Chronic Pain Awareness Month: Part II

I had x-rays done of half my body over the weekend. My results show nothing new (The radiologist was able to compare two to previous x-rays from 2018 and 2019.), and they completely denounce a phone diagnosis from late May; a diagnosis I did not believe for a second.

Even with natural pain remedies at hand, I’m suffering. They wear off so suddenly, you have no time to regroup. Despite having a prescription on hand, I haven’t touched it other than to verify the count. 😦 The deeper reality is: I have no idea when or if I will be prescribed pain medication again. I’m not “stocking up”, but I am saving them for “the worst”. The worst can be at a moment’s notice, tomorrow, or a week from now. It can be so sudden, so I am trying to be prepared.

My doctor is inconsistent regarding treatment methods, and he is out of the office this week. I sent him a brief e-mail letting him know I’d discuss this with him when he is back in the office.

Reading the x-rays was upsetting. Slight changes in the cervical spine, where I’ve already been diagnosed with arthritis. Slight changes to lower lumbar spine, where I was hit in the lower back in January of 2019. The radiologist recommended additional imaging and tests to rule certain things out. My doctor e-mailed a reply and glossed over this completely. He tried to say I have a pinched nerve; which did NOT show up on the x-rays. I came away angry, because if you’re going to make a claim like that, I want imagine to show I have it. I don’t want to be told I should, “Have a nerve block performed.” Where would it go?!

I’m tired. Tired of suffering. Tired of being in pain. Tired of the isolation. Tired of not being able to talk to too many people. And tired of the media hyping up ADDICTION in order to punish patients who suffer from chronic pain. I’m a patient. I have never used heroin, cocaine, illegal Fentanyl, ecstasy, you get the drift. I’ve never been attached to drugs; regardless of their status. But I do believe the DEA needs to get the fuck away from doctors and mind their own damn business regarding how patients are treated in terms of access to medication.

Every single day, I worry if I will be a device victim. Someone who is told, “We can put a pain pump in and refill it each month.”, in order to restore me to 25-50% quality of life. There are other things one has to worry about when a device is installed into their body; like leakage. I know people who’ve nearly died and had to sue the device company over the medication overdosing them, or not dosing them properly at all. Devices aren’t an exact science, despite what they will all have you believe. Their safety comes into question, and I know a lot of people with spinal cord stimulators who are waiting to have them removed because the device completely failed them. They are marketed as the “answer”. They are not.

I keep hoping for the right doctors, but today, I feel dejected.

What is a sympathectomy and can it reduce the pain of CRPS?

http://ehealthmagz.com/2019/01/08/what-is-a-sympathectomy-and-can-it-reduce-the-pain-of-crps/

If it involves needles, do your homework. If it’s surgical, do your homework. If it’s an implant of any kind, PLEASE DO YOUR HOMEWORK and look at failure rates. They’re ENORMOUS and you deserve better. Surgeons are always happy to make an incision, but you’re the deciding factor. It’s your body. We only get one.

When An ER Nurse Blamed My Weight For Chronic Pain

https://themighty.com/2017/12/emergency-room-for-chronic-pain/

Let the record state that if spoken to like that in ANY medical establishment, I would be doing an on-site report before a report to the state, after talking myself down from beating the fucking crap out of these nurses. People of all shapes and sizes have various forms of chronic pain. Many of us are former athletes. Being in pain and often unable to move, my own weight is not where I’d like for it to be, but I DO try. I have friends who tell me I am SO lucky to be able to walk. That scares me, because walking is sometimes all I’ve got. I really feel for the writer of this article. And I continue to be increasingly angry at the medical community at large.