The Official Rules Of Lisa: Part One

fuckoff

Prior to the full moon, people are often lining up to start fights with me. If they aren’t outright starting fights (By the way, if you do attempt to start a fight via text message, e-mail, or Facebook messenger, you’re nothing more than a punk ass bitch.), they are rude, combative, or just plain bitchy. I don’t have time for that level of crap and I have even less time for drama, so I’ve made a list of official rules for people to understand my basically non-existent tolerance levels.

  • I am NOT a morning person. If you want to be met with sugary cheerfulness or anything more than a grunt or a mild “Good Morning.”, I am NOT your girl. Go to a bakery for the sugar. Come back around 5:00 PM when I am usually quite civilized.
  • When I have a migraine and you make any kind of noise within a half-foot radius of me, I have contemplated killing you and/or throwing heavy objects in your general direction. Blasting music or the radio at decibel levels that match a whale (Google it.), vacuuming, slamming doors, raising your voice, cooking or preparing anything with a strong smell, fucking with the temperature so I can’t breathe, etc., is pushing my buttons. Every single sound is like a freight train moving through my skull (Even my cats’ purrs nauseate me, and I LOVE them to bits.) and you’re not helping matters. I may not have killed you yet, but I’m thinking about it long and hard. I’ve already prepared my insanity plea.
  • When I am in physical agony due to a Fibromyalgia flare-up, which, much like a migraine, is completely out of my control, please don’t ask me how my day was when you can see the pain etched on my face. If I have managed to get out of bed and cook a meal, realize the gift that is and don’t yap at me. Take insane demands somewhere else until I am no longer suffering the effects of brain fog and can lance you with the truth, as opposed to your version of the truth.
  • I internally laugh out loud (Okay, I cackle with laughter.) when people offer to cook for me. Honestly! Order a pizza because I am silently judging you for not being as good a cook as I am. Yes, this might make me a terrible person (I don’t care if it does, really. Hell and I are well acquainted and Lucifer has an iron-clad restraining order.), but I hate eating things I can’t taste or that have questionable ingredients in them. It drives me insane. It’s nice of you to offer, but let’s not joke about serious matters. #FoodieThatCooks
  • If I am having difficulties sleeping, do we really need to point out the obvious? No, we do not. Insomnia is not a choice. Keep it moving.
  • I am direct and honest about what I suffer from and to what extent. Don’t ever question it. It’s not on the table for discussion, EVER. I’d never question someone saying they weren’t feeling well because quite frankly, it’s fucking rude. I’ve never said “It’s just laryngitis. You’re fine.” or “It’s just a cold, get over yourself.”
  • I’ve NEVER used a migraine as an excuse to not do something. I have NEVER used Fibromyalgia as an excuse not to do something. Are they legitimate reasons I cannot function a great deal of the time? Yes, but they are not “excuses”. If you insinuate such, there is something fundamentally wrong with you. Live in my shoes for six months, suffer this pain every single day, and we’ll see who’s making excuses then, okay?
  • Precisely WHO do you think you’re screwing with?!
  • Sometimes people develop verbal diarrhea. Bottled up craziness comes flying out of their mouth, as you watch on in morbid disbelief. You’re not sure whether to get a hose and clean them off or to just let them spew like a psychopath. If you behave this way around me and I walk away, you’re not “winning the argument”, because there isn’t one. I’m not “hiding from you”, either. I am choosing to be the adult and walk away until you have showered away your psychosis because murder is still illegal in this country and orange is NOT the new black.
  • Interestingly enough, the people who tend to behave like this are also the same people who never hear the crap they say to you. They are “perfect”, “innocent”, and “absolute angels”; according to them. They’re full of kindness and compassion. They’re full of something all right, but it’s neither kindness nor compassion. Save your raging vitriol for therapy because I will not accept that kind of treatment. I don’t care who you think you are.
  • One of my official rules is that I am supremely loyal, until you do something to terminate that loyalty. If you’re talking about me behind my back, verbalizing issues you have regarding me without speaking to me first (Venting is one thing, but NOT when it gets back to me.), or you’ve gone as far as to put those words in print, thinking I won’t find out about it; THINK AGAIN. The CIA’s got NOTHING on a Scorpio woman. I have ways of finding things out that will downright terrify you.
  • Don’t say things you cannot take back. I’m listening, and there are a lot of things I will NEVER be able to un-hear because they’re unforgivable. In the heat of the moment we have all said something unpleasant, rude, or wrong to someone else, usually a loved one. One of the things I respect about myself is my ability to apologize when I hear how I sound, which is usually quickly. If you cannot accept an apology, which is a basic human response that says “Hey, I’m not perfect either.”, then there’s something wrong with you. #1- We’re not all psychotically obsessive compulsive about the small stuff and #2- You have no right to judge me unless you are 1000% flawless. No one is, not a single living being on this planet, so accept the apology like a human-being. You’re not a flawless diamond, and neither am I.
  • Being truly genuine is rare, but it’s precisely how I am. I don’t need a pat on the back for doing something nice, or for doing the right thing(s). I simply do them. If you are keeping score, doing something nice only to throw it back in someone’s face at a later date, or anything else that is blatantly disingenuous, then do everyone a favor and don’t do anything because it is immensely hurtful to have anyone try to keep score like that. If you’re heartless, by all means, keep on being heartless. It’s your prerogative. I’ll pray for you.
  • The world doesn’t revolve around you, or me.
  • If you are going to be fake, please don’t do it around me. I don’t have the time, patience, or the inclination to be phony. Life is short, and it’s getting shorter every minute.
  • If you’re angry about something, USE YOUR WORDS. Being violent (ie: Throwing things at people) and nasty (verbally) isn’t acceptable when you’re a toddler, so why should it be acceptable for an adult?
  • I do not forgive the unforgivable. I find that incredibly unhealthy. And I NEVER forget. That’s not stupid, that’s wisdom.
  • If you want respect, try giving it. It’s something that has to be earned.
  • My personality is different from pretty much anyone you’ve ever known; as it should be. Dry wit is not rude or sarcastic. If I’m being sarcastic, I’ll be the first to say so, but don’t assume that everything I think or say is sarcastic or rude. If you cannot appreciate my presence or sense of humor; by all means, fuck off.
  • I don’t have to be YOU in order to live my life. Once again, life is short. I’m seeking happiness, not another source of abuse.
  • Communicate. Appreciate. Validate. And stop being a bitch/asshole. It’s unattractive.

copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

New Research Sheds Light On Mysterious Fibromyalgia Pain

New research sheds light on mysterious fibromyalgia pain

What The Hell Was I Thinking?!

500-percent

Last month, a client booked me for the first two weeks of September. Upon receiving her manuscript two and a half weeks early (She genuinely seemed to think that was okay.), I put my foot down and said I would not start until September 5th since she had not booked an earlier spot. She, surprisingly, agreed. I’m not being paid enough to do all that she’s demanding, and I mean it when I say the list keeps growing, but I made a commitment and I’ll honor it. Pray for my eyeballs and back, please. You know where I’ll be for the next two weeks. 😦

Normally I don’t mind proofreading and providing notes for someone, but this time I realize it’s the money that’s insulting me. It’s not befitting of my experience and what I bring to the table. The client  hired nine other people, along with me. In my opinion I find it more cohesive to work with one proofreader. Conflicting thoughts and opinions is best left for your beta readers, not a proofreader. Demanding pages upon pages of notes when you’re not even paying my hourly rate for the entire job is enough to enrage me. However, it’s 100% my fault. I agreed to do it, knowing in advance that the money might cover 26 cans of cat food or a tiny amount of food for a human. Oh, how the mighty have fallen. 😦

If you’re an inexperienced high school or college student, this would be a little play money or Ramen noodle money for you. For an experienced adult, it is insulting, but again, 100% my fault. I have no room to complain or bitch, despite doing so, because I agreed to do it knowing what was involved, partially. Please, someone schedule me for a brain MRI, stat. I want to make sure it’s still in there.

thebesttherapist

I am in the midst of a week-long flare-up, after spending less than a week walking over fifteen miles. That’s nothing for most people; fifteen miles. They don’t even know they walk approximately ten miles a day (this is considered the national average of walking a person does daily, but a lot of my friends have told me they do the bare minimum, which means I actually move more than they do!), but for a Fibromyalgia patient, walking fifteen miles over the course of five days is the equivalent of running a marathon or winning Olympic Gold. It’s impossibly painful at this advanced stage, and yet I somehow managed it. I have yet to claim my reward. 😉

Between migraines and the pain in my back; I’ve found it immensely difficult to sleep. I’m struggling with my allergies as well, so all of these things keep me awake when I want to be asleep and make me sleepy when I want to be awake. Melatonin and/or my allergy meds have provided up to 12 straight hours of sleep some days. My body always goes through this before the Fall Equinox, but a lot of this began in August, so anyone who thinks Global Warming is a joke is wrong.

And so, I sit here on Labor Day, isolated from the world. I’ve felt alone most of my life, truly alone, but this year it’s worse. There’s no one to watch baseball with. There’s no one to ask if I am making hot dogs or hamburgers, if I’m making fries, or inquire as to whether or not I got pie. Being intentionally isolated by family and friends is incredibly hurtful, but feeling like I have to withdraw even harder to keep myself in tact is worse.

I have spoken to one friend via Facebook messenger, another via e-mail, and received a few text messages inquiring about my health. The only genuine concern I’ve received today, the only genuine love, has been from Cat and Kitten. Of course, Kittens’s love is a continuous thing, growing each day. She chooses to spend time with me when she could be off doing silly cat things or sleeping. Cat, not so much. She has been better these past few days; bringing me toys and giving affection. She is being sweet, which is her general disposition. Perhaps she has felt much as I’ve felt these many months; unhappy. The only difference is, she is given love and care every single day. I’ve never abandoned her. I’m allowed to feel less than human, and what’s worse, I’ve been told I am less than human. It’s a wonder I haven’t killed anyone yet.

Ultimately, there are worse things in life than someone trying to be cruel and failing. There are people who have lost their homes and everything they own due to floods and fires, there are people who are homeless through no fault of their own, people who have died or been injured in earthquakes, and there are people who are sick and dying because no one gives a damn. “Band-Aids don’t fix bullet holes.”; this is one of the most honest phrases ever written and yet, I have continually found it to be true. Far too many people think a politely worded lie will mend the damage done. I’m certain I live in a world where things get more bizarre by the day.

If you are in the States, I wish you a happy unofficial end to the summer. If you’re not here, be glad, for we’ve got a maniac running for President and crazy shit happening on the daily. Nothing is as simple as it seems. Nothing is ever so cut and dried.

I, for one, will be glad to see this day end, and hopefully everyone dealing with the remnants of the tropical storm is safe and sound.

Merry meet, merry part, and merry meet again. 🙂

copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Life is short. Make a fucking effort.

10 Things A Person Should Avoid Doing If You Have Fibromyalgia

10 Things a person should avoid doing if you have fibromyalgia

Some of this is good advice for the newly diagnosed, and the rest is a good reminder on a whole for those of us who’ve been battling longer.