As A Direct Result

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It’s also an evil life-destroyer.

I’ve decided that today is going to be a work-free day.

I went to bed this morning sick as a dog. I suspect my brief time out yesterday affected me more severely than it ought to. Within a few hours of coming home, I got my fourth migraine of the week. I took a brief nap and I wasn’t entirely okay afterward, but now? UGH!

Sadly, with migraines, you often question whether you did something wrong, ate the wrong thing, etc. All I did was go out in tremendous heat for an hour and a half and come home. It wasn’t a lot of physical exertion, but my body says otherwise. I had a mild headache upon returning, but it wasn’t until I actually felt pain in my head that I took something for it. By 7:30, as my neighbors attempted to power wash something right near my bedroom window, I contemplated outright murder. My ears simply cannot bear the noise, and what are they up to at this precise moment? Yard work. At 9:23 a.m. On a Saturday. When it’s already 85 degrees and a heat advisory has been issued for the entire area, AGAIN. Schools actually closed early yesterday, if they opened at all, because it was over 100 degrees with the humidity and people were experiencing breathing problems. But hey, dumb & dumbest need to make noise on a yard that requires no work at all this week. This is where I would like to point out that I refrained from putting #TheyNeedToBeShot. I’m not a violent person…just don’t make noise when I’m sick or on any day ending in a y.

As a direct result of this migraine/heat/stomach agony, I’m trying to decompress this morning. I’d rather be asleep, but I desperately need to hit the grocery store. Not a fun task, I do not look forward to this, but I am going to try going once it cools down. There’s no point in making myself any sicker by attempting to do it early on in the day. Everyone and their grandmother will be there to capitalize on the digital coupon extravaganza, which has already turned into an epic fail because 9/4’s of the coupons don’t come off at the end of each order, which means customer service is inundated with questions as to why they didn’t work and precisely “Where are my savings? Are you going to give me my money back?” Actually, the store is set up to make sure you actually loaded the coupons on to your savings card in the first place. If you didn’t use the physical coupons that were also provided for the week, chances are you didn’t get the savings on those four items. I clipped all of my mine last night and will print up a few others later on. I’ve saved nearly $1000 this year alone in coupons at one store. That is a small accomplishment, but it feels good every single time I look at my receipt.

I’ve completed all of my work this week (though I am seemingly still loosely on the consulting job), except for the manuscript, which I will devote more daily time to next week in my attempt to complete it. I’m not looking forward to that, I’m simply tired of seeing it and knowing that it’s not complete. I do NOT relish the line of questioning that will come with the delivery, but since I stated in the contract how much time I will spend on answering questions before charging again for my time, I hope that will make the client aware that I mean business. It’s in black and white, how hard is it to follow guidelines?

Before I forget, I want to thank Writerstream for featuring my work this week, and I’d also like to give a huge shout out to the dozen or so new Twitter followers in the last 12 hours alone. (Special thanks to Lillian for encouraging me to join Twitter. Hugs sweet pea!) I never knew I’d grow to love it so much. To the friend that reads my Tweets and isn’t afraid to joke with me and laugh, I appreciate it. (You know who you are, doll!)

If you need me, I’ll be here for the next few hours. Drinking coconut water. Praying that it helps. If it doesn’t, I’m seriously considering an ER visit because this level of pain is out of control.

Have a great weekend everyone! And please, stay out of the heat and wear sunscreen.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Weird Worthless Weekends Lost To Pain

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Friday morning I stated that I’d rest this weekend and get things done inside my home, as much as humanly possible. I mentally calculated exactly how much laundry needed to be done, and then factored a few others things into the mix. What I did not factor in was a terrible Fibro flare and bouts of sleeplessness that drove me up a wall. Why couldn’t that have happened last week? Because I was working like a dog in between migraines and the day and a half I spent unable to move, so apparently my body waited and the second I had time to breathe, I got slammed. I’m livid that it is now Monday and that my “weekend” was so bizarre in it’s lack of time.

I know I am being unfair to myself. I’m not a machine and I do have to factor pain into my daily life. There was a lot I wanted to get done from Friday until now. As I angrily folded laundry a little while ago, the only load I did this weekend that isn’t even my stuff, I realized just what a wasted weekend this was.

Who’s looking forward to another hot, miserable work-filled week? Not I. Plus, I’ve got about four loads of laundry that need to get done. In all fairness, one could be up right now, but I will not move a happily sleeping kitten off of my bed in order to yank the linens so she can think it’s some kind of evil game and destroy another set of sheets. I cannot get a soul to hold her so I can trim her nails. Apparently everyone is afraid of the world’s sweetest, sassiest kitten. I don’t want to traumatize her by pinning her down with my body to get two nails, if I’m lucky, before she hisses, cries, or attempts to bite me. Believe me, I understand her frustration and I don’t take her reactions to heart, though the crying kills me. She’s not a mean biter and she’s not mean, period, she simply doesn’t understand why her nails need to be cut. As sweet and loving as she is, a lot of basic kindness is scary to her. I have to keep trying as patiently as I can so that she doesn’t have these fears later on in life. This is residual shelter trauma; it has nothing to do with her life with me. Knowing that, I can utilize far more patience than if it were a person. Animals and babies are one of my speeds. People need to handle their own shit.

