WTF Moments & Pushing The Body

iwill

At 4:00 this morning, I thought someone was trying to break into my house. That is precisely how much noise an almost two-year old cat was making in her attempt to climb something, simply to give Mommy the cat version of a middle finger. She scared the crap out of me. I had thirty seconds to decide whether or not to go for a weapon. When I saw her sitting at the top of her destination, all noise has ceased, all I could do was shake my head (Don’t get me wrong, I was PISSED.), crawl from one point of origin to another, and after an hour, I realized sleep was not going to happen, but I was not about to cave and feed them at 5:00 a.m. either, no matter how many times kitten looked at me pathetically and walked me in the direction of the kitchen, as if I am slow and don’t know how to get there on my own. What is it about cats that make us question our own sense of direction? Do your animals accompany you to the kitchen too?

Kitten ate when I got home later than usual last night, but she licked her plate clean. Cat ate maybe six bites in total and ignored me for the rest of the evening. She clearly had other interests and apparently food was not on the agenda. She came to visit me when I was getting ready for bed so that she could get cuddles, kisses, and praise, but truly, she’s become so picky about food that I am considering A) A raw cat diet or B) Cooking for them myself. Both sound insane, I know, but I was reading an article and this women talked about how, by buying meat in bulk at Costco, BJ’s, or Sam’s Club, she feeds multiple cats for less than $5 a week. That is unbelievable, and quite savvy. I’m not sure about all of the supplements she talked about adding, but I clearly understand the meat she uses. That’s not complicated, though it could be if you are spending hours doing nothing but cooking for two cats. However, if it will prolong their lives and make them healthier inside and out, it’s an investment in their future. She talked about how the diet change has reduced vet visits, etc. It’s certainly an interesting concept. It sounded as though all the meals could be prepared once every two weeks, in advance, by freezing them. Again, that reduces how much physical labor you’re putting into it. Technically you could set aside a few hours and do it, the same as you would for yourself. If I do decide to go this route, I will mention it and whether or not it works for me and the littles.

handsup

As for me… I did way too much yesterday and I hurt like HELL. From my neck to my toes, I am moving like a hunchback. If the makers of Aleve knew exactly how much of their product I’d taken between late last evening and this morning, they’d be asking me to sign a waiver, absolving them of any and all responsibility. #HealthcareSucks

When I got home last night I put everything away, changed my clothes, washed my face twice (that may sound like overkill, but the first time I was removing makeup, which I did with the help of a wipe. The second time I was making sure my face was completely clean by traditional methods.), and was relieved not to be out in the humidity that a very popular meteorologist claimed was “92 degrees with 80 percent humidity”. BULL-FUCKING-SHIT. From one channel/station to another, be it radio or television, everyone was reporting different temperatures and humidity. One media outlet, in the very same area, said it was closer to 100 degrees with 100 percent humidity. That sounds about right. It was a physical slap to be outside in heat so thick, you could barely breathe. Even if you’ve never had a breathing problem in your life (like me), you walked away from yesterday with some sort of cough or breathing problem. For several hours I thought I was going to be violently sick, pass out from heat exhaustion, or fall and be run over by a car. Even with a large bottle of water with me, there was no amount that would have been “enough”. I also got caught in a heavy thunderstorm with ground to sky lightning. The rain was much more intense than the storm itself and today, more storms, more rain. That’s okay though because underneath my vampire pale skin, I am pretty sure I look like multiple trucks have hit me and then backed over my body. There’s got to be a different way to say “I feel like I’m battered and bruised internally.” However, that is often what Fibromyalgia feels like when you push your body too hard. Alas, shit’s gotta get done and I’m a one woman show.

Today I get to rest. I even went back to sleep and slept soundly, which is surprising, but I’m glad I got that extra few hours. Tomorrow I have phone calls to make and other things to tackle, but all in all, I am going to breathe. There are only 24 hours in a day and none of us are Superwoman. I, however, am not giving back the cape. 😉

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

11873661_944751535592024_1384063695555339625_n

 

 

This Week Is Over

11870915_10153560282319588_4300115884403395350_n

I’ve had yet another rough, stressful week. I am emotionally exhausted. I’m also in pain that no one should have to be in. In an ideal world, I’d be able to curl up this weekend and not have to face anything until next weekend. No, I’m not delusional, I’ve just had enough.

