Doctor & Patient: The Follow-Up

**Potential trigger warning**

“Exigo a me non ut optimis par sim, sed ut malis melior – I require myself not to be equal to the best, but to be better than the bad.”

I think my doctor is a compatible astrological sign and/or is perhaps magically able to defuse angry women. I realize sometimes it’s a little like talking to a cornered animal or a small child, except when it’s me, because I can’t be likened to either. I’m more like a venomous tornado; if tornados could have that additional level of power.

I genuinely give him credit because he handled my appointment with grace, class, ease, and owned his mistake. I can count on one hand how many doctors I know who would have owned up to a major error. He’s maybe one of three, if that. He is in the teeny, tiny minority because he has managed to maintain his humanity, sense of humor (I’m pretty certain his sense of humor is one of the reasons I like him so much. I can genuinely appreciate someone who has the ability to match my level of sarcasm, snark, and wit. It’s rare.), and the ability to stay grounded. I hope he never changes, because it would be a damn shame. I walked in enraged, and walked out laughing. I’m not that moody, not even for a Scorpio, but again, refer to my opening line.

I spoke, he listened, and we discussed possibilities for me to meet with someone who fits the criteria of what I need moving forward. He could have blown me off; instead he tried to problem-solve, and that is going above and beyond in my eyes. A far more jaded doctor would have passed me off to someone else, simply for being honest. God forbid you point out to another human-being that there’s a flaw in the system, or that they, themselves, are not perfect. Denial is not just a river in Egypt for some.

I’m proud of myself for handling this without reverting back to the old, angry version of myself who definitely would have handled things in a much more brusque manner, and brusque is soft considering it isn’t my original choice of words. Despite being angry, I was calmer than I thought I’d be once I sat down. I know the initial look on my face was anything but cute, but that frosty demeanor is my usual, unapproachable “Don’t fuck with me” look. I have scared postal workers with that expression; I know it’s not a good face. My doctor, all credit to him, seemed concerned, but unphased. He knew something was wrong, he just didn’t know what it was. Once he heard me out, everything was okay. In no way, shape, or form was he pacifying me, nor did he come off patronizing. I know the difference, and I would have walked out if he’d tried it. He’s too smart for that level of nonsense, and he earned another layer of my respect for keeping things real.

I know a lot of people would not have gone back. Many would not have been able to go back and be honest with him, but I’m no ordinary patient. I believe in full disclosure, even if I keep certain things private and keep pieces of myself to myself. I still don’t believe in accepting bullshit from anyone and eating it politely with a knife and fork. That’s not my style, nor will it ever be. I lack the ability to bite my tongue. I’d rather be honest and say what I’m feeling, as opposed to keeping it inside. That’s not healthy.

As I write this, it seems as though my ulcer is acting up once again, so I definitely don’t have time to hold any more stress or anger inside my body. I need healthy outlets, and writing has always been my first line of defense. It’s one of the clearest, most concise forms of communication. You don’t write as long as I’ve been writing if you don’t have something to say and have some serious talent to back up the words, otherwise, words are just that; words.

Did I feel better walking out of this appointment? A little. I’m glad I was myself and got the majority of the anger out of my system, but ultimately I still came away upset, just not at the doctor.

He admitted he wouldn’t have asked me certain questions if I’d looked more closed off. If I had looked like I had a wall up, he wouldn’t have dug so deep. Apparently my “packaging doesn’t match my pain”, his words, not mine. I do like him, so I let it slide, but that comment stayed with me for days and it’s going to bug me.

I immediately wanted to point out that just because a woman has makeup on, it doesn’t mean she’s an open book. Yes, I answered his questions. I did side-step a few, whether he noticed or not is another subject entirely, however, is wearing makeup what’s hindering me in getting proper care? It made me wonder if this has been an issue for the past ten years or so; the simple fact that I don’t walk into doctor’s appointments looking like death, which is usually how I feel on the inside. Do I need to walk in a drooling, incoherent mess? Is a face REALLY all people are paying attention to?! Is everything artifice? I do believe it’s called an “Invisible Illness” for a reason. Thirty minutes of my time, or less, to look human may seem ridiculous, but that time calms me down so I actually go to the damn appointment. Some doctors recommend coloring books to their patients as a form of therapy. Well, makeup is art therapy for me. It wasn’t even my best work, it was just mindless self-expression. Let’s not judge the broken, pretty mess by her “packaging”. Let’s not make assumptions. It sort of makes me want to show up in sunscreen and mascara next time, just to screw with him. However, that’s my “It’s over 90 degrees and I’m going to the grocery store in sunglasses” look. I try to look a little more human and pulled together when I’m face-to-face with someone. Not because I am trying to impress them, but because it’s something I do for me.