I am looking forward to work this week in a “I really like this particular client” sort of way. I spent about an hour on the phone with a client one afternoon to be certain of what he needed from me. We had a lovely conversation and he was incredibly pleased with the work I turned in. During our conversation he said he wanted to keep my information close at hand in order to hire me again for other editing/writing jobs. That is the only time I will write for someone else, when they know what they want, but can’t quite put the words together cohesively. Most times, that’s less than 500 words and it takes no time at all, but some people cannot put their internalized thoughts onto paper, so an idea is scattered and hiring someone to polish the idea is a good way to find the right person for the job you’re looking to hire for. Hiring field specific people is a really great concept.

My point, however, is that he contacted me yesterday for another job. I wasn’t 1000% sure I’d hear from him again, but I’m glad that I did. It’s nice dealing with people who get it and have respect for your time, knowledge, and the work you do. Most people just made rude demands. I had someone point out a tiny error I made, which happens. I’m not perfect, it was late, and all she had to do was delete one word. I asked if she wanted me to redo the entire file, but instead she took up over an hour of my time asking me to proof the work that SHE had just re-edited. (Did your jaw just hit the floor? I was astounded by the stupidity because it resulted in a two hour phone conversation the following afternoon to make sure I’d get paid for the time.) Did I mention that this was a corporate job and her English is swimming somewhere between broken and non-existent? I suspect she was using Google translate because revising her thoughts was like playing with a puzzle, and the message “Is it done yet?” grated on my nerves because I informed her precisely how long it would take and that I’d get it back to her by late Thursday evening EDT. It is all too easy not to want to do specific jobs after a while based on the treatment of clients that do not understand that not everything can be done in 60 seconds. It’s incredibly unrealistic to expect that, but it is what it is and I have the right to pick and choose the jobs I take, for that reason alone. I am excited to see what this new opportunity brings. I wish every opportunity was a prosperous one. Alas, many are not, so I do my job and move on. That’s all I can do, my best.

And now, despite all this back pain, I am off to tackle at least two loads of laundry since kitten has moved along. I suspect she will be back soon to thoroughly inspect all the clean linens I’ve put down since stripping my bed and quickly dashing downstairs to the laundry room (Cat has already given me a mixture of approval, disdain, and attitude.). Now if I could just find the perfect pillow…

The truth is, the evil never truly rest. 😛

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

This is crucial.
This is crucial.

It Doesn’t Get Easier

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Fibromyalgia Pain. Chronic Pain. Migraines. They are just a few of the evils that millions suffer from. Some suffer loudly, but many more suffer in dark rooms, alone, in silence. You’re screaming on the inside, but you don’t make a sound.

There is something about the temperature shifting drastically that changes my “Pain Game” to new levels of insanity. I’ve had a migraine on and off for three days, and after last week, I’d hoped it was just a passing tornado, so to speak. This morning I reached that “insane from pain” stage that is quite scary. You hear yourself saying crazy things, but you truly cannot stop your mouth from moving. You’ve been strong for too long and now you’re venting.

I’m usually up pretty early and by early, I mean still dark. Suffering from migraines last week into this week has meant that I’m finding justified reasons to A) Go back to sleep or B) Take naps. This morning I woke up at 7:24. I’d been up an hour before and truly saw no reason to make a bigger effort, so back to bed I went. Unfortunately, when you have animals and/or young children, you don’t get “the morning off”. I suspect if I bled out of my eyeballs, maybe. The girls were being particularly aggressive this morning, so I fed them at exactly 7:25 and then stomped back up the stairs like an insane person. Once they’re fed, they usually leave me alone. In true form, they had no interest in bothering me whatsoever once they’d been fed. But once I officially woke up, I had a little stalker doing all sorts of wrong to draw my attention. I’ve reached that pain point where saying “No.” or “Get down from there!” isn’t even worth it. If I spritz them with water, they stop doing it. However, they’re fearless and like to lick the water off right in front of me, as if to say “Really Mommy, that’s all you’ve got?” I’m not in the mood to be challenged by anything with four legs and fur, and I don’t negotiate with terrorists that look like children. 😛

Migraines that affect your neck, shoulder(s), face, and spine are fucking scary. There is always someone telling me a wild story about how “so and so had a migraine, and thus thought nothing of it, until they ended up in emergency surgery.” Yeah, that’s what I need to hear. That is totally going to make me feel better, thanks for sharing! I have no idea why so many people use the “this one has it worse” crap on you, as if that is somehow going to magically stop your suffering (and not just with a migraine, but with ALL things in life). FYI: It doesn’t curb your suffering at all, but it does piss you off, which isn’t good because that raises your blood pressure and damn near guarantees that this migraine isn’t going anywhere any time soon.

