Manic Mondays

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I hope everyone had a wonderful weekend and start to the year. Mine started off decently enough, migraines notwithstanding, and then I ended up in Urgent Care Saturday afternoon. :/

I legitimately thought I was having one of those days where putting contact lenses in simply wasn’t going to happen. Normally this only happens once in a while during the summer, but after having no problem with the first one, I proceeded as usual. The other lens caused excruciating pain I’ve never felt before (at least not in my eye) within 10-15 seconds of it going in. It took me roughly ten minutes to pry the lens out of my left eye by force, because the pain was unbelievable and the body’s immediate defense is to practically lock the top lid down, which only makes it worse. I was actually screaming as I tried to remove it, and both of my eyes were tearing. It was not a good moment for me and I’m glad no one was here because I scared the hell out of myself, G-d only knows how someone else might have reacted to my shrieking like a banshee. I tossed the lens immediately because I couldn’t see a tear or a micro-tear to have caused a problem, but I wasn’t about to fight with a thin piece of plastic, it’s just not worth it. When in doubt, throw it out.

Unfortunately after that, I was temporarily unable to see a damn thing out of that eye, which scared the crap out of me. My eye swelled up, was bright red, and I couldn’t open it until a few hours later. In some type of solidarity, my right eye also swelled up. Thankfully Urgent Care was quick, efficient, and verified that I have a scratched cornea beneath my pupil. I was pretty certain that’s what it was after deciding I likely hadn’t had a stroke (It was that scary, I’m not dramatic. Plus, women don’t always experience traditional stroke symptoms, so I had just cause to be concerned.). It takes a LOT for me to seek medical attention because, over time and through much negative experience, I’ve lost all respect for the medical field on a whole. I’m tired of being treated like crap all across the board, but when it comes to my vision, there’s no negotiation. I am grateful it is something simple that is treatable. I’ll be better later this week. In the meantime, I have a “fun” antibiotic gel to help it heal and to spice things up with some humor, my brother called yesterday afternoon to find out if they gave me an eye patch. I should have said “Yes, and I’m hoping to be an extra in the next Pirates of the Caribbean movie.”, but the question caught me off-guard and I momentarily thought he’d lost his marbles.

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And so, I sit here stressed, sleep-deprived, contemplating writing a number of different things, with little energy to do much of anything. I have often said that anger fuels me to be a better person, and at times, it does, but this morning I discovered that the flip side of anger can easily poison the mind and make you hostile and bitter. I’m lethal enough on my own, I certainly don’t need anger to fuel rage or any other negative emotion. I am glad I was able to see it for myself, not allow my own brain to poison me, and did something productive by talking about what I am going to do to nip that thought process in the bud, because in all likelihood, it will continue to creep in and I’m trying to move forward, not take a giant leap back into muddy waters. I don’t like involving Western medicine to handle this sort of thing, but it’s technically the only option I have at the moment, so I’m going to give it a shot. I spoke with my doctor and he suggested cutting the pills in half so that I don’t get slammed by coma-like drowsiness. The second I caught myself “going to the dark side”, I grabbed the bottle out of the drawer and began cutting a few pills in half. Perhaps tonight, I will sleep like a regularly scheduled human-being, because between last night and today, sleep was a cute little joke waving to me from a billboard. 😦 I wasn’t the least bit amused.

The other day someone e-mailed me about Fibromyalgia surgery in Dublin, Ireland. No matter how much research I did, there was no information available about this so-called “surgery that stops the center of the pain”. If Fibromyalgia is triggered by something in the brain, wouldn’t that, in all likelihood, be some form of brain surgery?

