“You’re not a failure until you stop trying. If you have no other testimony you have this one: “I’m still here.” –Unknown
Unfortunately, sometimes we fail no matter how hard we try. And to be quite honest, I’m tired of the whole “I’m still here” part. Damn tired of it. 😦
Thursday is Thanksgiving here in the United States. There is much history behind this holiday (I currently live in Massachusetts and you can’t escape people talking about spending the holiday in Plymouth. I’ve never spent Thanksgiving at a restaurant; I’ve always participated among family, cooked it myself, etc.), but for me, especially this year, this is the first Thanksgiving where I’ll be completely without my brother.
He was just released from the hospital once again. He’s SO sick, and while I am thankful and grateful that he is alive, I am exceptionally upset that he isn’t in a good situation and is so far away. It makes me ill. The fact that the medicine he needs for his heart and lungs is more expensive than I can handle is also too much for me emotionally. I want to help him, to fix the situation and the problems, but I can’t fix every problem he presents me with. It kills me. You are only given so many people in a life and I have been given one living brother. Not helping when he asks (or doesn’t ask) is to be a lower life form. I can’t be like that. I stand up as much as humanly possible.
I have much to be thankful for this year. I am thankful for what little in my life is mine. I’m grateful for the roof over my head, clothes, food, Cat and Kitten, my friends, and family. However, I’m also pissed off.
This has been an extremely painful year for me. I don’t know when it gets easier, or if it ever does, but I hope and pray that the coming year (and years) won’t wreck me like the previous dozen, or so, have. I’m a human-being, I’m imperfect, my feelings are real, and valid, and in 2017, I’d like to break out of this horrible shell I am in and be reborn in some way.
For the past six months or so, I’ve been experiencing bouts of Fibro Fog that are terrifying. I’ve done so many bizarre things that I’d never normally do if I was at 100% capacity (like trying to put black pepper in the freezer). For over seven months, I’ve been experiencing blackouts where I cannot account for my time. I’m not passing out and waking up on the side of the road or anything, and I’m lucky that they are no longer happening daily, but there are far too many days where I look at the clock and it’s 9:00 a.m. and the next thing I know, it’s 4:00 PM and I couldn’t tell you where my day went if you paid me a million dollars. These are not normal things for anyone, leave alone me. I stopped talking about these episodes with friends and family because no one seemed that interested or concerned, but I’m walking around on auto-pilot and I have no idea how I get from point A to point B most days. It’s scary and it’s completely unlike me.
This year, Thanksgiving will lack all forms of tradition. The only “tradition” I’ll be bringing to the table is a 40+ year old recipe for stuffing. In my entire life, I’ve only eaten one other type of stuffing and it paled in comparison to my Mom’s. However, to highlight my Fibro Fog I have to say I’m embarrassed and mortified that I remembered all of the ingredients for the stuffing, but once I hit store #3 on Sunday, I realized I never purchased the actual stuffing, herbs, or a turkey pan for it. I tend to make stuffing the night before, that way it’s perfect Thanksgiving Day (and only takes a little while to heat up). It also helps me pace myself because making it involves a lot of vegetable chopping and ingredient play. However, I am happy to make it and enjoy that piece of my Mom that she passed on to me; the ability to cook and cook well (In fairness, I did inherit other things from her, for which I am also eternally grateful.).
So yeah, lots of sadness at the moment. I’m praying I will somehow be able to come through for my brother, and as it has been nearly a year since I’ve seen him (Unheard of!), I am hoping & praying I will be able to see him next month. I have learned this year that the person who knows me best is my brother (only regarding certain things, not all things). Part of me finds that exceptionally sad, and the other part thinks it’s extremely fitting.
Wishing everyone, in advance, a wonderful start to the holiday season. You don’t have to be American to appreciate that sentiment.
Be safe, everyone!
copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
“True friends are like diamonds, precious and rare. False friends are like leaves, found everywhere.” –Unknown
I had a woman blatantly attack me about “not wanting to be cured” and “enjoying my pain” because I knew she was trying to scam people, and called her out on it. Her claims of curing herself with things I’ve already done was enough to enrage me after a few hours. Thankfully, others asked her for scientific evidence and medical evidence that she was indeed cured. Her answer? “None of you want to be cured. Enjoy your pain! I have a GREAT life now.”
If you truly want to help people; you don’t spew nonsense, attack, or say vile things to them.