My biggest problem with this particular migraine is that I also hurt from my spine down to my calves. If it’s not severe pain, it’s a horrific ache or serious soreness. There is a 50% chance of rain and honestly, I’d like to see it rain a bit because that would explain the sudden increase in pain from my daily 8-9 to DEFCON 1. Historically we have never reached such a level of “readiness”, but I’m betting that a vast majority of pain patients HAVE reached that threshold. It is pain that is so bad, you’d rather feel ANYTHING ELSE but that pain. It applies to more than just the physical.

Doctors have often told me “It gets better as you get older.” That’s what they told my mother when I had horrible growing pains and constantly felt like my muscles and bones were going to pop off. Now, doctors ask whether or not you can remember if you had bad growing pains as a child, because that often signifies whether or not you might suffer from a form of chronic pain later on in life. They ask about your long-dead relatives medical histories, as if you know all about your “dead before I was born” Grandparents and Great-Grandparents. Unfortunately, I remember those growing pains the same way I will remember my current pain a month from now, with 100% muscle memory.

I fully intended to get some serious editing done today. I have a client crawling up my butt (I have more to say on this subject, but it’s unprofessional, so I’m going to shut my mouth) asking for a timeline for delivery. We’ve never discussed one before, but as I go through pages and pages of work that requires severe corrections with every sentence, I had to be honest (I chose professional honesty as opposed to niceness because I don’t have niceness in me at the moment.) and tell exactly her how much work is involved. The cleaner the manuscript, the less work there is for me, but as a developmental editor, I fact check and do way more than I’m being paid for, and yet from a writer’s perspective, I cannot tell if it’s just excitement at the prospect of having never been edited before, or anxiety that a professional is dissecting your work. I don’t know, I suspect it could be a lot of both, but I’m also in too much pain and under too much stress to sit and psycho-analyze it. I also hesitate to ask because I’m about .1 seconds from losing it on just about anyone. I’ve never failed a client before; it’ll get done, but work stops when I’m in agony and being nagged.

Right now, today is turning into another “Must Take Care Of Me” day. I truly don’t feel there are enough days like this because I often turn my attention to helping someone with a problem, or doing something else to shift my internal focus off the pain. Focusing solely on my own needs is slightly unnatural to me, but for now, it MUST be a priority.

Here’s hoping that none of my readers are hurting like this today. 😦 This is the kind of pain only Hitler deserves!

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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These Days

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When you suffer from any form of chronic illness, and I can only speak from experience with Fibromyalgia/Chronic Pain, there are days when you cannot fathom getting out of bed, leave alone getting out of the house. The pain is just that great in its magnitude that functioning is taken out of the equation. You reach a point where you merely exist.

When I push myself, I make everything worse. It often takes me 5-6 hours just to get my mind right in order to get ready and leave. I have to factor in so many things in these decisions. My big motivator isn’t about myself though, it’s usually about making sure the girls have all that they need. If they don’t, I have no choice but to get shit done, even if it means not being able to walk at all for several days.

I woke up in a dark head space. Despite going to bed early last night, I accidentally left the air on instead of the heat. That’s how crazy the weather has been. By the time I reached the “everything hurts and I can’t move because everything is stiff” stage, it was 62 degrees inside. In this house, that’s like 45 degrees with a bitter wind chill. So, the heat went on and I went back to sleep for a few hours. When I officially woke up, it was “too hot” at 66 degrees, which just goes to show you that Fibro is no joke. There are days I am wrapped in a blanket when everyone else is in shorts and tank tops. There are also days when I’ve got two layers on and people are saying “You’re not hot?” When I’m really cold, I’m even wearing socks inside. I never know which way my internal temperature will slide or what the external will make me feel. There are days when 70 degrees makes me want to pass out and die, but if there’s a cooler breeze within the temperature, I’m okay. These days, even my hair hurts, and that’s never a good sign.

I am slowly pulling myself together today to hit two stores. If I don’t go, no one eats, including me. The last thing I want to do today is go anywhere, but for now, it’s just about calming the pain and stress levels down a few notches and hoping that a cool shower will wake me up enough later on so that I can run these two errands and come home.

