Blank, Empty, Devoid

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There have certainly been times in my life where I’ve been devoid of all emotion, except maybe anger. Sometimes rage fuels me to be stronger, better, smarter, faster. I worry sometimes that therapy weakened me, taking my strengths as a woman and turning me into a neutered puppy. But lately, due to serious concerns about my health, I am starting to feel devoid of so much. Not just emotion, but everything. I’m a pretty fearless woman, but when I’m sick every single day from stress and I don’t act on my thoughts because I know they will only result in broken bones, it distracts me from the goal at hand.

I haven’t said anything at all because this is not a personal place, though I think some would disagree and say that my writing is VERY personal. I don’t perceive it as being anything more than me being me, and allowing others to take it or leave it. But I digress; I am about to embark on a huge change in my life. It is going to take every ounce of internal, physical, and emotional strength I have left. It will not be easy. In fact, I expect it to be yet another bloody battle. I really wanted to get away from sword-sharpening and focus on my goals for the next few years, but all of that has been stripped from me, albeit temporarily. Now, all I am able to do is take things one day at a time.

Part of having Fibromyalgia to this extent means accepting help that is offered with a genuine heart. I’m finally seeing a few genuine hearts, as opposed to the kind that do something in the moment and then throw it back in your face at the most inopportune time. I’m shedding the toxic, negative people in my life and embracing the supportive, positive, loving people. I cannot deal with the bullshit or drama that comes with that constant negativity, period.

I will be slightly less present on here at times as I pack up my current life, weeding it down to the bare necessities, in preparation for the next phase. I will take time to mourn what I thought would be best for me, and embrace that which is new. Sometimes doors DO close, but dwelling on that is unhealthy. I have to believe that there is a different purpose for me, even if now, it simply feels like an immense inconvenience.

I know not everyone here is religious or spiritual, but if you’re the praying type, please keep me on the positive side of your prayers. I am sick, praying daily that I do not get worse, and that the change I am about to make is, overall, healthy and smart.

Nothing in life is perfect. Nothing in life is truly permanent, not even death. There will always be good things happening to bad people and bad things that happen to really good people. It’s twisted, it is senseless, but it’s unfortunately a part of life. All I can do is take each day as it comes and give it my best. If “my best” means staying in bed and asking for help, then so be it. I’m not here to compete with anyone and I’m certainly not walking around believing I am better than anyone else. I’m human. Take it or leave it, and if you leave, I really don’t care if the door breaks your tailbone on the way out.

I will check any messages sent to me and respond as soon as I can, but for now, I have no real answers. Each day brings different stressors and honestly, all I want is a problem solver. Alas, life does not work like that.

I pray that as this week comes to a close, I am able to solve the most pressing issues quickly. Wish me good luck. XO.

 

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Thank God It’s Saturday!

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I hate the traditional work week, which is probably why I don’t have a “traditional” job. Granted, with my injury and upsetting things going on in my personal life, I spent most of my week making phone calls, practicing self-care, doing extensive research, texting with a close family member, and trying not to commit any type of crime that would land me in prison. I’m too pale to wear orange.

The future is unclear, so perhaps I will do a tarot reading and see if the cards have any answers for me. I haven’t had to do that in a while, but I know that whatever is placed before me, even if I say I cannot do it, I WILL persevere. I can have a breakdown when the storm passes, but not before.

One of the worst things about this week has been the weather. Hot or cold, sometimes both in the same day. The trees are blooming up a storm, the bees are enormous and keep bumping into the windows, and the pressure in the air has been hell on my body. There were many nights I was in bed by 7:00 PM because the pain was simply too much to bear. I slept a full 12 hours one night this week, waking up truly wanting to remain in bed. “Mama said there’d be days like this”- hell yes, but do they all have to be in the same week!? In that moment, I hated the clock and all it stood for. Too much daylight, not enough night. It’s poison to those of us who identify as night owls, and I’m speaking for myself.

Weekends are always way too short, but they do give us a reprieve from some of the things we think during the week. For many of us, it gives us time to get things done that we’re not able to do during the week, like grocery shopping, laundry, or catching up with a movie or TV shows we didn’t have time to watch. Or it allows us to spend time with friends or family. Two of my favorite shows return this weekend: Bitten and Orphan Black. This is the time of year when many shows wrap for the season and others begin, which means you don’t have to spend the entire summer wondering why you pay for cable, satellite, or streaming service.