Fibromyalgia is progressive. I wish I had focused more on that when I was initially diagnosed as opposed to thinking “It’s not Lupus. Thank you, G-d.” Today, in the darkness of mourning someone, I wish I knew 100% that it’s ONLY Fibromyalgia. I don’t believe it is; not any more. Here’s hoping I find out soon. 😦
I’ve felt the need to be silent this past two weeks. There are millions of thoughts in my head, things I’ve love to put into a cohesive pattern, but I honestly cannot bring myself to do so. I’m physically, mentally, and emotionally too drained. I am sure many people feel the same way.
I will put everyone at ease; I don’t want to discuss politics. I hate every single election year. I’m sick of hearing a multitude of opinions on the radio, reading them online where horrific fights have broken out and people have ended friendships over differing opinions (or where families are fighting over who voted for this one or that one), hearing about it on TV, etc. I’m upset that children are terrified and scared about what all of this means for them, and that families feel as they do. I don’t care who anyone voted for, because that’s truly none of my business. I realize that roughly 46% of Americans may not have voted in this election. To each their own. It’s your right, your choice. I’m not going to judge it/you or discuss it. I’ve genuinely had enough of the subject. I’d like to be woken in four years. Subject closed.
Currently, my focus is on my health. I’m rarely afraid for myself, but something horrible is happening and there is seemingly no way for me to save myself this time. I’ve spent days crying and breaking down, and no one has noticed or said a word to me. It truly makes me feel invisible. Sometimes people get upset when they hear me say I’m “useless”, “worthless”, “invisible”, “barely existing”, and/or “a failure”. They don’t ask why I feel that way, they simply tell me I’m none of those things. They don’t get it, and that hurts.
I don’t have a lot of people to talk to about this sort of thing honestly and openly. Very few people want to hear what I have to say, and on the off-chance they do; they cannot relate to this level of anguish. I’m not very trusting, so I wouldn’t go to just anyone with my problems, either. People are extremely happy for me to listen to them, but it’s so rare to be listened to in kind. My own brother told me to “stop talking” earlier this week, because he couldn’t process what I was saying. That or he doesn’t believe me; I’m not entirely sure which it is. Clearly, we are ALL fighting our own battles. Some are worse than others. Compared to a lot of things I hear; my life isn’t that difficult. Many people have it far worse than I do. But my emotions? They’re so violently painful that there’s no way to wrap your head around that much hurt. It’s killing me silently, and no one sees it.
My stomach has been horribly painful for about a week now. I thought some tea would help a few days ago, but because I’m so wrapped up in the pain, I probably should not have been grating ginger. I nearly took a finger with me. 😦
When I feel like this I am often accused of “hiding”. What people don’t seem to realize is; I am so filled with pain that it’s for their protection, as well as mine. Instead of accusing someone who is hurting of “hiding”, I would think the healthier alternative would be to encourage them to be around people, or to at least not be locked up in a room as if they’re in a jail cell. 😦
Where the fuck do you meet “new people”?! A close friend and I have been debating this over and over because we’re both utterly clueless regarding this matter. We both agree that we like and prefer depth, not superficial bullshit, and drama-free individuals to spend our time with is a must; because neither of us has time for drama. It’s incredibly difficult to find people who are on the same wavelength as I am. Almost all of my close friends/best friends are people I met because of my work/writing. Every single one of them lives far away. I’ve been incredibly blessed to make life-long friends simply by doing whatever my job is at the time, and finding people through my work who respect and appreciate my ability to be real, without apology.
Genuine friendship is rare. Being able to trust another person is crucial. In the beginning of any friendship, trust is built. However, I’m starting to realize I have immense trust issues because I’ve been hurt & betrayed in the past. I try hard not to look at new people as potential betrayers. I’m simply hyper-aware of them. The one person I met this year that I instantly disliked ended up hurting someone I care about. The other person may eventually forgive, forget, and move forward, but I feel as though listening to my intuition is one of the most important things I can do in all situations. No matter how wonderful and fabulous someone is telling you another person is, take a thirty-second pause to really look at them and allow yourself to sense the truth. You’d be amazed at how important those thirty seconds are.
I’d rather have five solid friends than a dozen tarnished pennies. So, while not a social butterfly, I am 100% ride or die for my friends. However, when they made me they broke the mold. Rumor has it they also beat the hell out of the mold-maker, so don’t expect every person to be a dazzling creature such as myself. 😉 Use your intuition. I find it helps keep the nausea at bay.
I hope you all have a lovely weekend. I’ll be back soon.
copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
