It’s Okay

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Just in case some people need a reminder about this.

For an incredibly communicative person, I don’t always want to talk. As a creative-type, I spend a lot of time inside my head. As a writer, it’s my job to state the facts, and when writing fiction, it’s my job to create a world that is relatable and draws you in. I feel blessed to be able to do those things, but sometimes, it feels really good to communicate with others in some tangible way.

As many people who suffer from a form of chronic pain, I have become accustomed to “my cage”. I’m good as long as I have my laptop, music (when I can tolerate sound), cat and kitten (’cause they’re soft and sweet…most of the time), movies, books/Kindle, and my DVR. Occasionally, throw some food at me. You might want to feed the writer regularly though, I’m told she tends to get “hangry”.

I caught myself over the last few days with both my landline phone and cell phone sitting next to each other while I was writing, as if I am just SO important that the calls in my life are non-stop. They aren’t. I’d get rid of the landline completely if it didn’t utterly freak me out to not have a phone at home when my cell is acting up, or in an emergency. I spend more time e-mailing and texting people than I do talking to them, though a lot depends on the other person and where they live.

I’ve received Skype messages on my phone from my brother when he was five minutes away, because apparently I need to watch him try on sunglasses and “approve” what looks good on him and what doesn’t. (Did you just roll your eyes? I sure did!) I receive goodnight Skype messages from my Goddaughter because she wants to make sure I’m not in pain. Alas, I cannot and will not lie to a four year old.

E-mail probably wasn’t created to replace letter writing, but it took over almost completely. I’m a little surprised when someone sends me something handwritten. A card when it isn’t a holiday or my birthday is downright celebratory. You should see how I act when packages arrive, because I know full well I didn’t order anything.

There are aspects of this highly digital age that annoy the crap out of me (You will read about it in another post.), and there are amazing breakthroughs in technology that people dreamed about being a possibility “in the future”, but that was 20 years ago, or longer, and most of them aren’t here to see their vision realized. My Grandfather would have been incredibly intrigued by a lot of this. I cannot picture him taking selfies though.

Ultimately, it’s okay to be an introvert and not feel a deep desire to be “amongst the people” every single day of your life. It’s okay to pick and choose your friends, who and what you devote your time to, and it’s even more okay to be yourself, without apologies.

Nothing and no one in life is perfect, but when you have the essentials, say a prayer each night for them. They’re worth more than you know.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Plagued

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I’ve been plagued by pain in so many ways over the last week and a half, that I really haven’t been able to finish anything I’ve started to write. Work, at the moment, is that thing I should be doing, but can’t because sitting here for 5-12 hours editing is excruciatingly painful. I won’t lie; I feel a tremendous amount of guilt over it. I shouldn’t, but I do.

I have been extraordinarily exhausted. If I’m up longer than 12 hours, I will start to fall asleep wherever I am. By 6:20 last night, I seriously thought about getting into my bed without my favorite blanket. I went downstairs to pull it out of the dryer, basking in its warmth. There’s something incredibly cozy about a blanket fresh from the dryer, especially when you have chills and need to go to bed. Once again, I was in bed before the sun went into set mode. Sometimes it’s just a 3-5 hour nap, and other times, like last night, it was a total “lights out” moment. I rarely sleep straight through the night. I woke up once sometime after one to yell about something (it might have been my wicked next door neighbor’s new dog, which must have come home with them from their vacation because they’ve never had a dog since moving in. The dog, naturally, is as annoying as they are. It barks at its own shadow, and everything else it can see. I don’t want to hear your dog at 1:00 a.m. or 5:00 a.m. Train the beast! I’d be able to tune it out if their backyard wasn’t right on top of my bedroom window.) and after that I didn’t wake up until kitten walked on my head. As supreme “can opener”, this makes me a favorite between cat and kitten. Especially since kitten is always hungry, unless she’s sleeping.

I haven’t had much to say this week. I have ideas and other things swirling inside my head, all of which will come to fruition at some point, but mostly I am tired, stressed, and in so much pain, it’s hard to see straight.