What I did find in my research is a toxin draining program which makes little sense to me since flushing toxins out of the lymph nodes need not cost somewhere between $800-$1100. While it claims to have an 80% success rate within 8-12 weeks, people who have actually completed 12-18 weeks of the program in the desperate hope to come away pain-free experienced no difference in their pain levels at all, just a vast decrease in their bank account. 😦 I strongly urge people to be aware of things of this nature. Yes, every Fibro patient on the planet would probably eat bark every day for a month if it was guaranteed to cure them, but we often forget that there is currently no approved cure. There are treatments in the works, but there is currently no cure. When there is, there will be a collective sigh of relief from sufferers all over the world, but until that day, don’t fall for bullshit that is going to leave you broke. Research DIY ways of flushing toxins out of your system, if you so desire, but until you know 10-20 other people who’ve successfully received a treatment method, do what is right for you, not what others claim has a chance of helping. There’s a strong chance it will snow tonight, someplace, somewhere, but that doesn’t mean I’m going to wake up to a winter wonderland, or be healed.

warningIf you love someone who sufferers from the debilitating disease that is Fibromyalgia, I assure you they’re not “being lazy” or “sitting around doing nothing”. They’re in real pain. They will tell you they’re okay and cry privately. My family sees me limping around, barely able to move much of the time despite the fact that I push myself so much these days, but often expect me to do things “like a normal, healthy person” because even after all these years, it still has not sunk in that I’m legitimately not well.

Everyone wants the athletic, healthy Lisa back, and so do I, but the more I have to hear about how I’m “ALWAYS sick”, the worse it makes the pain. Stress exacerbates Fibromyalgia. It’s important to leave your personal expectations on the side of a road, cover them with dirt, and look closely at your loved one’s face. No one should have to mask their pain, sensitivity to light and sound, or any other symptom in order to make you feel better about yourself. We’re suffering, don’t make it worse for us. And if you cannot stick it out, for whatever reason, be honest, and please let the door hit you where the Good Lord split you.

copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Bright, Blue, and Dark

10418355_391119307742525_1244338325782921632_nDespite what the Migraine app claims, I slept horribly (hours don’t count unless it’s quality sleep). Under normal circumstances the fact that I took two Benadryl for my allergies would mean I would have gotten an extra 2-3 hours of sleep. Alas, around 5:00 a.m. I was haunted by Case Study #2. Note To Self: Change locks and murder anyone that wakes you three times in one night for their own selfish reasons. By sometime after 6:00, I was awake, pissed off, and hungry. Thank God for awesome leftovers because that’s all I was craving this morning. When you haven’t made something in several years, having it after so long is like a homecoming. I wanted to celebrate the happiness that was occurring in the kitchen. 🙂 However, I’m not in the mood.

Despite bright blue skies vividly showing off the start to an early Fall, my mood is dark. I would love to say “Oh, it’s just Monday blues.”, but I know that’s not it. I’d love to say “It’s just the holiday bothering me.”, but that isn’t it either. Normally those might have been the lies one would tell themselves to get through a bad day, instead of honoring the fact that some days aren’t good, and that’s okay. We don’t wake up every single day feeling our best, or wanting to cast that cloud on others. I often say my mood first thing in the morning will determine my day, and that’s true. If I wake up on a mission, then I’ll slowly, but surely get things done. If I wake up feeling sick, or in a terribly low mood, then it’s often best to keep my mouth shut and my mood to myself. The last thing I want to do is lose my temper in public.

Because today is a holiday, it is often solemn. I normally read, keep a low profile, maybe talk to someone via phone or e-mail, but basically I keep to myself until the holiday is over. Unfortunately, that’s how most of my days are, minus the minor socialization and reading. I have so much to do and the stress is weighing heavily on me. I know that it will all get done, but man, all I want to do is crawl into a cave today and be left to my own devices.

It is extremely difficult not to feel insignificant in God’s eyes when you are going through difficult things with minimal support. But then you look in the mirror and you realize that ultimately, you support yourself. You look in your eyes and say “No matter what, I’ve got this. We’re going to be okay. We’re going to rise above everything. Hell, we’re going to fly.”

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Mondays…The Bane Of My Existence

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Maybe it is lack of quality sleep or the fact that I woke up stressed, but this particular Monday is making me ill. The eerie quietness was giving off a lovely early Sunday morning vibe, which was helping calm my nerves…until the mowing and trimming started, AGAIN. I’ve had a migraine since last night, so the sound is like a never-ending sickness within me. I didn’t realize it until just now, but the smell is also murdering my sinuses. Spring allergies on top of all this physical pain AND a migraine? It’s unbelievably cruel.

