https://themighty.com/2016/08/what-you-should-know-about-living-with-physical-and-mental-illness/
Depression
In Its Severe Forms
“In its severe forms, depression paralyzes all of the otherwise vital forces that make us human, leaving instead a bleak, despairing, desperate, and deadened state. Life is bloodless, pulseless, and yet present enough to allow a suffocating horror and pain. All bearings are lost; all things are dark and drained of feeling. The slippage into futility is first gradual, then utter. Thought, which is as pervasively affected by depression as mood, is morbid, confused, and stuporous. It is also vacillating, ruminative, indecisive, and self-castigating. The body is bone-weary; there is no will; nothing is that is not an effort, and nothing at all seems worth it. Sleep is fragmented, elusive, or all-consuming. Like an unstable, gas, an irritable exhaustion seeps into every crevice of thought and action.” ―Kay Redfield Jamison
What Bipolar Depression Looks Like – And What Can Help
And yet, some people forget this, including “mental health professionals”.
Boiling Point
Fact: I am seriously contemplating ending my life. No one knows what’s going on, or cares, but I feel it’s important to talk about.
I walked away from self-harm at least a dozen times last week, maybe more. I have no strong desire to actually carry it out, but we cannot “cure” the thoughts that go through our minds.
It’s not any one thing in particular, it’s a multitude of things, all of which are out of my control. Ultimately, I often feel that lack of control is what makes us feel so out of control. I believe it leads to a lot of rational irrationality.
I’ve never hidden the fact that I come from an abusive background. If asked, I am quite vocal about it. Hell, I’ve written about it many times. My father was the bane of my existence from age six until about 2000 or so, when his health began to rapidly decline, culminating in his death, a 15 year battle with cancer that ended in late 2007. I cannot put a Band-Aid on my upbringing, but I try very hard not to allow it to define me. For the most part, I am successful. I don’t dwell on it. It’s done and it’s in the past, but lately it’s other forms of neglect, abuse, disrespect, & abandonment that have just plain left me in tears. What’s worse? This behavior makes my father, G-d rest his soul, look like a fucking angel by comparison. That’s probably what affects me more than anything else.
Nothing I do is ever “good enough”. I know that’s ridiculous, but when that is what is projected to you constantly, you either walk away or you tell someone to go fuck themselves. For the past 4-5 years, I have worked very hard on my anger issues. I’ve talked about that quite openly. Therefore, so as not to act like my father, I try to curse less and not tell people exactly what I think of them and their behavior, even if they deserve it. I don’t accept or allow it, I just disengage with the crazy. I cannot talk to a psychopath, to people who don’t hear me out thoroughly, or to anyone who believes everything they say is right 100% of the time. It may be right in their mind, but their mind and mine are two completely different places/worlds. That’s true for everyone, or we’d be living in a very bizarre utopia.
No matter how hard I work, it’s not “good enough”. How many times a day does someone need to be insulted, talked down to, and/or disrespected? How many days of the week, month, year, before they snap? The term “going postal” isn’t meant to be cute. It stems from things building and building in the workplace (or in some cases, ones’ home life) until someone finally loses it. The same thing can happen in a person’s daily life, and it doesn’t have to involve murder and mayhem, it might just be a verbal argument. One can hope, any way.
There is an immense difference between constructive criticism and venomous hatred and resentment. I am educated enough to know the difference in how people speak to me, and I am sick and tired of being told that everything I think & feel is wrong. Statistically speaking, it’s impossible for me to be wrong 100% of the time, just as it is impossible for someone else to be right 100% of the time. I don’t aim for perfection, but I will not have anyone question my perception of others. I’ve got two words for that mind-set: FUCK THAT. You can agree to disagree with me, but don’t deign to tell me you’re right and I’m wrong. No. Unacceptable.
