wake up until kitten walked on my head. As supreme “can opener”, this makes me a favorite between cat and kitten. Especially since kitten is always hungry, unless she’s sleeping.
I haven’t had much to say this week. I have ideas and other things swirling inside my head, all of which will come to fruition at some point, but mostly I am tired, stressed, and in so much pain, it’s hard to see straight.
You have absolutely no idea how much time you spend sitting until sitting becomes the single most painful thing you can do. My back and I are at odds. Every single thing is painful. Walking, standing, bending down to pick something up off the floor, even being in bed is uncomfortable. I lucked out yesterday and was finally able to do the laundry I hadn’t been able to do over the weekend. I didn’t want to make my back any worse after Saturday morning. It’s bruised, sore, and achy, but I think with continued rest, it will be all right. If it’s not, you can all send me weird things while I’m in the hospital (No cheese, Lucy! LOL.).
I hope everyone is having a happy, productive week. Me? I’m glad it’s almost over.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED

Falling Apart
I apologize for not writing yesterday. I fully intended to do so, I’ve had a few things partially fleshed out, but by 8:00 a.m., I was not in a position to do anything. I couldn’t even bend down!
Something in my lower back popped yesterday morning while I was scrolling through messages on my cell phone. For most people, that wouldn’t mean an awful lot. It might mean popping a few OTC pain meds and resting for a few days, no real damage done, but for someone with lower lumbar spinal issues, this meant shooting pain in more directions than I could fathom at the time. As the day progressed, it became pain in my entire body. I have no idea the what/why/how of any of it, just that I am having immense difficulty struggling through so much pain because there’s no end in sight.
As of this moment, the pain has settled into my head as a migraine with maddening sinus pain and pressure. It’s past the point of my normal pain threshold, so if you hear screaming in the distance, it’s me.
All written posts will be suspended until I figure out what the hell this is and how long it’s going to affect me. I’m no good to anyone if I cannot see past the pain and cannot sit long enough to type anything worth reading.
I hope everyone has a good Sunday. Life is short, make it count.
Blame It On The Pain

UGH! Yes, that’s what I have to say. I’m tired, because apparently “crack of dawn” in my house means “We’re all awake Mommy! Don’t you want to feed us?” Mmm…not so much. LOL.
After truly forcing myself to get things done yesterday, today barely feels like a Sunday. It is quiet, thankfully, and there’s supposed to be a thunderstorm later on. At the very least, rain is predicted for the first half of the week, so I’m content with that because it explains a lot of my aches and pains. The rest is from overdoing it. The mileage I clocked on my pedometer over the last few days is insane.
I completed all of my jobs, except for the big one. I will focus on that this week, as much as humanly possible. I hope additional work comes in, especially proofreading and anything else that isn’t mind-numbing and/or soul-sucking. The faster the job, the faster I get paid, and that makes my life slightly easier in the moment, which is a huge help.
Today I am allowing myself to take it easy. I’m in clean PJ’s with wet hair, I already did a load of laundry, and I completed 95% of the prep for Sunday dinner. Everything else can wait until later or tomorrow because “rush” isn’t in my vocabulary at the moment.
For now I think it’s safe to say that I have some things I want to accomplish going into this week, but beyond that, I can only take things on a day-to-day basis. My pain has escalated to the point where my daily activities revolve around how much pain I am in. I have been off of traditional prescription pain medication for over two years now. For every doctor that assumes we are all drug-seeking addicts: SCREW YOU. Living my life each day with little to no access to genuine pain relief is agonizing. I do take Eastern medicine when I am able because herbs work when taken properly, but through trial and error I have come to decide that the new herbs for lower body pain is not something that should be taken each night. I’ve had several episodes where the combination of different compounds made me sick for a good 24 hours after taking it. So seen, even some herbal remedies have their side effects. Acupuncture is next on my list. No, I am not afraid of needles. In fact, I barely register that sort of thing because the pain I am in each day is so severe, little things simply don’t show up on my physical radar.
I am hoping this will not be a summer chock full of migraines. I am strongly considering starting a new migraine journal if things get out of hand again. I do have medication for that which can be taken daily, but it’s horrible to start during the summer because one of the side effects is that you MUST drink at least 120 ounces of water every single day and the second is that you don’t sweat. It’s not a good combination of immediate side effects during rough summer conditions, so I might start it again in September when things start to cool down and I am able to focus on the dosing. I’ll have to download an app for my phone because it is all too easy for me to forget whether or not I took medication each morning. With tiny pills, I often find it easier to forget as opposed to the monster pills that you simply cannot forget. Odd, but true for me.
I hope everyone has had a delightfully restful weekend. I’m off to take a nap. I woke up WAY too early this morning and since I haven’t been sleeping well, I’m not going to beat myself up because I need to rest. In the words of my Uncle: It is what it is.
I’ll be back with more interesting things soon.
XO…L
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.