I am sitting here nursing green tea. I don’t feel well. I woke up with a myriad of health issues. I went to bed in pain, needing Aleve to fall asleep in a state of slightly less pain, but since I forgot to take the medicine that protects my stomach from NSAID use, I’m paying for it.

Upon inspection this morning, I found two chemical burns on the back of my neck. I’m not 100% certain of the cause, but I have my suspicions. One stings, the other is seemingly in the healing phase. I hope they’ll look better tomorrow because the last thing I want to do is be seen in public with what looks like brand marks. Note to self: Must find Aquaphor. How do you cover the back of your neck in August when your hair isn’t as long as it used to be and you normally wear it up? #GirlProblems

Due to the crazy influx of migraines over the last few weeks, I began taking Topamax this morning. I’ve been off of it for three years, so I am hoping it will help prevent some of what I am experiencing. If not, I will have at least made an effort and will know that another treatment method must be found. It is better to try than to dismiss something that has worked so well for me in the past. Today is the start of a month on 25 mgs. Here’s hoping it does more than make carbonated drinks taste funny.

Was anyone able to see the meteor shower? I looked for about 30 minutes last night and all I saw were a few constellations. I couldn’t keep looking, so I went to bed. I’m betting all the fun started the second my head hit the pillow. I’ve only seen a few photos from earlier in the week.

I hope I will be able to concentrate on the shit I need to do over the next few days. I want to get as much work done as humanly possible. I haven’t been able to focus on a large page count with any regularity, but I am certainly trying. All one can do is their best. If that’s not good enough for someone, tough shit.

Summer is nearly over, and soon it will be Fall in the Northern Hemisphere. It’s my favorite time of year. The nights are already getting a bit cooler, but there’s something about the crispness of October air that rejuvenates my spirit.

Wishing you all a wonderful weekend.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED. 

buttwiggle

 

 

 

 

How Did Your Day Go Yesterday?

FYI: My hair isn't a mess, but I am in my PJ's.
FYI: My hair isn’t a mess, but I am in my PJ’s.

The best laid plans. 😦

I was in so much pain yesterday that I decided a “quick nap” was in order around 1:00 PM. We will not discuss that I slept way too long. In turn, I didn’t get any editing done. I fed cat and kitten because they were both staring at me pathetically, doing tricks, and bringing me toys as if they were forgotten street urchins. Meows and chirps were also involved. Mind you, they had full bowls of dry food, they simply like the can opening routine. After that I made sure my laundry was dry (Towels and bath sheets are screwing with me lately when they are normally dry in 40 minutes. It now takes an additional 10-20 minutes for them to be thoroughly dry. Perhaps I need to put them on a second spin cycle before drying from now on?), and then a migraine took me down, thus resulting in me retreating to bed at 9:04 PM. That was migraine #11. This morning, migraine #12 decided to pay me a visit. FML.

I am sitting here contemplating how bad the headache is (Can I clean my microwave and fridge without puking? Can I strip my bed and wash all of the linens without falling down the stairs from the newfound vertigo? Should I wait before I shower so I don’t hit my head and pass out?) because I still have things that need to get done. Essentially, these are all things that can wait until this passes (Please God, let it pass. I have exactly one Excedrin Tension Headache left and it is sold out in four different stores, including the generic version. WTH?!), but I really don’t want to “take a nap” and pray that I’ll be okay later on because migraines are fickle bastards and I am not in control of how long they stick around. 😦 I also wanted to do something fun because learning new things is a positive thing, but I don’t know if I can stomach that at the moment. When I’m in pain, i don’t have a lot of patience for minutia. When I’m not in pain I don’t have a lot of patience, so it is what it is.

I remember a time when Saturday was an enjoyable time to sleep in, do something fun in the afternoon, and leisurely enjoy the weekend to the fullest. Apparently that’s in the past for now, but I long for the days when the pain is gone and I can live my life without scheduling every last detail around migraines or Fibromyalgia.

Here’s hoping & praying there are cures in sight, or at the very least, reliable forms of treatment.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

tumblr_n4t07mLt4h1taw2zdo1_500

Friday, How I’ve Missed You

I don't feel or think all of these things, but I know many people who do.
I don’t feel or think all of these things, but I know many people who do.

