Hard To Define

I am currently in one of those moods that is hard to define. Lack of sleep and a full body flare-up haven’t helped matters much. You either allow yourself to feel all of the pain, or you mentally allow yourself to be dulled. I’m not talking about drugs or alcohol. I’m simply saying that after a period of time, you shut your mind off because all of the pain is too much.

Not being able to sit for very long, walk the way I used to, or turn my head and neck properly, was something I focused on for a very long time. All I could think about was what Fibromyalgia was taking away from me. Being able to fully take care of myself being high on the list. Other things start becoming afterthoughts because without dulling the mind, the intensity of everything I think and the pain I feel comes rushing back. No one deserves to live like that and call it a “life”.

By all accounts, my life would be considered full to the eyes of many. I know differently. I know that just getting out of bed is a struggle, especially if I haven’t gotten any real rest. Nights spent tossing and turning are equally as exhausting as the pain itself.

There are days when I truly need a nap. Sometimes I fight it, other times I give in. Sometimes a 2-4 hour nap is the best sleep I’ve had in weeks. It upsets me that I cannot make definitive plans because of the pain. When I do make definitive plans, I do my level best not to back out at the last-minute, unless it is something that is truly easy to re-schedule. People, it turns out, aren’t very understanding. Over time, you lose people in your life, but you hold on to those that are quality. A real friend doesn’t turn their back on you, period.

I think it’s important to support others through any form of Chronic Pain and Fibromyalgia. I don’t think it’s acceptable to walk away from someone who is really suffering or turn your back on someone without just cause. Essentially, many people want things they are not willing to give in kind. Hard times help you to see other people’s true colors.

I’m the same person I always was: Inappropriate, funny, honest, direct, loyal, and real. Pain has not minimized my personality or the lengths I will go to for others. It has slowed me down, yes. It has made me focus on other things at times, but it has not changed the core of who I am.

Love, loyalty, and friendship mean different things to different people. I know what it means to me, and I honor that. I will not stand for those that cannot honor any aspect of it. Apologize when you are wrong, fuck off if you’re not genuine, and basically, don’t waste my time; it’s valuable. Pain might limit certain things, but it’s not a lobotomy.

There are a lot of false people in this world. Don’t allow yourself to be fooled by them. See people clearly, for exactly what they are. Stop looking for the good in people (Despite what some people believe, there is NOT good in “everyone”.) and start looking at what’s right in front of you. Trust is not something to be given away freely, it is something to be earned.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Greetings From Enduring Pain

The title seemed witty when I wrote it, but now it seems bloody pathetic.

I hope everyone is having an easy start to March. Mine involved ice and snow. However, in the midst of all that, the bunnies have returned and my yard was FULL of a wide array of birds yesterday. There were some really gorgeous black & white birds that I’ve only seen once before, so I have no idea what they are, only that they make the yard look incredibly posh whenever they’re hanging out. They’re truly stunning little creatures.

I am in the midst of a very painful Fibro flare-up. I really pushed myself hard over the weekend to do a lot. By the time 5:00 PM rolled around on Saturday, I had already done everything on my list and was passed out in my bed. I could barely walk at that point and I was truly worried that it would be a week or so before I could fully move again. Sunday night dinners are a tradition in my house, but I wasn’t able to manage it. In fact, when I couldn’t sleep Sunday night I decided to do all the original prep while resting, and Monday night’s dinner became a little more special instead. C’est la vie. It’s important to listen to your body.

I am still hard at work on a large manuscript and a smaller one. Normally I’d be done with both, but I ran into some issues and in lieu of needing to correct those issues, I am a little behind, but it’s okay. Quality is better than speed when it pertains to someone’s livelihood.

I was able to finish reading The Ruby Circle by Richelle Mead yesterday morning. If you haven’t read Richelle’s Vampire Academy books (the first book was made into a movie which I have yet to see) or the second part of the series called Bloodlines (The Ruby Circle was the final Bloodlines book.), I highly recommend them. They’re fast, intelligent, witty, and you don’t have to be in any specific age group to read and/or enjoy them. Technically they’re considered YA, but I’m an Adult-Adult and I liked them. I do prefer her Age Of X series above all else, but that’s just personal preference and taste. The next book on my list is by the ever talented Chris Kuzneski. I hope I’ll enjoy his new series.

Today, despite being wide awake, I am in a lot of pain and I seriously doubt I’ll be able to get a ton of work done, but I will make an effort, if nothing else. I think it’s very important to listen to your body and slow down and give it the rest it requires, especially when you suffer from something debilitating that takes you down, such as Fibromyalgia. Resting can be tiresome, but it’s incredibly beneficial if it helps you get back to a better physical state.

