All I Want Is A Nap…For Now

iadmire

I packed for nearly eleven hours today. That’s a record for me with Fibromyalgia, because the last time I had to make a big move, I flat-out shut down emotionally (and physically) and hired a moving company. This time, I am doing every damn thing by myself. You know where you stand with your friends and family when everyone scatters the second they hear the word “move”. This is precisely how people get cut from my “When I win the lottery” list.

However, packing drills home the fact that this is a really big house and while half of the house is already packed, I’m more concerned with the day-to-day stuff and the things that make me emotional. Family photos, art, DVD’s, the books in my living room that are organized in alphabetical order (They don’t call it OCD for nothing!), everything in my kitchen that I’m attached to, hell, even my nail polish collection makes me weepy.

I’m tired. This is my body’s way of saying I need a break, some food, and maybe more than the three plus hours of sleep I got last night. Despite going to bed early, I woke up at 1:00 a.m. and I’ve been on a roll ever since. The plus to all this: I tossed a TON of crap without glancing twice at it. Do I need the bridal magazine from 2009? NO. Can I donate these books to the library? YES. Do these craft items need a better home? YUP!

I packed one of my suitcases and ended up cleaning out four of the drawers in my armoire (They were FULL, this was no easy feat.). I had no idea I had so many things, but my closet is next and I suspect that will be 20 boxes of “How long have I owned this?” I’ve already donated a ton of clothing to different charities between last year and this year, but I found a local place that will buy new and gently used clothes from me, including shoes and boots that have never been worn that I was unable to sell on eBay, so I might as well make a few dollars while I have the chance and see if I can turn that into a new work outfit or something I need to get me through Winter. If I can move with significantly less crap, that’s one less stress in my head. Hell, I threw makeup out, you know I mean business!

Unfortunately, I’ve overdone it. I can barely keep my eyes open and I can’t have another conversation about whether or not to keep something, sell it, donate it, or throw it away. I’d sell a bodily organ if someone would pack everything for me, transport it to my destination, and do all of the unpacking, thus allowing me to sit in a corner and watch a spot of paint on the wall.

Happiness has an expensive emotional price tag. Putting myself first for the first time in my life means I am walking away from my life and starting over. To one person involved in my decision, it means “abandonment”, but that isn’t the real truth, it’s their perception of the situation. It’s their intent to make me feel guilty, thus lulling me into changing my mind, which in my eyes, means dealing with a form of tyranny for God only knows how long. I feel torn between demons, and I’m not 100% sure of that analogy, I just know that I want and need PEACE.

I need quiet when I am sick, as opposed to someone barging in and waking me when I’ve only been asleep for an hour. I need privacy. I need to be able to say “I’m going to bed.”, and have someone respect that, even if that means they don’t see me for two days. When I am dealing with migraines and Fibro flares, I don’t need to be told that I’m “using it at a crutch” or “You’re just being lazy because you don’t want to do something.” (I once had someone vacuum while I was on vacation in the middle of a migraine. It was 7:00 a.m. and I contemplated murdering them, but ultimately hoped they’d finish quickly, before I went into the living room and threw up on the rug.) And when I’m in a dark place, I don’t ever want to hear “Just kill yourself already, I’m tired of hearing about it.” That is NOT what you say to someone who considers suicide regularly, or even just once a week. And NO, I feel no shame in being honest about that. I’d be more ashamed if I pretended my life was perfect and that I had no emotions, or pretended to be strong every single day of my life when the fact of the matter is, no one is strong 100% of the time. We all have moments of doubt. It’s called “being human”.

Insensitivity and hatred directed at you when you need to focus on your health and rebuilding portions of your life is unhealthy. I want better, I deserve better, and I cannot allow myself to be guilted into the stupidity of others. (FYI: I am not discussing a romantic relationship. I would NEVER allow abuse in a situation like that. Perhaps some day I will discuss what I’ve been through, I started writing about it months ago, but today is not that day.)