Voicing thoughts, feelings, and opinions isn’t wrong, but I am constantly being told I am wrong. After a while, even a person with the highest I.Q. starts to lose their mind. After a while, any sane person is going to get tired of hearing such nonsense.
The only thing that is saving me is the love of Kitten. During the worst of my dark thoughts, when I wasn’t sure if I could bear another second, leave alone a minute, she’d crawl into bed with me, give me kisses, bring me toys, & watch over me with great affection. Cat followed, both of them refusing to let me out of their sight. How is it that two little creatures understand my pain better than actual people? I find that sad and pathetic for the human-race, but a real win for the animals in this world who are superior in terms of compassion, empathy, and love. My cats know more about love than 99% of the people I know, and that is truly saying something. They know me better than most people, and I’ve had them such a short period of time compared to the relationships in my life, yet they know me better, inside and out. People are emotionally harming me, but my cats? They wouldn’t even scratch me intentionally. Again, it speaks accolades for them. Clearly I did something right, and that “something” was adopting and raising them. They love me unconditionally. It is a special relationship, and not something to ever be taken for granted.
Words have power, and sometimes that power is destructive and extremely harmful. Be self-aware. Realize that you sound like a vile human-being and dial it the fuck down.
When someone is visibly suffering, or even silently suffering, they do not need your drama, venom, hatred, or negativity. Don’t pretend you don’t see it or sense it. Put it away. Stash it in another country, because I do not mean shelve it for a week, and focus on showing them that they matter, because eventually, all your shit might push them over the edge and the only person who will be left with grief isn’t them, it’s you.
I know so many people who, after years of far worse than what I deal with and have dealt with, simply took matters into their own hands, leaving people wondering why. People have actually said” Nothing is so horrible that you have to take your life.” Oh, really? Try living my life for a year, I’m pretty sure you’d feel otherwise. In other words, don’t judge what you don’t understand. It is okay to admit you don’t understand the various forms of depression and other forms of mental illness, but it’s not acceptable in 2016 to be ignorant about it.
I’m one of the “privileged few” who inherited it on both sides of my family. My paternal Grandmother suffered from her early teens until the day she died. The things she was put through during her life in terms of “treatment” were truly horrible, and I am not a candidate for certain treatment methods because of that. No doctor would allow me to go through what she did, despite the advancements that have been made I am considered too high a risk factor, and here’s a fact; I wouldn’t sign myself up for it either.
Approximately ten years ago, I was diagnosed with “treatment resistant depression”. It means that while I suffer abysmal highs and lows, my brain chemistry does NOT respond to medication. I’ve tried everything and all they’ve done is make me really sick. Therapy works, if the therapist isn’t a piece of shit, but with Fibromyalgia, there are times I cannot drag myself in on a weekly basis in order to “go deep”. I walk into therapy in a relatively good mood, positive about what may be accomplished by going, and I walk out feeling like the biggest piece of shit on the planet, so it’s important to find someone who knows when and when not to push your last nerve. I’m not shy, I have a voice and I know how to use it. Since moving, I have noticed that I have become ten times more internalized than ever before and not only is that completely unhealthy, it gives you some insight into my environment and how I don’t feel comfortable discussing important things because I don’t feel understood, cared about, loved, and the list goes on. It hurts so deeply to type that, that the tears are pouring down my face. I’m hurting so much and certain things were said to me today that can never be taken back. I can never un-hear them.
Unfortunately, I haven’t been to therapy in three and a half years and after putting myself back on medication last month, it made me too sick to function. If you’re able to take medication, wake up each morning, and go to a normal 9-5 kind of job, well, G-d Bless you. I cannot. I knew very young that I’d never have a “normal job”. Not because it is beneath me, it’s not, but because I don’t play well with others. There is not a single thing about me that says “team player”. I am glad I knew that about myself at such a young age because it propelled me in the right directions as a creative spirit. I’ve never NOT worked (I’ve been working since I was 12, no joke.) and not created something out of nothing, but for months now I have felt sick, weak, dejected, and the absolute opposite of who I truly am. There is nothing keeping me here. Nearly every day is the same; completely monotonous.
