Days

The days are filled with terror. Problems piled up so high.

Panic sets in, as soon as the birds start chirping.

Sleepless nights, filled with anguish.

Nothing solved from day-to-day, constantly being turned away.

No one has answers and no one seems to care, absolving themselves of any and all responsibility.

Reliability is rare, it cannot be depended on.

Seemingly, everything is rare, and nothing can truly be trusted.

Pain is a constant, from head to toe.

But there’s no one there to listen, because they’ve all made it clear they don’t care.

The sound is overwhelming, discovering the noise is all within my mind.

These days don’t get better, and I just drift away…

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

We Can Ignore…

“We can ignore even pleasure. But pain insists upon being attended to. God whispers to us in our pleasures, speaks in our conscience, but shouts in our pains: it is His megaphone to rouse a deaf world…. No doubt pain as God’s megaphone is a terrible instrument; it may lead to final and unrepented rebellion. But it gives the only opportunity the bad man can have for amendment. it removes the veil; it plants the flag of truth within the fortress of the rebel soul.”  ―C.S. Lewis

I was going to write something today, or, at the very least, finish something I’d already started. Unfortunately, pain is screaming through my body and I cannot sit, so it will have to happen another day. 

Have a good weekend everyone!

The Superhuman Achievement

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As I was struggling/suffering through my afternoon yesterday, a woman started talking to me. She told me she has MS. She and her four sisters were all stricken with the same disease, and one sister had already lost her life to it. I immediately felt like my pain was small in comparison, not that we should ever compare and contrast.

She told me that each of her sisters’ husbands won’t help them with their wheelchairs because “they look perfectly fine”. Sound familiar, anyone?

She mentioned acupuncture, and specifically recommended the person she goes to each month. (A friend also recommended acupuncture to me not that long ago, so it’s not like I was unaware it exists and that it works.) She gave me his card. She said it truly relieves the pain and allows her to function from one appointment to the next.

And so, this quote feels incredibly apropos today.

Moody Musings

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I’m in an ugly mood. I think I went to bed that way, to some extent, which only partially explains my nasty mood this morning. I (almost) never lock my cats out of my bedroom, but when they started their petition to shove me out of bed around 5:00, I silently got up, put grain free food in their bowls, and as they both moved to their respective bowls, I shut my door. About an hour and a half later the little one started screeching like the world was ending. I let her back in to abate the crying and then ended up locking her out because she was trying to claw her way through me. When I haven’t slept well, there is no amount of annoying behavior that will push me out of bed. I also don’t want to yell at them because they don’t understand it and it’s traumatic for them. I simply cannot bend, touch my toes, or turn my head/neck at the moment. It’s upsetting to be in this much pain and not be able to take care of basic things, including myself.

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Injustice and abuse of power infuriate me. Alas, I don’t look good in orange, so going after a power-hungry cop, fresh out of the academy, who thinks his dick is as tall as he is, is probably NOT a good idea. With all the police issues in this country, I figure the asshole will eventually say the wrong thing to the wrong person. I have to believe there’s some kind of karmic justice at play here, and that I have to just take care of me and mine. However, factoring in that I cannot physically move and that I’m in excruciating pain, I feel like there’s some kind of evil joke at play here.

Several weeks ago, a church was firebombed in my area by someone who got early release after kidnapping two minors back in 2008. Tax dollars hard at work. <rolls eyes> Emergency responders were already in the area and able to handle the situation quickly, but $50,000 worth of damage was still done.

At the moment, there is a huge carnival going on at a different church. It usually lasts for about a week or two. Ever since it started, there have been break-ins ranging from small to large, even if people are already home and asleep. Whoever is doing it doesn’t give a shit if there are cars in the driveway, they’re still going to risk their lives for “stuff”. This is occurring not even two minutes from my neighborhood. It’s within walking distance. A woman walked into her house yesterday to find a man going through her things. She, in her infinite stupidity, asked who he was and what he was doing there! He hit her in the face and took off, but now it’s clear that it isn’t just one person. The various local police departments decided to let people know about all of this via social media. Every single person that responded said “I have dogs and guns, go for it.” I do not currently possess the strength to utilize a shotgun properly, so, God forbid, my only option would be something smaller. I highly recommend no one sneak up on me for a while.

