Sadly, health should also be on that list. Especially when you suffer from something where funding is not a priority in terms of helping find a cure. Where’s Jerry Lewis when you need him?!
Month: May 2015
Remember To…
“Remember to go out of your way to do something kind once in a while.” -Unknown
Overdoing It
When you feel good for even a split second, you try capitalizing on it by squeezing in things from your “to do” list. Mine is more like a “must do” list. I am currently packing things up from my home for donation. There are plenty of people who need home goods and other things I will never use, so I’d like to get about 10-12 boxes ready for any charity that is willing to pick them up. This always helps me feel good; purging things I will never use that can help others. I choose a different charity each time, that way I’m helping more people. I believe that the good you send out into the world is a reflection and will be there for you in times when you most need it. It’s very much the “Law Of Three” for me. “That which you send out into the world returns to you threefold. Send it again and it returns in ten.” I think that’s a really nice way to spread positivity and hope.
Unfortunately, having that brief moment yesterday where I felt okay means I can barely move my upper body today. I fully intended to do a few more boxes this afternoon, but perhaps I should take some Aleve first. It’s sad that I’ve had to depend on Aleve for Fibromyalgia pain for well over a year now. Sometimes it helps for short periods of time, and other times it’s as if I swallowed Tic-Tacs. How promising. 😦 I definitely need to go back to herbs on a semi-regular basis.
I was able to get some editing done yesterday, despite being ticked off and despite the migraine from hell. I found so much wrong with the work though that I continued to over-analyze it. There are times when, as an editor, I have to step back and remind myself that it’s the writing, and it’s not MY work causing the issues. I think the best idea is to move forward and get it done. Whatever isn’t perfect will be re-done during the final round of editing, after revisions and rewrites. I know she has several other things she wants me to edit once this one returns to her for rewrites, which will be extensive, she has no idea how serious I am with my notes, and despite wanting a brief respite to focus on my own life, I think continuing with the same client is a good thing.
One of the new things I am getting ready to do is design my book cover. Even though I will be pursuing traditional publishing, I still want to have an idea of how the book will look. I’m going to draw up a rough sketch and talk it over with a graphic designer. Branding yourself properly is never a bad thing. In fact, it’s quite smart.
And so, I am off to tackle a few boxes and then do some charity research to see who needs what and how quickly they can come.
Enjoy the rest of your day!
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Get It Right
I can’t remember where I heard this song. It might have been in the car when I briefly turned the radio on, but I think it’s sweet.
Sometimes When We…
“Sometimes when we are generous in small, barely detectable ways it can change someone else’s life forever.” -Margaret Cho
It Doesn’t Get Easier
Fibromyalgia Pain. Chronic Pain. Migraines. They are just a few of the evils that millions suffer from. Some suffer loudly, but many more suffer in dark rooms, alone, in silence. You’re screaming on the inside, but you don’t make a sound.
There is something about the temperature shifting drastically that changes my “Pain Game” to new levels of insanity. I’ve had a migraine on and off for three days, and after last week, I’d hoped it was just a passing tornado, so to speak. This morning I reached that “insane from pain” stage that is quite scary. You hear yourself saying crazy things, but you truly cannot stop your mouth from moving. You’ve been strong for too long and now you’re venting.
I’m usually up pretty early and by early, I mean still dark. Suffering from migraines last week into this week has meant that I’m finding justified reasons to A) Go back to sleep or B) Take naps. This morning I woke up at 7:24. I’d been up an hour before and truly saw no reason to make a bigger effort, so back to bed I went. Unfortunately, when you have animals and/or young children, you don’t get “the morning off”. I suspect if I bled out of my eyeballs, maybe. The girls were being particularly aggressive this morning, so I fed them at exactly 7:25 and then stomped back up the stairs like an insane person. Once they’re fed, they usually leave me alone. In true form, they had no interest in bothering me whatsoever once they’d been fed. But once I officially woke up, I had a little stalker doing all sorts of wrong to draw my attention. I’ve reached that pain point where saying “No.” or “Get down from there!” isn’t even worth it. If I spritz them with water, they stop doing it. However, they’re fearless and like to lick the water off right in front of me, as if to say “Really Mommy, that’s all you’ve got?” I’m not in the mood to be challenged by anything with four legs and fur, and I don’t negotiate with terrorists that look like children. 😛
Migraines that affect your neck, shoulder(s), face, and spine are fucking scary. There is always someone telling me a wild story about how “so and so had a migraine, and thus thought nothing of it, until they ended up in emergency surgery.” Yeah, that’s what I need to hear. That is totally going to make me feel better, thanks for sharing! I have no idea why so many people use the “this one has it worse” crap on you, as if that is somehow going to magically stop your suffering (and not just with a migraine, but with ALL things in life). FYI: It doesn’t curb your suffering at all, but it does piss you off, which isn’t good because that raises your blood pressure and damn near guarantees that this migraine isn’t going anywhere any time soon.