In hindsight, I realized that nearly all of my doctors, both past and present, are men, save two. I read a report about myself once that said I was “impeccably well-groomed” and it angered me. Obviously the doctor who wrote it has zero idea what it takes for me to be so “impeccably well-groomed”. I have an appointment in August, but I’m not about to ask another woman how she feels about my eye shadow blending skills. <rolls eyes> The first time I was there, the nurse went on and on about how good I smelled. That’s such a girl thing because my friends do it all the time with me. Women notice things that men do not. Men are more visual, but I don’t wear makeup for men; I wear it for me.

In my dealings with my beauty blog, I have sponsors, so I’m occasionally paid to write honest, unbiased reviews and I’m constantly trying new products revolving around hair, nails, skin, and makeup. It’s something I do for fun, something I hope will one day become more. However, the pain I experience has already held me back these past few years in terms of expansion, of starting a YouTube channel, and branching out. I re-branded last year, but my confidence levels are nonexistent, so if I’m not comfortable posting a photo of completed work to Instagram, then I’m definitely not ready for a camera in my face 3-4 days a week when I need to be filming.

Despite support from friends and family that I am definitely skilled enough to do it, I don’t feel ready. But does that mean I should be taken less seriously when seeking medical help? NO. Don’t judge a book by its cover. Or in my case, its skill-set. That’s not even 1/100th of what I can do in this world, and by judging me for it, you’re taking me down to less than a millimeter. That’s an unacceptable thought process. I personally know some of the most stunning people who are suffering just as badly as I am, and if you didn’t know them, you wouldn’t know what is going on because they have trained themselves to fake smiles and laughter. I will never fake a smile, not will I fake laughter or any other emotion, but yes, I will use an art form. I assure you, it’s not a mask, it’s just product.

After my appointment someone asked how I was feeling mentally, and I said “Let’s face it; I’ll never be okay. This is not fixable. Maybe if someone had done something to help me when I was six, or seven, or eight, I’d be okay now, but they didn’t. I feel neglected. I feel like my life isn’t my own. No one should have to carry this pain with them, this knowledge, and have to keep on living.” I then realized I’m deeply upset, and there’s no fixing it. I could go to a hundred doctors and there’s no cure in sight. I don’t know if there ever will be. There are always new medications in the pipeline, but a cure? No one ever talks about that, do they?

Ultimately, I am who I am; imperfect, shattered, hilarious, loyal, honest, goofy, inappropriate, sharp, creative, determined, the family protector, a permanently exhausted night owl, incredibly direct, a girl’s girl to the core, the person everyone turns to in a crisis or for advice, the girl “most likely to take a bullet for you”, the person described as “part lawyer/part doctor/part pitbull”, the psychic/spiritual guru for friends and for many of my close family members, mother to Cat and Kitten, a kickass Godmother, a truly amazing sister, an introverted extrovert, the girl who’ll sing anywhere because she hates wasting her voice training, the very best friend anyone could ever have, and the last of the matriarchal cooks in my family. I wear so many hats and own so many titles. That’s my “normal”.

In all the positivity, there is also a lot of fucking pain. You can’t mask that. No one sells “You’ve been through hell” concealer (I’m trademarking that, so don’t get any cute ideas.), or everyone in this world who suffers from an invisible illness of any kind would be stocking up. I look in my own eyes and see it. They may look sparkly and green in the right light, to the right person, but to me, that’s predominantly a sign of intellect and personality, nothing more. I have a dark, twisted sense of humor. People either enjoy it or they stare at me and say “I don’t get it.”, which usually results in the response “Bless your heart.”, mostly because I don’t have time to explain it to someone if it goes over their head. I’m quick-witted and even quicker with my sarcasm. You either get it or you don’t, but it’s not intended to be offensive, unless my tone changes or I intentionally speak a different language in
front of you.

Suffering from depression isn’t just abysmal highs and lows. For me, it’s living in pure darkness and trying to find shards of light scattered here and there. Light comes in many forms for a creative type. I love learning how movies are made. I am fascinated by certain aspects of history. Certain artists intrigue the hell out of me, and they remind me I should be painting twice a month. I actively study parts of the world that most people will never see in person. I learn new languages. I have traced my ancestry back to 85 B.C., which was no easy feat, and I’ve researched cats so thoroughly that you can ask me anything about domestic or big cats. I never stop learning. And yet, I openly and honestly discuss suicide in the same breath. I don’t believe in hiding it. I don’t believe in masking the pain or lying. I’m not going to sweep it under the rug and pretend. Pretending is what gets you into trouble.