My creativity ebbs and flows. It always has. I do nothing on command. I’ve always liked that about myself, but it can be tricky when you are involved with creative projects that need 100% of your commitment, or they’ll fail. But how does one stay “on” when they’re predominantly “off”?
Today I reached my boiling point in reaching out to people I felt I could trust for help. Five times today I got off the phone in hysterical tears because in the grand scheme of life, people don’t care about my struggles or my pain, but they do care about being selfish, hostile, cruel, and hurtful. The final call which I did not want to make was the last straw.
Some things are out of my control, just as they are for many of us, but I’d like to think that if someone called me crying, truly upset by something happening to them, I would do whatever was within my power to help, even if I’d helped them 100 times before, I don’t keep score. In fact, I HAVE done that (helped others) and I will never stop being the person that I am because to not be me is to be lesser, and I refuse to let experiences like this alter the person I am. I refuse to change to suit other people because then they win.
My mother raised me to be a strong, independent woman, but she also told me that sometimes we all need help and not to be afraid to ask for it. However, I was terrified to ask for the help I needed and my fears were warranted because in asking for help, I got hurt. I am sure the other person does not see it as I do. Of course, I didn’t threaten or insult them.
Here’s something important I think some people need to understand: It takes great courage to ask for help. Especially for someone like me because I have a lot of pride, but definitely feel that I have fallen from Grace. 😦 When a person asks for help, and they’re upset and you know things have been bloody awful for them, don’t make it worse with cruel, hateful words. Discuss things with them at a later time, in private, when each of you is calm, and assure them that you do indeed love and care about them. It’s okay to have boundaries and to place limits on things, absolutely, but it’s not okay to be hurtful or say things in anger that cannot be retrieved.
For now, I have no idea what tomorrow brings, but I’m hoping it doesn’t involve me “going dark”. I’m writing this in tears, because the pain is just too much to bear. I am also weighing my options quite heavily because I am too sick to deal with such harsh negativity being directed at me in such an ugly manner.
We all have physical and emotional triggers in life, whether we’re aware of them or not. Certain words and tones will turn me from a caring, kind, loving, helpful person with a genuine heart into someone incredibly inclined to poison your dinner.
Choose your words wisely. Do not make assumptions. Don’t insult loved ones, for they can be gone in the blink of an eye. And absolutely do NOT trigger someone when you KNOW their history. Some people really should know better, but they don’t. Maybe anger is a better place to reside for some? I’ve been there and it’s unhealthy.
Tonight, I am going to try to accept the fact that no one else is like me and the other people cannot be what I need them to be, because it’s simply not in their genetic makeup. My brother recently paid me the finest compliment by saying that no one could spend five minutes with me, or speak to me for five minutes, and not come away realizing how incredibly genuine and unique I am. I damn near cried, because it’s truly the NICEST thing he’s probably ever said to me, and it was such an incredibly astute observation. It almost makes up for the crappy things he’s said to me in the past when he was angry (at himself) and frustrated (with his own bullshit) and took it out on me simply because I am the closest person to him.
I learned a valuable lesson today. I learned that no matter what people say, their actions and words don’t always mesh, and I am wary of people like that. Life isn’t perfect for anyone. Life isn’t always fair, either, but I refuse to kick someone while they’re already bleeding on the ground.
To the people who kicked me today when I was desperately upset by a situation completely out of my control, please don’t ever think I won’t remember the attack. To the few that reached out later on to raise me back up off the ground, I won’t soon forget that either.
Wishing you all a far better day/week/remainder of the month than I just had.
copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Situation Or Depression? There’s A Difference
I had a major meltdown Monday. I can’t recall the last time I felt that alone, that isolated from my friends & family, or that upset. I’m certain it’s happened before, but Monday was simply too much, too soon, and way too intensely upsetting. I vividly remember scrolling through my contacts list at one point, and realizing that I could not call a single soul in it. I reasoned that I didn’t want to bother anyone at work. It was quite sobering.