My biggest problem with this particular migraine is that I also hurt from my spine down to my calves. If it’s not severe pain, it’s a horrific ache or serious soreness. There is a 50% chance of rain and honestly, I’d like to see it rain a bit because that would explain the sudden increase in pain from my daily 8-9 to DEFCON 1. Historically we have never reached such a level of “readiness”, but I’m betting that a vast majority of pain patients HAVE reached that threshold. It is pain that is so bad, you’d rather feel ANYTHING ELSE but that pain. It applies to more than just the physical.
Doctors have often told me “It gets better as you get older.” That’s what they told my mother when I had horrible growing pains and constantly felt like my muscles and bones were going to pop off. Now, doctors ask whether or not you can remember if you had bad growing pains as a child, because that often signifies whether or not you might suffer from a form of chronic pain later on in life. They ask about your long-dead relatives medical histories, as if you know all about your “dead before I was born” Grandparents and Great-Grandparents. Unfortunately, I remember those growing pains the same way I will remember my current pain a month from now, with 100% muscle memory.
I fully intended to get some serious editing done today. I have a client crawling up my butt (I have more to say on this subject, but it’s unprofessional, so I’m going to shut my mouth) asking for a timeline for delivery. We’ve never discussed one before, but as I go through pages and pages of work that requires severe corrections with every sentence, I had to be honest (I chose professional honesty as opposed to niceness because I don’t have niceness in me at the moment.) and tell exactly her how much work is involved. The cleaner the manuscript, the less work there is for me, but as a developmental editor, I fact check and do way more than I’m being paid for, and yet from a writer’s perspective, I cannot tell if it’s just excitement at the prospect of having never been edited before, or anxiety that a professional is dissecting your work. I don’t know, I suspect it could be a lot of both, but I’m also in too much pain and under too much stress to sit and psycho-analyze it. I also hesitate to ask because I’m about .1 seconds from losing it on just about anyone. I’ve never failed a client before; it’ll get done, but work stops when I’m in agony and being nagged.
Right now, today is turning into another “Must Take Care Of Me” day. I truly don’t feel there are enough days like this because I often turn my attention to helping someone with a problem, or doing something else to shift my internal focus off the pain. Focusing solely on my own needs is slightly unnatural to me, but for now, it MUST be a priority.
Here’s hoping that none of my readers are hurting like this today. 😦 This is the kind of pain only Hitler deserves!
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Mondays…The Bane Of My Existence
Maybe it is lack of quality sleep or the fact that I woke up stressed, but this particular Monday is making me ill. The eerie quietness was giving off a lovely early Sunday morning vibe, which was helping calm my nerves…until the mowing and trimming started, AGAIN. I’ve had a migraine since last night, so the sound is like a never-ending sickness within me. I didn’t realize it until just now, but the smell is also murdering my sinuses. Spring allergies on top of all this physical pain AND a migraine? It’s unbelievably cruel.
The migraine is never truly gone. It will lull me into a false sense of security and then come slamming back, making me feel like my brain is being rattled. Has anyone received successful Botox treatment for their migraines? If so, please share your experiences with me.
Originally, I had some semblance of a plan for today. I had ideas laid out for work and I will definitely begin the process of writing certain things, but I’m realizing right now that some serious self-care is also in order. Today is going to be one of the hottest days that I’ve seen in quite some time, topping out at either under 90 degrees or over, so I think my first order of business before it kicks into high gear is to start hydrating, and to refill the Brita pitcher as a precautionary measure. Heat and I don’t mix well. In my mind’s eyes, it’s a “Wicked Witch melting” moment.
Something about the heat always makes me sick. It affects my entire body (pain, stress, stomach issues) and it exhausts me to the point where I will close my eyes and wake up five hours later. Like many things, the heat does Fibromyalgia no favors. It irks me that a person can’t spend five minutes educating themselves about Fibromyalgia, or any chronic illness, but when you explain that you’re sick, their response is selfish and self-centered, with claims of also having it. And yet, when they describe the pain they experience, you know their journey has yet to even take place because, while it may have been diagnosed, it is the utmost of mild for them. They don’t have to spend a week in bed after two days of serious activity. The only thing they do experience is widespread pain, but it’s not constant. Well, unless you’re on a morphine drip, Fibro is a constant. There are over 100 symptoms and side effects, but if you’ve only got one or two of them, I have a hard time relating because I score over 85 on the list, and that’s extremely disturbing to me. This disease is robbing me of my youth and energy in ugly ways.
So, if I don’t do or say something today that you expected, please forgive me. I’m waging war, both physically and mentally. I don’t have time for frivolous nonsense.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.









