I find myself unable to concentrate this afternoon as I work on what I can only hope is my second to last draft. Everything is coming together nicely, but my health is taking an unhappy turn.
It only took six and a half months, two applications (the first of which they lost and didn’t tell me about until January!), and a plethora of phone calls to find out that my health insurance has finally been approved! The utterly daunting task of finding a primary care physician, a neurologist, and someone who can actually diagnose and treat whatever the hell I have is overwhelming.
Over the past few years I’ve come to wonder if I was properly diagnosed with Fibromyalgia. Sure, I match all the criteria, but is that what this truly is? There are so many other pain-related autoimmune disorders, and disorders that are pain-related and neurological. I wasn’t tested for the majority of them and it’s been a while since I was retested for Lyme Disease. In turn, I’ve decided to meet a new doctor and simply give him/her a list of my symptoms. I’d need to have blood work and tests done any way, so I’d rather start fresh and not even bring the word Fibromyalgia up to a new physician. I want someone to come back to me with a clear-cut diagnosis and a treatment plan. I don’t want to be jerked around. Nor do I want to be judged or treated like a drug addict for saying it. I haven’t been on prescription pain medication in five years. If I’d been addicted, it would have posed a serious problem. Instead, it was just an asshole doctor playing with my life. A doctor who lied to my face when I asked about his residency at a local hospital (it’s how I was referred to him, by a nurse that had worked with him). He’s the only doctor in the United States with that precise first, middle, and last name, so why lie about where you did your residency? It’s common knowledge with a little research. That wasn’t the only indication that something about him was off. Being dropped as a patient without warning was the icing on the cake after his in-office behavior.
My migraines have progressively gotten worse. I am currently on day ten of a migraine that has destroyed me. Each day I’m a little more hesitant to eat or drink, because anything can trigger my headaches now, and I simply don’t see any correlation between food, drink, and when I’ll get slammed with a headache. I can be okay for an hour or two, and the second I sit down to put the information into the migraine app, I get slammed with horrific head pain, nausea, etc. These are clear signs that I’m NOT okay and that I need to make sure a brain MRI is done soon. The last one I had was of my brain and spine. The brain scan is usually 35 minutes with and without contrast, but the spine takes longer and the position is extremely uncomfortable when you suffer from serious lower back pain. I ended up having a claustrophobic panic attack inside the machine. That had never happened to me before, so this time, I am going to make sure I’m armed with Valium, Xanax, or whatever a doctor can give me so I don’t have a meltdown in the middle of the test. I’m not usually claustrophobic at all, but I now know that MRI machines and snow storms cause me to go into pre-panic meltdowns at the mere thought. It’s the exact opposite of who I am, so it’s hard to explain why this is suddenly happening to me. I hope that whatever this is, it doesn’t not require surgery. I did some research and didn’t like what I found. 😦 This is precisely why I hate when people say “You could have this…” and I end up Googling it to educate myself on something I’ve never heard of before, only to convince myself of the “What Ifs”. A case of the “What Ifs” will only increase ones’ stress levels and anxiety, so why do people say shit like that”?! It’s one thing if I’m with someone and they’re displaying signs of a heart attack or stroke, in which case I am getting them an aspirin (for the former) and calling 911, regardless of which situation it may be. I don’t have to be anything more than concerned, and get them medical attention as quickly as possible.
The nicest thing a person can say when I’m suffering is “I’m concerned. Make an appointment and I will go with you.” If you’re going to say one thing and not mean it, then I’ll go whenever the fuck I go, but it won’t be on your terms.
I sit here this afternoon, really praying I don’t end up in the emergency room or at Urgent Care over a migraine. I’ll pretend that the stomach pain I’ve had on and off since Sunday is an abdominal migraine. I’ve never been diagnosed with them, but the symptoms come with a lot of my migraines these days, depending on the severity. You don’t have to be a rocket scientist to put two and two together. In fairness, what will either place really do for me? Not a whole lot. I’d be lucky to leave with an abortive, like Relpax, and a referral to a neurologist. That doesn’t help me, but would they do blood work on site? Yes.
I’ve already had to cancel my appointment with a Physician’s Assistant due to transportation issues. I don’t feel good about that, but it’s a huge scheduling conflict. Not every appointment in my life can be at the crack of dawn, especially when I am having severe issues falling asleep and staying that way. An early morning appointment means no sleep for me until I return home, and that’s if I can sleep at all. It then screws up my schedule until a week’s worth of Melatonin can correct the problem. So unless I’m sleeping well, I don’t commit to appointments that early because I cannot guarantee I’ll be able to make them. If I’m awake at six in the morning, chances are I’m in pain or didn’t get an ounce of sleep. I’ve got allergy medicine knocking me out most nights, and kind that is marked “non-drowsy”, so I’m not being stubborn, but I am owning my limitations.
Normal walked out the door a long time ago. I can’t expect anything to give me my life back. All I can do is muddle through the pain and pray that someone will eventually hand me the correct diagnosis.
Wishing everyone who celebrate a Happy Saint Patrick’s Day! Have a good weekend, one and all.
copyright © 2017 by Lisa Marino & Blackbird Serenity, LLC. ALL RIGHTS RESERVED.