

This year, I simply cannot rehash my emotions. If you’re interested, you can find what I’ve written about it each September prior to this one. 😦


This year, I simply cannot rehash my emotions. If you’re interested, you can find what I’ve written about it each September prior to this one. 😦

“For me music is a vehicle to bring our pain to the surface, getting it back to that humble and tender spot where, with luck, it can lose its anger and become compassion again.” –Paula Cole
Week two of this 10 level Fibro flare. Each day I have said “Tomorrow.” Yesterday I said “Self-care and work.”, because walking was out of the question in terms of pain, and even when the edge was taken off, I was concerned about further damage.
Waking up at 1:00 a.m. two days in a row with a migraine and excruciating hip pain is NOT doing much for my mood. I did about 10% of the proofreading job yesterday, and called it an early day. I am grateful it’s under 62,000 words, or I’d be furious with myself based on how hard I am working. I have a deadline to meet and I need to get this done. The sooner, the better. Brain cells died off yesterday. 😦
I’m struggling right now with the pain, with what my brother is going through. Another life-threatening infection, another stay in the hospital. More surgery scheduled for tomorrow morning. I am devastated and heartbroken, worried that my brother won’t make it through the year, and I am withdrawing from negative people who don’t want good things for me. If you treat me like a real person, I will be there for you through thick & thin, but when you treat me like an animal and/or a personal maid, it won’t take long before I get sick and tired of it.
The best was the phone call I received yesterday morning from a friend, asking if I could “pop down to New York real quick for the next week because her babysitter backed out and she has to work New York Fashion Week”. She hasn’t spoken to me in months (six, to be exact), but calls out of the blue for a favor. It’s not even a small favor, it’s the favor of entertaining a five year old for a week in New York City, as if I’m five minutes away. I very nearly responded by saying “She should be in school.” (which I firmly believe) and hanging up. What’s the point of enrolling your child in a nearly $40,000 a year private school if she is going to be missing a month traveling with you from New York to London, and then on to Milan and Paris? She could have stayed home and remained on schedule. I sat here, shaking my head no, and finally said “This time, I can’t do it.” I did NOT elaborate as to why or explain my feelings. It was as if I’d said NOTHING though, because then she asked if I’d be attending her 20th wedding anniversary party next year. One) I have not received an invitation; this is the first I’m hearing about it. Two) I wasn’t invited to the wedding, despite the fact that we’ve been friends since we were kids. Three) Maybe not. If I’m only good enough to be present for certain things and I’m not important enough for you to return my calls or text messages in a timely fashion (I don’t care who you are, no one is THAT busy, unless they’re off saving lives or have been deployed overseas.), please don’t expect me to jump when you DO deign to call. What little of a life I have, despite the fact that it makes me fucking miserable, is mine and I’m not a servant to be called in at the last-minute.
I am dead tired and would really like to sit and cry. However, I have to be strong for my brother and do what I can to help him get through another hurdle. Despite all the horrible shit I am going through, no one is cutting me open in an operating room (They’re simply doing it verbally.) and giving me bad news on that level. I pray he comes through this healthier, and I pray no family ever has to go through what he & I have been through over the past year.
I will be back as soon as I am able. For now, it’s back to the grindstone. G-d Help Me!
copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

https://themighty.com/2016/08/how-people-react-when-i-get-out-of-my-wheelchair/
Towards the end of their lives, both of my parents were in wheelchairs for different reasons. The mere thought that I might have to use one long before seeing age 40, or EVER, is terrifying to me. 😦
“Change in a country begins with one person. Each country reflects the inner peace or turmoil of its mass population, and so as one person changes, they affect the rest of the population. One person has the power within them to bring massive change to their country through immense love and peace within themselves. But we cannot bring about peace and well-being to our country unless we have conquered that in our own life. Do you see? You cannot give what you do not have. Each person’s job is to bring utter harmony into their own life, and then they will become the greatest human gift for their country and the world.” —Rhonda Byrne