The days are way too long. The nights are too fucking short. Sleep is hard to come by, but man, I’m trying. I was raised to believe that doing your best is “enough”, providing it is truly “your best”.
I suffer from “Superwoman Syndrome”. This is a real thing. I’m an overachiever that has this unbelievable difficulty asking for help. Perhaps it stems from constantly being stabbed in the back when I HAVE asked for help in the past, or because people like to throw things in your face as if they are owed something. “I was there for you when…” are probably not wise words to hurl in my direction. If I’m there for someone, it is genuine, and I don’t have to say “I told you so.” years down the road. If you don’t want to be there for someone, don’t be, but that’s on you.
Fibromyalgia makes life harder than it needs to be. I used to be able to walk for miles on end, doing countless things along the way, and then walk back. It was never a big deal. Now, I actually have to gather strength to run errands and take care of very basic needs. It’s pathetic. And the last thing in the world I need is for anyone to point it out to me, as if I don’t already know that I’m slow. “We just went without you because we didn’t want to wait three hours for you to get ready.” NICE. Yes, that’s sarcasm.
Even without Fibromyalgia, I was already a pretty isolated individual. I had (and still have) a very small group of close friends and my family. I spent my days writing and editing, and I still do. It’s not the kind of thing I do in public. I’m an introverted extrovert. The people that see me work my ass off are cat and kitten, they know Mommy’s working. Pretty much everyone else thinks I do absolutely nothing, because I’m very quiet and they rarely see me. When you don’t do what everyone else does in terms of “normal”, people automatically make wild assumptions. It would be very nice indeed to do absolutely nothing. Attach a six figure salary to that and I will sign up immediately. Shit, I’d love to do “nothing” by spending my days at the mall, or the bookstore, or any number of places that I haven’t been in the last four years, or longer.
The most important thing to me now is having emotional support. I’m going into some horrific, tough battles and all I really want is to be heard, understood, and cared about. I’d rather a person not have the right words, and say a prayer for me.
There are no heroes in this. I have my Superwoman cape and I’m not giving it back, but all kidding aside, being supported means a great deal to me. The simple fact that I’m asking for it shows me that I’ve grown. Help and support, that’s all I need at the moment.
It’s no secret: I’m fucking exhausted. Fibromyalgia, migraines, and two hundred truckloads of stress are slowly trying to kill me. Every day, I wonder if a heart attack or a stroke will take me out. I wish I were being dramatic, but I’m not. I would really like to curl up on the floor like a content cat and be left to my own devices. In my next life, I am definitely coming back as one…
In other news; Passover begins later this week just in time for the full moon and today is Palm Sunday, with Easter Sunday being next weekend. The former meaning something to me, the latter meaning “It’s Sunday.” I’m Jewish, which I know is not something people expect, but I’ve never hidden the fact.
Holidays are stressful for me, and depressing. Apart from my brother, all of my family is far away. I don’t speak to 9/4’s of them, and with just cause. I do not get invited to anything except funerals (Who the hell e-mails someone else in the family and asks them to deliver the news to me, and expects me to trek out 3+ hours to be treated like shit?) , and Passover in particular is one of those holidays that I hated growing up and have a terrible aversion to as an adult. This is a holiday where I am grateful to be an intelligent, creative, free spirit, yet under the tyranny of my nation’s President, as opposed to Pharaoh, which for me, is the same fucking thing. What won’t Americans be allowed to do tomorrow? Your guess is as good as mine, and I’m sick of it.
Holidays are often isolating if you suffer from a chronic illness that others refuse to understand and/or take into consideration. If family alienates you and friends drift to the wayside, or make themselves unavailable, it can be quite lonely. Do I want a house full of people for every single holiday? No, but would it be nice to have a few people around to do something with? Yes. In the end, I will probably be working on the never-ending manuscript (It’s really not that long, I’m just that tired.) and listening to music, or something as relatively laid back as possible. If you have a good move recommendation, please, send it along!
It is hard to believe we move into another month this week. Tempus fugit. The knowledge makes me ill (I have my reasons.). The truth is, before we know it, it will be Fall or Winter again, thus the cycle will continue. It’s always something. No matter what you’re going though, the world keeps on moving in various directions. You will agree with some and disagree with others. Such in the pattern of life.
I have a lot to do this coming week, so I made a list. I think it’s a good time to let people know you’re thinking of them by sending out cards, especially if you haven’t done so in a while, and make phone calls to touch base. Texting doesn’t count with this one. Since I can’t bear to talk to certain people at the moment, cards will have to suffice. After all, it is the thought behind the action that counts. 🙂
Here’s hoping everyone had a lovely, relaxing, productive weekend.