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Are naturally perky people drinking too much coffee, on a drug I’m not aware of, or are they born that chipper? Are they simply “bright side of everything” types? I truly don’t know because I cannot relate.

95% of the time I wake up like a sleeping dragon. Unless I am able to go back to sleep or take a nap, I’m pretty unpleasant in the mornings. For quite some time I was up at 4:00 a.m. every single day. I was in bed early each night, it worked out well for me. But now I cannot seem to fall asleep and stay asleep. Being woken every morning at 5:00 a.m. is tiresome, to say the least. You’d think they were being starved, but the opposite is true. They like routine, but they were also thundering up and down the stairs after midnight. Where do they get the energy?!

Studies claim that people who wear lots of grey and blue are depressed, and people who wear bold colors are happy. Don’t we all get depressed at times? Who the hell lives the absolute perfect, trouble-free life? Even Fortune 500 CEO’s have problems, but everything is covered up beneath the shiny veneer. FYI: I wear a lot of grey and blue because they’re two of my favorite colors. I hate red, but that’s not exactly a well-kept secret.

In simple terms, I feel moody as hell today. I’m pretty sure it’s a 50/50 toss-up between life and…life. I am trying to pull myself together to run errands and not commit any murders today. As an introverted extrovert, this means headphones are going to be my best friend today.

I hope everyone has a calm, pleasant weekend to look forward to. Keep cool, don’t get too much sun, and remember to reapply sunscreen every 80 minutes, even if it’s cloudy out and you haven’t been sweating. Sun damage and sunburn(s) are things no one wants to deal with.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Emerging From The Cave

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I woke up from a dream this morning that could have doubled as the weirdest movie EVER. Or a book. In fact, I’ll be writing it down later since my dreams revert back to a clearer picture within a certain amount of time. Rule #1- Never share your writing ideas.

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I’m exceptionally exhausted and in an extraordinary amount of pain. I was up late working for a client last night. I then referred her to a graphic designer, that way her product will look professional. If anyone is in need of a professional graphic designer for any number of things (banners, book covers, etc.), please let me know and I will put you in contact with her. She’s worked for Harper’s Bazaar and Disney and has been in business for 25 years. She knows her shit and can work with ANY budget. Plus, if I am going to pass business on to anyone, it’s going to be someone who I know needs the work.

All I really want is a nap. Unfortunately, I know full well that a “nap” will lead to me screwing up my sleep patterns. The storms that passed through my area last night knocked power out for a lot of people. As hideous as the sky looked, making me believe it would be an intense summer storm, there was merely some “scary to watch” lightning, a sprinkle of rain, and later on, a truly stunning sunset. If there was anything else, I missed it in between making dinner, decompressing for two hours, and then going back to work before bed (NOT a wise decision! The last thought I had was “Did she spell chili wrong on the product label!”). I’m running on fumes today, looking forward to the moment when it’s acceptable for me to simply fall into my bed.

My pain levels are off-the-charts insane. I am certain there’s a rod in my spine, that my right hip is disintegrating, and that my attitude matches how I feel. Being in pain 24/7, with no reprieve, is a challenge unto itself. If anyone would like to take it off my hands for a few weeks, I’d be happy to help you understand how real Fibromyalgia is. I am so sick of people saying that sufferers are “lazy” or “Doctors say it’s a fake disease.” I’ve got two words for that. Yes, those are the words.

I should be placed inside an insulated cave with running water, electricity, and WiFi. We’ll slap a label on me that says “Not fit for human consumption”, and I don’t mean that in a Hannibal-esque way at all.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Father’s Day

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You will find that I am almost completely silent on Mother’s Day and Father’s Day. I lost both of my parents within five months of each other between 2007 and 2008, so each holiday is difficult for me. My parents were young, making it all the more devastating.