So, on this rainy, windy Saturday evening, I hope that everyone has had a happy, productive day. I overdid it and I’m already feeling the aches and pain, my back is sore and I HURT, but I have to keep believing that it will all get done. Ultimately, me being okay in the end is probably more important than anything else.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

yourmindis

Pull The Covers Up And Leave Me Alone

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I’m a pretty dark person. I have a wicked sense of humor and I’ll say anything goofy to make someone laugh, but when it’s my life, there isn’t a lot I perceive as humorous. I’m not the kind of person who laughs at someone else’s pain or who enjoys hearing about someone’s breakups, divorces, illnesses, a death, etc. Laughing at other people’s pain is evil, in my eyes. When someone mentioned losing their Mom last week, I sat on my couch and cried. I’d already endured a rough week and hearing the words “My Mom passed away, but she’s at peace.” made me ill. I felt SO bad for this person. I was relieved that they had support from a spouse, friends, and family. That made me feel better for them, despite the fact that losing a parent at any age is one of the worst things one can go through. I should know; I’ve already lost both of mine. I’d give a lot to have even just one of them back. I spend every day of my life feeling like an absolute orphan.

I am good at listening to others and giving exceptional advice, but I’m not very good at listening to myself in an advisory capacity. The last thing I want to hear is the sound of my own voice. I spend a lot of time trying to shut the inside of my head up. I don’t do drugs, so that means I pull the covers around me (usually because I’m cold) and close my eyes. After a few minutes, kitten comes to check on me and she’ll cuddle in, which always makes me feel cared for. She’ll look at me with such loving green eyes and I know that she is conveying her concern for me. “Why are you sad, Mama? Don’t worry, I’ll stay with you. ” And she doesn’t leave my side until I leave the room. She is the epitome of loyal, and it is gratifying to see so much love from such a little person.

Cat also checks on me. These last few weeks she has been very observant of my unhappiness and has spent a lot of time watching me, cuddling with me, sitting on my lap at times, and looking for me. If I leave a room, she’ll trot after me to make sure I’m okay. She stares at me with her deeply knowing little face. I can almost hear her thinking “Mommy’s not okay. I always hear her say ‘I’m not okay.’, why doesn’t anyone listen to her?” I don’t know.

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I’ve been so miserable that I’ve struggled emotionally in deep, dark places. Very few people have noticed and even fewer have shown me that they care. That’s okay, because it only proves what I already know; Most people live on their own fucking planet and aren’t aware that other people exist. Good for them, but please, stay the hell out of my lane or I will mow you down for shits and giggles. I have absolutely no tolerance for anyone who has their head that far up their own ass, though I am slightly impressed with their ability to physically aim so high. Since their heads never come out, there is no need to stock up on Listerine for the “great hose down of 2015”. I’ve decided to ignore assholes, douchebags, and vicious souls for the foreseeable future. I don’t care who the person is any more, I don’t need the stupidity and heartlessness.

Oftentimes people forget that all forms of depression can strike them down at any given moment. They can be the happiest person in the happiest place, and suddenly feel as though there are no words for their internal pain. Lying about it, pretending it does not exist, and blowing off the pain of others to make yourself seem stronger doesn’t make you better, it makes you afraid of being stigmatized. It’s 2015. Get the antiquated thinking out of your head and stop being an asshole to yourself, and others. It takes strength to treat a chemical imbalance. It takes strength to talk about it. You should be ashamed if you’re lying about it and hiding it. You should be even more ashamed if you’ve hurt friends that suffer because you can’t handle the fact that they’re stronger than you are. Yelling at someone who is suffering is not helpful. Screaming at them is even less helpful. You either want to help someone because you genuinely love and care about them or you scream because you lack proper communication skills.

I will yell when I’m frustrated, I will tell someone to back off or leave me alone when I am frustrated and need space, but the only person I abuse is myself.

I never know with any certainty if I will emerge from these dark places. Medication isn’t an option for me. I wait for new drugs to be released every few years to see if something new will be the answer. And by new, I mean NEW, I do not mean reformulated with a new name, which is what most pharmaceutical companies do when a major money-making drug is about to go generic. They will re-release it under a new name, having slightly tweaked it. If you’re not proactive in researching these drugs, you will spend years taking the same fucking crap, experiencing the same horrible side effects, wondering why you never feel better.

I am the exception, not the rule. Many people do find medication that works after some trial and error, even if only for short periods of time. I am chemically sensitive and I have been written off as “treatment-resistant”, which means that my brain doesn’t respond to all sorts of crazy chemical cocktails. No drug has ever worked for me on a long-term basis. Every time I “go dark”, it is up to me, and me alone, to try to pull myself out of the deep, dark hole before things get worse. I’m really tired of everyone’s opinions in regard to that. When you’re hurting, you want to be understood. You don’t want to hear hypocrisy or “That’s a permanent solution to a temporary problem.” Um, NO. I will have this for the rest of my life. That my friends, is fucking permanent.

