This is disgustingly real. There are doctors in many states that will refuse to treat you if you’re ten pounds “overweight”. They don’t treat you as a person, they treat you like a number on the scale that somehow makes them feel superior. It is unacceptable behavior. Don’t EVER be afraid to get a second, third, or even fourth opinion. You are your own best advocate for your health. If a doctor is disrespectful, find one who has their shit together. Don’t pay anyone who cannot treat you like a human-being.
Year: 2015
Fog
When I went to bed this morning, the fog was pretty dense behind my house. It rolled in out of nowhere. I think it’s a metaphor for what I am going through at the moment. “It happened out of nowhere.” Yeah, that sounds about right.
I feel nothing. I’m an ocean-cleansed shell. For almost two weeks now, I’ve continued to say “I’m fine.” I’ve probably been saying that for longer than I realize. “I’m okay” or “I’m fine” are often the truth, but sometimes it’s me dismissing myself when I shouldn’t. I didn’t have to pay someone to tell me that in therapy either, I am working it out on my own.
Today is “Surgical Thursday”, and I feel NOTHING. When someone takes their anger, frustration, and fear out on you systematically over the course of several days, weeks, months, years, etc., you slowly lose the ability to give a shit. You might very well care, but today, I’m choosing not to invest emotion into what is happening.
My dear Uncle used to say “It is what it is.” I’d like to interpret that as “Let it go.” It’s much like Glinda, the Good Witch of the North saying “You have no power here. Be gone, before someone drops a house on you!”
Today, I am going to do my level best to focus on things I neglected yesterday. I am tired of being on the phone for hours, of texting until my fingers ache, and of updating people when it’s not my responsibility to do so.
I politely asked my brother to have the surgeon call me after the procedure is over (he is the last surgery of the day, so I wasn’t asking for a miracle. It is commonplace for a surgeon to call the family if they cannot be present or speak to the family if they’re in the surgical waiting room.), so I’d know how it went. He dismissed me and said he’d call me himself. I think he’s over-reaching his expectations on that level. The kid thinks I’m going to be his caretaker/caregiver for many months of recovery. He’s wrong. Disrespect me once; shame on you. Disrespect me twice and you can go fuck yourself. When I hang up on a person twice in one day, it’s not because they’ve been polite and kind, it’s likely because they’ve been an asshole.
When I spoke to Case Study #2 last night, I vocalized this and he said “Then you don’t have to. You’re not obligated to take care of anyone who cannot see all the good that you do. You don’t need to be abused for caring and showing compassion. If someone cannot clearly see you, then they do not deserve you.” You might very well know all of that inside your soul, but having that reaffirmed by someone, at times, is quite gratifying. Everyone else has told me “You’re exhausted, you need to eat and take care of you.”, but no one was willing to address the fact that I don’t deserve hostility. I only have so much compassion before I shut down and say “Enough.”
Concern and compassion don’t come from selfish, self-serving places. They come from a place of genuineness. If someone repeatedly shows you that they do not respect that, or you, it’s perfectly fine to say “Fuck off!” (Or whatever you, personally, prefer to say.)
And so my day begins… There is writing to be done and creativity to unleash. Here’s hoping it is a productive day for one and all. If you are participating in NaNoWriMo, I wish you oodles of good luck. 🙂
Personally, I’m certain that over a hundred thousand quality words come out of my mouth on a daily basis, but that doesn’t mean they’re there for free. 😉
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
You Must Be Willing…
“You must be willing to take whatever pieces of life come your way and arrange them so that they work with and for you rather than against you. The key is to be willing. The willingness to arrange rather than complain or make excuses will pay off.”
— Wayne Dyer
People Who Are Unable…
“People who are unable to stand within the dark places of life, those who are always running towards their happy places, are the same things as candles without flames. There is no worth in a candle without a flame, and we only add the flame when there is darkness. Without darkness, there would be no need for warriors and angels. Warriors are not made because the whole world is happy and angels were not formed because there are no demons. Be of worth, have a flame.” -C. Joybell C.
Sleep Deprived
I spent Sunday running on less than three hours of sleep. As you can imagine, it was an incredibly long day. I pushed myself to go to the hospital. I was surprised I wasn’t in and out in twenty minutes, as hospitals are more than a little traumatic for me. I managed to stay for quite a while. It was, quite possibly, a first. It might have been because the CICU rooms are private (another first), it might have been because it’s practically empty in there (It might very well have been the quietest hospital I’ve ever been to.), or it might have simply been a week’s worth of stress and concern relieved, to some extent, when I saw that there weren’t fifteen different contraptions hooked up to one person. Normally when I see that, I never see the person alive again. In fact, my brother has already informed all of the surgeons, doctors, and nurses NOT to allow me in if he’s hooked up to a multitude of devices. He’s afraid I’ll lose it.
As of yesterday, my brother is stable, but they’re trying to adjust his medication because he is losing electrolytes at a rapid pace, which is based solely on the medication he is receiving. Tests are being run in earnest so that they can move forward with surgery. Initially it was scheduled for this morning, but late yesterday afternoon a doctor came in and told him it was canceled so they can monitor him for several more days and adjust his medication before moving forward. That information was jarring. First he told me “Surgery is at 7:00 tomorrow morning.” and a few hours later he tells me it’s been canceled and explains why. I went through a myriad of emotions that were quite exhausting. Now obviously, this isn’t about me, but I am still greatly affected. His mood is better, and he was really happy to see me. He said it gave him strength to face what is coming.