I have a living, constant reminder of my father, but I don’t have one of my mother. People often assume I am exactly the same person as each of my parents and they’re wrong. I am not as ferocious as my father, though I have my moments. I am not as kind, caring, or anywhere near as compassionate as my mother. I simply lack the genetic make-up for those traits. I like to think I am the correct blend of their best qualities, but I’m highly aware that I inherited a fiery temper.

People think that when you lose your parents, you simply keep on living, that you don’t look back on their memory. They would be wrong, at least where I am concerned. There is no way for me to live without honoring the memory of the people I have loved and lost. To do less would be false, and I’m many things, but I’m not false.

On days like these, I can either ignore the issue completely or I suffer. Of course, I’ve been doing a lot of suffering lately, so I can only hope this coming week will be a better one.

To all the fathers, step-fathers, uncles, Grandfathers, & single parents who step up and handle the tough stuff, may today be a reminder of the appreciation bestowed upon you. To all the new Dad’s, welcome to parenting.

Blame It On The Pain

I hate the color red.

UGH! Yes, that’s what I have to say. I’m tired, because apparently “crack of dawn” in my house means “We’re all awake Mommy! Don’t you want to feed us?” Mmm…not so much. LOL.

After truly forcing myself to get things done yesterday, today barely feels like a Sunday. It is quiet, thankfully, and there’s supposed to be a thunderstorm later on. At the very least, rain is predicted for the first half of the week, so I’m content with that because it explains a lot of my aches and pains. The rest is from overdoing it. The mileage I clocked on my pedometer over the last few days is insane.

I completed all of my jobs, except for the big one. I will focus on that this week, as much as humanly possible. I hope additional work comes in, especially proofreading and anything else that isn’t mind-numbing and/or soul-sucking. The faster the job, the faster I get paid, and that makes my life slightly easier in the moment, which is a huge help.

Today I am allowing myself to take it easy. I’m in clean PJ’s with wet hair, I already did a load of laundry, and I completed 95% of the prep for Sunday dinner. Everything else can wait until later or tomorrow because “rush” isn’t in my vocabulary at the moment.

For now I think it’s safe to say that I have some things I want to accomplish going into this week, but beyond that, I can only take things on a day-to-day basis. My pain has escalated to the point where my daily activities revolve around how much pain I am in. I have been off of traditional prescription pain medication for over two years now. For every doctor that assumes we are all drug-seeking addicts: SCREW YOU. Living my life each day with little to no access to genuine pain relief is agonizing. I do take Eastern medicine when I am able because herbs work when taken properly, but through trial and error I have come to decide that the new herbs for lower body pain is not something that should be taken each night. I’ve had several episodes where the combination of different compounds made me sick for a good 24 hours after taking it. So seen, even some herbal remedies have their side effects. Acupuncture is next on my list. No, I am not afraid of needles. In fact, I barely register that sort of thing because the pain I am in each day is so severe, little things simply don’t show up on my physical radar.

I am hoping this will not be a summer chock full of migraines. I am strongly considering starting a new migraine journal if things get out of hand again. I do have medication for that which can be taken daily, but it’s horrible to start during the summer because one of the side effects is that you MUST drink at least 120 ounces of water every single day and the second is that you don’t sweat. It’s not a good combination of immediate side effects during rough summer conditions, so I might start it again in September when things start to cool down and I am able to focus on the dosing. I’ll have to download an app for my phone because it is all too easy for me to forget whether or not I took medication each morning. With tiny pills, I often find it easier to forget as opposed to the monster pills that you simply cannot forget. Odd, but true for me.

I hope everyone has had a delightfully restful weekend. I’m off to take a nap. I woke up WAY too early this morning and since I haven’t been sleeping well, I’m not going to beat myself up because I need to rest. In the words of my Uncle: It is what it is.

I’ll be back with more interesting things soon.

XO…L

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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It’s usually 4:00 a.m., I’m lucky if it’s 5:30 or later. The enchantingly beautiful cat and kitten are featured on the ABOUT page.