This past week I’ve really been able to take stock of the word “family”. I’ve also been able to take stock of the word “friend”. Some people say things because it sounds good, and other people mean it. Many talk for the sake of talking. My definitions are pretty cut & dried. If I love you and care about you, you can pretty much guarantee that I’d take a bullet for you, be you family member or friend. However, I do not forgive and forget. If that works for you, I think that’s great, but it doesn’t fly with me. I might forgive a person at some point, but I’ll do it for myself, not for them. I will never forget. Sometimes when words get thrown at you, there is no way to unhear them.

Proper communication is crucial in relationships and it’s incredibly important not to take out your own issues on someone else. If you do, apologize immediately. Hear yourself. Don’t make excuses for vile words and pretend that it can be swept under the rug. I own my shit. If I hurt or offend someone INTENTIONALLY, and I am one of those rare individuals who KNOWS when she’s doing it, then I will apologize the second I realize my mistake. If you hurt or offend me and the words “I’m sorry.” or “I was out of line.” never come out of your mouth, then don’t expect me to apologize for something I haven’t done or to accept an apology that comes too late.

A mistake some people have made with me over the past few months is to throw out the words “You misinterpreted what I said.” I’M NOT DEAF and my I.Q. hasn’t dropped. This is NOT a habit I have. If it happened daily, you could say it was a pattern and take issue with it, but it isn’t. For many, the problem is that I actually called them on their shit, pointed out a major flaw, and they don’t like it. Or, they always believe they’re right, and/or cannot admit that they said or did something inappropriate, wrong, or hurtful. Put your adult panties on, apologize, and move on. Don’t drag it out. The world doesn’t revolve around any one person, myself included.

I have work to do this weekend, in between two errands. I’m double-booked and one of those jobs is due for completion on the 24th, so I’ve got to focus and get it done. Here’s hoping I didn’t ask for too little money on this one. Unfortunately, one never knows until one is presented with certain things.

Have a nice weekend everyone. 🙂 I am off to take as much Aleve as possible and crawl into bed in the hopes that I do not waste another day in pain.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Sleep Interrupted

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I was in bed last night right after The Blacklist ended (If you don’t watch this show, you should. I never intended for it to become something I watch, but the pilot had me hooked from day one.). I flew up the steps, washed my face, brushed my teeth, and after double-checking cat bowls, got into bed. I slept well, until about 5:30 when I started smelling coffee. You know what that means, right?

Just yesterday I told Him “Do not touch my non-dairy creamer. I need it for my tea.” I made threats, none of which were nice, all of which were serious. I take tea time very seriously. When you drink 3-5 cups of tea a day, it’s clearly something you enjoy. I like mine a certain way and plain is not on that list.

I went downstairs in search of the smell, but He was in hiding, and rightly so. When I find him, it won’t be pretty. I fed cat and kitten and stomped back up the steps, furious, but still in need of additional beauty sleep. I was able to get a little more sleep, and have been awake ever since. He is going out later and replacing my creamer because I am not pleased that I can’t have tea until it arrives. Bastard.

This morning, waking up was not what I had in mind at all. It feels like a Saturday, perhaps because it is deathly quiet out. Apparently the kids are not in school this week, which makes no sense to me since Passover is next week and I don’t know how prudent it is for them to have two weeks off, but whatever. Not my circus, not my monkeys.

I’m stressed and I HURT. The weather keeps going back and forth between the 20’s and the 60’s, and while it is utterly beautiful to have milder temperatures, even if it’s a rainy day, it still messes with my body.

I have no plans this holiday weekend. Technically, Passover begins tonight at sundown. My family is scattered across the States and overseas, so I’m not attending any seders, nor was I invited to any. I will keep editing this manuscript so that I can move on to the others she has in store for me, and watch The Hunger Games: Mockingjay Part 1. I’m trying to make tentative plans for tomorrow, just to be able to enjoy the day for a few hours out of doors, but nothing is etched in stone. If I’m feeling up to it, maybe I’ll just take a long walk.

As I’ve said before, the holidays are lonely. I miss my parents and Grandparents terribly. Loss often feels like it happened yesterday, but the years come and go and life moves on, even if the pain of each loss remains with you. I find myself astounded by people who never seem to be affected by the loss of a loved one, who return to work immediately, who never discuss the person again, etc. Are people really that cold and detached, or is that the “coping mechanism” utilized by most people? What is your take on that?

Regardless of what you celebrate, I wish you a wonderful holiday filled with family, friends, laughter, joy, and peace. Me? I just want my tea. LOL.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Long Days, Short Nights

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The days are way too long. The nights are too fucking short. Sleep is hard to come by, but man, I’m trying. I was raised to believe that doing your best is “enough”, providing it is truly “your best”.