Overall, I learned this weekend that Rome wasn’t built in a day. I cannot do every single thing in one day any more. It’s just not doable. It makes me sad, but I do hope that someday in the future there will either be medication that makes it possible to regain some normalcy or a cure. All one can do is hope & pray for the best.

Wishing you all a great week ahead. 🙂

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

 

Overreaching

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I decided a few weeks ago to forgo all the “traditional” Thanksgiving Day fare. I did not relish the idea of dealing with a turkey when a good half of it would end up in the garbage or making stuffing because I made it last year and there is simply NEVER enough stuffing one can have. I’m a carb fiend, take my word on this. FYI for all pet owners: Do not give your dogs or cats dark meat, it’s too rich for them.

Alas, I came up with a different idea. It’s a great idea. However, after a very long day of shopping in two different stores for everything I needed yesterday, I woke up this morning (way too early) and had a moment of utter panic.

What possessed me to think that chopping 7 pounds of vegetables would be “no big deal”? I’m more concerned with my Fibromyalgia, because it is flaring up BIG TIME today from my neck to my ankles, than I am about my skills with a knife (I already sliced myself last night on a mixer blade.). I will have no choice, but to take breaks in between each veggie (there are 4 in total, but there is, obviously, a LOT of it.). My only “plus” is that having had a migraine yesterday afternoon, which required medicine with caffeine to abort it out of my system, I was left wide awake into the wee hours of the morning. It was around 10:30 or so last night when I decided I was “awake, therefore I should bake”. It took more time to mix up the batter than it did to bake the two cakes I made. I thought they were awful, until I tasted the 100% cooled product this morning. It’s a little like dying and going to heaven, depending on what you like cake wise. I’m only feeling certain flavors these days. But hey, that’s one additional thing out of the way. All I have to do is frost the cake, though I do have to say that certain frostings are so disgusting, and filled with chemicals that terrify me, that I wish I’d taken a spare 30 seconds to read one can before agreeing to it. However, it’s not going into MY body, so it’s not on me. At least the normal one has ingredients in it that I can pronounce, as opposed to “Let me just Google this…” That is the quickest way to ruin dessert.

I think Aleve should be forced to change their advertising slogan from “It’s your life, pain shouldn’t get in the way. 2 pills will provide up to 12 hours of relief.” (Less than ten years ago, they claimed that 2-3 pills was 24 hours of pain relief compared to 8 Tylenol. Who the hell are they kidding? Neither of them work.) to “2 pills MIGHT give you an hour or so of peace.” There’s absolutely no drastic difference if I use the brand name or a generic version, there’s no such thing as true “relief”. I’m willing to do a LOT right now for true pain relief, but I have my limits. I already feel like someone beat me to death and no one has found my body yet, so if you don’t hear from me for a while, I must have posted from the spirit realm.

Dinner won’t be “early” tonight, hell, it might not even be served in a timely fashion, but I’ll do my best to get it all done. I have an assistant, we’ll see how long he lasts before I throw him out of the kitchen. As long as there’s no bloodshed (from my chopping knife), it’s all good.

No matter how you spend this holiday or where you are spending it, especially for our troops overseas who are away from their families, take a moment to appreciate the good things in your life and all the unhappy, bad shit that lead you to this place. Take stock of all that is important to you. Sometimes we find that the list is huge and other times we find that the list is smaller. My list is in the acknowledgements of Book One. I cannot say it’s short.

Don’t just be thankful today, be thankful every day.

copyright © 2014 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Stick A Fork In Me!

I have been hard at work for hours now. The plus side, I am getting closer to being done, which is fantastic. The downside, I am completely and utterly exhausted. I don’t know if it’s the shock of the bitter cold or if the excruciating pain of the past few weeks has simply drained me of my life force, but all I want to truly do is sleep. Mind you, without deadlines, stress, cries, or meows, I might stay in bed for a week. Realistically speaking, I know full well that I cannot do that, so all I can do is rest when I need to.

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There is something so incredibly disturbing about Fibromyalgia pain. Aside from being completely unnatural; It’s constantly with you. It is a never-ending cycle that makes you want to remove your own muscles and bones, and set them aside. When you cannot sit, stand, or walk, and all you want to do is scream because the pain is THAT bad, you lose the ability to feel a whole lot (if any) of sympathy for the people who DO find automatic pain relief. There’s no medication that will “fix” this and make it better. None whatsoever. I’ve tried pretty much everything available, so I can only hope and pray that when someone new is finally FDA approved, that it won’t be an epic fail.

