This is disgustingly real. There are doctors in many states that will refuse to treat you if you’re ten pounds “overweight”. They don’t treat you as a person, they treat you like a number on the scale that somehow makes them feel superior. It is unacceptable behavior. Don’t EVER be afraid to get a second, third, or even fourth opinion. You are your own best advocate for your health. If a doctor is disrespectful, find one who has their shit together. Don’t pay anyone who cannot treat you like a human-being.
Health
Sleep Deprived
I spent Sunday running on less than three hours of sleep. As you can imagine, it was an incredibly long day. I pushed myself to go to the hospital. I was surprised I wasn’t in and out in twenty minutes, as hospitals are more than a little traumatic for me. I managed to stay for quite a while. It was, quite possibly, a first. It might have been because the CICU rooms are private (another first), it might have been because it’s practically empty in there (It might very well have been the quietest hospital I’ve ever been to.), or it might have simply been a week’s worth of stress and concern relieved, to some extent, when I saw that there weren’t fifteen different contraptions hooked up to one person. Normally when I see that, I never see the person alive again. In fact, my brother has already informed all of the surgeons, doctors, and nurses NOT to allow me in if he’s hooked up to a multitude of devices. He’s afraid I’ll lose it.
As of yesterday, my brother is stable, but they’re trying to adjust his medication because he is losing electrolytes at a rapid pace, which is based solely on the medication he is receiving. Tests are being run in earnest so that they can move forward with surgery. Initially it was scheduled for this morning, but late yesterday afternoon a doctor came in and told him it was canceled so they can monitor him for several more days and adjust his medication before moving forward. That information was jarring. First he told me “Surgery is at 7:00 tomorrow morning.” and a few hours later he tells me it’s been canceled and explains why. I went through a myriad of emotions that were quite exhausting. Now obviously, this isn’t about me, but I am still greatly affected. His mood is better, and he was really happy to see me. He said it gave him strength to face what is coming.
Now that I know the direction they’re taking, I realize how sleep deprived I am from last week, and in general. I grocery shopped Sunday afternoon like a staggering zombie. I wasn’t entirely sure what I was buying, either. I saw a list in front of me and I got most of what was on the list (I still have to go back in a few days and get everything I couldn’t handle in the moment.), which I realized yesterday morning, but I was truly not functioning on all cylinders. I’m so stressed that I require reminders to eat, or I’ll simply feed Cat and Kitten and ignore my own body’s needs.
Cats aren’t on Daylight Saving Time, which is an adjustment for us humans. They’re waking me incredibly early (two hours or so earlier than normal.) to be fed, they’re asking for “dinner” at 3:00 in the afternoon, and Cat likes to screw with me by walking away from her food at least once a day. She patiently waits for me to “serve” them and then runs and hides as I try to scoop her up and put her in front of her plate. I can only catch her if she wants to be caught. She’ll wait a few hours and then roll a ball into my room while I work or drop a toy at the door. She’ll stare at me with her big, gold eyes and implore me to understand that I need to stay with her while she eats, that she requires protection from “the little one”. I picked Kitten up the other day to let her know her behavior was unacceptable and inform her that she’d already eaten and needs to leave her sister alone so that she can eat her own food in peace. She’s not “little” any more. The kitten behavior remains in her energy, curiosity, affection, and sweetness, but she felt like a small sack of potatoes. She could easily pass for a small turkey if she sits the right way and yet I will probably learn in a few months when she gets her shots that she’s about ten pounds. That’s the normal weight and size she should be for now. Her energy and weight will adjust and she’ll either remain the same weight or lose a pound or two. Torties are like thoroughbred horses (some, not all). Their running, jumping, troublesome, adventurous natures do not stop as they get older. Their personalities are more human, but they seem to take the whole “nine lives” thing seriously and do their level best to test them out. You either have a stroke watching this behavior or you get used to it. I try not to react too much since she is my second Tortie. Surprisingly, they are quite similar in many ways.
This week, despite only being Tuesday, feels like a cosmic joke. I write, I take care of normal things, but I’m not truly present in any way. There are always e-mails, phone calls, and texts at the moment. There are friends and family overseas that are deeply concerned and feeling guilty that they’re not present. I did not tell a lot of family members because it was against my brother’s express wishes and quite frankly, they don’t need to know. If people don’t care about you year-round, then they should not be allowed to lap up your pain and misery simply because it makes them feel superior in some way. I don’t understand people like that. I don’t find anyone’s pain amusing. I still have compassion. And sadly, if any of these people needed me, I’m not 100% sure I’d make myself available any more. The people who are always there for me know my heart and they know I’d take a bullet for them, but anyone that cannot stand by me in good and bad times, whether we are blood-related or not, needs to fuck off.