You have absolutely no idea how much time you spend sitting until sitting becomes the single most painful thing you can do. My back and I are at odds. Every single thing is painful. Walking, standing, bending down to pick something up off the floor, even being in bed is uncomfortable. I lucked out yesterday and was finally able to do the laundry I hadn’t been able to do over the weekend. I didn’t want to make my back any worse after Saturday morning. It’s bruised, sore, and achy, but I think with continued rest, it will be all right. If it’s not, you can all send me weird things while I’m in the hospital (No cheese, Lucy! LOL.).

I hope everyone is having a happy, productive week. Me? I’m glad it’s almost over.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED

For the record, I am still young & vibrant. Therein lies the problem!
For the record, I am still young & vibrant. Therein lies the problem!

Falling Apart

I apologize for not writing yesterday. I fully intended to do so, I’ve had a few things partially fleshed out, but by 8:00 a.m., I was not in a position to do anything. I couldn’t even bend down!

Something in my lower back popped yesterday morning while I was scrolling through messages on my cell phone. For most people, that wouldn’t mean an awful lot. It might mean popping a few OTC pain meds and resting for a few days, no real damage done, but for someone with lower lumbar spinal issues, this meant shooting pain in more directions than I could fathom at the time. As the day progressed, it became pain in my entire body. I have no idea the what/why/how of any of it, just that I am having immense difficulty struggling through so much pain because there’s no end in sight.

As of this moment, the pain has settled into my head as a migraine with maddening sinus pain and pressure. It’s past the point of my normal pain threshold, so if you hear screaming in the distance, it’s me.

All written posts will be suspended until I figure out what the hell this is and how long it’s going to affect me. I’m no good to anyone if I cannot see past the pain and cannot sit long enough to type anything worth reading.

I hope everyone has a good Sunday. Life is short, make it count.

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migraine is godzilla

Moody Musings

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I’m in an ugly mood. I think I went to bed that way, to some extent, which only partially explains my nasty mood this morning. I (almost) never lock my cats out of my bedroom, but when they started their petition to shove me out of bed around 5:00, I silently got up, put grain free food in their bowls, and as they both moved to their respective bowls, I shut my door. About an hour and a half later the little one started screeching like the world was ending. I let her back in to abate the crying and then ended up locking her out because she was trying to claw her way through me. When I haven’t slept well, there is no amount of annoying behavior that will push me out of bed. I also don’t want to yell at them because they don’t understand it and it’s traumatic for them. I simply cannot bend, touch my toes, or turn my head/neck at the moment. It’s upsetting to be in this much pain and not be able to take care of basic things, including myself.

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Injustice and abuse of power infuriate me. Alas, I don’t look good in orange, so going after a power-hungry cop, fresh out of the academy, who thinks his dick is as tall as he is, is probably NOT a good idea. With all the police issues in this country, I figure the asshole will eventually say the wrong thing to the wrong person. I have to believe there’s some kind of karmic justice at play here, and that I have to just take care of me and mine. However, factoring in that I cannot physically move and that I’m in excruciating pain, I feel like there’s some kind of evil joke at play here.

Several weeks ago, a church was firebombed in my area by someone who got early release after kidnapping two minors back in 2008. Tax dollars hard at work. <rolls eyes> Emergency responders were already in the area and able to handle the situation quickly, but $50,000 worth of damage was still done.

At the moment, there is a huge carnival going on at a different church. It usually lasts for about a week or two. Ever since it started, there have been break-ins ranging from small to large, even if people are already home and asleep. Whoever is doing it doesn’t give a shit if there are cars in the driveway, they’re still going to risk their lives for “stuff”. This is occurring not even two minutes from my neighborhood. It’s within walking distance. A woman walked into her house yesterday to find a man going through her things. She, in her infinite stupidity, asked who he was and what he was doing there! He hit her in the face and took off, but now it’s clear that it isn’t just one person. The various local police departments decided to let people know about all of this via social media. Every single person that responded said “I have dogs and guns, go for it.” I do not currently possess the strength to utilize a shotgun properly, so, God forbid, my only option would be something smaller. I highly recommend no one sneak up on me for a while.

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Are naturally perky people drinking too much coffee, on a drug I’m not aware of, or are they born that chipper? Are they simply “bright side of everything” types? I truly don’t know because I cannot relate.