Last month, one of my cousins tried committing suicide via overdose. It deeply affected her oldest daughter and other family members; justifiably so. While they are all taking it personally and questioning the kind of person she is, offended that she lied to them or simply didn’t disclose how badly she was suffering, I’m the one person who seems to truly understand how much pain she is in to have hit rock bottom. I know how awful it is, and I refuse to sit in judgment of her for it. In fact, all I want to do is help her. I’m sick of their attitudes. They’re acting like it’s all about them when the truth is; her pain has NOTHING to do with them and EVERYTHING to do with being strong for decades and finally breaking down. I didn’t realize how deeply it affected me until I broke down in the shower one day. I am deeply concerned, especially now that she is back in the hospital and continually tries to manipulate doctors, friends, and family into letting her out. This is the person in the family who would personally kill any of us if we tried to do something as stupid as what she did, so I KNOW this isn’t her, this is merely illness and an extremely dark, low point. What they deem as selfish, I see as a diamond in a pressure cooker. That’s precisely how a doctor once described my own situation to me. I try to remember those words whenever I reach my breaking point, but it’s not easy to hold on to mere words when your support system is nonexistent.

I spend 97% of my time alone, in pain, so how could I not think about suicide? Between the stress and the isolation, it’s hard not to. and I refuse to lie or pretend. I’m not good at being fake.

There are days when I’m taking a long walk, just to clear my head, and there’s this little voice hoping I get hit by a truck or a bus, or a car not paying attention. Unfortunately with my luck, I’d be in a body cast and no one would ever think anything except that the driver was an idiot who didn’t see me. No one would ever think I had anything to do with it, and for the most part, I likely wouldn’t be thinking about it either because I have “city brain” and I’m very careful when I’m walking, but there have definitely been moments where I’ve nearly been hit because a driver wasn’t paying attention and each time, a large part of me was sad they stopped or that I was paying attention. It’s sad to admit, but it’s also honest, and human. I despise my life and almost everything in it. I find it pointless to pretend that it’s okay. I am 1000% NOT okay. I cannot remember a time when I was okay. Passable? Yes. But okay? No. Hell, I don’t even know what okay looks like or feels like. When people ask how I’m doing, I don’t lie and say I’m okay when I’m not. You know how cashiers and customer service reps often ask how you’re doing? My new response is “I’m too honest for that question.” I don’t play the game and say “I’m good.” or “I’m okay.” because lying is not my first instinct, and when people lie to my face, I look them in the eye and say “Do you want to try that again?”

As I constantly have to explain to other people, my ties in life are different from theirs. My Grandparents are gone. My parents are gone. I have a handful of cousins I am close to, and in truth, I don’t feel like I can discuss my life with them because they’re so wrapped up in their own lives (quite frankly, it’s ALL I hear about. Sometimes they talk at me, and don’t even ask how I’m doing. This can go on for months at a time.). I recently lost my Great-Aunt, who was the last tie I had to my father’s side of the family in this country, aside from my cousins (her grandchildren) who I am currently trying to tune-out because they’re stressing me out with every phone call or text message. I haven’t heard from my brother in months and constantly live in fear that I will get a phone call from a hospital, the police, or the country coroner’s office. I come out of my skin every single time my phone rings and I don’t know who the caller is. Every day of my life, I question my existence. Between migraines, the physical pain, and the emotional pain, there doesn’t seem to be much of a point in sticking around. Why would any sane person allow themselves to go through this kind of torture day in and day out?! Suffering to this extent is inhuman. I wouldn’t allow Cat or Kitten to suffer like this, so why am I allowing myself to live in such a manner?

I used to stop myself from acting on these thoughts because I was afraid my brother would be the one who found me, and I couldn’t do that to him. His best friend committed suicide in 2005 and it left him devastated. I didn’t want him to find his sister dead; I was certain it would break him. Especially after we lost our parents. My brother isn’t me; he’s not the strong sibling, nor will he ever be. One of my best friends lost her brother to suicide, something none of us could ever have anticipated, and she has told me that no matter what I am going through, it’s a permanent solution to problems that are “temporary”. However, you can’t say that to someone who has spent the majority of their life in agony and who rarely, if ever, knows happiness.