I am certain regular use of Icy/Hot, while topical, probably isn’t very healthy for the body overall. And yet, I am convinced I should be buying them in cases of 12, as opposed to one bottle at a time. I’m pretty sure Walmart would find it odd if I bought more than 2 or 3 in one shot, but I honestly cannot take much more of this. I don’t want to die, I just want the pain to stop. I want to be able to live my life the way I used to. I don’t want exercise to mean I will be bloody and bruised, and completely unable to move, but exhilarated with a sense of accomplishment. When I walk, I am faced with the consequences of bruised, aching muscles. If I turn in the wrong direction, I might not be able to move for a week, or longer. There is no over-the-counter medicine that can touch this pain. I’ve taken my fair share of pain medications and eventually, they cease to work. At this point, I’m not even sure if a pain pump would be “enough”, but I am going to bring it up to a specialist next year.

In the meantime, my stressful morning has led to a migraine. Thankfully the medication for that DOES tend to work, and I’ve just taken two. My work day is officially over right now, at least until the migraine passes and darkness falls. Here’s looking forward to 5:00 PM.

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copyright © 2014 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED

Dark Clouds

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I’d love to say I’m up early and writing. The truth is, I was woken from a migraine by the smell of brewing coffee. At 12:30 a.m. Strictly speaking, the smell of coffee is really pleasant to me. I breathe deeply, it evokes memories, but when I’m sick, there is a very long list of smells that bother me. Coffee is sometimes one of them.

Apparently it wasn’t just bothering me, because fuzzy people came to alert me to the fact that something was going on in the kitchen that should not have been happening. They’re trying to curry favor with me because I’ve had to yell at their antics over the past two days. Is it wrong not to want something belonging to your Grandmother NOT to be eaten by an animal clearly lacking common sense? Yeah, I didn’t think so.

I’m burned out. I’ve come down with something, and I just plain don’t feel right. The thought of doing a read-through or an edit right now has about as much appeal to me as maggots. Yes, that’s how bad I feel.

If I logged in to my frequent flyer miles right now, I’d find that I have enough miles acquired over the past 14 years to get me the hell out of here for a good three months. That’s as long as you can be away on certain visas. If I didn’t have responsibilities, my ass would be packed in a few hours and off I’d be. I’m that worn out, I need a break.

Where would I go? I have some ideas, but the truth is, there aren’t a lot of people that would appreciate me showing up at the last minute. Therein lies the problem.

Alas, I shall take the next 2-3 days and “vacation inside my head”. Next weekend is kind of a big deal for me, but I’m already upset, so I’m downplaying it quite a bit. One person’s milestone is another person’s way of harming that person and turning something happy into something negative. I don’t need that.

All I can do in this very moment is thank my friends for being so incredibly kind, caring, loving, and supportive. One friend in particular basically yelled at me this past week, telling me to get over myself, and it really is helping me learn things about myself, so thank you my dear. What you said holds water, and I appreciate it. It’s nice to know someone has my back, as opposed to standing behind me with a knife, poised to strike at a moment’s notice. In life, it’s absolutely crucial to know who the right friends are.  I am blessed.

Enjoy your weekend everyone. Take stock of your blessings and realize how lucky you are.

copyright © 2014 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED. 

Saying Goodbye To September…

September always sneaks up on me unpleasantly, kind of like the holiday season (If I see one more Christmas decoration, I’ll flip my lid!). I’m never fully prepared for it and I am always happy to see it go.

October is my favorite month of the year. It reminds me of very happy times in my life, and is always the lead-in to my birthday towards the end of the month. Unfortunately, my last few birthdays have completely and utterly sucked. I have decided to have absolutely no expectations whatsoever this year, other than the firm knowledge that I have to make some important decisions within the next two years and should probably invest in prolonging what’s left of my youth.

I am still recovering from my marathon editing session. We will not discuss how badly I ended up injuring myself by not getting up a few times each hour to stretch, or taking a moment to check and correct my posture when I got stressed. I’m halfway done, so I’m feeling good about that. I wish sitting wasn’t quite so painful though. I’ve learned my lesson. Sometimes, less truly is more. Also, all those naps I didn’t want to take as a child…

As adults one thing we all want desperately is a good night’s sleep (and to win the lottery), but as children, we think sleeping means we’re missing out on something. I always felt that way as a child, but now, I’m wishing I’d napped more, so I wouldn’t be so unbelievably exhausted now. And so, I have decided that in my next life, I’m coming back as a cat.

copyright © 2014 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED

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Leaves me be Mommy, I’m snuggly and warm.