I have come to cherish my weekends like a newborn baby. The arrival of Friday makes me feel less guilty about self-care. This week in particular, I need it.

Early yesterday evening, I had a coughing fit come out of nowhere. In the midst of said coughing fit, I felt something in my upper spine pop. The sound resounded through the room. My immediate thought was “This is NOT good.” Already in a pretty harsh Fibro flare, I did NOT want or need to add to the pain I was already in. My brain kept saying “I can’t believe you hurt yourself coughing! Why can’t you have a more interesting way of causing your body excruciating pain?!” 😦 Don’t worry, I shut that fucker up.

Less than an hour or so later, I was in bed. On top of being exhausted, I could already feel that this sudden pop was going to make things worse for me for a few days. As I sit here writing this, the pain has escalated immensely between 6:45 last night and now. Moving my neck too much is completely out of the question. I’m contemplating Icy Hot. I already took over-the-counter pain medication, whatever good that will do, but I’d rather attempt to treat it as opposed to doing nothing at all. I know it’s going to be achy and sore for a few days. I just need to allow myself proper rest so that it doesn’t get worse.

ifanationI had planned on getting some editing done today. I have decided to limit it to a chapter once my neck loosens up and isn’t screaming in agony. Hell, I’ll do two chapters if I feel okay, but no more than that because I don’t want all that sitting and neck movement to aggravate this and make it worse than it already is, and it’s pretty fucking bad. If I feel better tomorrow, I can do another 2-3 chapters and so on. Hopefully that means I will finally rid myself of this nightmare manuscript, for good. It’s a first edit of a fourth draft. I suspect it will need 2-3 additional rounds of editing, but if I am asked to do additional work on it, I absolutely MUST price it better because it’s tormented me from day one and explaining that to my client in a nice way is -cough- difficult because this client isn’t a very good listener.

If you’ve never been edited before and you’re worried about how long it takes, not understanding the editing process and how thorough I am, then think about how long it took you to write it. If you tell me “I wrote this in three months.”, I already know it’s going to be full of issues. This manuscript is full of issues, and it is also one of the reasons that I want to focus on my work, which probably does have some issues in it, but if nothing else, it is predominantly clean and flows beautifully. I know this because I’ve been writing it for five years. I also know it flows beautifully because the last time I read it, I was so caught up in the story, I forgot that I was the writer. Color me impressed. 🙂

dragon

I didn’t get a lot of sleep last night, but I did sleep. I was unable to take the 9:00 a.m. nap I thought about yesterday morning, mostly because I was in a lot of pain, have a lot on my mind, and couldn’t get comfortable. On the plus side, I did fall asleep pretty quickly last night and I slept soundly for nearly three hours before I heard my phone buzzing. If I don’t leave it on vibrate, any ringtone will make me come right out of my skin or it will make me yell at whomever is calling. After listening to the other person for damn near 30 minutes, I practically growled and hung up. It’s not wise to talk to me after a certain time when I’m A) Still in sleep mode and B) Hungry. It’s like trying to negotiate a ceasefire with a dragon. I’m not exaggerating, I’m aware when I am unpleasant.

Do you have anything special planned this weekend? Do you feel guilty when you have to prioritize your health over the demands of others? Let me know in the comments.

Have a safe, pain-free, pleasant weekend. If it can’t be all three, aim for one positive thing.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

cat1

Pain Levels

I’m sitting here, minding my own business, and my pain levels shot from a 4 to a solid 15 in just a few minutes. Has this happened to anyone else out of nowhere?

Not being in complete control of your own body is HELL. I cannot see past the blinding pain that starts in my neck and spreads down the body, right into my toes. It’s terrifying and nauseating. The strongest thing I have to “fight” this is two Aleve. Yeah, I know. I might as well just call in dead.

No one should have to live like this, except maybe Hitler, members of the Taliban, religious extremists, and terrorists. Give me a few hours, I can probably think of other people to add to the list.

I am off to procure Benadryl cream for the “itch that refuses to stop”. It’s only my eye… It’s not like I need it or anything. <rolls eyes>

Is a 9:00 a.m. nap completely pathetic? I am sending someone an e-mail to wake me at a reasonable hour. This shit has GOT to stop!