Nothing I’m going through is temporary. It is all quite permanent and very real. I don’t think my other friends are aware how much I’m hurting, nor has anyone ever inquired. I’ve only recently realized how one-sided our conversations are. I support and strengthen them, but who supports and strengthens me? My relationships and friendships are solid, but I will always be the black sheep. I’m needed when I’m needed, but where do I go when I’m in need? To a doctor and/or a licensed therapist, and right now, I’m not okay to sit with a therapist weekly, or even bi-weekly. I am gutted, and I don’t have the emotional capacity to sit and discuss anything when I feel like an empty shell. I don’t like wasting someone else’s time, nor my own. My last two therapists dropped out of my life during really awful periods when I most needed support. The last one disappeared completely during one of the worst times in my life. I genuinely trusted her. I’m not ready to be hurt like that again, nor will I allow it. She was the only therapist I’d ever liked, and her not so much as returning a call or referring me to someone else was incredibly unprofessional and rude. It’s something I’ll never forget or forgive. There is always a professional way to do something. It’s one of the first things I learned in business, and I was eight years old at the time! I cannot forgive stupidity when I know that the other person knows better.

So my appointment went well, and I’m glad for that. I genuinely DO like this doctor. I wasn’t kidding about following him to China. That’s one of the highest compliments I can pay him. I’m certain he knows it was genuine. He will be lucky if I don’t super glue myself to his leg at my last appointment, and for some reason the image of that in my head is hysterical beyond words. Oh, Lord, RELAX! I’m joking. Sort of.

He’ll be getting one hell of an online review when I get a moment to collect my thoughts. Not because I have to write one, but because he deserves it. I’ve never written a review for a doctor before. I’ve recommended my former neurologist to people in need (He is genuinely a kind, caring doctor who did his best for me.), but this is different. I want him to have an amazing review moving forward on every website I can slap one on, and I’m just insane (and sane) enough to get one posted everywhere known to man. I don’t actually know anyone who could write something better, and that isn’t ego talking, it’s mere fact.

For obvious reasons, I have protected his name this entire time. As I’ve said before, many times, “privacy is not a setting”. I adhere to laws and boundaries, even if some of them are personally defined. After all, this is still the Internet and while I do talk about a lot of things openly and honestly, I’m also an incredibly private person.

Even when he stops being my physician, I’m still going to feel protective of him; I discovered this accidentally. A family member made some outrageously derogatory remarks to me about him while I was in the process of writing this, and I’d never felt more defensive and protective of a doctor in my entire life. You would have thought she’d taken a shot at my mother, which is one thing that, to this day, is very likely to get you punched in the fucking face. Thus far, no one has deigned to do it to my face. One person made the mistake of doing it via e-mail, and I decided it was an act of pure cowardice not worthy of a response. People know that if they did it to my face, I’d kill them and tell God it was an accident.

My reaction to this family members’ truly insane comments regarding my doctor were to take a deep breath and pause before saying “Did she actually just say that to me and think I’d accept it?” However, she had, and my exact words were “I’m a very good judge of character and unlike you, I trust my judgment and intuition. Number two, this is someone you have never met, spoken to, or spent five minutes in a room with.” I was SO angry, she’s damn lucky she was in another state, or there’s simply no telling the level of fight it would have escalated to.

The following day, she casually contacted me like nothing was wrong, and I informed her that it was incredibly disrespectful and inappropriate for her to take a shot at my doctor and attack a stranger based on her personal experience of working in a hospital. You can’t go around assuming that every doctor is egotistical and arrogant. Far more was said than just that, and I refuse to give the insanity credence by repeating it. However, nothing I said was negative or led her into this series of hateful, rude, callous, inappropriate, man-hating remarks. She knows less than nothing, so it came completely out of left field and I was NOT having it. She did end up apologizing to me for her outburst, calling it an “occupational hazard” from watching the behavior of the doctors who work at her hospital, but that’s a blanket, bullshit excuse and she knows it’s completely unacceptable to me. I’d love to chalk it up to her usual idiocy, but much like attacking my work, which I’d never allow anyone to do, you do NOT attack this doctor. I may have been mad at him for an isolated incident which she doesn’t know about, but I did not disclose anything more than facts when I wrote about it, and she doesn’t read anything I write. This is someone I respect. That means he’s done something to earn it.

When you find a good doctor, however brief the encounter may be, it’s important to let them know which qualities they possess that they need to hold on to in order to survive as medical professionals. They might lose sight of that from time to time, so a solid reminder will remain in the back of their minds. Like anything else in life, there are always things that bring us back to the here and now and remind us of who we are during challenging times. No matter who we are or what we do for a living; we all have those moments. No one is perfect.