We know where you live Mommy, and it is not beneath us to display our utter cuteness for you to gain food, treats, or head scratches.
I have no idea why Friday, Saturday, and Sunday have become my favorite days of the week, but lately, I just can’t handle week days. Does anyone else feel like this?
I’ve had a rough week. I’ve been in a lot of pain and have required way more sleep than any single person my age should need (Still young, still fabulous. 😛 ). I work and then I look at the time, realizing that I’ve done a lot in short bursts of time, but that now that I’ve gotten work done, it’s time to close my eyes “for a little while”. The next thing I know, the day is over. I wake up from that brief little “nap”, check the time, and my cat and kitten are wrapped around each other. Apparently some kind of love fest goes on when I’m down for the count. I almost always have to be in bed and half asleep or completely out of it before they go into “love mode”.
Passive, sweet cat. Troublesome, but incredibly loving kitten. (You can see their photos on my About page.) They’re good for each other and they’re good for me, because without them, I wouldn’t get out of bed at all. There are many mornings when they’re both pacing around me, marking my face with theirs (kitten does this), to encourage me to go downstairs and give them breakfast. If that doesn’t work, they start bringing toys into the bed. I have no idea where either of them are, but I know that if the food is not delivered in a timely fashion, they will try to curry my favor with gifts. I can’t tell you how many times they’ve both placed gifts in my bathtub as a reminder, as if I’ve ever forgotten to feed them.
I’m VERY lucky, they’re relatively well-behaved and sweet. They’ve got attitude, but mostly, they know that they are loved and safe. When I’m in a terrible amount of pain, one or both of them will get into bed as soon as I’m comfortable and either lay by my feet or by my head, and they do not move until they see me calm down and fall asleep, and even then, I still wake up with them close by. There is a sweetness to that which makes me emotional at times. My cat is a lot less openly loving than my kitten, but I have a bond with both of them and I see how they call for me and come to visit me when I’m working. Basically, I get treated like one of them. Perhaps this is why they often place toys under my butt and then try to bite me awake. Sassy’s been doing this since she was a baby, and at 19 months, it wasn’t that long ago that she was the ruler of the roost and tiny, aggressively shoving me awake and demanding food constantly. Now that there are two little beasts, I have them on a schedule. She’s no longer interested in most games (my little one wants to play, but also self-entertains), but is happy to bite my feet or grab my ankle for a nip if she’s feel froggy.
Now that Miss Sass has a constant playmate, she’s no longer ripping me to shreds and biting me. Her breed isn’t known for a lot of verbal communication, so she spent ten months aggressively hurting me several times a day until I found her the perfect little companion. It was NOT love at first sight. It took about a week or so, and they slowly became obsessed with each other. Mini is also incredibly obsessed with me, but she’s still a baby.
What else is going on? Oh, yes! Because I’m a total hypocrite (And honest enough to admit it.), I am back on Facebook. My original account is still up in the air. Facebook and I have exchanged countless e-mails, and nothing has been worked out, so I waited a while and established a new account. I intentionally linked it to my cell phone which somehow authenticates that I am indeed a “real person” and not the countless things I was accused of in all of their e-mails back in January. If you want to pal around with me, let me know and I will send you my new hypocritical info.
Speaking of which, Facebook has changed quite a bit since I was gone. I am pretty sure someone peed in everyone’s coffee this morning because for every 30 people who liked something I said, I had one person go ballistic. To avoid future problems, I’m keeping a low profile. However, when subjects are open for discussion and you don’t know a person, I think it’s crucial not to call them “OCD” or “rude”, especially since you’re clearly not understanding the context. I was called both this morning by two absolute idiots. Mind you, gutless wonders like to hide behind their computers and spew horse shit.
My first thought was “Go fuck yourself!”, but I decided not to lower myself to their levels. Second, throwing obsessive compulsive disorder around as some sort of joke or insult is incredibly rude, and when one is not a healthcare professional, one has no right to say that to someone they do not know and have never met. That actually IS rude. Disagreeing with someone isn’t rude, we’re all entitled to do so.
I’m a supportive writer. I’m going to be honest, polite, and concise because that’s how I am. I’ve NEVER been rude on Facebook or any form of social media that I am aware of. If anyone has ever read my work and deemed me rude, then that was YOUR perception and not the facts. I’m not Ms. Sweetness & Light, I do not throw rainbows at you, nor do I shoot sugared unicorns when one deserves venom.