The migraine is never truly gone. It will lull me into a false sense of security and then come slamming back, making me feel like my brain is being rattled. Has anyone received successful Botox treatment for their migraines? If so, please share your experiences with me.

Originally, I had some semblance of a plan for today. I had ideas laid out for work and I will definitely begin the process of writing certain things, but I’m realizing right now that some serious self-care is also in order. Today is going to be one of the hottest days that I’ve seen in quite some time, topping out at either under 90 degrees or over, so I think my first order of business before it kicks into high gear is to start hydrating, and to refill the Brita pitcher as a precautionary measure. Heat and I don’t mix well. In my mind’s eyes, it’s a “Wicked Witch melting” moment.

Something about the heat always makes me sick. It affects my entire body (pain, stress, stomach issues) and it exhausts me to the point where I will close my eyes and wake up five hours later. Like many things, the heat does Fibromyalgia no favors. It irks me that a person can’t spend five minutes educating themselves about Fibromyalgia, or any chronic illness, but when you explain that you’re sick, their response is selfish and self-centered, with claims of also having it. And yet, when they describe the pain they experience, you know their journey has yet to even take place because, while it may have been diagnosed, it is the utmost of mild for them. They don’t have to spend a week in bed after two days of serious activity. The only thing they do experience is widespread pain, but it’s not constant. Well, unless you’re on a morphine drip, Fibro is a constant. There are over 100 symptoms and side effects, but if you’ve only got one or two of them, I have a hard time relating because I score over 85 on the list, and that’s extremely disturbing to me. This disease is robbing me of my youth and energy in ugly ways.

So, if I don’t do or say something today that you expected, please forgive me. I’m waging war, both physically and mentally. I don’t have time for frivolous nonsense.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Sick & Tired

I am sick & tired. Mostly of being both of the aforementioned. Because I have Fibromyalgia, my body responds differently to the weather and a lot of other external things that I, personally, cannot control. I have heightened senses, so a lot of smells make me sick and I often have to retreat to my bedroom, with the blinds drawn tight, because the sun and most sources of light just plain kill me. If you ever see me coming home at 2:00 a.m., it’s almost certain you will see me wearing sunglasses. This disturbs a lot of people, but it is a necessity for me. Most people I know that have light eyes also have the same issue, but it depends. Fibro, Chronic Pain, and/or migraines can affect anyone to this degree. And yes, I do have light eyes.

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I did get some rest over the weekend, but really, the entire weekend itself was a blur.  Reading, writing, sleeping, laundry, cats, hot chocolate, TV, and not necessarily in that order. My DVR wants me to play “catch up”. I think I’m secretly trying to see if it REALLY holds 200 hours of Hi-Def TV or if Verizon is just screwing with me. Of course, I have NO IDEA what the hell one does with 200 hours of television. I’m not sure anything is that interesting. I deleted a show off my queue entirely and deleted the two episodes I had not seen. Once you lose me, you lose me, there’s no sense in me watching the ship sink. There are far superior shows I will be VERY sad to see go, like Sons of Anarchy. The fact that I missed a few seasons and need to catch up on those doesn’t take away from how hooked I’ve become. Others I’ve been with since day one and I’m sure I will be much sadder to say good-bye to. Alas, nothing lasts forever. Except, apparently, Supernatural. I missed a lot of last season, so I’m glad this one is holding my interest and making me laugh. I have a twisted sense of humor, sue me.

Today I am going to attempt to finish Bones Never Lie. I openly admit to being hooked to these books, even when on the rare occasion, they scare the crap out of me. It’s only happened once or twice. Patricia Cornwell is much more apt to terrify me and make me double-check that I’ve locked all the doors. Her books have also made me think someone was hiding in my trees, but that’s a story for another morning. We’ll blame that moment on cold medicine I may, or may not, have been taking at the time. 😉

I want to take a moment and thank Nicholas C. Rossis for sending me a copy of one of his books. Go over to his blog and let him know I sent you. 🙂 It’s important for writers to support one another.

And now, back to your regularly scheduled “stuff” for the day. Happy Monday.

copyright © 2014 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.