It’s a sad jungle out there. Finding someone amazing who cares and genuinely wants to help people, and isn’t egotistical, is very similar to finding a unicorn. Apparently, they DO exist in the medical community if you search hard enough. There’s an immense difference between having a healthy ego and having a Donald Trump complex.

In one of the most screwed up healthcare systems in the world, anyone that becomes a medical doctor in the United States has just completed four years of medical school and, depending on their chosen field, there is a 3-7 year residency or fellowship process after graduation. It puts the average physician over $175,000 in debt, if not more. Yes, they are choosing to become doctors, and no, most of them don’t go around earning our respect as patients for many reasons. One of which is insurance companies dictating far more than they should be allowed to. This has been going on for years, though. It is NOT all related to the ACA. However, there are still so many good doctors out there. Bedside manner isn’t a given. It is often learned, and so much more is learned by taking time out for your patients. In their efforts to help people, they can become doctors that focus solely on research or they can practice medicine based on their field choice in the state(s) in which they are licensed.

What makes this doctor stand out from all the rest? He’s fully engaged. He’s not distracted, dismissive, or daydreaming while you’re talking. He is 100% in the room. He’s not only listening, he hears you. Given the chance; he never would have given up on me. He’s simply too determined. You can fix broken bones, and I am using that as an emotional metaphor. Emotional bruises heal, eventually. But a doctor not giving a damn whether you make it or not? That stays with you forever. I know, because I’ve lived through a plethora of doctors who didn’t give a rat’s ass about anything, least of all me. I was never a person or a patient. They couldn’t be so bothered to return a phone call, or do anything other than rush me in and out of their office. They had no intention of ever helping or making a difference, but if you’re not an experienced patient, you don’t know the signs of what separates a doctor from being a licensed physician to someone who has greatness in them. I’m well-versed, so I do know the difference.

I lucked out. I found the needle in the haystack on my first try here in Massachusetts, but he is leaving, and I’m all out of super glue. I am glad our paths crossed. I think I’m a better person for it. Broken, pretty mess and all.

Yes, he knows I’m a writer and that I wrote the angry piece. I was incredibly honest with him. I will not be so forthcoming with the next doctor, or any others, up the road. Trust is something you earn, and I cannot give of myself again. He is getting a copy of the first piece, and this one, at my last appointment. He’ll probably never know how much his ability to care and treat me like a human-being undid damage every other doctor did along the way. All I can offer is my respect, appreciation, and heartfelt thanks.

Aut viam inveniam aut faciam-“I shall either find a way or make one.”

copyright © 2017 by Lisa Marino & Blackbird Serenity, LLC. ALL RIGHTS RESERVED.

Is There A Time Limit On Grieving The Loss Of Your Health?

https://themighty.com/2016/12/grief-timeline-getting-sick/

I think it’s safe to say no on this one. There’s no time limit. It can remain a shock to the system for quite some time.

I tried really hard to have a good day today, but towards the end I couldn’t walk properly and I was struggling with my vision and breathing. I couldn’t think. I came home and looked in the mirror for some visible sign that I was well and truly “done for”, but came away dejected because I see what everyone else sees; someone who visibly looks healthy. It’s really frustrating. 😦

The Psychological Impact Of Having To Ask For Help

https://themighty.com/2017/05/mecfs-psychological-impact-asking-for-help-illness/

I think this is so important for people to read and understand. Last weekend I was asked why I was pushing myself so hard. Here’s the answer: No one else knows precisely how I do things, and no one else knows how difficult it is for me to get these things done. They don’t have to live with my pain for a second. I’d prefer to blame myself, and only myself, if there is a missing item or a mistake made (I made a big mistake a few weeks ago and had to return two items that I would normally NEVER screw up, but all it took for me was stress, distraction, and a single moment of feeling overwhelmed.).

I may have horrible days, like today, when I did have to ask for help, but there are many 10+ pain level days when I force myself to grocery shop and run errands because no one else will ever be as thorough as I am. Yes, it bothers me, but I don’t have much choice. When I DO ask for help, people act like I just asked for ten million dollars, so I don’t accept help any more unless someone offers and I feel the offer is genuine.

 

Pull The Trigger

Almost two weeks ago, after an appointment with the Certified Nurse Practitioner at my doctor’s office, I went into the afternoon with one thought in mind: What are my triggers? It began to nag at me, until a few things dawned on me.