I won’t lie: My first option was to have everything delivered or ready to pick up, thus minimizing my actual need to force myself out. Alas, two different stores were “out of stock”, so I have no choice but to go there myself and figure out what their deal is. Unless you’re having some kind of epic sale, there’s no way you’re completely “out of stock”, not unless you want to screw with me or there’s something wrong with your on-line system. It’s all very frustrating. It’s even more pathetic that I thought “Wow, that’ll be a breeze. I can just go in, pick up the order, and come straight home. I don’t even NEED to wear make-up!” Of course now, pride determines that I do not leave the house without looking like a human-being. Think Corpse Bride, with a lot of curves.

I admit, I have become moody due to the limitations from pain. If I don’t cook dinner by a certain time each night, which is the right time to allow me to be in bed in a timely fashion, then it’s simply not happening. And if I don’t eat a balanced diet, I will be deathly ill. One of my best friends joked that I’m damn near a vegetarian these days, which isn’t true, but can seem that way at times from the outside looking in. I don’t share in the vegetarian or vegan belief systems, so it’s really not possible for me to be either. It’s not about achieving some kind of goal or physical look, it’s merely about eating to live and getting proper amounts of rest. I hurt too damn much to get into semantics with people.

As the sun begins its rise above all the clouds, I keep wondering exactly when the “perfect” time is to get the hell out of here. Truth is, by the time I clean my bathtub (which I do several times a week because it annoys me), get ready, put up a load of laundry, and leave the house, it might very well be 4:00 PM. Trust me, the clothes are already in the dryer by the time I’m leaving, if not already dry, so there’s also that time in the “getting ready” process. Waste not.

It would be SO NICE to have someone to rely on in times like these. Someone dependable to say “I’ve got this, you go rest.” Not everyone is blessed with people in their lives who are willing to physically assist with errands and chores that have to get done. It’s not that I don’t want to do these things for myself, this isn’t about laziness, it’s about illness. I promised myself I’d learn how to ask for help this year, and accept the help that comes my way, but so far, I’ve hit a lot of brick walls and it’s disturbing to me. I loathe people who say one thing and do another, in all aspects of life. Don’t open your mouth unless you can follow through.

I’m sitting here with my tiny list, but all it does is stress me out. Normally I love grocery shopping and taking care of others, but in this moment, I’d really like someone to take care of me. I physically feel too broken to do it myself.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Thank God It’s Saturday!

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I hate the traditional work week, which is probably why I don’t have a “traditional” job. Granted, with my injury and upsetting things going on in my personal life, I spent most of my week making phone calls, practicing self-care, doing extensive research, texting with a close family member, and trying not to commit any type of crime that would land me in prison. I’m too pale to wear orange.

The future is unclear, so perhaps I will do a tarot reading and see if the cards have any answers for me. I haven’t had to do that in a while, but I know that whatever is placed before me, even if I say I cannot do it, I WILL persevere. I can have a breakdown when the storm passes, but not before.

One of the worst things about this week has been the weather. Hot or cold, sometimes both in the same day. The trees are blooming up a storm, the bees are enormous and keep bumping into the windows, and the pressure in the air has been hell on my body. There were many nights I was in bed by 7:00 PM because the pain was simply too much to bear. I slept a full 12 hours one night this week, waking up truly wanting to remain in bed. “Mama said there’d be days like this”- hell yes, but do they all have to be in the same week!? In that moment, I hated the clock and all it stood for. Too much daylight, not enough night. It’s poison to those of us who identify as night owls, and I’m speaking for myself.

Weekends are always way too short, but they do give us a reprieve from some of the things we think during the week. For many of us, it gives us time to get things done that we’re not able to do during the week, like grocery shopping, laundry, or catching up with a movie or TV shows we didn’t have time to watch. Or it allows us to spend time with friends or family. Two of my favorite shows return this weekend: Bitten and Orphan Black. This is the time of year when many shows wrap for the season and others begin, which means you don’t have to spend the entire summer wondering why you pay for cable, satellite, or streaming service.

This past week I’ve really been able to take stock of the word “family”. I’ve also been able to take stock of the word “friend”. Some people say things because it sounds good, and other people mean it. Many talk for the sake of talking. My definitions are pretty cut & dried. If I love you and care about you, you can pretty much guarantee that I’d take a bullet for you, be you family member or friend. However, I do not forgive and forget. If that works for you, I think that’s great, but it doesn’t fly with me. I might forgive a person at some point, but I’ll do it for myself, not for them. I will never forget. Sometimes when words get thrown at you, there is no way to unhear them.

Proper communication is crucial in relationships and it’s incredibly important not to take out your own issues on someone else. If you do, apologize immediately. Hear yourself. Don’t make excuses for vile words and pretend that it can be swept under the rug. I own my shit. If I hurt or offend someone INTENTIONALLY, and I am one of those rare individuals who KNOWS when she’s doing it, then I will apologize the second I realize my mistake. If you hurt or offend me and the words “I’m sorry.” or “I was out of line.” never come out of your mouth, then don’t expect me to apologize for something I haven’t done or to accept an apology that comes too late.