95% of the time I wake up like a sleeping dragon. Unless I am able to go back to sleep or take a nap, I’m pretty unpleasant in the mornings. For quite some time I was up at 4:00 a.m. every single day. I was in bed early each night, it worked out well for me. But now I cannot seem to fall asleep and stay asleep. Being woken every morning at 5:00 a.m. is tiresome, to say the least. You’d think they were being starved, but the opposite is true. They like routine, but they were also thundering up and down the stairs after midnight. Where do they get the energy?!

Studies claim that people who wear lots of grey and blue are depressed, and people who wear bold colors are happy. Don’t we all get depressed at times? Who the hell lives the absolute perfect, trouble-free life? Even Fortune 500 CEO’s have problems, but everything is covered up beneath the shiny veneer. FYI: I wear a lot of grey and blue because they’re two of my favorite colors. I hate red, but that’s not exactly a well-kept secret.

In simple terms, I feel moody as hell today. I’m pretty sure it’s a 50/50 toss-up between life and…life. I am trying to pull myself together to run errands and not commit any murders today. As an introverted extrovert, this means headphones are going to be my best friend today.

I hope everyone has a calm, pleasant weekend to look forward to. Keep cool, don’t get too much sun, and remember to reapply sunscreen every 80 minutes, even if it’s cloudy out and you haven’t been sweating. Sun damage and sunburn(s) are things no one wants to deal with.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Blame It On The Pain

I hate the color red.

UGH! Yes, that’s what I have to say. I’m tired, because apparently “crack of dawn” in my house means “We’re all awake Mommy! Don’t you want to feed us?” Mmm…not so much. LOL.

After truly forcing myself to get things done yesterday, today barely feels like a Sunday. It is quiet, thankfully, and there’s supposed to be a thunderstorm later on. At the very least, rain is predicted for the first half of the week, so I’m content with that because it explains a lot of my aches and pains. The rest is from overdoing it. The mileage I clocked on my pedometer over the last few days is insane.

I completed all of my jobs, except for the big one. I will focus on that this week, as much as humanly possible. I hope additional work comes in, especially proofreading and anything else that isn’t mind-numbing and/or soul-sucking. The faster the job, the faster I get paid, and that makes my life slightly easier in the moment, which is a huge help.

Today I am allowing myself to take it easy. I’m in clean PJ’s with wet hair, I already did a load of laundry, and I completed 95% of the prep for Sunday dinner. Everything else can wait until later or tomorrow because “rush” isn’t in my vocabulary at the moment.

For now I think it’s safe to say that I have some things I want to accomplish going into this week, but beyond that, I can only take things on a day-to-day basis. My pain has escalated to the point where my daily activities revolve around how much pain I am in. I have been off of traditional prescription pain medication for over two years now. For every doctor that assumes we are all drug-seeking addicts: SCREW YOU. Living my life each day with little to no access to genuine pain relief is agonizing. I do take Eastern medicine when I am able because herbs work when taken properly, but through trial and error I have come to decide that the new herbs for lower body pain is not something that should be taken each night. I’ve had several episodes where the combination of different compounds made me sick for a good 24 hours after taking it. So seen, even some herbal remedies have their side effects. Acupuncture is next on my list. No, I am not afraid of needles. In fact, I barely register that sort of thing because the pain I am in each day is so severe, little things simply don’t show up on my physical radar.

I am hoping this will not be a summer chock full of migraines. I am strongly considering starting a new migraine journal if things get out of hand again. I do have medication for that which can be taken daily, but it’s horrible to start during the summer because one of the side effects is that you MUST drink at least 120 ounces of water every single day and the second is that you don’t sweat. It’s not a good combination of immediate side effects during rough summer conditions, so I might start it again in September when things start to cool down and I am able to focus on the dosing. I’ll have to download an app for my phone because it is all too easy for me to forget whether or not I took medication each morning. With tiny pills, I often find it easier to forget as opposed to the monster pills that you simply cannot forget. Odd, but true for me.

I hope everyone has had a delightfully restful weekend. I’m off to take a nap. I woke up WAY too early this morning and since I haven’t been sleeping well, I’m not going to beat myself up because I need to rest. In the words of my Uncle: It is what it is.