I suffer from “Superwoman Syndrome”. This is a real thing. I’m an overachiever that has this unbelievable difficulty asking for help. Perhaps it stems from constantly being stabbed in the back when I HAVE asked for help in the past, or because people like to throw things in your face as if they are owed something. “I was there for you when…” are probably not wise words to hurl in my direction. If I’m there for someone, it is genuine, and I don’t have to say “I told you so.” years down the road. If you don’t want to be there for someone, don’t be, but that’s on you.

Fibromyalgia makes life harder than it needs to be. I used to be able to walk for miles on end, doing countless things along the way, and then walk back. It was never a big deal. Now, I actually have to gather strength to run errands and take care of very basic needs. It’s pathetic. And the last thing in the world I need is for anyone to point it out to me, as if I don’t already know that I’m slow. “We just went without you because we didn’t want to wait three hours for you to get ready.” NICE. Yes, that’s sarcasm.

Even without Fibromyalgia, I was already a pretty isolated individual. I had (and still have) a very small group of close friends and my family. I spent my days writing and editing, and I still do. It’s not the kind of thing I do in public. I’m an introverted extrovert. The people that see me work my ass off are cat and kitten, they know Mommy’s working. Pretty much everyone else thinks I do absolutely nothing, because I’m very quiet and they rarely see me. When you don’t do what everyone else does in terms of “normal”, people automatically make wild assumptions. It would be very nice indeed to do absolutely nothing. Attach a six figure salary to that and I will sign up immediately. Shit, I’d love to do “nothing” by spending my days at the mall, or the bookstore, or any number of places that I haven’t been in the last four years, or longer.

The most important thing to me now is having emotional support. I’m going into some horrific, tough battles and all I really want is to be heard, understood, and cared about. I’d rather a person not have the right words, and say a prayer for me.

There are no heroes in this. I have my Superwoman cape and I’m not giving it back, but all kidding aside, being supported means a great deal to me. The simple fact that I’m asking for it shows me that I’ve grown. Help and support, that’s all I need at the moment.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Holiday Weeks

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It’s no secret: I’m fucking exhausted. Fibromyalgia, migraines, and two hundred truckloads of stress are slowly trying to kill me. Every day, I wonder if a heart attack or a stroke will take me out. I wish I were being dramatic, but I’m not. I would really like to curl up on the floor like a content cat and be left to my own devices. In my next life, I am definitely coming back as one…

In other news; Passover begins later this week just in time for the full moon and today is Palm Sunday, with Easter Sunday being next weekend. The former meaning something to me, the latter meaning “It’s Sunday.” I’m Jewish, which I know is not something people expect, but I’ve never hidden the fact.

Holidays are stressful for me, and depressing. Apart from my brother, all of my family is far away. I don’t speak to 9/4’s of them, and with just cause. I do not get invited to anything except funerals (Who the hell e-mails someone else in the family and asks them to deliver the news to me, and expects me to trek out 3+ hours to be treated like shit?) , and Passover in particular is one of those holidays that I hated growing up and have a terrible aversion to as an adult. This is a holiday where I am grateful to be an intelligent, creative, free spirit, yet under the tyranny of my nation’s President, as opposed to Pharaoh, which for me, is the same fucking thing. What won’t Americans be allowed to do tomorrow? Your guess is as good as mine, and I’m sick of it.

Holidays are often isolating if you suffer from a chronic illness that others refuse to understand and/or take into consideration. If family alienates you and friends drift to the wayside, or make themselves unavailable, it can be quite lonely. Do I want a house full of people for every single holiday? No, but would it be nice to have a few people around to do something with? Yes. In the end, I will probably be working on the never-ending manuscript (It’s really not that long, I’m just that tired.) and listening to music, or something as relatively laid back as possible. If you have a good move recommendation, please, send it along!

It is hard to believe we move into another month this week. Tempus fugit. The knowledge makes me ill (I have my reasons.). The truth is, before we know it, it will be Fall or Winter again, thus the cycle will continue. It’s always something. No matter what you’re going though, the world keeps on moving in various directions. You will agree with some and disagree with others. Such in the pattern of life.

I have a lot to do this coming week, so I made a list. I think it’s a good time to let people know you’re thinking of them by sending out cards, especially if you haven’t done so in a while, and make phone calls to touch base. Texting doesn’t count with this one. Since I can’t bear to talk to certain people at the moment, cards will have to suffice. After all, it is the thought behind the action that counts. 🙂

 

Here’s hoping everyone had a lovely, relaxing, productive weekend.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Hard To Define

I am currently in one of those moods that is hard to define. Lack of sleep and a full body flare-up haven’t helped matters much. You either allow yourself to feel all of the pain, or you mentally allow yourself to be dulled. I’m not talking about drugs or alcohol. I’m simply saying that after a period of time, you shut your mind off because all of the pain is too much.