A mistake some people have made with me over the past few months is to throw out the words “You misinterpreted what I said.” I’M NOT DEAF and my I.Q. hasn’t dropped. This is NOT a habit I have. If it happened daily, you could say it was a pattern and take issue with it, but it isn’t. For many, the problem is that I actually called them on their shit, pointed out a major flaw, and they don’t like it. Or, they always believe they’re right, and/or cannot admit that they said or did something inappropriate, wrong, or hurtful. Put your adult panties on, apologize, and move on. Don’t drag it out. The world doesn’t revolve around any one person, myself included.

I have work to do this weekend, in between two errands. I’m double-booked and one of those jobs is due for completion on the 24th, so I’ve got to focus and get it done. Here’s hoping I didn’t ask for too little money on this one. Unfortunately, one never knows until one is presented with certain things.

Have a nice weekend everyone. 🙂 I am off to take as much Aleve as possible and crawl into bed in the hopes that I do not waste another day in pain.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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How Honest Are People About Their Mental Health? This Might Surprise You…

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Facebook needs to institute a better policy involving “friending”. Even with strict filtering, I have people sending me friend requests simply because they like something I’ve said. Why in the world would you want to be “friends” with someone who is simply the same astrological sign as you, or just happens to also be a writer/editor? I understand when people say they’re an “aspiring writer”. They want to see what they can learn from you. I am a very open person, BUT when it comes to my WIP’s, I am not about to post them anywhere for the entire world to see. I don’t want or need a critique, I don’t need someone to tell me how to be a better writer, etc. I have been doing this for 28 years this month. I know my shit. If I didn’t, I would never have continued to return to it, be it as a source of inspiration for myself or as a source of income.

Moreover, if a person openly declares themselves a “sociopath”, you probably DON’T want to accept the friend request that is sent to you an hour later simply because they “like” an intelligent and/or helpful comment that you’ve made. I keep my “inner sociopath” to myself. I do let her out on special occasions though, when a person is deserving of dealing with it. 😉

One interesting thing that caught my eye over the past couple of days was an article that other writers and aspiring writers were contributing to. I want to say that it was more a group of highly creative individuals, so there were songwriters and artists also involved in the conversation. It began with a question: “How many of us suffer from bipolar disorder or other forms of depression or anxiety?”

Nearly a hundred different people (it might have been more, this has been a rough week for me in terms of keeping in touch with others) responded with various responses that said yes and each of them explained their diagnoses. Only four or five people said they suspected they suffered from some sort of depression, but that it had never been diagnosed. About the same amount, more or less, said they did not suffer from depression.

I was very proud of everyone for openly, honestly discussing bipolar disorder, anxiety, OCD, and a plethora of other forms of “mental illness”. It hurts me to use that term AT ALL. I don’t see every single person as “mental” and I cringe when people refer to others in such a way, as opposed to educating themselves. An illness is an illness. I would never tell someone they were responsible for getting sick in the first place, but MANY do say shit like that. It baffles me. Some people even discussed varying degrees of autism. That takes incredible courage. One of my cousins is autistic, so I’m not ignorant there.

When confronted with my own mental health, I am supremely honest, but I do not advertise it. I am going through something that has made me full-blown OCD,  exacerbated my PTSD to levels I didn’t even know existed, and my anxiety is so bad, I can barely sleep most nights without waking up screaming, sometimes from pain, sometimes from my medication wearing off too quickly.

From day one, I have openly, and very honestly discussed suicide. This makes people uncomfortable because they REFUSE to face the fact that they’ve romanced the idea themselves. No one can tell me they suffer from any form of depression and have NEVER considered suicide. It might have been a fleeting thought, it might be something you NEVER act on, but it still exists. This is a trigger for a lot of people. They lash out at me and decide I am no longer worth their time, all because I was HONEST. Catch me on a dark day and I might scare you with my truth, but anyone who genuinely cares about you will give you their time and concern, they will not pretend you’re “mental” or tell you to “take a pill”. Those are two of the most insulting things to tell someone.

I once had a woman piss me off at the grocery store. I was going through a stressful time with my father’s health and, in front of her children (both of whom were under the age of 12, but not younger than 8 or 9), she told them to “Get away from her, she’s “mental”. I might THINK a person is batshit in a public place, but unless they’ve caused harm to someone or they’re about to hurt themselves, I’m not stupid enough to go there.

