I will be repping the color pink this month in support for BCA (Thanks to the lovely people at Tignanello.). I will also share info for the charity I participate in ASAP.
I usually try to post about this during the month of October. This year, I may be late in doing so, but I still wanted to mention it.
I don’t know a lot of breast cancer survivors. Maybe three, in total, and each of them chose different options regarding how to treat it. I know more people who have been tested for the BRCA1 gene. One friend was shocked she didn’t have it, mainly because her mother had survived breast cancer (And is alive and well to this day, THANK G-D!), so she was expecting the gene to be present.
I have an 18-24 month wait to be seen in order to be tested for this gene, unless I can convince my primary care physician to order cancer screening. He is hesitant. If we weren’t in the middle of a pandemic, I would have already moved on to another doctor.
Self-check yourself monthly. I do it twice a month because I’m a lunatic. If anything feels or seems off, make an appointment with your doctor and don’t be afraid to pursue a mammogram at ANY age. My cousin died very young from breast cancer, and at the time, her birth control pill was found to be the root cause of something they didn’t detect until just prior to her death. Medicine is more advanced now, so do whatever you have to do in order to have peace of mind. And men, there has been a vast increase in male breast cancer, so if you don’t feel right, talk to your doctor about it.
Even during a pandemic, we all deserve quality health care. I know many of us aren’t getting it, myself included. I will discuss it another day, but for today, schedule that mammogram as a precautionary measure. It might very well save your life.
I’m pretty sure this is what my cats think 24/7. I can’t even get water in the middle of the night without feet stalking me.
This is my favorite season and favorite time of year, but after an emotional, rage-filled moment yesterday, I am questioning EVERYTHING in my life.
To be fair to myself, I reacted via a triggering comment made to me, and new medication that, without my knowing in advance, causes people to occasionally react in a volatile fashion. I’ve stopped the medication, obviously. I don’t ever want to be the type of person who uses her medication as an excuse not to behave properly. That’s unacceptable to me. It’s going to take a week or so to get it fully out of my system, which isn’t a common issue for others, but apparently, for me, it builds up. For most people, it it out of their system within 12-24 hours. I am feeling is gradually leave, but nowhere near fast enough. 😦
I never ask my doctor about trying new medication unless things are bad. This was “new to me” medication, and I should have done extensive research before taking my first capsule. I openly admit to feeling stupid, but relieved that I quickly found the info and said, “I can’t do this anymore.” I had JUST spoken to him yesterday about the drug and was trying to tough it out past the side effects, but that one moment was one moment too many.
When you’re suffering and working solo on your pain/trauma/harm, anything can resurface and cause you to react. That’s what life has been like for me for the past few years, but I haven’t mentioned it. I’ve tried to cope silently, and in turn, I’ve retraumatized myself in several different ways. It is sad and upsetting, and I wish I had the energy to discuss it at length, but I don’t. I feel empty because this is an exhausting process. It’s made worse by no one asking how you’re doing or reaching out to you out of any kind of genuine concern or love for you, which I find SO insulting.
In times like this, I take a huge step back from people. I stop reaching out to them because, quite frankly, enough is enough. The world doesn’t revolve around others who have zero interest in doing the same for you. At the start of quarantine, I reached out to all of my friends to make sure everyone was doing okay, and I let damn near everyone know I was available if they needed to talk. I was mostly ignored. And then, at the end of July, my cousin passed away from terminal lung cancer. I reached out to two of her children, with whom I have solid relationships with, but I know they will call or text if they are having a rough time. They have their support systems. I do not.
I don’t speak to 96% of my blood relatives, and I have my reasons. If you have to find out that your Aunt passed away by finding her obituary online (after not being able to reach her by phone), that is a testament to how your cousins actually feel about you. My father’s side of the family baffles me. My mother’s side isn’t much better, but at least a few people value me enough to maintain a relationship of some kind. One of my cousins is sending me distantly related cousins via Facebook because she uploaded her DNA onto 23andMe and located people this way. If I wanted to upload my DNA to find family, I would do it myself. The truth is, I have enough distant relatives to last a lifetime and no deep-seeded need to “connect” with people I don’t know at this stage in my life. Especially with people in their 70s, 80s, 90s, etc. Let them live and be well, but I would much prefer a few peers. I don’t want conversations about who died, and when. Hard pass.
So yeah, I am struggling. I am suffering. I’m in a dark place. I am usually on a telehealth appointment once a week with my doctor, and despite writing and doing research for various projects I have in the works, I feel like I am mostly achieving nothing at all.
I am either asleep or not sleeping at all. I am in a lot of pain, so I have extremely limited what I do and where I go. After getting sick last month for a while (and having my symptoms suddenly disappear), I wonder if I need to be tested for Covid. It’s hard to tell if my cough is “just allergies”. I might have a minor cold, but it’s the feverish feeling with no fever and insane chills, that make me worry. Yes, this could be a major Fibromyalgia flare-up, or something valid. Unfortunately, when I did call my doctor’s office about this, they weren’t the least bit concerned. The fact that a persistent cough makes me feel like there’s eucalyptus living inside my chest was of zero concern to them, but they thought they were doing me a favor by letting me know I could go and get tested, and they’d fax a request in wherever I decided to go. Instead, I called a local Urgent Care and they said, “Just come in. We don’t need a note or prescription from your doctor, and it’s covered by your insurance.” There’s also free testing being done in the area, so I’m covered if I do need to go. My insurance has called, texted, and sent letters to let me know any testing or treatment will be 100% covered. If I go, I will verify it over the phone, just to be on the safe side of potentially receiving an astronomical bill.
As it begins to dip into the 40s and 50s here, my entire body feels like someone poured -30 degree blood into my veins. Even if it’s 70 degrees outside, I am bundled up like it’s about to snow. I can’t seem to shake the chill. And yet, this could just be my new normal. 😦 I will not know until Spring, pretty much.
Here’s hoping some of this lifts for me and I am able to enjoy the Fall version of October. Realistically, I’m not holding my breath.
copyright © 2020 by Lisa Marino & Poison In Lethal Doses, LLC. ALL RIGHTS RESERVED.
Thank you to everyone who took a moment out of their day to send me good wishes and positive energy. I appreciate the thoughtfulness.