When a strong woman says “I’m tired of being strong.”, it’s honest. When a strong woman says “I feel broken.”, that too is honest. But when a strong woman seeks help so that she does not harm herself, knowing the potential is there, and gets told “There’s a nine month waiting list to be seen.” or “We’re booked solid until January, so you should go to your nearest emergency room.”, it is astounding.
When you go to the emergency room with a mental health crisis of any kind, it is my experience that you will not be taken seriously unless you’re bleeding or have overdosed and were brought in on a stretcher. Does it really have to come down to that? I think it is a horrible approach and I wonder how many other people have experienced this.
If a mother can go to a police station, fire house, rescue squad, or hospital, and legally surrender an infant (Known as the Safe Haven Law) without fear of being deemed a criminal for child abandonment, then I should be able to go into any medical establishment and say “I am worried for myself, I need help.” without fear of judgment or criticism, or being mistreated. Instead, I spent several days talking to my insurance company, who are utterly useless, trying to find a way to get immediate care. But no such place exists without an extensive waiting list. They just keep telling me to go to the emergency room. I didn’t break my leg, this is not an emergency room situation unless I have hurt myself or someone else. G-d forbid!
I don’t need to be hospitalized. I know that, and so do the few people who support me, but do I need additional support and someone to talk to? Yes. I reached out to my psychiatrist for a prescription, asking whether or not I should go back on medicine I already have or medicine I used to take, the latter of which would require him to call a prescription into the pharmacy for me. Unfortunately, medication is always very tricky, and side effects are generally the reason I stop taking them. That, or the fact that they don’t make me feel better. I can’t function when I’m deathly ill from side effects or I can’t physically get out of bed from the drowsiness certain medications provide at even a low dose. I have yet to meet one that truly works without making things worse.
It’s almost 2016, and there are still so many people ashamed to talk about their use of antidepressants or anti-anxiety medication during difficult times in their life, or daily to manage very real issues that aren’t their fault to begin with. I would be far more embarrassed pretending I was okay when I am not. Suffering in silence makes the suffering one hundred times worse than it is if you simply reach out to someone and ask for help. But here I am, and there’s no one willing to help. It’s like being outside in -50 degree temperatures and having someone throw ice water at you. It is also incredibly hurtful and insulting.
The past few years have taken an immense toll on me, I’d never deny that, but the last two and a half weeks have been like bleeding to death slowly. And yet, as I sit here with a cold that came out of nowhere, I find myself unable to handle answering the phone or responding to a text message (I wish I could say they were simple, but they’re not. I currently have the Do Not Disturb feature on because listening to my phone vibrate all day is getting to me.). I’ve reached a point where too many people want immensely large pieces of me, but none of them are willing to grant me so much as an inch of kindness, compassion, or understanding. I take a few days to take care of myself and get told I’m horribly selfish, which is the exact opposite of who I am. I’m considering the asinine source before buying into such nonsense. Sometimes employing a “I’ll pretend I didn’t hear that” filter is a good idea.
I am the first person to say that it’s important to advocate for your own mental health, and your overall health in general. It’s important to question everything, especially when you aren’t receiving legitimate answers. I also feel it is important to take ownership of your own crap. That being said, I feel like this particular situation is what’s affecting me and making me physically ill. It’s not depression in a traditional way, it is the situation causing how I feel, but it is still difficult and I’d prefer to be prepared for anything more that comes at me, as opposed to pretending nothing affects me. I’m human, and it’s not a crime.