Truth is, they were standing in front of a huge display of fruit for nearly ten minutes and wouldn’t move out of the way. How do you not tell your young kids to move over so other people can shop too? She was talking to them like they were infants, as opposed to children that have the ability to comprehend. The comment was completely out of line and off base. I turned to look at her, contemplated knocking her teeth out, and then looked at her a second longer with her kids. I felt incredibly sorry for them. I then politely took the fruit I wanted and said “Did you learn that in your many years of therapy? You might not want to pre-judge people based upon your own issues.”, and I walked away. She was left in the dust, unable to speak, because I called her on her shit.

I don’t need that kind of false denial in my life, not from any one. You don’t have to like me or love me, but I guarantee that with an open mind, you will respect me. I would never intentionally hurt someone with my candor, and it’s okay to say “Lisa, I care about you, but this upsets me too much to discuss any further.” It’s called COMMUNICATION.

I have lost people to suicide because they had no one they felt would truly listen and hear them out or “make it stop”. I’ve stopped myself many times from acting on a thought because I believed it was irrational and felt it was wrong to leave any one of 4-5 people in my life behind to discover what I’d done, or have to receive the phone call that just plain brings you to your knees. It would devastate four of them. The last person probably wouldn’t give a shit or so much as come to my funeral. I’m not a priority now, why would I be a priority then?! (Yes, that was morbid and I apologize. Two, you’d understand why I said that if you knew who I was talking about and how they have treated me.)

Being honest about what I suffer from, including migraines and Fibromyalgia/Chronic Pain is part of what keeps me alive. The other part is that I am responsible for little people that love me and would have terrible difficulties without me. And even still… I often find myself thinking “This isn’t enough to live for.” It’s not coming from a selfish place, it’s coming from a place of wanting to be better, to strengthen the relationships in my life, to bring other relationships into my life and allow them to flourish. I cannot live for one thing and one thing alone. That’s my personal take on it, but it might not be yours, and that’s okay. I’m by no means here to judge you.

I want to thank the people that have supported me this past week through a living nightmare. I am surprisingly uplifted by the emotional support, care, concern, dedication, determination, and devotion. Only ONE person said “I’m proud of you.” When you’re going through hell, you do not want to be pitied, treated like a failure, or be belittled and/or disrespected. You simply want to be treated like the person that you are. I had to be reminded that I am strong, smart, and capable in the face of others trying to crush my soul. Bad things happen to all of us at some point in life. I may have been given a higher dose, perhaps God shouldn’t trust me so much, but it is what it is, and I am making peace with it.

I refuse to allow anyone to make me feel small in order to raise their own self-esteem.

If you’re honest and upfront about any illness, I applaud you. If you’re a loyal, supportive person to those that you love, I also applaud you. Compassion & genuine kindness is severely underrated.

“Things” do not make you who you are. It’s what’s inside your heart and soul that is the true value of self. The trappings are pure nonsense. They do not define you. I wish I’d understood some of that for the past ten years, but now that I do, I am determined, now more than ever, to persevere and make important things happen.

This phoenix has been reborn. Stay the hell out of my fire.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Sleep Interrupted

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I was in bed last night right after The Blacklist ended (If you don’t watch this show, you should. I never intended for it to become something I watch, but the pilot had me hooked from day one.). I flew up the steps, washed my face, brushed my teeth, and after double-checking cat bowls, got into bed. I slept well, until about 5:30 when I started smelling coffee. You know what that means, right?

Just yesterday I told Him “Do not touch my non-dairy creamer. I need it for my tea.” I made threats, none of which were nice, all of which were serious. I take tea time very seriously. When you drink 3-5 cups of tea a day, it’s clearly something you enjoy. I like mine a certain way and plain is not on that list.

I went downstairs in search of the smell, but He was in hiding, and rightly so. When I find him, it won’t be pretty. I fed cat and kitten and stomped back up the steps, furious, but still in need of additional beauty sleep. I was able to get a little more sleep, and have been awake ever since. He is going out later and replacing my creamer because I am not pleased that I can’t have tea until it arrives. Bastard.

This morning, waking up was not what I had in mind at all. It feels like a Saturday, perhaps because it is deathly quiet out. Apparently the kids are not in school this week, which makes no sense to me since Passover is next week and I don’t know how prudent it is for them to have two weeks off, but whatever. Not my circus, not my monkeys.

I’m stressed and I HURT. The weather keeps going back and forth between the 20’s and the 60’s, and while it is utterly beautiful to have milder temperatures, even if it’s a rainy day, it still messes with my body.

I have no plans this holiday weekend. Technically, Passover begins tonight at sundown. My family is scattered across the States and overseas, so I’m not attending any seders, nor was I invited to any. I will keep editing this manuscript so that I can move on to the others she has in store for me, and watch The Hunger Games: Mockingjay Part 1. I’m trying to make tentative plans for tomorrow, just to be able to enjoy the day for a few hours out of doors, but nothing is etched in stone. If I’m feeling up to it, maybe I’ll just take a long walk.