I’ll be back with more interesting things soon.

XO…L

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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It’s usually 4:00 a.m., I’m lucky if it’s 5:30 or later. The enchantingly beautiful cat and kitten are featured on the ABOUT page.

As A Direct Result

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It’s also an evil life-destroyer.

I’ve decided that today is going to be a work-free day.

I went to bed this morning sick as a dog. I suspect my brief time out yesterday affected me more severely than it ought to. Within a few hours of coming home, I got my fourth migraine of the week. I took a brief nap and I wasn’t entirely okay afterward, but now? UGH!

Sadly, with migraines, you often question whether you did something wrong, ate the wrong thing, etc. All I did was go out in tremendous heat for an hour and a half and come home. It wasn’t a lot of physical exertion, but my body says otherwise. I had a mild headache upon returning, but it wasn’t until I actually felt pain in my head that I took something for it. By 7:30, as my neighbors attempted to power wash something right near my bedroom window, I contemplated outright murder. My ears simply cannot bear the noise, and what are they up to at this precise moment? Yard work. At 9:23 a.m. On a Saturday. When it’s already 85 degrees and a heat advisory has been issued for the entire area, AGAIN. Schools actually closed early yesterday, if they opened at all, because it was over 100 degrees with the humidity and people were experiencing breathing problems. But hey, dumb & dumbest need to make noise on a yard that requires no work at all this week. This is where I would like to point out that I refrained from putting #TheyNeedToBeShot. I’m not a violent person…just don’t make noise when I’m sick or on any day ending in a y.

As a direct result of this migraine/heat/stomach agony, I’m trying to decompress this morning. I’d rather be asleep, but I desperately need to hit the grocery store. Not a fun task, I do not look forward to this, but I am going to try going once it cools down. There’s no point in making myself any sicker by attempting to do it early on in the day. Everyone and their grandmother will be there to capitalize on the digital coupon extravaganza, which has already turned into an epic fail because 9/4’s of the coupons don’t come off at the end of each order, which means customer service is inundated with questions as to why they didn’t work and precisely “Where are my savings? Are you going to give me my money back?” Actually, the store is set up to make sure you actually loaded the coupons on to your savings card in the first place. If you didn’t use the physical coupons that were also provided for the week, chances are you didn’t get the savings on those four items. I clipped all of my mine last night and will print up a few others later on. I’ve saved nearly $1000 this year alone in coupons at one store. That is a small accomplishment, but it feels good every single time I look at my receipt.

I’ve completed all of my work this week (though I am seemingly still loosely on the consulting job), except for the manuscript, which I will devote more daily time to next week in my attempt to complete it. I’m not looking forward to that, I’m simply tired of seeing it and knowing that it’s not complete. I do NOT relish the line of questioning that will come with the delivery, but since I stated in the contract how much time I will spend on answering questions before charging again for my time, I hope that will make the client aware that I mean business. It’s in black and white, how hard is it to follow guidelines?

Before I forget, I want to thank Writerstream for featuring my work this week, and I’d also like to give a huge shout out to the dozen or so new Twitter followers in the last 12 hours alone. (Special thanks to Lillian for encouraging me to join Twitter. Hugs sweet pea!) I never knew I’d grow to love it so much. To the friend that reads my Tweets and isn’t afraid to joke with me and laugh, I appreciate it. (You know who you are, doll!)

If you need me, I’ll be here for the next few hours. Drinking coconut water. Praying that it helps. If it doesn’t, I’m seriously considering an ER visit because this level of pain is out of control.

Have a great weekend everyone! And please, stay out of the heat and wear sunscreen.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Weird Worthless Weekends Lost To Pain

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Friday morning I stated that I’d rest this weekend and get things done inside my home, as much as humanly possible. I mentally calculated exactly how much laundry needed to be done, and then factored a few others things into the mix. What I did not factor in was a terrible Fibro flare and bouts of sleeplessness that drove me up a wall. Why couldn’t that have happened last week? Because I was working like a dog in between migraines and the day and a half I spent unable to move, so apparently my body waited and the second I had time to breathe, I got slammed. I’m livid that it is now Monday and that my “weekend” was so bizarre in it’s lack of time.

