Life
Triggers
December. My new month, chock full of triggers.
I woke up Thursday morning and didn’t know where I was. From the colors around me, to the sounds; I was completely and utterly disoriented. And then, it came crashing down on me in one fell swoop; it’s December 1st.
Last year, my life changed drastically on that very same Thursday morning. I worked hard to make sure the change wouldn’t come, but there are things outside our own power structure and oftentimes, we have to learn to adapt and try not to take painful tragedy personally. However, it was indeed tragic, it will forever remain personal, and it breaks pieces of my soul every day.
At the time I said I’d probably never discuss it, and I’m still not discussing it, not in its entirety. Perhaps, one day, in therapy, I will feel comfortable and safe enough to let chunks of pain out, but for now? No. There are some things that are personal; things you’ll carry with you, because they cut too fucking deep and, a year later, the memories continue to haunt you
I cannot tell anyone the last time I was truly happy, if ever there was a time, or even a moment of happiness. My life is very ordinary, and extremely unhappy. Write, edit, cook, clean, wash dishes, do laundry, shop for groceries. Lather, rinse, repeat. I sing when I cook, if I don’t have a migraine and happen to be in the mood for music. I even danced the other night while cooking, because the song was perfect. I couldn’t remember the last time I had danced around a kitchen and dining room. I take care of Cat and Kitten, because they love me unconditionally and would never intentionally harm me in any way. I have been constantly reminded that I’m “not someone’s mother”. In fact, this year I’ve constantly been reminded how little I matter to those in my life, and especially to those around me. Many people have stepped back (some permanently, others I let go of), but others have stepped up and in to my life in larger roles. I am immensely grateful to those who truly stand by me, even when I’m suffering, and don’t push. I am grateful to those who take the time to get to know you, because they genuinely want to know YOU, because they CARE. They show you your value by their words and actions. As I told a friend recently “Friendship is free.”, because it is. However, it is also an immense gift in times of good and bad. And if you’re dealing with horrible shit, you quickly learn who will stand by you and who will not.
I’m happy to say I’ve made some new friends this year, and managed to strengthen my long-term bonds into something richer and deeper than ever before. That makes me proud because I highly value my friendships. It’s nice to receive text messages that make you smile, or items in the mail that mean SO MUCH because it’s truly the thought behind the gesture. It’s nice when friends say “I wish you lived closer.”, because they mean it. I’m almost certain I’d be in jail if all of my friends lived within 1-4 miles of me. Perhaps that’s not such a bad thing, either. I might benefit from being on a first-name basis with more police officers. LOL.
I am trying hard to turn my triggers into positives by changing my reactions to days of the week, to numbers on the calendar, etc. It’s not easy, it will take time, but I am trying, and I give myself credit for the effort that takes.
So, while this will be a difficult month for me, I look forward to coming out the other side a stronger, smarter person who can look for the silver lining amongst the clouds.
copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Brain Problems
No, the title isn’t meant to indicate an actual health issue. Not that I’m aware of. However, Fibromyalgia Brain Fog, also commonly referred to as “Fibro Fog”, has really done a number on me this month. It was slowly progressing, but now I feel dumber than a box of rocks with twelve piles of shit on top. It’s scary, freakish, and makes me feel terrible about myself. Only another sufferer can truly understand how much pain this puts me in.
I know these are common daily occurrences for a lot of people who struggle with Fibromyalgia and other auto-immune diseases, but my incidents have been sporadic and easily managed, up until now. This weekend has pretty much brought me to my knees on the memory front. 😦
If you ask me about something from when I was two or three years old, I have complete recall of the entire moment. If you ask me why I tried putting black pepper in the freezer, I’ve got nothing. If I didn’t set the timer on the stove, I’d walk away from preparing meals and never go back (I ALWAYS set the timer, even if it’s just ten minutes, it’s loud enough to bring me back in order to focus.). I have to be 100% in whatever it is I am doing, otherwise I am going to end up cutting myself, burning myself, or forgetting what the hell I’m doing to begin with. There is nothing normal or acceptable about this.