I got home late from the hospital Monday night. They keep the rooms outrageously hot in that particular part of the hospital. I kept putting eye drops in to counteract the heat drying my eyes out, and I kept disinfecting things because every other person was coughing or sneezing. I already knew I had something in my system, but now it’s affecting my head and chest. For a period of time yesterday, my voice was but a whisper. All I was capable of doing was sitting and today hasn’t been much better, except that I have my voice back and have been able to do a few things in and out of the house. My head feels like there are multiple hot pokers stuck in different directions, my sinuses are killing me, and my eyes and throat hurt like hell. The weather, all dark and grey, complete with rain, is only adding to the pressure in my skull. I find it insulting to get sick when I am already dealing with enough insanity.
My brother is still in the hospital. They wanted to discharge him on Monday, but his blood oxygen levels weren’t good and they were talking about doing another procedure before discharging him. By Tuesday, his levels were almost 100% improved, the second procedure was determined to be okay a month post-op, but not now. There was also a major snafu when one of his surgeons discovered a potential infection on an x-ray. He wasn’t sure what it was, but wanted to run some tests to figure it out. They have since discovered that he indeed has infection, but they aren’t 100% sure where or what it is. He’s been saying he “feels hot” since last week. They kept telling him his vitals were good and it was merely a side effect of the anesthesia and medication. Last night, the nurses argued once they discovered he had a high fever, because apparently the two nurses prior to the shift change failed to report that he had one at all. His primary surgeon was called at home around midnight and was, quite obviously, very concerned. He ordered a laundry list of tests, some of which were performed immediately after the phone call, and others were done earlier on, with a few more ordered for later today. My brother, in perfectly dramatic fashion, blamed me for this. It is, naturally, all my fault. How could it not be?! Lord knows I walk around with a veritable petri dish just waiting to unleash it on my own flesh & blood. <rolls eyes>
I’d like to blame that psychotic comment on his medication, but I have no idea where he gets the idea that I’m some kind of monster trying to keep him in the hospital (If I was, he’d be chained to a bed in a mental hospital.). Because I’m honest? Because I’m direct? Because I don’t coddle him? No matter what I say or do, I am wrong. It’s like being married, except this isn’t Arkansas (That was a snarky comment, not a statement of fact, lest someone become offended and lack the ability to decipher my sense of humor.).
Quite frankly, I’d like him to recover in someone else’s home, tormenting them. If I hear about his dietary restrictions one more time, he’ll be lucky to get a loaf of bread and a gallon of water each week upon being released into my “care”. I offered to bring him something when I go back to the hospital and was told I “can’t be obvious about it” because I brought him a request Monday and apparently someone asked how he got it or something along those lines. I didn’t know I was committing some evil act by trying to do something nice. He’s a grown man, what am I supposed to do, bring him a teddy bear?! His vocal cords are healing (If you watch Chicago P.D., I can tell you that, at the moment, he sounds a lot like Jason Beghe.) at a slow rate, so I’ve made an effort, but all he does is piss me off with the unappreciativeness. I don’t have a lot of patience to begin with, so insulting me is not the way to get what you want or need.
People don’t rely on me for compassion, they rely on me to get the difficult shit done. I realize he feels he deserves some kind of “compassion pass” at the moment, but I don’t have it in me to change the core of who I am. I handle and face situations, but I’m not going to be someone I’m not, regardless of what a situation may be. In life, there’s no room for sugar-coating, and I certainly don’t expect people to do it for me either. Deliver the facts, I will deliver solutions, but don’t play games with me. It can seem cold and dispassionate to people, but I am actually quite passionate. If I wasn’t passionate, I wouldn’t do a damn thing for anyone. I would absolutely be selfish and self-centered, but I’m not. Sometimes when people are going through something difficult, they imprint their issues onto you, because their coping mechanisms aren’t strong enough to hold them together emotionally.
Ultimately, medication or not, I know who I am. This week has been a bad situation and it upset me to an ugly point, but my survival and success rate are 100%. I’m not going anywhere.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Written by LISA MARINO-Molchanova 