I know I am being unfair to myself. I’m not a machine and I do have to factor pain into my daily life. There was a lot I wanted to get done from Friday until now. As I angrily folded laundry a little while ago, the only load I did this weekend that isn’t even my stuff, I realized just what a wasted weekend this was.

Who’s looking forward to another hot, miserable work-filled week? Not I. Plus, I’ve got about four loads of laundry that need to get done. In all fairness, one could be up right now, but I will not move a happily sleeping kitten off of my bed in order to yank the linens so she can think it’s some kind of evil game and destroy another set of sheets. I cannot get a soul to hold her so I can trim her nails. Apparently everyone is afraid of the world’s sweetest, sassiest kitten. I don’t want to traumatize her by pinning her down with my body to get two nails, if I’m lucky, before she hisses, cries, or attempts to bite me. Believe me, I understand her frustration and I don’t take her reactions to heart, though the crying kills me. She’s not a mean biter and she’s not mean, period, she simply doesn’t understand why her nails need to be cut. As sweet and loving as she is, a lot of basic kindness is scary to her. I have to keep trying as patiently as I can so that she doesn’t have these fears later on in life. This is residual shelter trauma; it has nothing to do with her life with me. Knowing that, I can utilize far more patience than if it were a person. Animals and babies are one of my speeds. People need to handle their own shit.

I am looking forward to work this week in a “I really like this particular client” sort of way. I spent about an hour on the phone with a client one afternoon to be certain of what he needed from me. We had a lovely conversation and he was incredibly pleased with the work I turned in. During our conversation he said he wanted to keep my information close at hand in order to hire me again for other editing/writing jobs. That is the only time I will write for someone else, when they know what they want, but can’t quite put the words together cohesively. Most times, that’s less than 500 words and it takes no time at all, but some people cannot put their internalized thoughts onto paper, so an idea is scattered and hiring someone to polish the idea is a good way to find the right person for the job you’re looking to hire for. Hiring field specific people is a really great concept.

My point, however, is that he contacted me yesterday for another job. I wasn’t 1000% sure I’d hear from him again, but I’m glad that I did. It’s nice dealing with people who get it and have respect for your time, knowledge, and the work you do. Most people just made rude demands. I had someone point out a tiny error I made, which happens. I’m not perfect, it was late, and all she had to do was delete one word. I asked if she wanted me to redo the entire file, but instead she took up over an hour of my time asking me to proof the work that SHE had just re-edited. (Did your jaw just hit the floor? I was astounded by the stupidity because it resulted in a two hour phone conversation the following afternoon to make sure I’d get paid for the time.) Did I mention that this was a corporate job and her English is swimming somewhere between broken and non-existent? I suspect she was using Google translate because revising her thoughts was like playing with a puzzle, and the message “Is it done yet?” grated on my nerves because I informed her precisely how long it would take and that I’d get it back to her by late Thursday evening EDT. It is all too easy not to want to do specific jobs after a while based on the treatment of clients that do not understand that not everything can be done in 60 seconds. It’s incredibly unrealistic to expect that, but it is what it is and I have the right to pick and choose the jobs I take, for that reason alone. I am excited to see what this new opportunity brings. I wish every opportunity was a prosperous one. Alas, many are not, so I do my job and move on. That’s all I can do, my best.

And now, despite all this back pain, I am off to tackle at least two loads of laundry since kitten has moved along. I suspect she will be back soon to thoroughly inspect all the clean linens I’ve put down since stripping my bed and quickly dashing downstairs to the laundry room (Cat has already given me a mixture of approval, disdain, and attitude.). Now if I could just find the perfect pillow…

The truth is, the evil never truly rest. 😛

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

This is crucial.
This is crucial.

It Doesn’t Get Easier

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Fibromyalgia Pain. Chronic Pain. Migraines. They are just a few of the evils that millions suffer from. Some suffer loudly, but many more suffer in dark rooms, alone, in silence. You’re screaming on the inside, but you don’t make a sound.

There is something about the temperature shifting drastically that changes my “Pain Game” to new levels of insanity. I’ve had a migraine on and off for three days, and after last week, I’d hoped it was just a passing tornado, so to speak. This morning I reached that “insane from pain” stage that is quite scary. You hear yourself saying crazy things, but you truly cannot stop your mouth from moving. You’ve been strong for too long and now you’re venting.