To add insult to injury, I put notes on my phone as reminders for pretty much everything. I take this phone with me wherever I go, and yet, I still forget what the hell I’m reading and end up deleting at least 50% of the note before I’ve left most stores. It’s utterly pathetic. It’s also sad, because I’m tired of searching cabinets and the refrigerator/freezer for things I forgot to buy. I then add the missing items to next week’s list, only so the cycle can continue on in an ugly manner. I have to start each list with cat food and cat litter, otherwise it’s entirely possible I will forget one, the other, or both. This past weekend, I forgot the litter. The plus side, there’s 20 pounds of it sitting near the litter box from the weekend prior, so all I have to do is change the damn thing. The fact that I can even lift 20 pounds these days is miraculous to me. 😦
I think I would be better able to cope with this lack of brain function if I were over 75 and had achieved all of the things I set out to do with my life. I’d be able to say “Hey, I’ve lived longer than my parents. I’ve accomplished all of this. I’m simply getting older and forgetting things. It’s not the end of the world.” However, I’m nowhere near 75, not even close, and yet, my brain is suddenly turning to mush. I tried refrigerating herbs when I was cooking earlier (obviously, that’s not where they belong). As soon as I realized what I was doing, I nearly dropped all of them on the floor and burst into tears.
These incidents are made worse by the criticism of others. “Do you even have a fucking brain?”, I was asked earlier this month. “You really DO live in your own world.”, I was told the other day. These are things I’d never say out loud to someone I know is sick, leave alone healthy.
If you have someone in your life with an autoimmune disease/disorder that affects their brain function, I would like you to walk a hundred thousand miles in their shoes. I want you to spend 365 days in their body before making a single derogatory remark in their direction. Our ears are fine; we can fucking hear your offensive, rude negativity. However, if you don’t understand the illness itself, shut the fuck up. You’re not making the situation better, and how you treat someone is just as important as how you speak to them. Unfortunately, we live in a world where everyone wants respect, simply for existing, but they don’t realize their behavior is what garners respect. Moreover, we all express our feelings differently. I prefer to say a lot of things to people privately, eschewing public professions. Some people seem to have a deep-seated need for the public professions though, and it baffles me. Just because we live in a selfie-filled world doesn’t mean every single thing we want to say ought to be made public.
You can argue that by writing it, I’ve made it public, but here’s the thing; I didn’t name names. I rarely, if ever, do. I talk in code with my friends, we have our own private language, and I write in code a lot of the time, too. You get the gist of it, obviously, you just don’t have faces and names to attach to what I’m saying. It’s like reading a book. You get descriptions of characters, but you are left to your own devices as to what they might truly look like if you met them on the street.
So, even with my “brain problems”, I don’t have “writer problems”. Thank G-d and Goddess for that!
copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Silent Nausea
I’ve felt the need to be silent this past two weeks. There are millions of thoughts in my head, things I’ve love to put into a cohesive pattern, but I honestly cannot bring myself to do so. I’m physically, mentally, and emotionally too drained. I am sure many people feel the same way.
I will put everyone at ease; I don’t want to discuss politics. I hate every single election year. I’m sick of hearing a multitude of opinions on the radio, reading them online where horrific fights have broken out and people have ended friendships over differing opinions (or where families are fighting over who voted for this one or that one), hearing about it on TV, etc. I’m upset that children are terrified and scared about what all of this means for them, and that families feel as they do. I don’t care who anyone voted for, because that’s truly none of my business. I realize that roughly 46% of Americans may not have voted in this election. To each their own. It’s your right, your choice. I’m not going to judge it/you or discuss it. I’ve genuinely had enough of the subject. I’d like to be woken in four years. Subject closed.
Currently, my focus is on my health. I’m rarely afraid for myself, but something horrible is happening and there is seemingly no way for me to save myself this time. I’ve spent days crying and breaking down, and no one has noticed or said a word to me. It truly makes me feel invisible. Sometimes people get upset when they hear me say I’m “useless”, “worthless”, “invisible”, “barely existing”, and/or “a failure”. They don’t ask why I feel that way, they simply tell me I’m none of those things. They don’t get it, and that hurts.
I don’t have a lot of people to talk to about this sort of thing honestly and openly. Very few people want to hear what I have to say, and on the off-chance they do; they cannot relate to this level of anguish. I’m not very trusting, so I wouldn’t go to just anyone with my problems, either. People are extremely happy for me to listen to them, but it’s so rare to be listened to in kind. My own brother told me to “stop talking” earlier this week, because he couldn’t process what I was saying. That or he doesn’t believe me; I’m not entirely sure which it is. Clearly, we are ALL fighting our own battles. Some are worse than others. Compared to a lot of things I hear; my life isn’t that difficult. Many people have it far worse than I do. But my emotions? They’re so violently painful that there’s no way to wrap your head around that much hurt. It’s killing me silently, and no one sees it.