I keep a food journal to track what I’m eating each day. I’ve done this for a little over a year now, mostly because I wondered if something I was eating was causing my migraines to become worse than they were prior to my move. After going over it repeatedly, I genuinely don’t think my diet is triggering me in terms of stress or my migraines. It’s simple, boring, repetitive, crazy healthy (for the most part), and I’d probably murder you for a Triple Classic with bacon and cheese from Wendy’s and a baked potato with extra sour cream if I went within a minute of the place. Notice I didn’t say a mile. I haven’t touched fast food in almost a year and a half. I catch myself missing it when I’m stressed, or a few days a month when I just NEED a change of pace.

The CNP was exceedingly clueless as to what is causing my blackouts. I would refrain from blonde jokes temporarily, but she opened the door wide open the following morning when she called and yelled at me about the medication that was prescribed to me after she’d left for the day. And by yell, I mean she has a very shrieky voice and it is offensive to my ears, especially when it goes up an octave and she’s actually yelling. She blew off my lab work like it was no big deal when I questioned it, thus leading me to wonder if she can read lab results because I can, and I’m not a medical professional. I questioned the issues because they’re exceedingly visible (Elevated white count, which is NOT uncommon in Fibromyalgia sufferers or in anyone with an autoimmune disease, except I never used either word in my visits to this doctor’s office. I knew my blood work would speak for itself.) and her answer was “Can you like pop in next week and re-do it?” (Said precisely like that.) Um, NO. I’ve got a hematoma that spans three fingers on the inside of my left forearm that IMMEDIATELY bruised. I hadn’t even left the office and it was BLUE, which never happens to me. I’ve applied Arnica gel to help speed up the healing, and it’s looking a lot better now. It went from looking like someone had taken a mallet to my arm, to looking like a trauma version of Saturn, to looking like a heart, and now that it’s almost gone, it’s just plain ugly.), but I’m not rushing back for blood work any time soon. If you aren’t concerned enough to call me about that, which my physician did NOT, then I’m not concerned enough to come running in. In fairness, my doctor should have looked at it and called me to go over it. That’s what every doctor should do if something doesn’t look right. I went in running a fever and that was also blown off like it was no big deal. “It must be because it’s a warm day.” No, that’s not it, USE YOUR BRAIN.

The entire appointment was useless. I didn’t need to come in to tell you I could fail a baseline test, or that my neurology appointment couldn’t be moved up. You didn’t “save me” a trip to the emergency room by having me come in to “assess the situation”. And for the record, they thought I’d come in because of my migraines, NOT because I’m blacking out and losing time almost daily. Why would I go to a primary care physician’s office over migraines?! I wouldn’t.

A smart person would have ordered an MRI or a CT scan ahead of my neuro appointment, just to be on the safe side, but this chick didn’t even have suggestions (Did you know CNPs earn roughly $98,000 a year when they are part of a medical practice? Factor that in and you’ll be able to tap into my disgust.). I was so distracted that I forgot to ask about new anti-nausea meds and a muscle relaxer. It only took three phone calls for that to get cleared up.

When she called to yell at me about the medicine, it was because, in her words, I should “only take the muscle relaxers at night”. I had to bite back the “Duh!” that I was thinking when what I almost said was “Chill, blondie! I wasn’t prescribed an entire bottle of them. I was prescribed fifteen pills.” I paid roughly .30 cents per pill because the doctor who wrote it (not mine) was afraid to give me a full prescription. That annoys me, because it’s more cost effective for me to have a prescription that is a month of medication, as opposed to a few days worth. The normal daily dose for this drug is 80 mgs. I was prescribed 10 mgs. One pill does NOTHING. Two is slightly helpful, but 30 mgs does the trick and helps all of the muscles in my body ease up a smidge. I am going to be extremely honest with my doctor about that when I call for a refill. I don’t particularly like the drug, but if it helps my muscles not be stiff when I wake up, then I’d prefer to stay on it until another doctor says otherwise.

The anti-nausea medicine is for twenty-one pills, which is a little more practical. The whole “passing the buck” onto the neurologist pisses me off. Implying that they could get me in sooner to see him was obviously not handled properly, if at all. The neurologists’ office told me when I got the appointment that this was the first opening available with any of their doctors. There were literally two times on the same day, and I chose the earlier of the two. I took what I could get. I know they’d contact patients if they had cancellations, but obviously, there’s no room. As a first-time appointment, I expected to wait. I’d rather wait and actually get the doctor’s full attention, as opposed to deal with a rushed physician who is completely overbooked.