I’m usually up pretty early and by early, I mean still dark. Suffering from migraines last week into this week has meant that I’m finding justified reasons to A) Go back to sleep or B) Take naps. This morning I woke up at 7:24. I’d been up an hour before and truly saw no reason to make a bigger effort, so back to bed I went. Unfortunately, when you have animals and/or young children, you don’t get “the morning off”. I suspect if I bled out of my eyeballs, maybe. The girls were being particularly aggressive this morning, so I fed them at exactly 7:25 and then stomped back up the stairs like an insane person. Once they’re fed, they usually leave me alone. In true form, they had no interest in bothering me whatsoever once they’d been fed. But once I officially woke up, I had a little stalker doing all sorts of wrong to draw my attention. I’ve reached that pain point where saying “No.” or “Get down from there!” isn’t even worth it. If I spritz them with water, they stop doing it. However, they’re fearless and like to lick the water off right in front of me, as if to say “Really Mommy, that’s all you’ve got?” I’m not in the mood to be challenged by anything with four legs and fur, and I don’t negotiate with terrorists that look like children. 😛

Migraines that affect your neck, shoulder(s), face, and spine are fucking scary. There is always someone telling me a wild story about how “so and so had a migraine, and thus thought nothing of it, until they ended up in emergency surgery.” Yeah, that’s what I need to hear. That is totally going to make me feel better, thanks for sharing! I have no idea why so many people use the “this one has it worse” crap on you, as if that is somehow going to magically stop your suffering (and not just with a migraine, but with ALL things in life). FYI: It doesn’t curb your suffering at all, but it does piss you off, which isn’t good because that raises your blood pressure and damn near guarantees that this migraine isn’t going anywhere any time soon.

My biggest problem with this particular migraine is that I also hurt from my spine down to my calves. If it’s not severe pain, it’s a horrific ache or serious soreness. There is a 50% chance of rain and honestly, I’d like to see it rain a bit because that would explain the sudden increase in pain from my daily 8-9 to DEFCON 1. Historically we have never reached such a level of “readiness”, but I’m betting that a vast majority of pain patients HAVE reached that threshold. It is pain that is so bad, you’d rather feel ANYTHING ELSE but that pain. It applies to more than just the physical.

Doctors have often told me “It gets better as you get older.” That’s what they told my mother when I had horrible growing pains and constantly felt like my muscles and bones were going to pop off. Now, doctors ask whether or not you can remember if you had bad growing pains as a child, because that often signifies whether or not you might suffer from a form of chronic pain later on in life. They ask about your long-dead relatives medical histories, as if you know all about your “dead before I was born” Grandparents and Great-Grandparents. Unfortunately, I remember those growing pains the same way I will remember my current pain a month from now, with 100% muscle memory.

I fully intended to get some serious editing done today. I have a client crawling up my butt (I have more to say on this subject, but it’s unprofessional, so I’m going to shut my mouth) asking for a timeline for delivery. We’ve never discussed one before, but as I go through pages and pages of work that requires severe corrections with every sentence, I had to be honest (I chose professional honesty as opposed to niceness because I don’t have niceness in me at the moment.) and tell exactly her how much work is involved. The cleaner the manuscript, the less work there is for me, but as a developmental editor, I fact check and do way more than I’m being paid for, and yet from a writer’s perspective, I cannot tell if it’s just excitement at the prospect of having never been edited before, or anxiety that a professional is dissecting your work. I don’t know, I suspect it could be a lot of both, but I’m also in too much pain and under too much stress to sit and psycho-analyze it. I also hesitate to ask because I’m about .1 seconds from losing it on just about anyone. I’ve never failed a client before; it’ll get done, but work stops when I’m in agony and being nagged.

Right now, today is turning into another “Must Take Care Of Me” day. I truly don’t feel there are enough days like this because I often turn my attention to helping someone with a problem, or doing something else to shift my internal focus off the pain. Focusing solely on my own needs is slightly unnatural to me, but for now, it MUST be a priority.