Pissed Off, Pained, & Frustrated,

L

Sleep, Pain, & Stress

11659377_1134576666559706_907401349939628942_n

Sleep doesn’t come easily for me these days. In fact, I often wonder how long I can function without sleep. Seemingly I can only sleep when I’m sick, upset, or exhausted beyond words. No one likes wasting time staring at the ceiling. Tossing and turning for hours is overrated and I’m not going to do it.

Over the weekend, in the midst of two straight days of research, I kept waking up to write additional notes. I already had about 40 pages of thorough, detailed notes. Apparently I am an overachieving planner. If I had a question, I immediately consulted my phone for the info so I could jot it down. If I had a new thought or idea, I got out of bed and consulted the appropriate chapter in the notebook I am using. It was in those brief moments where I realized that it wasn’t just lack of sleep, but OCD (Obsessive Compulsive Disorder) rearing its ugly head.

I’m not one to joke about things of that nature, but I am quick enough to see the signs within myself. It’s not textbook, it’s obsessively writing notes and planning, and there are other things I’ve been doing lately that are simply not me, but are happening just the same. If you’ve experienced repetitive forms of trauma in your life, especially when they haven’t been treated properly, or at all, other things can start surfacing.

OCD in varying degrees runs in my family. I used to think my Grandmother was nuts, always checking the stove to make sure the gas was off, even if she hadn’t used it, and making sure that every window was locked before leaving the house, even if she hadn’t opened them. It drove me insane, but now I see I have things I do before I leave the house that are similar. I don’t check my stove or windows religiously, but do I lock the door a certain way? Yes. Are there other things I do each day that come across as OCD in nature? Yes. I’ve never seen them as anything other than faith, cleaning, or “it’s better to be safe than sorry”, but now I am starting to see it for what it truly is There is no doubt in mind.

I have a ‘before bed’ routine that I’ve always considered ‘good skin care’ and/or ‘good hygiene’ as opposed to ‘ritual’. Most people simply go to bed. I spend at least 30-120 minutes “getting ready for bed”.

Last night I decided no computer, no e-mail, no reading, no checking my phone. Absolutely NO wasting time. I did one part of the ‘before bed’ routine, recycled a bottle of mouthwash, and got into bed. No muss, no fuss. I fell asleep once it was quiet and my brain was able to shut the hell up. Unfortunately, I went to bed a little too early, because here I sit, and it’s not even 5:15 a.m EDT. No sane person wants to get up at 4:00 in the morning unless they have to be somewhere. I thought it was later than it was, but it’s not. In my attempt to get a healthy amount of “normal” sleep, I ended up confusing my body, myself, and cat and kitten, who both think it’s breakfast time because that’s what I do when I wake up in the morning; I prioritize their immediate needs. The birds are chirping, so other living beings are awake, but all I can do is sit here in a panicked state.

I woke up from a nightmare and it’s stressing me out. After checking the time, refilling water bowls, checking the thermostat (It’s unbelievably hot in here, but the thermostat says 64 degrees. Yeah, I’m not buying it either!) and making sure that dry food in readily available to my little ladies, I returned to my room and turned my computer on for the first time in well over 15 hours.

In my attempt to decompress and de-stress, I am trying to be on the computer during daylight hours only. By 7:00 PM, the only way I’m going to check e-mail is via my tablet. Nothing is SO important that it cannot wait. The app for my phone that allows me to check e-mail is also turned off, so even if I wanted to check or sneak a peek at incoming messages, I’m intentionally not allowing myself to read them. I started implementing this a few days ago to see if I could disengage. I know it will eventually allow me to sleep better at night.

11698745_10153730563044523_6505771473788598746_n

Pain, the constant ‘companion’ that is Fibromyalgia has been both restless and lurking beneath the surface, flaring up at inconvenient moments that cause me to get into bed for no apparent reason in the middle of the day, thus insuring I will not be able to sleep at night. I’d gone a few days without taking OTC pain medication of any kind, but I am still in pain. My body still hurts. My muscles scream for pain relief. And my allergies are so bad, it’s hard to function without wanting to rip my skin off. My face has only recently stopped burning. My eyes, however, are driving me insane and I am pretty sure my nails have scratched a path from the middle of one hand to below my wrist. My eye drops are not working and the Benadryl cream I’ve used is a temporary fix, at best. 😦