In all of this craziness, I learned that my ultimate trigger isn’t something I’m eating, but an actual person. Anyone who seems to gain from your misery, pain, isolation, and fear that something is seriously wrong with you is just plain evil and is someone you should probably avoid. It’s not often I find myself hating people, but I realized I hate how I’m being treated. I hate how anyone can deny how horrible their treatment of me is, and in the classic deflection technique, tries to turn it back on me. That’s not love, it is hatred, and it is so palpable, it enrages me.

This person is the ultimate “self-harm”. Rarely is a kind word spoken to or about me, unless there’s an insult thrown into the mix. I’d elaborate, but it chaps my ass to the point where I just can’t. Repeating hateful things said about me that aren’t true is giving the other person credence. When you tell someone who is chronically ill, and has been for the majority of their life, that they “Don’t want to get well.” because they didn’t go running to pick up two prescriptions the second they were filled, or ask for someone else to pick them up, there’s not a whole that that you can say to that, is there? It’s a crock of shit. If a muscle relaxer and anti-nausea medication would cure and/or “heal” me, then I’d have been on both years ago. Is waiting 48-72 hours going to change anything? No. Not one bit. Those medications are not cures. They’re temporary solutions to long-term problems. They will not magically heal me.

When you genuinely care about a person, you don’t ever want to cause them harm with vicious, hateful words. But now I see what others have been trying to tell me for probably the past twenty years; this person doesn’t love me. Maybe they think they do, but when you love someone, you want what’s best for them. You can always say things without being cruel, hurtful, or harmful. If you can’t, there’s something wrong with you.

When you realize that a person in your life, however close or not, is a serious trigger for you, you need to be self-aware when you’re around them, especially if you’re left without a choice. I feel my best when I am completely away from my triggers, both human and otherwise, but I know that’s not always a possibility for everyone. Hell, it’s not a possibility for me at the moment, but at least I’ve fully identified the target and know how to deal with it.

The neutered, “I’ve been to therapy” Lisa would disengage, say nothing, and walk away, but would internally be enraged. However, I’ve decided that particular version of me isn’t acceptable in my daily life any more, whether I’m going to therapy or not, so I’ve decided to let the other person (and people) know that their mouth is a problem and that I expect them to keep it in check with me. Yes, they will likely slip up here and there, but it’s my duty to correct them immediately, or the issue will get bigger and continue to fester. It’s easier for me to say what needs to be said and shut it down, so I am able to let it go. Mostly because, I don’t think I’d be a very good inmate.

When coping with triggers, it’s important to first identify them. If you are able to write them down and nail them the first time you try, that’s good. If you need to nail them down in therapy, or over time, that’s good, too. It shows growth. It comes down to “What/who hurts me the most.” I see a lot of people mention family issues as major triggers, or their wife/husband/partners, friends, children, etc., and all of that is normal. You definitely want to write those down if they’re affecting you and find a way to turn it around, but also look at your past and present, as well. You might even want to look into future things you know will take place that are causing you some form of triggered pain.

Ultimately, we’re all different. I’m not Zen enough to ignore rudeness and insults that are blatant and feel personal. I can let a lot fly, but there are things I MUST call people on. And if I happen to remain silent about something, it will eventually come out at a more appropriate time. I do believe in the “write it out” philosophy, too. I am lucky in that 99% of the people who effect me do not know I write and if they do, they don’t read my work, so I can come here any time and write exactly what I’m thinking or feeling. I can be my authentic self, and if they ever stumble upon it (they aren’t interested, so the chances are slim to none), they’re probably too stupid to know who or what I am talking about.

When I used to write about friendships, one of my best friends thought everything I wrote was about her (on occasion it was. She should know better than to piss me off or push my buttons.), but I never named names, and I never would. Most of the time what I am writing is a generalization and pertains to no one in particular. If I have to resort to calling someone out by name, that’s a pretty sad day in my writing career, but I’d do it in a New York Minute if I had no other choice. Otherwise, I like to keep my integrity in check.

From here on in, I am willing to “pull the trigger”. That’s my analogy for shooting down someone or something that is causing me any form of harm or emotional pain. No more.

I’ve been through hell and back. I have the scars and the ashes to prove it, but I’m done feeling victimized and/or excluded from my life. I’m in control. I am the boss. If you step out of line, prepare for the warning shot. I only warn once.

‘Pull The Trigger’ is copyright © 2017 by Lisa Marino & Blackbird Serenity, LLC. ALL RIGHTS RESERVED.