Here’s hoping that none of my readers are hurting like this today. 😦 This is the kind of pain only Hitler deserves!

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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These Days

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When you suffer from any form of chronic illness, and I can only speak from experience with Fibromyalgia/Chronic Pain, there are days when you cannot fathom getting out of bed, leave alone getting out of the house. The pain is just that great in its magnitude that functioning is taken out of the equation. You reach a point where you merely exist.

When I push myself, I make everything worse. It often takes me 5-6 hours just to get my mind right in order to get ready and leave. I have to factor in so many things in these decisions. My big motivator isn’t about myself though, it’s usually about making sure the girls have all that they need. If they don’t, I have no choice but to get shit done, even if it means not being able to walk at all for several days.

I woke up in a dark head space. Despite going to bed early last night, I accidentally left the air on instead of the heat. That’s how crazy the weather has been. By the time I reached the “everything hurts and I can’t move because everything is stiff” stage, it was 62 degrees inside. In this house, that’s like 45 degrees with a bitter wind chill. So, the heat went on and I went back to sleep for a few hours. When I officially woke up, it was “too hot” at 66 degrees, which just goes to show you that Fibro is no joke. There are days I am wrapped in a blanket when everyone else is in shorts and tank tops. There are also days when I’ve got two layers on and people are saying “You’re not hot?” When I’m really cold, I’m even wearing socks inside. I never know which way my internal temperature will slide or what the external will make me feel. There are days when 70 degrees makes me want to pass out and die, but if there’s a cooler breeze within the temperature, I’m okay. These days, even my hair hurts, and that’s never a good sign.

I am slowly pulling myself together today to hit two stores. If I don’t go, no one eats, including me. The last thing I want to do today is go anywhere, but for now, it’s just about calming the pain and stress levels down a few notches and hoping that a cool shower will wake me up enough later on so that I can run these two errands and come home.

I won’t lie: My first option was to have everything delivered or ready to pick up, thus minimizing my actual need to force myself out. Alas, two different stores were “out of stock”, so I have no choice but to go there myself and figure out what their deal is. Unless you’re having some kind of epic sale, there’s no way you’re completely “out of stock”, not unless you want to screw with me or there’s something wrong with your on-line system. It’s all very frustrating. It’s even more pathetic that I thought “Wow, that’ll be a breeze. I can just go in, pick up the order, and come straight home. I don’t even NEED to wear make-up!” Of course now, pride determines that I do not leave the house without looking like a human-being. Think Corpse Bride, with a lot of curves.

I admit, I have become moody due to the limitations from pain. If I don’t cook dinner by a certain time each night, which is the right time to allow me to be in bed in a timely fashion, then it’s simply not happening. And if I don’t eat a balanced diet, I will be deathly ill. One of my best friends joked that I’m damn near a vegetarian these days, which isn’t true, but can seem that way at times from the outside looking in. I don’t share in the vegetarian or vegan belief systems, so it’s really not possible for me to be either. It’s not about achieving some kind of goal or physical look, it’s merely about eating to live and getting proper amounts of rest. I hurt too damn much to get into semantics with people.

As the sun begins its rise above all the clouds, I keep wondering exactly when the “perfect” time is to get the hell out of here. Truth is, by the time I clean my bathtub (which I do several times a week because it annoys me), get ready, put up a load of laundry, and leave the house, it might very well be 4:00 PM. Trust me, the clothes are already in the dryer by the time I’m leaving, if not already dry, so there’s also that time in the “getting ready” process. Waste not.

It would be SO NICE to have someone to rely on in times like these. Someone dependable to say “I’ve got this, you go rest.” Not everyone is blessed with people in their lives who are willing to physically assist with errands and chores that have to get done. It’s not that I don’t want to do these things for myself, this isn’t about laziness, it’s about illness. I promised myself I’d learn how to ask for help this year, and accept the help that comes my way, but so far, I’ve hit a lot of brick walls and it’s disturbing to me. I loathe people who say one thing and do another, in all aspects of life. Don’t open your mouth unless you can follow through.

I’m sitting here with my tiny list, but all it does is stress me out. Normally I love grocery shopping and taking care of others, but in this moment, I’d really like someone to take care of me. I physically feel too broken to do it myself.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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