There is a fine line between sharing thoughts and being a bitch. I don’t bring out the bitch side unless it is warranted and I don’t do it on Facebook because I have a professional reputation to uphold. If I wouldn’t say something to your face, then I certainly wouldn’t say it behind your back or in a public forum. That’s not how I operate.
People like to throw my astrological sign into play in their “defense” quite a bit, but the truth is, I’m a pretty controlled Scorpio female. I might not always have been, but I learned a long time ago to get the negative aspects under control or they would control me. Lesson learned, and once broken of those habits, I did not return to them.
“Sticks and stones may break my bones, but words will never hurt me.” That’s a load of shit. Words can hurt, they do hurt, and people throw them out there like it’s no big deal. I’m known for my “say anything” policy, but there ARE things I absolutely won’t say because I have morals, dignity, manners, self-respect, and boundaries. Some things are so below the belt that you simply don’t go there. You can think them, but then you must let them go because that kind of negativity breeds more negativity, and it’s unhealthy.
More and more, people are offended by anything and everything, but they care little for who THEY might offend. They have no manners or coping mechanisms for difference of opinion or basic relationship skills. Junior high school drama wasn’t cute in junior high school, and I won’t tolerate it as an adult. By all means, disagree with me. That’s fine. If you don’t know the context in which I mean something, don’t assume, ask. Judge not lest ye be judged.
Overall, I’m glad to have the account for my cousins and the few real friends I have, and for specific things that I’ve discussed here many times, but outside of that, I realize that I don’t miss it and that it’s a terrible waste of time. Who knew I’d grow to love Twitter?! By the way, thank you Lillian for suggesting it, and for clearly being a friend to me when others are full of crap (Link to her blog is attached to her name.). You go away for less than two months and you actually find out who your REAL friends & family are, both on and off social media. How utterly pathetic. True colors are shining bright and a lot of people are chicken-shit yellow. C’est la vie.
Also, there is a brand new blog, started by one of my best friends, that I am going to be interviewed for. I will make sure the link goes up ASAP.
And on that note, I hope you all have a lovely weekend. If you’re an NCAA fan, I hope you’re cheering for my team tonight in the Sweet 16. 🙂 GO DUKE!
Hello everyone! I did mean to write something sooner, but quite frankly, the brain does what the brain wants to do. Of late, I wasn’t 100% sure it was even there any more. However, I assure you it’s all firmly attached, but there never seems to be enough time in a day and my thoughts simply aren’t “write-worthy”.
What to say? I am still working on big manuscript. I’m exhausted from that because I’ve gone over it 4-5 times (the first 100 pages) and I’m still finding little things that bother me. Outside of work, I am dealing with some scary health stuff. The Fibromyalgia flares have been severe, then I’m fine, and then they’re severe again. All in a matter of a few days. The scary health stuff is completely separate. I’d rather be able to say “I don’t have ____.”, as opposed to talking about it ahead of time. Yes, like many of you, I did go on WebMD and the Mayo Clinic’s web-site and quite frankly, I only managed to scare the shit out of myself, so no more. I pray it’s nothing. Unfortunately, it doesn’t look or feel like “nothing”.
Other than all that, I’ve done nothing but cook, transfer items from the washing machine to the dryer (repeating as necessary), have chased the littles around, fought with Sassy over being brushed (She thinks the brush is some kind of challenge. I think it’s the best way to keep her short to medium length coat manageable.), and have fought for every minute of sleep. Tomorrow, I will attempt to tackle real errands. It’s not what I want to be doing, but it’s what I have to do. Wish me luck.
I hope everyone has had a good week. I’m doing my best. I appreciate all the comments and messages sent my way. 🙂
Is anyone else following a specific team in the NCAA Tournament?
I am currently in one of those moods that is hard to define. Lack of sleep and a full body flare-up haven’t helped matters much. You either allow yourself to feel all of the pain, or you mentally allow yourself to be dulled. I’m not talking about drugs or alcohol. I’m simply saying that after a period of time, you shut your mind off because all of the pain is too much.
Not being able to sit for very long, walk the way I used to, or turn my head and neck properly, was something I focused on for a very long time. All I could think about was what Fibromyalgia was taking away from me. Being able to fully take care of myself being high on the list. Other things start becoming afterthoughts because without dulling the mind, the intensity of everything I think and the pain I feel comes rushing back. No one deserves to live like that and call it a “life”.