As I’ve said before, the holidays are lonely. I miss my parents and Grandparents terribly. Loss often feels like it happened yesterday, but the years come and go and life moves on, even if the pain of each loss remains with you. I find myself astounded by people who never seem to be affected by the loss of a loved one, who return to work immediately, who never discuss the person again, etc. Are people really that cold and detached, or is that the “coping mechanism” utilized by most people? What is your take on that?

Regardless of what you celebrate, I wish you a wonderful holiday filled with family, friends, laughter, joy, and peace. Me? I just want my tea. LOL.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Long Days, Short Nights

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The days are way too long. The nights are too fucking short. Sleep is hard to come by, but man, I’m trying. I was raised to believe that doing your best is “enough”, providing it is truly “your best”.

I suffer from “Superwoman Syndrome”. This is a real thing. I’m an overachiever that has this unbelievable difficulty asking for help. Perhaps it stems from constantly being stabbed in the back when I HAVE asked for help in the past, or because people like to throw things in your face as if they are owed something. “I was there for you when…” are probably not wise words to hurl in my direction. If I’m there for someone, it is genuine, and I don’t have to say “I told you so.” years down the road. If you don’t want to be there for someone, don’t be, but that’s on you.

Fibromyalgia makes life harder than it needs to be. I used to be able to walk for miles on end, doing countless things along the way, and then walk back. It was never a big deal. Now, I actually have to gather strength to run errands and take care of very basic needs. It’s pathetic. And the last thing in the world I need is for anyone to point it out to me, as if I don’t already know that I’m slow. “We just went without you because we didn’t want to wait three hours for you to get ready.” NICE. Yes, that’s sarcasm.

Even without Fibromyalgia, I was already a pretty isolated individual. I had (and still have) a very small group of close friends and my family. I spent my days writing and editing, and I still do. It’s not the kind of thing I do in public. I’m an introverted extrovert. The people that see me work my ass off are cat and kitten, they know Mommy’s working. Pretty much everyone else thinks I do absolutely nothing, because I’m very quiet and they rarely see me. When you don’t do what everyone else does in terms of “normal”, people automatically make wild assumptions. It would be very nice indeed to do absolutely nothing. Attach a six figure salary to that and I will sign up immediately. Shit, I’d love to do “nothing” by spending my days at the mall, or the bookstore, or any number of places that I haven’t been in the last four years, or longer.

The most important thing to me now is having emotional support. I’m going into some horrific, tough battles and all I really want is to be heard, understood, and cared about. I’d rather a person not have the right words, and say a prayer for me.

There are no heroes in this. I have my Superwoman cape and I’m not giving it back, but all kidding aside, being supported means a great deal to me. The simple fact that I’m asking for it shows me that I’ve grown. Help and support, that’s all I need at the moment.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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It’s Friday, Let’s Celebrate!

We know where you live Mommy, and it is not beneath us to display our utter cuteness for you to gain food, treats, or head scratches.
We know where you live Mommy, and it is not beneath us to display our utter cuteness for you to gain food, treats, or head scratches.

I have no idea why Friday, Saturday, and Sunday have become my favorite days of the week, but lately, I just can’t handle week days. Does anyone else feel like this?

I’ve had a rough week. I’ve been in a lot of pain and have required way more sleep than any single person my age should need (Still young, still fabulous. 😛 ). I work and then I look at the time, realizing that I’ve done a lot in short bursts of time, but that now that I’ve gotten work done, it’s time to close my eyes “for a little while”. The next thing I know, the day is over. I wake up from that brief little “nap”, check the time, and my cat and kitten are wrapped around each other. Apparently some kind of love fest goes on when I’m down for the count. I almost always have to be in bed and half asleep or completely out of it before they go into “love mode”.

Passive, sweet cat. Troublesome, but incredibly loving kitten. (You can see their photos on my About page.) They’re good for each other and they’re good for me, because without them, I wouldn’t get out of bed at all. There are many mornings when they’re both pacing around me, marking my face with theirs (kitten does this), to encourage me to go downstairs and give them breakfast. If that doesn’t work, they start bringing toys into the bed. I have no idea where either of them are, but I know that if the food is not delivered in a timely fashion, they will try to curry my favor with gifts. I can’t tell you how many times they’ve both placed gifts in my bathtub as a reminder, as if I’ve ever forgotten to feed them.