Not being able to sit for very long, walk the way I used to, or turn my head and neck properly, was something I focused on for a very long time. All I could think about was what Fibromyalgia was taking away from me. Being able to fully take care of myself being high on the list. Other things start becoming afterthoughts because without dulling the mind, the intensity of everything I think and the pain I feel comes rushing back. No one deserves to live like that and call it a “life”.

By all accounts, my life would be considered full to the eyes of many. I know differently. I know that just getting out of bed is a struggle, especially if I haven’t gotten any real rest. Nights spent tossing and turning are equally as exhausting as the pain itself.

There are days when I truly need a nap. Sometimes I fight it, other times I give in. Sometimes a 2-4 hour nap is the best sleep I’ve had in weeks. It upsets me that I cannot make definitive plans because of the pain. When I do make definitive plans, I do my level best not to back out at the last-minute, unless it is something that is truly easy to re-schedule. People, it turns out, aren’t very understanding. Over time, you lose people in your life, but you hold on to those that are quality. A real friend doesn’t turn their back on you, period.

I think it’s important to support others through any form of Chronic Pain and Fibromyalgia. I don’t think it’s acceptable to walk away from someone who is really suffering or turn your back on someone without just cause. Essentially, many people want things they are not willing to give in kind. Hard times help you to see other people’s true colors.

I’m the same person I always was: Inappropriate, funny, honest, direct, loyal, and real. Pain has not minimized my personality or the lengths I will go to for others. It has slowed me down, yes. It has made me focus on other things at times, but it has not changed the core of who I am.

Love, loyalty, and friendship mean different things to different people. I know what it means to me, and I honor that. I will not stand for those that cannot honor any aspect of it. Apologize when you are wrong, fuck off if you’re not genuine, and basically, don’t waste my time; it’s valuable. Pain might limit certain things, but it’s not a lobotomy.

There are a lot of false people in this world. Don’t allow yourself to be fooled by them. See people clearly, for exactly what they are. Stop looking for the good in people (Despite what some people believe, there is NOT good in “everyone”.) and start looking at what’s right in front of you. Trust is not something to be given away freely, it is something to be earned.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Jumping The Gun

I feel jet-lagged and incapable of moving almost every muscle in my body today. I can’t truly afford to take the day off, but I have no choice. I am sitting here and my eyes are barely open, my brain is barely functioning, and yet, I know full well that I got a full night’s sleep. Have I mentioned that I HATE turning the clocks forward?! It is a crime against the body.

I’m in a little less pain than yesterday, but I suspect there’s something waiting around the bend. After all, Fibromyalgia loves nothing more than to lull you into a false sense of security in your body’s pain threshold before it knocks you back on your ass, unable to breathe. I went to bed last night in severe agony. I even looked in the mirror to make sure my spine wasn’t bruised. The never-ending grind on the body is tiresome and depressing. There are moments when you question whether or not you’re actually alive or if you’re simply living in a nightmare, unable to wake up. At any given moment, it’s truly a toss-up.

Not even caffeine can keep me awake, so I am going to close my eyes and allow myself the rest my body is screaming for, even though it makes me feel terrible about my place in this world. If you know someone who suffers from any form of daily pain, send them a kind word this week and let them know you’re praying for them, care about them, or that you are simply available to listen. Oftentimes, those are the things sufferers of any form of chronic pain need the most.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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Tell Me The Truth; Was I Run Over By A Truck?!

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Sleep issues, for now, seem to be on their way to looking up. I was in bed so early last night, I’m certain every 80+ year old Grandmother was still awake when my head hit the pillow. When sleeping is difficult, it’s good to go to bed the second you can no longer keep your eyes open. Mission accomplished. It was after 4:00 a.m. when I realized that I never bothered to turn the clocks ahead an hour, but in the grand scheme of things; no harm, no foul.

Somehow the downside of a full night’s rest is that I woke up feeling like a Mack Truck had run over me, backed up, and proceeded to go at it a second time. Everything from my neck down to about mid-thigh feels broken, bruised, damaged, and whatever words are worse than “sore” and “achy”. By Fibro flare standards, this is pretty standard. It was twenty degrees colder yesterday, and yet today, while the temperature is slightly under a balmy 50 degrees, my body is working against me. Even my hair hurts…that’s not okay.