By all accounts, my life would be considered full to the eyes of many. I know differently. I know that just getting out of bed is a struggle, especially if I haven’t gotten any real rest. Nights spent tossing and turning are equally as exhausting as the pain itself.
There are days when I truly need a nap. Sometimes I fight it, other times I give in. Sometimes a 2-4 hour nap is the best sleep I’ve had in weeks. It upsets me that I cannot make definitive plans because of the pain. When I do make definitive plans, I do my level best not to back out at the last-minute, unless it is something that is truly easy to re-schedule. People, it turns out, aren’t very understanding. Over time, you lose people in your life, but you hold on to those that are quality. A real friend doesn’t turn their back on you, period.
I think it’s important to support others through any form of Chronic Pain and Fibromyalgia. I don’t think it’s acceptable to walk away from someone who is really suffering or turn your back on someone without just cause. Essentially, many people want things they are not willing to give in kind. Hard times help you to see other people’s true colors.
I’m the same person I always was: Inappropriate, funny, honest, direct, loyal, and real. Pain has not minimized my personality or the lengths I will go to for others. It has slowed me down, yes. It has made me focus on other things at times, but it has not changed the core of who I am.
Love, loyalty, and friendship mean different things to different people. I know what it means to me, and I honor that. I will not stand for those that cannot honor any aspect of it. Apologize when you are wrong, fuck off if you’re not genuine, and basically, don’t waste my time; it’s valuable. Pain might limit certain things, but it’s not a lobotomy.
There are a lot of false people in this world. Don’t allow yourself to be fooled by them. See people clearly, for exactly what they are. Stop looking for the good in people (Despite what some people believe, there is NOT good in “everyone”.) and start looking at what’s right in front of you. Trust is not something to be given away freely, it is something to be earned.
I feel jet-lagged and incapable of moving almost every muscle in my body today. I can’t truly afford to take the day off, but I have no choice. I am sitting here and my eyes are barely open, my brain is barely functioning, and yet, I know full well that I got a full night’s sleep. Have I mentioned that I HATE turning the clocks forward?! It is a crime against the body.
I’m in a little less pain than yesterday, but I suspect there’s something waiting around the bend. After all, Fibromyalgia loves nothing more than to lull you into a false sense of security in your body’s pain threshold before it knocks you back on your ass, unable to breathe. I went to bed last night in severe agony. I even looked in the mirror to make sure my spine wasn’t bruised. The never-ending grind on the body is tiresome and depressing. There are moments when you question whether or not you’re actually alive or if you’re simply living in a nightmare, unable to wake up. At any given moment, it’s truly a toss-up.
Not even caffeine can keep me awake, so I am going to close my eyes and allow myself the rest my body is screaming for, even though it makes me feel terrible about my place in this world. If you know someone who suffers from any form of daily pain, send them a kind word this week and let them know you’re praying for them, care about them, or that you are simply available to listen. Oftentimes, those are the things sufferers of any form of chronic pain need the most.
Sleep issues, for now, seem to be on their way to looking up. I was in bed so early last night, I’m certain every 80+ year old Grandmother was still awake when my head hit the pillow. When sleeping is difficult, it’s good to go to bed the second you can no longer keep your eyes open. Mission accomplished. It was after 4:00 a.m. when I realized that I never bothered to turn the clocks ahead an hour, but in the grand scheme of things; no harm, no foul.
Somehow the downside of a full night’s rest is that I woke up feeling like a Mack Truck had run over me, backed up, and proceeded to go at it a second time. Everything from my neck down to about mid-thigh feels broken, bruised, damaged, and whatever words are worse than “sore” and “achy”. By Fibro flare standards, this is pretty standard. It was twenty degrees colder yesterday, and yet today, while the temperature is slightly under a balmy 50 degrees, my body is working against me. Even my hair hurts…that’s not okay.
Weekends are never as long as they should be. For at least a year, I’d like one continuous weekend. There are weekends where you get a lot of writing/editing done (read: work) , and others where you get to enjoy things that you might not normally get to do (Minds out of the gutter.).
I’m extremely displeased with where this weekend went, but considering how much I have on my mind and on my plate, figuratively speaking, I just have to do better this week in terms of properly managing time.
In the meantime, I’ve got a ton of work and research ahead of me this week. I look forward to none of it. I’m having a hard time being passionate about what I do because the daily pain is just too much. Normally I am speedy and efficient. Right now, I am slow and I find fault with every other word. No matter how much positivity I can manage, at the beginning and end of each day I am still in excruciating pain and it’s hard not to take issue with that.
