
Chronic Pain
Insomnia & Painsomnia: A Wicked Combination
Whenever there’s something stressful going on in my life, it often affects my sleep, thus turning me into a shadow of my former self. Insomniac Lisa and Painsomnia Lisa are two very different beasts from the person I am when I’m able to prioritize sleep, and actually get into bed each night at a decent hour. I’m never 100% pain-free, but sleep is a crucial part of how my body recovers from what I do to it each day. I have worked my ass off this past month and lost roughly 20 pounds, somehow managing to strengthen my upper back muscles in the process.
Unfortunately for the past month, my sleep has been insanely erratic. First it was major moving stress, liable to affect even the calmest person in the world, of which I openly admit is not me. Then it was my brother’s pre-hospitalization health, closely followed by getting the phone call that he would need open-heart surgery or a transplant. It’s normal to have things like that affect you on many levels health-wise. Let’s face facts: No one expects someone young to be told that their heart is at 11% capacity. An entire team of doctors and surgeons and two different hospitals told him he was 10-15 years too early for such a severe issue. All of this crap has been screwing with me day and night and thus far, nothing I’ve done is helping. To add insult to injury, I have had a migraine since the day before Thanksgiving. I currently feel as if my head is in its very own torture chamber, taking my body along for the ride. 😦
When my brother was first released from the hospital, my sleep schedule had already shifted due to late-night texting and phone calls when he was still hospitalized and feeling lonely late at night, before his final dose of pain meds took over. There were many times I had to suggest he watch something on TV (“It’s almost 10 PM, here are three shows you can watch tonight. I have GOT to get some sleep!”), and then mute the ringer on my phone as opposed to allowing it to vibrate, so I could go to bed without the phone buzzing for hours. Now he’s here 24/7, and he’s driving me insane.
He’s not doing anything in particular to make me crazy (though I wish he’d remember that his legs are fine and he can get up and pour his own damn drinks!), he just happens to be in my personal space, and I crave privacy and silence. He’s mortified that I disinfected the remote, but since I don’t want him getting sick and he’s using it and I’m using it as well, I figured it was a wise decision. It is cold & flu season and while he is currently not in contact with other people several days a week, I am, and that can pose a problem for him if I bring something into the house that I did not leave with.
The other night he fell asleep while I was talking to him (I wasn’t boring him, he was simply in a lot of pain.). It was super early, but I felt that was the perfect time to cover him with a few extra blankets (It’s cold here most nights, and even when it’s not, he’s complaining that he’s cold.), and sneak off into the silence that is my normal routine. Alas, he got about three hours of sleep and I was wide awake. The second I thought about going to sleep, he was moaning in pain and when I checked on him, he was messaging someone on his tablet, with the TV on lighting up three rooms.
After a highly stressful week, I was finally in bed at a decent hour last night. As soon as I’d dispensed the last pain pill of the day, my head was on the pillow. Unfortunately, the previously aforementioned migraine decided to kick things up a notch and a little after 2:00 a.m., I woke up in unimaginable pain. I have no idea how I am attempting to type this, much less see.
My first line of defense is to attempt to get some caffeine into my system. It’s the only thing I haven’t sought out or used to treat this particular pain level, when it would normally be something I thought about a bit more closely. No, last night I was too far gone, so I took something less targeted that, as a last resort, often helps. Clearly it only helped part of me. 😦 So, I am nursing caffeinated tea and I took two Excedrin Tension Headache capsules. Not because I have a tension headache as opposed to a migraine, I know the difference, but because sometimes that combination works for me and nips the migraine in the bud. It’s not a permanent solution, but nothing really is. If it doesn’t start working in an hour or so, I will take a third.
It astounds people that I have managed to learn how to work through some of my worst migraines, or that I put myself into the head space to focus on healing one. I look at it this way: I am not going out and triggering the headache to be any worse than it already is. I am home, I’m safe, I can control the environment (noise level, light, temperature), and I know not to move around too much, but can I sit at a darkened laptop screen and talk about it? Sometimes, yes. That doesn’t diminish the intensity of the migraine, it does not mean I don’t suffer from migraines (three neurologists and two other doctors are all in agreement that I suffer from migraines. They have gotten worse since my first diagnosis, so there’s nothing else it could be. Everything else has been ruled out.), and it also doesn’t mean it’s “just a headache”. On occasion, like most sufferers, I will get a dull headache. Unfortunately, dull can go to extremes pretty quickly, so I take all headache forms seriously. I don’t walk around denouncing other people’s pain either. If a person says they have a headache, but quickly says “I don’t get migraines like you do.”, I still wouldn’t tell them it was “no big deal”. Pain is pain. No one likes it and for those of us that endure it 24/7, I have seen people empathize with others openly, and I have also seen people blow off the pain of others because they somehow feel it is their right in life to be the one person on the planet who has it far worse than the rest of us. Sorry, but that couldn’t possibly be true, or you’d be dead. What may be indeed true is that everyone’s threshold for pain is different. In fact, I know this to be true.