Weekends are never as long as they should be. For at least a year, I’d like one continuous weekend. There are weekends where you get a lot of writing/editing done (read: work) , and others where you get to enjoy things that you might not normally get to do (Minds out of the gutter.).

I’m extremely displeased with where this weekend went, but considering how much I have on my mind and on my plate, figuratively speaking, I just have to do better this week in terms of properly managing time.

In the meantime, I’ve got a ton of work and research ahead of me this week. I look forward to none of it. I’m having a hard time being passionate about what I do because the daily pain is just too much. Normally I am speedy and efficient. Right now, I am slow and I find fault with every other word. No matter how much positivity I can manage, at the beginning and end of each day I am still in excruciating pain and it’s hard not to take issue with that.

Here’s hoping everyone’s week is bright, and full of potential. I’ll be okay with significant progress, love, support, and a lot less pain.

copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Do Not Confuse…

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I think it’s really important to listen to others and hear them, even if the subject matter makes you uncomfortable. I don’t like to denounce someone’s feelings, even if I disagree with their perspective. People say that words aren’t harmful, but they can be and it’s important to acknowledge that even the simplest way of saying things, at times, can make a person question who they are, or that it can do severe damage.

Sometimes, I think people say things to challenge me. It’s truly not meant to be harmful, but if I’m already bleeding on the ground, I probably don’t need another kick.

I’m so far from perfect, it’s not even funny, but I will be apologizing to a few people this week to be certain that they grasp the true meaning and don’t take simplicity the wrong way.

Above all, always be yourself.

Overreaching

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I decided a few weeks ago to forgo all the “traditional” Thanksgiving Day fare. I did not relish the idea of dealing with a turkey when a good half of it would end up in the garbage or making stuffing because I made it last year and there is simply NEVER enough stuffing one can have. I’m a carb fiend, take my word on this. FYI for all pet owners: Do not give your dogs or cats dark meat, it’s too rich for them.

Alas, I came up with a different idea. It’s a great idea. However, after a very long day of shopping in two different stores for everything I needed yesterday, I woke up this morning (way too early) and had a moment of utter panic.

What possessed me to think that chopping 7 pounds of vegetables would be “no big deal”? I’m more concerned with my Fibromyalgia, because it is flaring up BIG TIME today from my neck to my ankles, than I am about my skills with a knife (I already sliced myself last night on a mixer blade.). I will have no choice, but to take breaks in between each veggie (there are 4 in total, but there is, obviously, a LOT of it.). My only “plus” is that having had a migraine yesterday afternoon, which required medicine with caffeine to abort it out of my system, I was left wide awake into the wee hours of the morning. It was around 10:30 or so last night when I decided I was “awake, therefore I should bake”. It took more time to mix up the batter than it did to bake the two cakes I made. I thought they were awful, until I tasted the 100% cooled product this morning. It’s a little like dying and going to heaven, depending on what you like cake wise. I’m only feeling certain flavors these days. But hey, that’s one additional thing out of the way. All I have to do is frost the cake, though I do have to say that certain frostings are so disgusting, and filled with chemicals that terrify me, that I wish I’d taken a spare 30 seconds to read one can before agreeing to it. However, it’s not going into MY body, so it’s not on me. At least the normal one has ingredients in it that I can pronounce, as opposed to “Let me just Google this…” That is the quickest way to ruin dessert.

I think Aleve should be forced to change their advertising slogan from “It’s your life, pain shouldn’t get in the way. 2 pills will provide up to 12 hours of relief.” (Less than ten years ago, they claimed that 2-3 pills was 24 hours of pain relief compared to 8 Tylenol. Who the hell are they kidding? Neither of them work.) to “2 pills MIGHT give you an hour or so of peace.” There’s absolutely no drastic difference if I use the brand name or a generic version, there’s no such thing as true “relief”. I’m willing to do a LOT right now for true pain relief, but I have my limits. I already feel like someone beat me to death and no one has found my body yet, so if you don’t hear from me for a while, I must have posted from the spirit realm.

Dinner won’t be “early” tonight, hell, it might not even be served in a timely fashion, but I’ll do my best to get it all done. I have an assistant, we’ll see how long he lasts before I throw him out of the kitchen. As long as there’s no bloodshed (from my chopping knife), it’s all good.

No matter how you spend this holiday or where you are spending it, especially for our troops overseas who are away from their families, take a moment to appreciate the good things in your life and all the unhappy, bad shit that lead you to this place. Take stock of all that is important to you. Sometimes we find that the list is huge and other times we find that the list is smaller. My list is in the acknowledgements of Book One. I cannot say it’s short.

Don’t just be thankful today, be thankful every day.

copyright © 2014 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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