I will never be a perfect, blooming flower for anyone. I wish people understood that depression does not diminish who I am, it does not detract from what I bring to the table. It does not make me less talented, less intelligent, or less anything. If anything, it makes me the more interesting person in the room with a little more vibrancy at times because I hold a lot back daily. I don’t shine all of the time, but when I do, I highly suggest wearing sunglasses.

Here’s hoping I will soon shine again.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

stayingquiet

As Real As It Gets

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WARNING: Potential Triggers

I’m a ridiculously intuitive person, which has the tendency of scaring people if they aren’t used to it. I live my life paying attention to the same things most people ignore. However, it is virtually impossible to ignore your body and mind when they’re screaming at you. No matter what bad thing it is that you may be going through, it is sometimes important to take a step back, allow yourself to feel what you feel, without apologies, and regroup tomorrow.

For the majority of my life, my purpose wasn’t clear. I don’t know if I ever considered the purpose for my existence. I had so many responsibilities, and I openly admit that I took them on myself. When most people would have been taking care of themselves for their “most selfish years”, I was taking care of two sick parents. I was dealing with burying friends and loved ones, and so it took until maybe this last year for me to say “Enough!” and begin focusing on myself. I now know that it’s not selfish to be focusing on myself at this point in my life, it’s survival.

I’ve been through some awful things, a lot of which I try not to focus on. There’s a saying about not looking back or you’ll only manage to hurt your neck. In many respects, that is true. I gain nothing from reflecting on pain, but I do gain something for having survived all of it. I know that I can get through the horrible, never-ending cycle of suffering, I know I can come out the other end a far better person than I was today, but it’s not a choice one ever wants to make. It’s “kill or be killed”, so you have to regroup and “kill”, even if only metaphorically.

In times like this, a lot of people turn to religion. I am not hardcore religious, but I am spiritual. I pray several times a day for the peace and the concept that someone Higher is listening to me. That someone Higher cares. Through trial and error, I have found that most people care about themselves, and they have no room in their mind or heart for anything or anyone else. I’ll never understand it. The average person cares about five people, or less. Are we such a selfish, self-absorbed, self-centered society that we take no time at all to care about the person next to us? I often hear myself say that if a situation does not directly affect me and/or those I love/care about, then I cannot put forth the emotion to worry about it. The point though is that I actually love and care about other people. I’ve spent a long time placing others before me, and I still do it at times, but ultimately I don’t have my head up my ass. I find it easy to be emotionally present for others, and a lot less easy to be emotionally present for myself.

I’m sick of my internal dialogue because it’s so abusive. It’s something I call “self-abuse”. You’re cutting yourself apart as if you were actually cutting, but there’s no blood, the wound is entirely internal and it grows daily. You wouldn’t even feel it if someone dipped you into the Dead Sea, because you’re already a walking wound of agony.

I can point out positive things in other people, but when it comes to doing the same for myself I usually say “I’m loyal.” and when asked how I’m feeling I often say “I exist.” I will never lie and say “I’m fine.”, because then I’d be lying to myself. I’m not fine. I’ve never been less “fine”, but because I’ve been through so many “not fine”, “not okay” times, I would rather not pick at the scabs, so to speak. How much negativity does one need to focus on before they become batshit crazy and hurt someone, or themselves?

I will never lie about often feeling suicidal. Never. I will never pretend that darkness doesn’t coat aspects of my life so thickly that it’s hard to see the light. I will never say it is a topic that is “off-limits” or “taboo” because the fact of the matter is, not everyone acts on their thoughts, but those that do aren’t weak. It takes an immense amount of strength to say “I’ve had enough pain.”

Many people advocate for “assisted suicide” for terminally ill patients, but what do we advocate for when a person cannot be healed in any way, shape, or form, through no fault of their own? Do we pretend the issue doesn’t exist and go off into our own selfish bubble? Do we say “That’s not my problem?” Do we walk away? Do we ignore it?

So many people have been unable to see the signs in a loved one and have later been devastated that they chose to end their own life. Instead of thinking about how much pain THEY had to be in to go there, to reach that point, all I ever hear is “How could s/he do this to me?”, “How could they leave me behind?”, “Why didn’t s/he tell me?” Bringer of honesty: It’s NOT about you. 