Here’s hoping everyone’s week is bright, and full of potential. I’ll be okay with significant progress, love, support, and a lot less pain.
The title seemed witty when I wrote it, but now it seems bloody pathetic.
I hope everyone is having an easy start to March. Mine involved ice and snow. However, in the midst of all that, the bunnies have returned and my yard was FULL of a wide array of birds yesterday. There were some really gorgeous black & white birds that I’ve only seen once before, so I have no idea what they are, only that they make the yard look incredibly posh whenever they’re hanging out. They’re truly stunning little creatures.
I am in the midst of a very painful Fibro flare-up. I really pushed myself hard over the weekend to do a lot. By the time 5:00 PM rolled around on Saturday, I had already done everything on my list and was passed out in my bed. I could barely walk at that point and I was truly worried that it would be a week or so before I could fully move again. Sunday night dinners are a tradition in my house, but I wasn’t able to manage it. In fact, when I couldn’t sleep Sunday night I decided to do all the original prep while resting, and Monday night’s dinner became a little more special instead. C’est la vie. It’s important to listen to your body.
I am still hard at work on a large manuscript and a smaller one. Normally I’d be done with both, but I ran into some issues and in lieu of needing to correct those issues, I am a little behind, but it’s okay. Quality is better than speed when it pertains to someone’s livelihood.
I was able to finish reading The Ruby Circle by Richelle Mead yesterday morning. If you haven’t read Richelle’s Vampire Academy books (the first book was made into a movie which I have yet to see) or the second part of the series called Bloodlines (The Ruby Circle was the final Bloodlines book.), I highly recommend them. They’re fast, intelligent, witty, and you don’t have to be in any specific age group to read and/or enjoy them. Technically they’re considered YA, but I’m an Adult-Adult and I liked them. I do prefer her Age Of X series above all else, but that’s just personal preference and taste. The next book on my list is by the ever talented Chris Kuzneski. I hope I’ll enjoy his new series.
Today, despite being wide awake, I am in a lot of pain and I seriously doubt I’ll be able to get a ton of work done, but I will make an effort, if nothing else. I think it’s very important to listen to your body and slow down and give it the rest it requires, especially when you suffer from something debilitating that takes you down, such as Fibromyalgia. Resting can be tiresome, but it’s incredibly beneficial if it helps you get back to a better physical state.
Overall, I learned this weekend that Rome wasn’t built in a day. I cannot do every single thing in one day any more. It’s just not doable. It makes me sad, but I do hope that someday in the future there will either be medication that makes it possible to regain some normalcy or a cure. All one can do is hope & pray for the best.
I think it’s really important to listen to others and hear them, even if the subject matter makes you uncomfortable. I don’t like to denounce someone’s feelings, even if I disagree with their perspective. People say that words aren’t harmful, but they can be and it’s important to acknowledge that even the simplest way of saying things, at times, can make a person question who they are, or that it can do severe damage.
Sometimes, I think people say things to challenge me. It’s truly not meant to be harmful, but if I’m already bleeding on the ground, I probably don’t need another kick.
I’m so far from perfect, it’s not even funny, but I will be apologizing to a few people this week to be certain that they grasp the true meaning and don’t take simplicity the wrong way.
I am sick of it all. I am exhausted beyond measure. I feel emotionally shredded.
I’m tired of people trying to emulate me. I realize they lack vision, manners, and basic common sense. No matter what people say, we’re not all “born with it”.
Fibromyalgia pain is gutting me. There are too many days I cannot walk, and many more where I cannot function. And yet, I keep working my tail off.
I believe in empowering others, especially women.
I believe in loyalty, love, friendship, and being able to combine the three. I believe in being a devoted friend, no matter what. I don’t believe in keeping score. Life isn’t a hockey game and friends shouldn’t try to rack up points with one another.
I believe in being a good sister, but there are days even I have my limits.
I believe in being a good cousin, but again, I have my limits.
I believe in being a good niece.
I believe in being a good partner, but I don’t believe in being with someone because I am afraid of being alone. I’m not. I would rather be alone than be in a bad relationship. Hell, I’d rather read a book than be in a bad relationship!
I will always stand my ground. I will not waver in who and what I am. I am confident in the person I have become. I am not without my faults, but I’m well-aware of what they are. No one is perfect.
I believe in talking someone down off a ledge. Unfortunately, I can’t talk myself down off of mine.
I have faith, intelligence, strength, talent, and skills. And yet, where Fibromyalgia dwells, pain often tries to rob me of it all.
Written by LISA MARINO-Molchanova 