Now that I know the direction they’re taking, I realize how sleep deprived I am from last week, and in general. I grocery shopped Sunday afternoon like a staggering zombie. I wasn’t entirely sure what I was buying, either. I saw a list in front of me and I got most of what was on the list (I still have to go back in a few days and get everything I couldn’t handle in the moment.), which I realized yesterday morning, but I was truly not functioning on all cylinders. I’m so stressed that I require reminders to eat, or I’ll simply feed Cat and Kitten and ignore my own body’s needs.
Cats aren’t on Daylight Saving Time, which is an adjustment for us humans. They’re waking me incredibly early (two hours or so earlier than normal.) to be fed, they’re asking for “dinner” at 3:00 in the afternoon, and Cat likes to screw with me by walking away from her food at least once a day. She patiently waits for me to “serve” them and then runs and hides as I try to scoop her up and put her in front of her plate. I can only catch her if she wants to be caught. She’ll wait a few hours and then roll a ball into my room while I work or drop a toy at the door. She’ll stare at me with her big, gold eyes and implore me to understand that I need to stay with her while she eats, that she requires protection from “the little one”. I picked Kitten up the other day to let her know her behavior was unacceptable and inform her that she’d already eaten and needs to leave her sister alone so that she can eat her own food in peace. She’s not “little” any more. The kitten behavior remains in her energy, curiosity, affection, and sweetness, but she felt like a small sack of potatoes. She could easily pass for a small turkey if she sits the right way and yet I will probably learn in a few months when she gets her shots that she’s about ten pounds. That’s the normal weight and size she should be for now. Her energy and weight will adjust and she’ll either remain the same weight or lose a pound or two. Torties are like thoroughbred horses (some, not all). Their running, jumping, troublesome, adventurous natures do not stop as they get older. Their personalities are more human, but they seem to take the whole “nine lives” thing seriously and do their level best to test them out. You either have a stroke watching this behavior or you get used to it. I try not to react too much since she is my second Tortie. Surprisingly, they are quite similar in many ways.
This week, despite only being Tuesday, feels like a cosmic joke. I write, I take care of normal things, but I’m not truly present in any way. There are always e-mails, phone calls, and texts at the moment. There are friends and family overseas that are deeply concerned and feeling guilty that they’re not present. I did not tell a lot of family members because it was against my brother’s express wishes and quite frankly, they don’t need to know. If people don’t care about you year-round, then they should not be allowed to lap up your pain and misery simply because it makes them feel superior in some way. I don’t understand people like that. I don’t find anyone’s pain amusing. I still have compassion. And sadly, if any of these people needed me, I’m not 100% sure I’d make myself available any more. The people who are always there for me know my heart and they know I’d take a bullet for them, but anyone that cannot stand by me in good and bad times, whether we are blood-related or not, needs to fuck off.
I’m not very receptive to excuses. In life and death matters, people should be present. My Aunt told me her children (my first cousins, all of whom should know better, but apparently my brother & I are the only ones that inherited brains.) didn’t attend my parent’s funerals because their children were sick. We’re not talking about infants, so my thought process was “Then ask a neighbor, a friend, or a fucking babysitter to watch them for two hours. You do NOT pretend like your Uncle and Aunt didn’t pass away, and by all that is holy, do NOT show up a year later and pretend like I am going to accept your presence as acceptable behavior.” If I don’t go to a funeral, it is probably because I wasn’t given enough notice, not because I am being disrespectful. You don’t ask a third-party to e-mail me about a funeral. That’s not how you do things like that. And if you do, screw you, I won’t be there.
My brother isn’t as fierce as I am. If a person doesn’t call or visit him in the hospital, he doesn’t take it personally. He told me last night that only a handful of people matter, and that I’m the one who matters the most, no one else. Even still, it makes me angry that the people who should be supporting him are not. You definitely see people’s true colors during hard times, but the truth is much more easily faked during good times. I don’t respond well to that. I know when people aren’t being genuine. There’s a huge difference between being nosy and legitimately caring about another person’s well-being.
And so, I have reached a “point of no return”. I’d rather cut the herd now, as opposed to continue dealing with fake crap. There are a few people who are about to be torn new assholes, and quite frankly, it doesn’t bother me in the least. No one deserves to deal with people who spew crap out of two different ends. No one.
I know many of you can relate to the family and friend dynamics I am talking about. It’s disgusting, but I think overall, we are all better off cutting people out that are cancers in our lives.
copyright © 2015 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.
What You Say To Someone With Chronic Pain And What They Hear
http://www.buzzfeed.com/laraparker/you-dont-look-sick?utm_term=.wuq8mPaX2#.kc6pvj4ok
Actually, I hear the words and the tone and I am not misinterpreting the additional shit that isn’t being verbalized.
I am always told “But you don’t look sick, you look amazing.” I highly suspect these people are blind.
Comparison Is Always…
“Comparison is always the beginning of the death of self-love. Comparison is a daily brutalization against the self-esteem. Comparison sets the mark on its daily measure toward inevitable failure and inadequacy. It doesn’t matter how beautiful you are because there is always someone more beautiful. It doesn’t matter how intelligent you are because there is always someone more intelligent. It doesn’t matter how much money you have because there is always someone with more money. It doesn’t matter how successful you are because there is always someone more successful. You see, this is a game you can never win. It does not matter how real your perceived deficits are; what matters is how you give life to them and amplify them through comparison and judgment against yourself. You are the supreme adjudicator of worthiness in your life. You decide how satisfied you are with yourself; no one else. You must cease all viciousness toward yourself once and for all. You can only evolve beyond the vicious self-analysis and violent comparison to others through loving yourself. If you can silence your constant judging you can have deeper levels of love and friendship with others and yourself.” -Bryant McGill