It amazes me how people don’t look closely at situations or loved ones. It blows my mind how people choose to see the surface, and nothing more. It behooves me how few people ever say “I’m here for you, no matter what. And I will NOT judge.” Once a person commits suicide, people can lie ’til the cows come home, but they are absolutely judging. If you’re unaffected by the deeply personal pain of others, you aren’t human.

It is important to check in with those we love. It is important, and crucial, to look deeper. There will still be times when you will not see what a person chooses not to show, but there will also be times when a hug, a hand to hold, a kind word, a moment of inspiration, a thoughtful phone call, or card will pull a person back and show them that they mean something, that their life has value and purpose.

This will be painful for some people to read because they choose to avoid brutal truth. This may be painful for suicide survivors who are still left asking themselves “Why?” As a person who thinks about it deeply, I have very few reasons for not acting on my feelings. Those reasons become less important each day.

I am touched by the people who genuinely reach out to me in love or friendship. I am touched by the people whose actions say “I’ll always be here for you, no matter what.” But those moments, and people, are few and far between.

One day I may not be able to rely solely on my self-talk to pull me back. And the excuses you might very well hear in the wake of that will be: “I work 60+ hours a week, I have no time to talk.”, “I never returned her phone call. I feel TERRIBLE.”, “I didn’t answer her text message.”, “I stopped speaking to her because she was too honest.”, “She was so young, smart, creative, and beautiful…I don’t understand. She had her whole life ahead of her.”

No one will say “She was in so much pain, she couldn’t take it anymore and I understand.” No one. And that is truly fucking sad.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

idonot

How Honest Are People About Their Mental Health? This Might Surprise You…

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Facebook needs to institute a better policy involving “friending”. Even with strict filtering, I have people sending me friend requests simply because they like something I’ve said. Why in the world would you want to be “friends” with someone who is simply the same astrological sign as you, or just happens to also be a writer/editor? I understand when people say they’re an “aspiring writer”. They want to see what they can learn from you. I am a very open person, BUT when it comes to my WIP’s, I am not about to post them anywhere for the entire world to see. I don’t want or need a critique, I don’t need someone to tell me how to be a better writer, etc. I have been doing this for 28 years this month. I know my shit. If I didn’t, I would never have continued to return to it, be it as a source of inspiration for myself or as a source of income.

Moreover, if a person openly declares themselves a “sociopath”, you probably DON’T want to accept the friend request that is sent to you an hour later simply because they “like” an intelligent and/or helpful comment that you’ve made. I keep my “inner sociopath” to myself. I do let her out on special occasions though, when a person is deserving of dealing with it. 😉

One interesting thing that caught my eye over the past couple of days was an article that other writers and aspiring writers were contributing to. I want to say that it was more a group of highly creative individuals, so there were songwriters and artists also involved in the conversation. It began with a question: “How many of us suffer from bipolar disorder or other forms of depression or anxiety?”

Nearly a hundred different people (it might have been more, this has been a rough week for me in terms of keeping in touch with others) responded with various responses that said yes and each of them explained their diagnoses. Only four or five people said they suspected they suffered from some sort of depression, but that it had never been diagnosed. About the same amount, more or less, said they did not suffer from depression.

I was very proud of everyone for openly, honestly discussing bipolar disorder, anxiety, OCD, and a plethora of other forms of “mental illness”. It hurts me to use that term AT ALL. I don’t see every single person as “mental” and I cringe when people refer to others in such a way, as opposed to educating themselves. An illness is an illness. I would never tell someone they were responsible for getting sick in the first place, but MANY do say shit like that. It baffles me. Some people even discussed varying degrees of autism. That takes incredible courage. One of my cousins is autistic, so I’m not ignorant there.

When confronted with my own mental health, I am supremely honest, but I do not advertise it. I am going through something that has made me full-blown OCD,  exacerbated my PTSD to levels I didn’t even know existed, and my anxiety is so bad, I can barely sleep most nights without waking up screaming, sometimes from pain, sometimes from my medication wearing off too quickly.

From day one, I have openly, and very honestly discussed suicide. This makes people uncomfortable because they REFUSE to face the fact that they’ve romanced the idea themselves. No one can tell me they suffer from any form of depression and have NEVER considered suicide. It might have been a fleeting thought, it might be something you NEVER act on, but it still exists. This is a trigger for a lot of people. They lash out at me and decide I am no longer worth their time, all because I was HONEST. Catch me on a dark day and I might scare you with my truth, but anyone who genuinely cares about you will give you their time and concern, they will not pretend you’re “mental” or tell you to “take a pill”. Those are two of the most insulting things to tell someone.