I wish I had something incredibly thought-provoking or witty to interject with, but I don’t. I have no pearls of wisdom to share, not even a splash of humor. I’m stunned into silence, unhappy in ways I cannot communicate. One of the worst parts of unhappiness is knowing that there are people who relish in your misery. They drink it as if it’s their morning coffee, because it makes them feel better about their own lives. It’s so negative and evil that the thought makes me sick. But I can handle assholes. In fact, I can handle everything I don’t believe I can handle. I just wish I remembered why I have to keep handling it at all. 😦

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

damaged

Plagued

beinginpain

I’ve been plagued by pain in so many ways over the last week and a half, that I really haven’t been able to finish anything I’ve started to write. Work, at the moment, is that thing I should be doing, but can’t because sitting here for 5-12 hours editing is excruciatingly painful. I won’t lie; I feel a tremendous amount of guilt over it. I shouldn’t, but I do.

I have been extraordinarily exhausted. If I’m up longer than 12 hours, I will start to fall asleep wherever I am. By 6:20 last night, I seriously thought about getting into my bed without my favorite blanket. I went downstairs to pull it out of the dryer, basking in its warmth. There’s something incredibly cozy about a blanket fresh from the dryer, especially when you have chills and need to go to bed. Once again, I was in bed before the sun went into set mode. Sometimes it’s just a 3-5 hour nap, and other times, like last night, it was a total “lights out” moment. I rarely sleep straight through the night. I woke up once sometime after one to yell about something (it might have been my wicked next door neighbor’s new dog, which must have come home with them from their vacation because they’ve never had a dog since moving in. The dog, naturally, is as annoying as they are. It barks at its own shadow, and everything else it can see. I don’t want to hear your dog at 1:00 a.m. or 5:00 a.m. Train the beast! I’d be able to tune it out if their backyard wasn’t right on top of my bedroom window.) and after that I didn’t wake up until kitten walked on my head. As supreme “can opener”, this makes me a favorite between cat and kitten. Especially since kitten is always hungry, unless she’s sleeping.

I haven’t had much to say this week. I have ideas and other things swirling inside my head, all of which will come to fruition at some point, but mostly I am tired, stressed, and in so much pain, it’s hard to see straight.

You have absolutely no idea how much time you spend sitting until sitting becomes the single most painful thing you can do. My back and I are at odds. Every single thing is painful. Walking, standing, bending down to pick something up off the floor, even being in bed is uncomfortable. I lucked out yesterday and was finally able to do the laundry I hadn’t been able to do over the weekend. I didn’t want to make my back any worse after Saturday morning. It’s bruised, sore, and achy, but I think with continued rest, it will be all right. If it’s not, you can all send me weird things while I’m in the hospital (No cheese, Lucy! LOL.).

I hope everyone is having a happy, productive week. Me? I’m glad it’s almost over.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED

For the record, I am still young & vibrant. Therein lies the problem!
For the record, I am still young & vibrant. Therein lies the problem!

Emerging From The Cave

11350510_1125625054121534_514844247273132592_n

I woke up from a dream this morning that could have doubled as the weirdest movie EVER. Or a book. In fact, I’ll be writing it down later since my dreams revert back to a clearer picture within a certain amount of time. Rule #1- Never share your writing ideas.

ahr030ahr030

I’m exceptionally exhausted and in an extraordinary amount of pain. I was up late working for a client last night. I then referred her to a graphic designer, that way her product will look professional. If anyone is in need of a professional graphic designer for any number of things (banners, book covers, etc.), please let me know and I will put you in contact with her. She’s worked for Harper’s Bazaar and Disney and has been in business for 25 years. She knows her shit and can work with ANY budget. Plus, if I am going to pass business on to anyone, it’s going to be someone who I know needs the work.

All I really want is a nap. Unfortunately, I know full well that a “nap” will lead to me screwing up my sleep patterns. The storms that passed through my area last night knocked power out for a lot of people. As hideous as the sky looked, making me believe it would be an intense summer storm, there was merely some “scary to watch” lightning, a sprinkle of rain, and later on, a truly stunning sunset. If there was anything else, I missed it in between making dinner, decompressing for two hours, and then going back to work before bed (NOT a wise decision! The last thought I had was “Did she spell chili wrong on the product label!”). I’m running on fumes today, looking forward to the moment when it’s acceptable for me to simply fall into my bed.