My stomach has been horribly painful for about a week now. I thought some tea would help a few days ago, but because I’m so wrapped up in the pain, I probably should not have been grating ginger. I nearly took a finger with me. 😦
When I feel like this I am often accused of “hiding”. What people don’t seem to realize is; I am so filled with pain that it’s for their protection, as well as mine. Instead of accusing someone who is hurting of “hiding”, I would think the healthier alternative would be to encourage them to be around people, or to at least not be locked up in a room as if they’re in a jail cell. 😦
Where the fuck do you meet “new people”?! A close friend and I have been debating this over and over because we’re both utterly clueless regarding this matter. We both agree that we like and prefer depth, not superficial bullshit, and drama-free individuals to spend our time with is a must; because neither of us has time for drama. It’s incredibly difficult to find people who are on the same wavelength as I am. Almost all of my close friends/best friends are people I met because of my work/writing. Every single one of them lives far away. I’ve been incredibly blessed to make life-long friends simply by doing whatever my job is at the time, and finding people through my work who respect and appreciate my ability to be real, without apology.
Genuine friendship is rare. Being able to trust another person is crucial. In the beginning of any friendship, trust is built. However, I’m starting to realize I have immense trust issues because I’ve been hurt & betrayed in the past. I try hard not to look at new people as potential betrayers. I’m simply hyper-aware of them. The one person I met this year that I instantly disliked ended up hurting someone I care about. The other person may eventually forgive, forget, and move forward, but I feel as though listening to my intuition is one of the most important things I can do in all situations. No matter how wonderful and fabulous someone is telling you another person is, take a thirty-second pause to really look at them and allow yourself to sense the truth. You’d be amazed at how important those thirty seconds are.
I’d rather have five solid friends than a dozen tarnished pennies. So, while not a social butterfly, I am 100% ride or die for my friends. However, when they made me they broke the mold. Rumor has it they also beat the hell out of the mold-maker, so don’t expect every person to be a dazzling creature such as myself. 😉 Use your intuition. I find it helps keep the nausea at bay.
I hope you all have a lovely weekend. I’ll be back soon.
copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
In A World That Wants You To Be Something Else
“In a world that wants you to be something else, simply have the courage to be beautiful, and let your heart’s unbridled truth flow and move upon each person you encounter. In one transformative quickening, you are freed from the tyranny of self-doubts, simply by seeing and acknowledging the treasure of your own soul. When you truly see yourself, it will be love at first sight. You are such fineness. There is such quality in your life. No substitute can ever compete with your matchless qualities. Every peace of mind you ever sought begins by forgiving yourself and loving yourself. It all starts with the way you see yourself. If you cannot see your own beauty, then you are not looking with honest eyes. If your life is not a love story, then you are not living the life meant for you.” —Bryant McGill
I Look Around
So Many People…
“So many people cover-up things within themselves. They smile when they really need to frown. They “laugh” nervously when they are uneasy and uncomfortable. They try to make it “all right” so everything can be “perfect” and “fine.” We do this to be accepted. We do this because people guilt us into acting perfect. We fake perfection, so others don’t have to experience any unpleasant realities, because their life is just as fake as ours.
If some people came into contact with anything real, they would be shocked out of their minds. This phony life builds up inside of you until one day you erupt like a volcano, and you don’t know why. But, some people don’t explode, they implode. They fake perfect until they disappear forever and become someone else’s version of who they “should” be. Either way it’s a total loss of life. You are lost because you have not been honest with yourself, and your life is largely unexamined and unexerted. You have to do some thinking and know who you are, and then you have to resist compromising your truth for the comfort of others.
Don’t intentionally be rude, but be you. Some people will see you as an asshole because they don’t understand honesty, integrity, and honoring ones’ self. Witnessing honesty frightens some people because they haven’t known authenticity in their own life. But really, your abrasion is the rub they may need to open themselves or at least cause them to think. In a world of sleep-walkers, an awakened mind is a teacher and a catalyst for new awakenings, whether they want to be or not. A moment of truth is very powerful.
Instead of smiling to be polite, frown. Instead of laughing when you are nervous or uncomfortable, speak your truth. Instead of acting like everything is all right, proclaim it isn’t all right, and talk about your feelings! Honor your truth. Honor yourself. Be real. If you can honor yourself and be real about your discomfort and pain, then your happiness will be just as real. If you can’t be real and firm with others about who you really are, you will be doomed to a phony, plastic bullshit existence, where you only live for others. When you are real you can move through what ails you, instead of being stuck there forever in some sort of “Pleasantville” hell.” —Bryant McGill
Written by LISA MARINO-Molchanova 