In studies, it has been determined that women tolerate pain differently from their male counterparts. Not better, not worse, just different. Taking into consideration that the female body can push out a human-being during the process of giving birth, that’s not an immense surprise to me.
All of my heavily tattooed male friends had their jaws on the floor when I sat through my first four tattoos and described the pain as “No worse than a cat scratch.” You see, I chose a spot that most of them found to be extremely painful. They all told me to put my ink somewhere else, that the pain would be too much for me to endure, especially considering I suffer from Fibromyalgia, but I’d consulted with several artists who, like me, believed that my first tattoo should be someplace easily covered up with clothing. However, never to do things the simple way, I got my first four all at the same time. I wouldn’t even rate that a one on my personal pain scale. I’ve had more painful piercings.
As many of you also suffer from migraines, has anyone gotten a Daith piercing to try to combat them? Compared to all the medication, a myriad of supplements that may or may not be useful to the individual, various treatment methods, Botox, acupuncture, etc., the piercing itself, depending on where one goes, is between $50-$100. I am being told that it works for 50% of the people who get it, but I am also being told the relief is temporary, though some people are reporting themselves migraine-free 3-7 years post-piercing. I have decided to try acupuncture for a year to see if that spot along either of my ears responds to treatment. My insurance covers it, which is rare, so I am going to take the opportunity to use it first. I’m not sure I need another hole in my head, but I’d be interested in hearing whether or not the piercing has helped anyone. If you’re considering getting this particular piercing, please go somewhere highly reputable and have someone experienced do the piercing itself. The report of infection with this spot is very high, and I’d hate for anyone to go through that. I’ve only had three piercings in my life that gave me problems. Luckily they never got infected, but two of them bled for years if someone hugged me too hard, and the third still gives me problems on occasion (The fact that I share the piercing with a highly toxic person is probably why… I’m a big believer in energy. Sometimes we are healthier overall without certain people in our lives.). While most piercings are mainly decorative, there is no medical or scientific evidence that a Daith piercing is a cure for migraines, so don’t read into all of the Pinterest and Instagram “science”. Those are exclusively individual experiences, most of which are brand new. There’s no way of knowing what the long-term effects may be. For many, it is worth it for temporary relief. I’d rather explore a few additional options first.
Are there any alternative treatment methods that work best for your migraines? If so, what are they?
The day insomnia can be cured in any way, shape, or form, I will be on a line for that! Right next to the line for the great Fibro/Chronic Pain cure. Here’s hoping we see it in this lifetime.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
What You Say To Someone With Chronic Pain And What They Hear
http://www.buzzfeed.com/laraparker/you-dont-look-sick?utm_term=.wuq8mPaX2#.kc6pvj4ok
Actually, I hear the words and the tone and I am not misinterpreting the additional shit that isn’t being verbalized.
I am always told “But you don’t look sick, you look amazing.” I highly suspect these people are blind.
Chronic Pain Linked To Attention-Deficit Disorder
http://www.medscape.com/viewarticle/850899?src=confwrap
Anyone who suffers from any form of chronic pain can lose their ability to focus. It doesn’t mean they had ADD to begin with or that ADD caused their pain. I can concentrate on a lot of different things when I’m well-rested and not in a terrible amount of pain, but when I’m in a full-on flare up, my attention span is close to that of a house fly. So, read this and think about it, talk to your doctor, but don’t make assumptions about yourself. Also, if you suffer from chronic pain and you’re 100% calm all the time, I’d like to know precisely what your doctors are offering you and where I can get it.
Wearable Nerve Stimulator Improves Chronic Pain
http://www.medscape.com/viewarticle/851131?src=confwrap
I know people who’ve had temporary success with TENS units and similar devices. I wonder how well this will work for the long haul, which is where the issue resides. Temporary relief isn’t improving quality of life.
WTF Moments & Pushing The Body
At 4:00 this morning, I thought someone was trying to break into my house. That is precisely how much noise an almost two-year old cat was making in her attempt to climb something, simply to give Mommy the cat version of a middle finger. She scared the crap out of me. I had thirty seconds to decide whether or not to go for a weapon. When I saw her sitting at the top of her destination, all noise has ceased, all I could do was shake my head (Don’t get me wrong, I was PISSED.), crawl from one point of origin to another, and after an hour, I realized sleep was not going to happen, but I was not about to cave and feed them at 5:00 a.m. either, no matter how many times kitten looked at me pathetically and walked me in the direction of the kitchen, as if I am slow and don’t know how to get there on my own. What is it about cats that make us question our own sense of direction? Do your animals accompany you to the kitchen too?