I once had a woman piss me off at the grocery store. I was going through a stressful time with my father’s health and, in front of her children (both of whom were under the age of 12, but not younger than 8 or 9), she told them to “Get away from her, she’s “mental”. I might THINK a person is batshit in a public place, but unless they’ve caused harm to someone or they’re about to hurt themselves, I’m not stupid enough to go there.

Truth is, they were standing in front of a huge display of fruit for nearly ten minutes and wouldn’t move out of the way. How do you not tell your young kids to move over so other people can shop too? She was talking to them like they were infants, as opposed to children that have the ability to comprehend. The comment was completely out of line and off base. I turned to look at her, contemplated knocking her teeth out, and then looked at her a second longer with her kids. I felt incredibly sorry for them. I then politely took the fruit I wanted and said “Did you learn that in your many years of therapy? You might not want to pre-judge people based upon your own issues.”, and I walked away. She was left in the dust, unable to speak, because I called her on her shit.

I don’t need that kind of false denial in my life, not from any one. You don’t have to like me or love me, but I guarantee that with an open mind, you will respect me. I would never intentionally hurt someone with my candor, and it’s okay to say “Lisa, I care about you, but this upsets me too much to discuss any further.” It’s called COMMUNICATION.

I have lost people to suicide because they had no one they felt would truly listen and hear them out or “make it stop”. I’ve stopped myself many times from acting on a thought because I believed it was irrational and felt it was wrong to leave any one of 4-5 people in my life behind to discover what I’d done, or have to receive the phone call that just plain brings you to your knees. It would devastate four of them. The last person probably wouldn’t give a shit or so much as come to my funeral. I’m not a priority now, why would I be a priority then?! (Yes, that was morbid and I apologize. Two, you’d understand why I said that if you knew who I was talking about and how they have treated me.)

Being honest about what I suffer from, including migraines and Fibromyalgia/Chronic Pain is part of what keeps me alive. The other part is that I am responsible for little people that love me and would have terrible difficulties without me. And even still… I often find myself thinking “This isn’t enough to live for.” It’s not coming from a selfish place, it’s coming from a place of wanting to be better, to strengthen the relationships in my life, to bring other relationships into my life and allow them to flourish. I cannot live for one thing and one thing alone. That’s my personal take on it, but it might not be yours, and that’s okay. I’m by no means here to judge you.

I want to thank the people that have supported me this past week through a living nightmare. I am surprisingly uplifted by the emotional support, care, concern, dedication, determination, and devotion. Only ONE person said “I’m proud of you.” When you’re going through hell, you do not want to be pitied, treated like a failure, or be belittled and/or disrespected. You simply want to be treated like the person that you are. I had to be reminded that I am strong, smart, and capable in the face of others trying to crush my soul. Bad things happen to all of us at some point in life. I may have been given a higher dose, perhaps God shouldn’t trust me so much, but it is what it is, and I am making peace with it.

I refuse to allow anyone to make me feel small in order to raise their own self-esteem.

If you’re honest and upfront about any illness, I applaud you. If you’re a loyal, supportive person to those that you love, I also applaud you. Compassion & genuine kindness is severely underrated.

“Things” do not make you who you are. It’s what’s inside your heart and soul that is the true value of self. The trappings are pure nonsense. They do not define you. I wish I’d understood some of that for the past ten years, but now that I do, I am determined, now more than ever, to persevere and make important things happen.

This phoenix has been reborn. Stay the hell out of my fire.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

itsgoingtobeokay

Do Not Confuse…

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I think it’s really important to listen to others and hear them, even if the subject matter makes you uncomfortable. I don’t like to denounce someone’s feelings, even if I disagree with their perspective. People say that words aren’t harmful, but they can be and it’s important to acknowledge that even the simplest way of saying things, at times, can make a person question who they are, or that it can do severe damage.

Sometimes, I think people say things to challenge me. It’s truly not meant to be harmful, but if I’m already bleeding on the ground, I probably don’t need another kick.

I’m so far from perfect, it’s not even funny, but I will be apologizing to a few people this week to be certain that they grasp the true meaning and don’t take simplicity the wrong way.

Above all, always be yourself.