Life Is Full Of Everything

Nine years ago today, I lost my mother. I can’t always say it out loud, I can’t always talk about it, but I honestly have no clue how I’ve survived this long without her. Not because I need someone else in order to survive, that isn’t it, but because life is full of people that mean something to you, or at least, that’s what life should be.

Stupidly, I sometimes expect certain people to be a little more like my mother, and they aren’t. On a scale of my Mom to them, they’re epic failures. They don’t mean to be, they simply cannot be her. No one can. Irreplaceable people are precisely that; irreplaceable.

I have spent the past year and a half holding on tight to everything near and dear, and I’ve been a failure. I have needed help, and I’ve allowed my health to fail in the process. But ultimately, I have actually needed kindness, compassion, understanding, a person who listens, and someone who can put me first sometimes. No one ever does. Not for long.

When you go from being someone’s daughter to just being a person, there is a great shift. Suddenly, nothing is right in the universe, but there’s no way to fix it. And so, you move from one thing to the next at your own pace, trying to succeed and make a person proud, a person who is no longer here. Inevitably, there’s nothing you can do, because life is full of everything.

People, places, things, photos, shared moments, building memories. That’s life. It’s laughter, misery, friendship, companionship, love, and so much more. I went from being a daughter to just being. I’ve spent nine years trying to figure out who the hell that is. I still have no answers.

Hours before her death, the last words my mother spoke were “I love you, too.” I’d been sick for weeks at that point from Fibromyalgia pain. I couldn’t get out of bed, couldn’t move, and I had missed Mother’s Day the weekend before due to pain and a migraine. I felt like the biggest piece of crap on the planet. So getting the call that my mother had gone into cardiac arrest was like lightning striking through my entire body. I remember exactly what I was thinking and exactly what I said. I also remember thinking “This cannot be happening. This can’t be my life!”

After losing my mother, I got a brief respite for a few years before more damage could be done to my psyche. But as I sit here today, I realize some damage may be irreversible.

When you’re sick and you’re hurting, Google is your worst enemy. So tomorrow, I see my doctors’ Nurse Practitioner to see if she can be of any help in figuring out why I am suffering to the extent I am. Unfortunately, I suspect the only thing I will come away with is additional referrals to more doctors and maybe a prescription, or two. While there, I’ll get my lab work done. That should be an interesting experience. I hope someone reminds me to pack a snack. Especially since it’s going to be over 90 degrees tomorrow and I’m basically the Wicked Witch who will melt, with infinitely better skin. 😉 It’s 91 today and I can barely breathe.

Today has been a shaky day for me. I’m unable to function, unable to think, and it took repeated phone calls to find out what I was forgetting (and G-d help me, I WISH I had just let it go because when I did find out what I’d forgotten, knowing something wasn’t right with my memory, I wanted to crawl into a hole a die. I have less than 20 hours to solve the problem and quite frankly, I’d give up completely if I didn’t feel that not giving up was the right thing to do.). That I could not remember something from last week definitely makes me question what the hell is going on inside my brain. I want answers, not more questions. I’m terrified knowing I, once again, have to ask for help and that I might very well get shot in the process. It has occurred to me that, quite frankly, few people care to have your back when you’re down, but damn, they want you to have their back when they’re in the same place as you. They want you to fix their problems and make everything better, but are very happy to cast you aside once all is well in their own world. It doesn’t make you feel very good, and they’re, unfortunately, too stupid to understand that something isn’t right and they should reach out.

If we’re close and I say “I’m fine.” or you ask how I’m doing and I don’t answer, I urge you to look deeper. It’s extremely rare for me to say “I’m fine.” or “I’m okay.” when I’m not. If you dismiss it and take it at face value, then you’re showing me that you really don’t give a damn, because you’ve just accepted a blatant lie. I can’t remember the last time I was “fine” or “okay”. I wish people weren’t so self-absorbed and took a minute to really connect sometimes. No matter how good or bad my life may be, I still check in with people. If someone tells me they’re fine and I sense otherwise, I call them on it. That’s the mark of a true friend/family member.

I rarely go to the doctor. I’m not fine. I’m not okay. And quite frankly, I’m afraid for my life and sanity.

Life may be “full of everything”, but right now, life is empty, scary, lonely, and heartbreaking.

Here’s hoping my prayers are answered and that someone, somewhere, is looking out for me.

Lisa-blue

copyright © 2017 by Lisa Marino & Blackbird Serenity, LLC. ALL RIGHTS RESERVED.