My pain levels are off-the-charts insane. I am certain there’s a rod in my spine, that my right hip is disintegrating, and that my attitude matches how I feel. Being in pain 24/7, with no reprieve, is a challenge unto itself. If anyone would like to take it off my hands for a few weeks, I’d be happy to help you understand how real Fibromyalgia is. I am so sick of people saying that sufferers are “lazy” or “Doctors say it’s a fake disease.” I’ve got two words for that. Yes, those are the words.

I should be placed inside an insulated cave with running water, electricity, and WiFi. We’ll slap a label on me that says “Not fit for human consumption”, and I don’t mean that in a Hannibal-esque way at all.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

11403446_1124745397542833_6419879906507820452_n

Blame It On The Pain

I hate the color red.

UGH! Yes, that’s what I have to say. I’m tired, because apparently “crack of dawn” in my house means “We’re all awake Mommy! Don’t you want to feed us?” Mmm…not so much. LOL.

After truly forcing myself to get things done yesterday, today barely feels like a Sunday. It is quiet, thankfully, and there’s supposed to be a thunderstorm later on. At the very least, rain is predicted for the first half of the week, so I’m content with that because it explains a lot of my aches and pains. The rest is from overdoing it. The mileage I clocked on my pedometer over the last few days is insane.

I completed all of my jobs, except for the big one. I will focus on that this week, as much as humanly possible. I hope additional work comes in, especially proofreading and anything else that isn’t mind-numbing and/or soul-sucking. The faster the job, the faster I get paid, and that makes my life slightly easier in the moment, which is a huge help.

Today I am allowing myself to take it easy. I’m in clean PJ’s with wet hair, I already did a load of laundry, and I completed 95% of the prep for Sunday dinner. Everything else can wait until later or tomorrow because “rush” isn’t in my vocabulary at the moment.

For now I think it’s safe to say that I have some things I want to accomplish going into this week, but beyond that, I can only take things on a day-to-day basis. My pain has escalated to the point where my daily activities revolve around how much pain I am in. I have been off of traditional prescription pain medication for over two years now. For every doctor that assumes we are all drug-seeking addicts: SCREW YOU. Living my life each day with little to no access to genuine pain relief is agonizing. I do take Eastern medicine when I am able because herbs work when taken properly, but through trial and error I have come to decide that the new herbs for lower body pain is not something that should be taken each night. I’ve had several episodes where the combination of different compounds made me sick for a good 24 hours after taking it. So seen, even some herbal remedies have their side effects. Acupuncture is next on my list. No, I am not afraid of needles. In fact, I barely register that sort of thing because the pain I am in each day is so severe, little things simply don’t show up on my physical radar.

I am hoping this will not be a summer chock full of migraines. I am strongly considering starting a new migraine journal if things get out of hand again. I do have medication for that which can be taken daily, but it’s horrible to start during the summer because one of the side effects is that you MUST drink at least 120 ounces of water every single day and the second is that you don’t sweat. It’s not a good combination of immediate side effects during rough summer conditions, so I might start it again in September when things start to cool down and I am able to focus on the dosing. I’ll have to download an app for my phone because it is all too easy for me to forget whether or not I took medication each morning. With tiny pills, I often find it easier to forget as opposed to the monster pills that you simply cannot forget. Odd, but true for me.

I hope everyone has had a delightfully restful weekend. I’m off to take a nap. I woke up WAY too early this morning and since I haven’t been sleeping well, I’m not going to beat myself up because I need to rest. In the words of my Uncle: It is what it is.

I’ll be back with more interesting things soon.

XO…L

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

alarmclock
It’s usually 4:00 a.m., I’m lucky if it’s 5:30 or later. The enchantingly beautiful cat and kitten are featured on the ABOUT page.

It Doesn’t Get Easier

11045410_877943312272847_3771909928944533537_n

Fibromyalgia Pain. Chronic Pain. Migraines. They are just a few of the evils that millions suffer from. Some suffer loudly, but many more suffer in dark rooms, alone, in silence. You’re screaming on the inside, but you don’t make a sound.

There is something about the temperature shifting drastically that changes my “Pain Game” to new levels of insanity. I’ve had a migraine on and off for three days, and after last week, I’d hoped it was just a passing tornado, so to speak. This morning I reached that “insane from pain” stage that is quite scary. You hear yourself saying crazy things, but you truly cannot stop your mouth from moving. You’ve been strong for too long and now you’re venting.