Kitten ate when I got home later than usual last night, but she licked her plate clean. Cat ate maybe six bites in total and ignored me for the rest of the evening. She clearly had other interests and apparently food was not on the agenda. She came to visit me when I was getting ready for bed so that she could get cuddles, kisses, and praise, but truly, she’s become so picky about food that I am considering A) A raw cat diet or B) Cooking for them myself. Both sound insane, I know, but I was reading an article and this women talked about how, by buying meat in bulk at Costco, BJ’s, or Sam’s Club, she feeds multiple cats for less than $5 a week. That is unbelievable, and quite savvy. I’m not sure about all of the supplements she talked about adding, but I clearly understand the meat she uses. That’s not complicated, though it could be if you are spending hours doing nothing but cooking for two cats. However, if it will prolong their lives and make them healthier inside and out, it’s an investment in their future. She talked about how the diet change has reduced vet visits, etc. It’s certainly an interesting concept. It sounded as though all the meals could be prepared once every two weeks, in advance, by freezing them. Again, that reduces how much physical labor you’re putting into it. Technically you could set aside a few hours and do it, the same as you would for yourself. If I do decide to go this route, I will mention it and whether or not it works for me and the littles.
As for me… I did way too much yesterday and I hurt like HELL. From my neck to my toes, I am moving like a hunchback. If the makers of Aleve knew exactly how much of their product I’d taken between late last evening and this morning, they’d be asking me to sign a waiver, absolving them of any and all responsibility. #HealthcareSucks
When I got home last night I put everything away, changed my clothes, washed my face twice (that may sound like overkill, but the first time I was removing makeup, which I did with the help of a wipe. The second time I was making sure my face was completely clean by traditional methods.), and was relieved not to be out in the humidity that a very popular meteorologist claimed was “92 degrees with 80 percent humidity”. BULL-FUCKING-SHIT. From one channel/station to another, be it radio or television, everyone was reporting different temperatures and humidity. One media outlet, in the very same area, said it was closer to 100 degrees with 100 percent humidity. That sounds about right. It was a physical slap to be outside in heat so thick, you could barely breathe. Even if you’ve never had a breathing problem in your life (like me), you walked away from yesterday with some sort of cough or breathing problem. For several hours I thought I was going to be violently sick, pass out from heat exhaustion, or fall and be run over by a car. Even with a large bottle of water with me, there was no amount that would have been “enough”. I also got caught in a heavy thunderstorm with ground to sky lightning. The rain was much more intense than the storm itself and today, more storms, more rain. That’s okay though because underneath my vampire pale skin, I am pretty sure I look like multiple trucks have hit me and then backed over my body. There’s got to be a different way to say “I feel like I’m battered and bruised internally.” However, that is often what Fibromyalgia feels like when you push your body too hard. Alas, shit’s gotta get done and I’m a one woman show.
Today I get to rest. I even went back to sleep and slept soundly, which is surprising, but I’m glad I got that extra few hours. Tomorrow I have phone calls to make and other things to tackle, but all in all, I am going to breathe. There are only 24 hours in a day and none of us are Superwoman. I, however, am not giving back the cape. 😉
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
This Week Is Over
I’ve had yet another rough, stressful week. I am emotionally exhausted. I’m also in pain that no one should have to be in. In an ideal world, I’d be able to curl up this weekend and not have to face anything until next weekend. No, I’m not delusional, I’ve just had enough.
I am sitting here nursing green tea. I don’t feel well. I woke up with a myriad of health issues. I went to bed in pain, needing Aleve to fall asleep in a state of slightly less pain, but since I forgot to take the medicine that protects my stomach from NSAID use, I’m paying for it.
Upon inspection this morning, I found two chemical burns on the back of my neck. I’m not 100% certain of the cause, but I have my suspicions. One stings, the other is seemingly in the healing phase. I hope they’ll look better tomorrow because the last thing I want to do is be seen in public with what looks like brand marks. Note to self: Must find Aquaphor. How do you cover the back of your neck in August when your hair isn’t as long as it used to be and you normally wear it up? #GirlProblems
Due to the crazy influx of migraines over the last few weeks, I began taking Topamax this morning. I’ve been off of it for three years, so I am hoping it will help prevent some of what I am experiencing. If not, I will have at least made an effort and will know that another treatment method must be found. It is better to try than to dismiss something that has worked so well for me in the past. Today is the start of a month on 25 mgs. Here’s hoping it does more than make carbonated drinks taste funny.
Was anyone able to see the meteor shower? I looked for about 30 minutes last night and all I saw were a few constellations. I couldn’t keep looking, so I went to bed. I’m betting all the fun started the second my head hit the pillow. I’ve only seen a few photos from earlier in the week.
I hope I will be able to concentrate on the shit I need to do over the next few days. I want to get as much work done as humanly possible. I haven’t been able to focus on a large page count with any regularity, but I am certainly trying. All one can do is their best. If that’s not good enough for someone, tough shit.
Summer is nearly over, and soon it will be Fall in the Northern Hemisphere. It’s my favorite time of year. The nights are already getting a bit cooler, but there’s something about the crispness of October air that rejuvenates my spirit.
Wishing you all a wonderful weekend.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.