I’m not very receptive to excuses. In life and death matters, people should be present. My Aunt told me her children (my first cousins, all of whom should know better, but apparently my brother & I are the only ones that inherited brains.) didn’t attend my parent’s funerals because their children were sick. We’re not talking about infants, so my thought process was “Then ask a neighbor, a friend, or a fucking babysitter to watch them for two hours. You do NOT pretend like your Uncle and Aunt didn’t pass away, and by all that is holy, do NOT show up a year later and pretend like I am going to accept your presence as acceptable behavior.” If I don’t go to a funeral, it is probably because I wasn’t given enough notice, not because I am being disrespectful. You don’t ask a third-party to e-mail me about a funeral. That’s not how you do things like that. And if you do, screw you, I won’t be there.
My brother isn’t as fierce as I am. If a person doesn’t call or visit him in the hospital, he doesn’t take it personally. He told me last night that only a handful of people matter, and that I’m the one who matters the most, no one else. Even still, it makes me angry that the people who should be supporting him are not. You definitely see people’s true colors during hard times, but the truth is much more easily faked during good times. I don’t respond well to that. I know when people aren’t being genuine. There’s a huge difference between being nosy and legitimately caring about another person’s well-being.
And so, I have reached a “point of no return”. I’d rather cut the herd now, as opposed to continue dealing with fake crap. There are a few people who are about to be torn new assholes, and quite frankly, it doesn’t bother me in the least. No one deserves to deal with people who spew crap out of two different ends. No one.
I know many of you can relate to the family and friend dynamics I am talking about. It’s disgusting, but I think overall, we are all better off cutting people out that are cancers in our lives.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Zecuity
http://www.headaches.org/2015/10/21/migraine-relief-available-via-zecuity/
Has anyone tried this?
Family First
Yesterday morning my brother was admitted into the hospital with what is, as of now, a form of heart failure. The doctors are baffled; stating that they don’t know how this happened because he is far too young. Unfortunately, he is far from being out of the woods. He is scheduled for a serious procedure today, and I am sadly all too familiar with it.
My original post probably won’t go up today because I’m sitting here speechless, sick to my stomach. I have words, there are things I want to say, but I feel the need to keep it inside for now.
I don’t talk about my personal life an awful lot, and there’s a reason for that. Most of you that know me off of this page are my friends in everyday life. You have the ability to call me, e-mail me, text, or visit, etc. But for those that do not personally know me, my heart, or the deeper aspects of my life, I tend to keep those things to myself. There’s plenty of people telling their life stories on blogs, but this is not a blog for me; it is my platform as a writer. I am a writer, I have been for 28 years. I’m not a blogger, at least not here, but perhaps that is just semantics for some people. I, however, stand by those words.
This week, I worry (It’s a Jewish woman thing.). I will try to push past the pit of hell inside my stomach. I pray for healing, for modern medicine to do what it’s supposed to do. I pray that some dietary changes reverse this, as a doctor told him it could/would, with some serious effort on his part, but only if it’s a specific type of heart failure.
The words “Life Vest” were used. That kind of technology did not exist when a doctor wanted to crack open my mother’s chest ten years ago and attach a defibrillator to her heart. Her doctor was over 80 (I wanted to punch this man at least three times, but it would have been disrespectful. I told her if he’d been 60, I’d have knocked his teeth out.), did not care to explain the procedure in a gentle manner, and was so rude that he only managed to turn the issue into a “Hell no!”, as opposed to “Can we discuss this?” Everything is being thoroughly explained to my brother, and for that I am grateful. He’s also smart enough to ask questions that other people might not think of and then discuss his options with me, that way there’s a proactive person involved in his recovery.
I know that many of you will understand if I am silent for a while; that family comes first. Today, and maybe most days, I am my Grandmother’s granddaughter. I do put my family first, but I am not afraid to handle the tough stuff. That’s why during the worst times in my life, I handle what needs to be handled, even if I’m not happy about doing it. Even if it breaks me.
Lack of a family unit has really bothered me these last few years. As I sat here yesterday making calls, I realized that about a dozen people did not need to be called, because they don’t give a fuck on a good day, and I will not give them the satisfaction of lapping up misery. I appreciate the people who offered up prayers, but I very nearly told someone off who made an off-hand comment without knowing precisely what is wrong. I had to take a huge step back, realizing that I’m emotional and snapping when you’re upset is not conducive to quality communication with others.
It would be hard not to be upset, angry (because I have tried for YEARS to take every bad thing out of his hands when I knew it was being over-done.), frustrated, and scared. I wouldn’t be human if I felt nothing. But I do feel, and I pray that this procedure holds answers as to the how and why. I pray to all that is holy that this is merely a bump in the long road of life. I pray that my brother sees the error of his ways, realizes he is being given a second chance, and takes that opportunity instead of squandering his brilliant mind.
I thank the doctors and nurses caring for him and the four different people who stopped him from an attempt to sneak into the parking lot for a cigarette! I’m embarrassed he’d stoop so low. They all yelled at him (His words were “They bitched me out!” I said nothing, because I feel he deserved it.), and he was later given a patch, so I am praying this is the end to me saying “You need to quit smoking before it kills you.” My brother may not be receptive to my direct honesty, but he’s taking it from doctors and nurses and I think that in and of itself is a positive thing.