I’m usually up pretty early and by early, I mean still dark. Suffering from migraines last week into this week has meant that I’m finding justified reasons to A) Go back to sleep or B) Take naps. This morning I woke up at 7:24. I’d been up an hour before and truly saw no reason to make a bigger effort, so back to bed I went. Unfortunately, when you have animals and/or young children, you don’t get “the morning off”. I suspect if I bled out of my eyeballs, maybe. The girls were being particularly aggressive this morning, so I fed them at exactly 7:25 and then stomped back up the stairs like an insane person. Once they’re fed, they usually leave me alone. In true form, they had no interest in bothering me whatsoever once they’d been fed. But once I officially woke up, I had a little stalker doing all sorts of wrong to draw my attention. I’ve reached that pain point where saying “No.” or “Get down from there!” isn’t even worth it. If I spritz them with water, they stop doing it. However, they’re fearless and like to lick the water off right in front of me, as if to say “Really Mommy, that’s all you’ve got?” I’m not in the mood to be challenged by anything with four legs and fur, and I don’t negotiate with terrorists that look like children. 😛

Migraines that affect your neck, shoulder(s), face, and spine are fucking scary. There is always someone telling me a wild story about how “so and so had a migraine, and thus thought nothing of it, until they ended up in emergency surgery.” Yeah, that’s what I need to hear. That is totally going to make me feel better, thanks for sharing! I have no idea why so many people use the “this one has it worse” crap on you, as if that is somehow going to magically stop your suffering (and not just with a migraine, but with ALL things in life). FYI: It doesn’t curb your suffering at all, but it does piss you off, which isn’t good because that raises your blood pressure and damn near guarantees that this migraine isn’t going anywhere any time soon.

My biggest problem with this particular migraine is that I also hurt from my spine down to my calves. If it’s not severe pain, it’s a horrific ache or serious soreness. There is a 50% chance of rain and honestly, I’d like to see it rain a bit because that would explain the sudden increase in pain from my daily 8-9 to DEFCON 1. Historically we have never reached such a level of “readiness”, but I’m betting that a vast majority of pain patients HAVE reached that threshold. It is pain that is so bad, you’d rather feel ANYTHING ELSE but that pain. It applies to more than just the physical.

Doctors have often told me “It gets better as you get older.” That’s what they told my mother when I had horrible growing pains and constantly felt like my muscles and bones were going to pop off. Now, doctors ask whether or not you can remember if you had bad growing pains as a child, because that often signifies whether or not you might suffer from a form of chronic pain later on in life. They ask about your long-dead relatives medical histories, as if you know all about your “dead before I was born” Grandparents and Great-Grandparents. Unfortunately, I remember those growing pains the same way I will remember my current pain a month from now, with 100% muscle memory.

I fully intended to get some serious editing done today. I have a client crawling up my butt (I have more to say on this subject, but it’s unprofessional, so I’m going to shut my mouth) asking for a timeline for delivery. We’ve never discussed one before, but as I go through pages and pages of work that requires severe corrections with every sentence, I had to be honest (I chose professional honesty as opposed to niceness because I don’t have niceness in me at the moment.) and tell exactly her how much work is involved. The cleaner the manuscript, the less work there is for me, but as a developmental editor, I fact check and do way more than I’m being paid for, and yet from a writer’s perspective, I cannot tell if it’s just excitement at the prospect of having never been edited before, or anxiety that a professional is dissecting your work. I don’t know, I suspect it could be a lot of both, but I’m also in too much pain and under too much stress to sit and psycho-analyze it. I also hesitate to ask because I’m about .1 seconds from losing it on just about anyone. I’ve never failed a client before; it’ll get done, but work stops when I’m in agony and being nagged.

Right now, today is turning into another “Must Take Care Of Me” day. I truly don’t feel there are enough days like this because I often turn my attention to helping someone with a problem, or doing something else to shift my internal focus off the pain. Focusing solely on my own needs is slightly unnatural to me, but for now, it MUST be a priority.

Here’s hoping that none of my readers are hurting like this today. 😦 This is the kind of pain only Hitler deserves!

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

11203625_10153267973693114_9137423588014687249_o