Weird Worthless Weekends Lost To Pain

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Friday morning I stated that I’d rest this weekend and get things done inside my home, as much as humanly possible. I mentally calculated exactly how much laundry needed to be done, and then factored a few others things into the mix. What I did not factor in was a terrible Fibro flare and bouts of sleeplessness that drove me up a wall. Why couldn’t that have happened last week? Because I was working like a dog in between migraines and the day and a half I spent unable to move, so apparently my body waited and the second I had time to breathe, I got slammed. I’m livid that it is now Monday and that my “weekend” was so bizarre in it’s lack of time.

I know I am being unfair to myself. I’m not a machine and I do have to factor pain into my daily life. There was a lot I wanted to get done from Friday until now. As I angrily folded laundry a little while ago, the only load I did this weekend that isn’t even my stuff, I realized just what a wasted weekend this was.

Who’s looking forward to another hot, miserable work-filled week? Not I. Plus, I’ve got about four loads of laundry that need to get done. In all fairness, one could be up right now, but I will not move a happily sleeping kitten off of my bed in order to yank the linens so she can think it’s some kind of evil game and destroy another set of sheets. I cannot get a soul to hold her so I can trim her nails. Apparently everyone is afraid of the world’s sweetest, sassiest kitten. I don’t want to traumatize her by pinning her down with my body to get two nails, if I’m lucky, before she hisses, cries, or attempts to bite me. Believe me, I understand her frustration and I don’t take her reactions to heart, though the crying kills me. She’s not a mean biter and she’s not mean, period, she simply doesn’t understand why her nails need to be cut. As sweet and loving as she is, a lot of basic kindness is scary to her. I have to keep trying as patiently as I can so that she doesn’t have these fears later on in life. This is residual shelter trauma; it has nothing to do with her life with me. Knowing that, I can utilize far more patience than if it were a person. Animals and babies are one of my speeds. People need to handle their own shit.

I am looking forward to work this week in a “I really like this particular client” sort of way. I spent about an hour on the phone with a client one afternoon to be certain of what he needed from me. We had a lovely conversation and he was incredibly pleased with the work I turned in. During our conversation he said he wanted to keep my information close at hand in order to hire me again for other editing/writing jobs. That is the only time I will write for someone else, when they know what they want, but can’t quite put the words together cohesively. Most times, that’s less than 500 words and it takes no time at all, but some people cannot put their internalized thoughts onto paper, so an idea is scattered and hiring someone to polish the idea is a good way to find the right person for the job you’re looking to hire for. Hiring field specific people is a really great concept.

My point, however, is that he contacted me yesterday for another job. I wasn’t 1000% sure I’d hear from him again, but I’m glad that I did. It’s nice dealing with people who get it and have respect for your time, knowledge, and the work you do. Most people just made rude demands. I had someone point out a tiny error I made, which happens. I’m not perfect, it was late, and all she had to do was delete one word. I asked if she wanted me to redo the entire file, but instead she took up over an hour of my time asking me to proof the work that SHE had just re-edited. (Did your jaw just hit the floor? I was astounded by the stupidity because it resulted in a two hour phone conversation the following afternoon to make sure I’d get paid for the time.) Did I mention that this was a corporate job and her English is swimming somewhere between broken and non-existent? I suspect she was using Google translate because revising her thoughts was like playing with a puzzle, and the message “Is it done yet?” grated on my nerves because I informed her precisely how long it would take and that I’d get it back to her by late Thursday evening EDT. It is all too easy not to want to do specific jobs after a while based on the treatment of clients that do not understand that not everything can be done in 60 seconds. It’s incredibly unrealistic to expect that, but it is what it is and I have the right to pick and choose the jobs I take, for that reason alone. I am excited to see what this new opportunity brings. I wish every opportunity was a prosperous one. Alas, many are not, so I do my job and move on. That’s all I can do, my best.

And now, despite all this back pain, I am off to tackle at least two loads of laundry since kitten has moved along. I suspect she will be back soon to thoroughly inspect all the clean linens I’ve put down since stripping my bed and quickly dashing downstairs to the laundry room (Cat has already given me a mixture of approval, disdain, and attitude.). Now if I could just find the perfect pillow…

The truth is, the evil never truly rest. 😛

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

This is crucial.
This is crucial.