I’m VERY lucky, they’re relatively well-behaved and sweet. They’ve got attitude, but mostly, they know that they are loved and safe. When I’m in a terrible amount of pain, one or both of them will get into bed as soon as I’m comfortable and either lay by my feet or by my head, and they do not move until they see me calm down and fall asleep, and even then, I still wake up with them close by. There is a sweetness to that which makes me emotional at times. My cat is a lot less openly loving than my kitten, but I have a bond with both of them and I see how they call for me and come to visit me when I’m working. Basically, I get treated like one of them. Perhaps this is why they often place toys under my butt and then try to bite me awake. Sassy’s been doing this since she was a baby, and at 19 months, it wasn’t that long ago that she was the ruler of the roost and tiny, aggressively shoving me awake and demanding food constantly. Now that there are two little beasts, I have them on a schedule. She’s no longer interested in most games (my little one wants to play, but also self-entertains), but is happy to bite my feet or grab my ankle for a nip if she’s feel froggy.

Now that Miss Sass has a constant playmate, she’s no longer ripping me to shreds and biting me. Her breed isn’t known for a lot of verbal communication, so she spent ten months aggressively hurting me several times a day until I found her the perfect little companion. It was NOT love at first sight. It took about a week or so, and they slowly became obsessed with each other. Mini is also incredibly obsessed with me, but she’s still a baby.

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What else is going on? Oh, yes! Because I’m a total hypocrite (And honest enough to admit it.), I am back on Facebook. My original account is still up in the air. Facebook and I have exchanged countless e-mails, and nothing has been worked out, so I waited a while and established a new account. I intentionally linked it to my cell phone which somehow authenticates that I am indeed a “real person” and not the countless things I was accused of in all of their e-mails back in January. If you want to pal around with me, let me know and I will send you my new hypocritical info.

Speaking of which, Facebook has changed quite a bit since I was gone. I am pretty sure someone peed in everyone’s coffee this morning because for every 30 people who liked something I said, I had one person go ballistic. To avoid future problems, I’m keeping a low profile. However, when subjects are open for discussion and you don’t know a person, I think it’s crucial not to call them “OCD” or “rude”, especially since you’re clearly not understanding the context. I was called both this morning by two absolute idiots. Mind you, gutless wonders like to hide behind their computers and spew horse shit.

My first thought was “Go fuck yourself!”, but I decided not to lower myself to their levels. Second, throwing obsessive compulsive disorder around as some sort of joke or insult is incredibly rude, and when one is not a healthcare professional, one has no right to say that to someone they do not know and have never met. That actually IS rude. Disagreeing with someone isn’t rude, we’re all entitled to do so.

I’m a supportive writer. I’m going to be honest, polite, and concise because that’s how I am. I’ve NEVER been rude on Facebook or any form of social media that I am aware of. If anyone has ever read my work and deemed me rude, then that was YOUR perception and not the facts. I’m not Ms. Sweetness & Light, I do not throw rainbows at you, nor do I shoot sugared unicorns when one deserves venom.

There is a fine line between sharing thoughts and being a bitch. I don’t bring out the bitch side unless it is warranted and I don’t do it on Facebook because I have a professional reputation to uphold. If I wouldn’t say something to your face, then I certainly wouldn’t say it behind your back or in a public forum. That’s not how I operate.

People like to throw my astrological sign into play in their “defense” quite a bit, but the truth is, I’m a pretty controlled Scorpio female. I might not always have been, but I learned a long time ago to get the negative aspects under control or they would control me. Lesson learned, and once broken of those habits, I did not return to them.

“Sticks and stones may break my bones, but words will never hurt me.” That’s a load of shit. Words can hurt, they do hurt, and people throw them out there like it’s no big deal. I’m known for my “say anything” policy, but there ARE things I absolutely won’t say because I have morals, dignity, manners, self-respect, and boundaries. Some things are so below the belt that you simply don’t go there. You can think them, but then you must let them go because that kind of negativity breeds more negativity, and it’s unhealthy.

More and more, people are offended by anything and everything, but they care little for who THEY might offend. They have no manners or coping mechanisms for difference of opinion or basic relationship skills. Junior high school drama wasn’t cute in junior high school, and I won’t tolerate it as an adult. By all means, disagree with me. That’s fine. If you don’t know the context in which I mean something, don’t assume, ask. Judge not lest ye be judged.

Overall, I’m glad to have the account for my cousins and the few real friends I have, and for specific things that I’ve discussed here many times, but outside of that, I realize that I don’t miss it and that it’s a terrible waste of time. Who knew I’d grow to love Twitter?! By the way, thank you Lillian for suggesting it, and for clearly being a friend to me when others are full of crap (Link to her blog is attached to her name.). You go away for less than two months and you actually find out who your REAL friends & family are, both on and off social media. How utterly pathetic. True colors are shining bright and a lot of people are chicken-shit yellow. C’est la vie.

Also, there is a brand new blog, started by one of my best friends, that I am going to be interviewed for. I will make sure the link goes up ASAP.

And on that note, I hope you all have a lovely weekend. If you’re an NCAA fan, I hope you’re cheering for my team tonight in the Sweet 16. 🙂 GO DUKE!

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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