I hope I’ll be able to say something more definitive in the next few days. In the meantime, I’m packing and trying to do all that I can for my brother. Because no matter how big a pain in the ass he is, and my GOD, I swear I inherited a big baby, he’s still MY brother. No one else alive can say that, and I told him the same thing. “No one else alive can say that I am their sister, so stop acting like no one cares about you.” I yell because I care, so when I stop yelling, he’d better start worrying.
As of now, I do not know with any certainty whether his medical expenses will be completely covered. If they aren’t, I will be posting a link at a later date to a fundraiser where even the smallest donation will help, but I will only do so if there’s a huge issue.
Thank you for listening to my insanity this morning. Have a good Wednesday, everyone. 🙂
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Prayers & Tears
I contemplated being silent today because I’m not in a good mood, but I’m also too upset to pretend.
I’ve had less than five hours of sleep. I tried going back to bed an hour ago, but I am unable to focus on genuine rest. That usually means doing what I always do when there are thoughts running through my head; write.
My brother is sick. By “sick”, I do not mean he has a cold or the flu, I mean that he is going into the hospital tonight. Why wait? Because he “doesn’t want to ruin my day”. It’s not meant to make me feel guilty, he’s just utilizing God given guilt.
When I tried encouraging him to “just go” (He totally inherited the stubbornness from my Mom.), he refused, saying he could go tonight “after I celebrate”. I even offered to go with him, which he doesn’t want, not unless major surgery is being performed. He’s not trying to be dramatic, he just is. 😦 He’s also conscious of the fact that nearly every birthday I have sucks in some way, and that he’s usually the cause if I, myself, am not stuck in bed sick as a dog (in the traditional way).
Last night, he informed me of all his final plans. Plans I am meant to carry out, some of which include organ donation. I’ve had to hear people’s “final wishes” more times than I care to count, so last night was too much. My eyes are swollen from crying and my stomach hurts wondering if this is it, if some horrible health issue is going to rob me of the only remaining sibling I have left. Very real possibilities. When he got a clean bill of health three years ago, I was surprised, and relieved, but a lot has changed since then and I am sick with worry.
You know that one stubborn family member who would rather risk his/her own hearing than go to the emergency room for a horrible ear infection?! That’s my brother. Not once, not twice, but three times. The first time he did it, he did lose significant hearing in his left ear because he waited an extra day before going to the ER. The last ear infection was so bad that he now accuses me of raising my voice when I speak at a normal tone. I can whisper, he’ll say I yelled.
Today is not about me. Today is about praying for my brother and what he is going through. It is me praying that he did not have a heart attack and isn’t in congestive heart failure, and that nothing more is going on, though I suspect there is based on what he is saying hurts. Both of my Grandfathers died from heart attacks, but one died at 40, leaving behind a wife, a fifteen year old, and a five year old. My brother started taking aspirin several years ago to “prevent” that from happening to him, but he made no other changes that could have been beneficial. That’s why I’m scared for him, and that’s why I’m sick to death over this.
I will half-heartedly do some important things that need to be done this morning into the early afternoon hours, but after that, I am forcing his ass to the hospital, even if I have to drag him there by his balls. He usually hallucinates when they medicate him, so that would mean being told rather loudly that I am “trying to pull out his IV” or “embarrassing him” when all I’m doing is sitting quietly, or pacing the hall outside a room. I will spend the evening waiting to hear what his prognosis is.
No matter what you believe in, I ask that you say a little prayer today. No one deserves to lose a loved one and no one as young as my brother deserves to go through this.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
Are You Ready For Ragweed Season?
http://migraine.com/blog/ready-for-ragweed-season/
Apparently, I am NOT. I came home late the other night and my eyes were nearly swollen shut from all the crap in the air. Also, someone had either hit or spooked a skunk, which could be smelled for a good three miles. The fact that I had to take my contacts out three times and clean them like a mad woman before putting them back in didn’t help. I don’t normally use drops every few minutes, but it was maddening and the lenses are new, so I knew that wasn’t the issue. And yes, I had a migraine that made me want to die the entire time. The weather going back and forth between Spring temperatures and Fall temperatures isn’t helping either. I’m hesitant to put my contacts in today, but it’s not really an option to go without them. I’m just worried about how warm it’s supposed to be and how the thunderstorms may or may not affect the migraine I currently have.
Here’s hoping it’s quick and painless. I’m in too much pain for anything else.
The Effects Of Anxiety On The Body
http://www.healthline.com/health/anxiety/effects-on-body
I think this is a helpful article for anyone who struggles with any form of anxiety. I’ve noticed that the strongest people are the ones who are taking medication for it and/or trying to cope in the best way possible. I’m not ashamed to talk about it myself.
Written by LISA MARINO-Molchanova 